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STATE OF MAINE
_____
IN THE YEAR OF OUR LORD
TWO THOUSAND TWENTY-THREE
_____
JOINT RESOLUTION RECOGNIZING MAY 17, 2023 AS WORLD
NEUROFIBROMATOSIS AWARENESS DAY
WHEREAS,
Neurofibromatosis Awareness Day to educate the public about this rare genetic disorder; and
WHEREAS,
neurofibromatosis and one in every 3,000 newborns is diagnosed with neurofibromatosis, it is
still is relatively unknown to the public; and
WHEREAS,
ethnicity or gender; and
WHEREAS,
also can affect development of the brain, cardiovascular system, bones and skin; and
WHEREAS,
disfigurement, learning disabilities, disabling pain and cancer; and
WHEREAS,
sponsor world-class medical research aimed at finding effective treatments and, ultimately, a
cure for neurofibromatosis; and
WHEREAS,
inventive approaches to scientific advancement and improved patient care, revamping systems
to accelerate the path from discovery to treatment; and
WHEREAS,
care through its national neurofibromatosis clinic network; and
WHEREAS,
through its information resources, youth programs and community activities; and
WHEREAS,
to help promote early diagnosis, proper management and treatment, prevention of
complications and support for research; now, therefore, be it
RESOLVED: That We, the Members of the One Hundred and Thirty-first Legislature now
assembled in the First Special Session, on behalf of the people we represent, take this
opportunity to recognize May 17, 2023 as World Neurofibromatosis Awareness Day.