| 1 | 1 | | 1.1 A bill for an act |
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| 2 | 2 | | 1.2 relating to health; creating the Minnesota Epilepsy Program; appropriating money; |
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| 3 | 3 | | 1.3 proposing coding for new law in Minnesota Statutes, chapter 145. |
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| 4 | 4 | | 1.4BE IT ENACTED BY THE LEGISLATURE OF THE STATE OF MINNESOTA: |
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| 5 | 5 | | 1.5 Section 1. [145.9231] MINNESOTA EPILEPSY PROGRAM. |
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| 6 | 6 | | 1.6 Subdivision 1.Purpose.The purpose of the Minnesota Epilepsy Program is to: |
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| 7 | 7 | | 1.7 (1) provide statewide support and education for people living with epilepsy and related |
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| 8 | 8 | | 1.8seizure disorders to improve health outcomes and prevent early mortality including sudden |
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| 9 | 9 | | 1.9unexpected death in epilepsy; |
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| 10 | 10 | | 1.10 (2) develop training programs for health care workers, educators, and service providers; |
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| 11 | 11 | | 1.11and |
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| 12 | 12 | | 1.12 (3) collect data on epilepsy and related seizure disorders in Minnesota. |
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| 13 | 13 | | 1.13 Subd. 2.Epilepsy support and education.(a) The commissioner of health shall identify |
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| 14 | 14 | | 1.14priority actions and activities to address the needs for communication, services, resources, |
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| 15 | 15 | | 1.15tools, strategies, and policies to support people living with epilepsy and their caregivers, |
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| 16 | 16 | | 1.16including increasing access to one-on-one support services. Strategies shall include culturally |
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| 17 | 17 | | 1.17specific and community-based approaches. The commissioner of health shall conduct an |
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| 18 | 18 | | 1.18evaluation to determine the effectiveness of the strategies. |
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| 19 | 19 | | 1.19 (b) The commissioner of health may administer funds appropriated for the purposes of |
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| 20 | 20 | | 1.20this section to provide money to community organizations and coalitions to collaborate with |
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| 21 | 21 | | 1.21one another or with the commissioner on strategies to improve health outcomes for people |
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| 22 | 22 | | 1.22living with epilepsy and related disorders. The commissioner shall disburse grants and |
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| 23 | 23 | | 1Section 1. |
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| 24 | 24 | | REVISOR SGS/ES 25-0235001/28/25 |
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| 25 | 25 | | State of Minnesota |
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| 26 | 26 | | This Document can be made available |
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| 27 | 27 | | in alternative formats upon request |
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| 28 | 28 | | HOUSE OF REPRESENTATIVES |
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| 29 | 29 | | H. F. No. 1765 |
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| 30 | 30 | | NINETY-FOURTH SESSION |
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| 31 | 31 | | Authored by Clardy, Huot and Reyer03/03/2025 |
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| 32 | 32 | | The bill was read for the first time and referred to the Committee on Health Finance and Policy 2.1contracts the commissioner makes available through a request for proposal process or |
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| 33 | 33 | | 2.2sole-source distribution where appropriate. |
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| 34 | 34 | | 2.3 Subd. 3.Professional training and education about epilepsy and related seizure |
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| 35 | 35 | | 2.4disorders.(a) The commissioner of health, in collaboration with the Board of Medical |
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| 36 | 36 | | 2.5Practice, the Board of Nursing, other professional boards and state agencies, and nonprofit |
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| 37 | 37 | | 2.6advocacy organizations with expertise in epilepsy and related seizure disorders, shall develop |
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| 38 | 38 | | 2.7strategies, including but not limited to educational materials and trainings to increase |
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| 39 | 39 | | 2.8knowledge and develop practical skills of health care providers, including emergency room |
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| 40 | 40 | | 2.9providers, community health workers, and emergency medical service providers. The |
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| 41 | 41 | | 2.10trainings must include methods for screening for epilepsy and related seizure disorders and |
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| 42 | 42 | | 2.11making appropriate referrals to address the needs of individuals affected by epilepsy and |
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| 43 | 43 | | 2.12related seizure disorders and their families. |
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| 44 | 44 | | 2.13 (b) The commissioner of health may administer grants and contracts for the purposes |
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| 45 | 45 | | 2.14of this section to provide money to organizations with expertise in epilepsy and related |
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| 46 | 46 | | 2.15seizure disorders, including the development of materials and curriculum, and delivering |
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| 47 | 47 | | 2.16training for schools required under section 121A.24, subdivision 2. |
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| 48 | 48 | | 2.17 Subd. 4.Data collection and state plan.The commissioner of health shall establish a |
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| 49 | 49 | | 2.18system for the collection, analysis, and reporting of data on seizure disorders in Minnesota, |
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| 50 | 50 | | 2.19including number of diagnoses, clinical outcomes, mortality rates, and related population |
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| 51 | 51 | | 2.20health data. The commissioner shall use the data collected to align statewide efforts and |
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| 52 | 52 | | 2.21build coordinated systems and partnerships to support community-led and culturally |
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| 53 | 53 | | 2.22responsive strategies to ensure Minnesotans at risk for or living with epilepsy and their |
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| 54 | 54 | | 2.23caregivers have equitable access to opportunities and resources to support their well-being |
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| 55 | 55 | | 2.24and quality of life. The commissioner of health shall conduct an evaluation to determine |
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| 56 | 56 | | 2.25the effectiveness of the strategies. |
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| 57 | 57 | | 2.26 Sec. 2. APPROPRIATION; MINNESOTA EPILEPSY PROGRAM. |
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| 58 | 58 | | 2.27 $....... in fiscal year 2026 and $....... in fiscal year 2027 are appropriated from the general |
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| 59 | 59 | | 2.28fund to the commissioner of health for the Minnesota Epilepsy Program under Minnesota |
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| 60 | 60 | | 2.29Statutes, section 145.9231. |
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| 61 | 61 | | 2Sec. 2. |
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| 62 | 62 | | REVISOR SGS/ES 25-0235001/28/25 |
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