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2 | 2 | | SENATE DOCKET, NO. 676 FILED ON: 1/14/2025 |
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3 | 3 | | SENATE . . . . . . . . . . . . . . No. 1484 |
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4 | 4 | | The Commonwealth of Massachusetts |
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5 | 5 | | _________________ |
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6 | 6 | | PRESENTED BY: |
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7 | 7 | | Joanne M. Comerford |
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8 | 8 | | _________________ |
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9 | 9 | | To the Honorable Senate and House of Representatives of the Commonwealth of Massachusetts in General |
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10 | 10 | | Court assembled: |
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11 | 11 | | The undersigned legislators and/or citizens respectfully petition for the adoption of the accompanying bill: |
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12 | 12 | | An Act to reduce incidence and death from pancreatic cancer. |
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13 | 13 | | _______________ |
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14 | 14 | | PETITION OF: |
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15 | 15 | | NAME:DISTRICT/ADDRESS :Joanne M. ComerfordHampshire, Franklin and WorcesterMark C. MontignySecond Bristol and Plymouth1/23/2025Danillo A. Sena37th Middlesex1/24/2025Paul K. Frost7th Worcester1/24/2025James B. EldridgeMiddlesex and Worcester1/27/2025John F. KeenanNorfolk and Plymouth1/29/2025Sal N. DiDomenicoMiddlesex and Suffolk1/29/2025William N. BrownsbergerSuffolk and Middlesex2/3/2025Jacob R. OliveiraHampden, Hampshire and Worcester2/10/2025John J. Marsi6th Worcester2/11/2025Hannah Kane11th Worcester2/11/2025James K. Hawkins2nd Bristol2/11/2025Nick CollinsFirst Suffolk2/12/2025Kathleen R. LaNatra12th Plymouth2/14/2025Jason M. LewisFifth Middlesex2/14/2025Patricia D. JehlenSecond Middlesex2/19/2025Steven George Xiarhos5th Barnstable2/24/2025Bruce E. TarrFirst Essex and Middlesex2/26/2025 1 of 5 |
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16 | 16 | | SENATE DOCKET, NO. 676 FILED ON: 1/14/2025 |
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17 | 17 | | SENATE . . . . . . . . . . . . . . No. 1484 |
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18 | 18 | | By Ms. Comerford, a petition (accompanied by bill, Senate, No. 1484) of Joanne M. Comerford, |
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19 | 19 | | Mark C. Montigny, Danillo A. Sena, Paul K. Frost and other members of the General Court for |
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20 | 20 | | legislation to reduce incidence and death from pancreatic cancer. Public Health. |
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21 | 21 | | [SIMILAR MATTER FILED IN PREVIOUS SESSION |
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22 | 22 | | SEE SENATE, NO. 1330 OF 2023-2024.] |
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23 | 23 | | The Commonwealth of Massachusetts |
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24 | 24 | | _______________ |
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25 | 25 | | In the One Hundred and Ninety-Fourth General Court |
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26 | 26 | | (2025-2026) |
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27 | 27 | | _______________ |
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28 | 28 | | An Act to reduce incidence and death from pancreatic cancer. |
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29 | 29 | | Be it enacted by the Senate and House of Representatives in General Court assembled, and by the authority |
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30 | 30 | | of the same, as follows: |
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31 | 31 | | 1 SECTION 1. Chapter 111 of the General Laws is hereby amended by adding the |
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32 | 32 | | 2following section:- |
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33 | 33 | | 3 Section 245. (a) The department shall administer a comprehensive pancreatic cancer |
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34 | 34 | | 4initiative to provide coordinated pancreatic cancer prevention, screening, education and support |
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35 | 35 | | 5programs in the commonwealth. The department may develop and implement other initiatives |
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36 | 36 | | 6regarding pancreatic cancer awareness, research and care that the department determines will |
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37 | 37 | | 7further the purposes of this section. |
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38 | 38 | | 8 (b) There shall be a pancreatic cancer advisory council within the department. The |
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39 | 39 | | 9council shall be appointed and convened by the commissioner and shall consist of 13 members 2 of 5 |
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40 | 40 | | 10representing interdisciplinary fields including, but not limited to, oncology, palliative care, |
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41 | 41 | | 11medicine, nursing, social work, pharmacy, spirituality and the area of patient and family |
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42 | 42 | | 12caregiver advocacy, including health professionals having expertise treating pancreatic cancer |
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43 | 43 | | 13patients and their families; provided, at least 1 member shall be a representative of the Pancreatic |
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44 | 44 | | 14Cancer Action Network and 1 member shall be a representative of the American Cancer Society |
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45 | 45 | | 15Cancer Action Network. The commissioner may appoint other members that the commissioner |
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46 | 46 | | 16deems appropriate. Council members shall serve for a period of 3 years at the pleasure of the |
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47 | 47 | | 17commissioner. The members shall elect a chair and vice chair whose duties shall be established |
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48 | 48 | | 18by the council. The department shall provide a place for regular meetings of the council, which |
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49 | 49 | | 19shall meet at least monthly. |
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50 | 50 | | 20 Council members shall receive no compensation for their services but shall be allowed |
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51 | 51 | | 21actual and necessary expenses in the performance of their council duties. |
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52 | 52 | | 22 The council shall: |
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53 | 53 | | 23 (1) Investigate and make recommendations for a system to certify and approve hospital |
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54 | 54 | | 24systems that meet National Pancreatic Cancer Foundation criteria and post this information on an |
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55 | 55 | | 25appropriate state website and on advocacy organization websites. |
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56 | 56 | | 26 (2) Identify institutions and hospital systems which could meet the criteria in areas that |
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57 | 57 | | 27are geographically underserved and provide them with incentives to develop the necessary |
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58 | 58 | | 28resources to comply in order to assure that all residents have access to hospitals that meet the |
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59 | 59 | | 29criteria. |
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60 | 60 | | 30 (3) Investigate and make recommendations for the establishment of a multi-provider |
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61 | 61 | | 31consortium to develop and disseminate amongst each other best practice algorithms, decision 3 of 5 |
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62 | 62 | | 32aids for electronic health record systems, and quality metrics for all phases of care in pancreatic |
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63 | 63 | | 33cancer. The consortium shall partner with other entities including, but not limited to, patient |
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64 | 64 | | 34organizations, National Institute of Health and the American Cancer Society Cancer Action |
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65 | 65 | | 35Network to develop and maintain a portfolio of statewide clinical trials in pancreatic cancer. |
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66 | 66 | | 36 (4) Disseminate targeted communications to primary care providers and their office staff |
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67 | 67 | | 37to connect them with the consortium members and resources which are local to their practices. |
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68 | 68 | | 38 (5) Utilize the local resources of the consortium members to fully operationalize existing |
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69 | 69 | | 39state initiatives to identify existing cancer support services, survivorship care and counseling and |
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70 | 70 | | 40to expand these initiatives to meet current needs. |
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71 | 71 | | 41 (6) Develop and support the use in all hospitals of a standard consent form for pancreatic |
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72 | 72 | | 42cancer patients to consent to donate their tissue samples without restrictions for tissue collection |
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73 | 73 | | 43and banking for research. |
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74 | 74 | | 44 (c) The department, in conjunction with the pancreatic cancer advisory council, shall |
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75 | 75 | | 45conduct a comprehensive study to ascertain the prevalence and incidence of pancreatic cancer in |
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76 | 76 | | 46the commonwealth, the unmet needs of persons with pancreatic cancer and their families, time- |
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77 | 77 | | 47of-diagnosis statistics and likely risks for pancreatic cancer. Information collected by the study |
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78 | 78 | | 48shall include, but not be limited to, the following: |
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79 | 79 | | 49 (1) germline testing results; |
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80 | 80 | | 50 (2) molecular tumor analysis in patients with metastatic disease; |
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81 | 81 | | 51 (3) hospitals treating the highest volume of pancreatic cancer patients; |
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82 | 82 | | 52 (4) information on stage of diagnosis; 4 of 5 |
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83 | 83 | | 53 (5) treatment rendered, including chemotherapy, radiation therapy, surgical treatment, |
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84 | 84 | | 54neoadjuvant and adjuvant therapy; |
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85 | 85 | | 55 (6) patient outcomes; |
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86 | 86 | | 56 (7) number of patients diagnosed who did not receive any treatment or palliative care; |
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87 | 87 | | 57and |
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88 | 88 | | 58 (8) number of pancreatic resections performed at each hospital and associated outcomes. |
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89 | 89 | | 59 (d) The department, in conjunction with the pancreatic cancer advisory council, shall |
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90 | 90 | | 60develop and implement a statewide public education and community outreach program to inform |
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91 | 91 | | 61the general public about genetic risks, signs, symptoms, and premalignant conditions associated |
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92 | 92 | | 62with pancreatic cancer, including new-onset diabetes, and the availability of clinical trials for |
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93 | 93 | | 63those with pancreatic cancer. In developing and implementing the program, the commissioner |
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94 | 94 | | 64shall consult with similar programs including, but not limited to, anti-tobacco, obesity and other |
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95 | 95 | | 65pre-malignant conditions associated with pancreatic cancer. The department shall add pancreatic |
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96 | 96 | | 66cancer to the list of diseases that its programs target with counseling for tobacco discontinuation, |
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97 | 97 | | 67diet and weight management. |
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98 | 98 | | 68 SECTION 2. The commissioner of insurance shall survey health insurers in the |
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99 | 99 | | 69commonwealth to ascertain coverage benefits of genetic testing for pancreatic cancer across |
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100 | 100 | | 70health insurance plans, and present its findings to the committee on health care financing and the |
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101 | 101 | | 71committee on financial services no later than June 30, 2026. |
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102 | 102 | | 72 SECTION 3. The center for health information and analysis shall conduct a review and |
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103 | 103 | | 73update of its mandated benefit review of pancreatic cancer screenings as reported in the center’s 5 of 5 |
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104 | 104 | | 74report titled “Mandated Benefit Review of S.B. 471: An Act relative to pancreatic cancer |
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105 | 105 | | 75screening,” dated July 2014, including an update of the cost analysis for pancreatic cancer |
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106 | 106 | | 76screening for high-risk individuals. The center shall present its findings and update to the |
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107 | 107 | | 77committee on health care financing and the committee on financial services no later than June |
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108 | 108 | | 7830, 2026. |
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109 | 109 | | 79 SECTION 4. The initial meeting of the pancreatic cancer advisory council shall convene |
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110 | 110 | | 80no later than 60 days after the effective day of this act. |
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