Minnesota 2025-2026 Regular Session

Minnesota House Bill HF3076 Compare Versions

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11 1.1 A bill for an act​
22 1.2 relating to health; requiring issuance of grants by the commissioner of health to​
33 1.3 support education and outreach for myalgic encephalomyelitis/chronic fatigue​
44 1.4 syndrome; requiring the commissioner of health to establish a ME/CFS program;​
55 1.5 requiring issuance of grants by the commissioner of human services to establish​
66 1.6 and improve access to social services for myalgic encephalomyelitis/chronic fatigue​
77 1.7 syndrome; requiring a report; appropriating money.​
88 1.8BE IT ENACTED BY THE LEGISLATURE OF THE STATE OF MINNESOTA:​
99 1.9 Section 1. MYALGIC ENCEPHALOMYELITIS/CHRONIC FATIGUE SYNDROME​
1010 1.10GRANTS.​
1111 1.11 Subdivision 1.Grants authorized.(a) The commissioner of health must award grants​
1212 1.12to increase awareness and understanding of myalgic encephalomyelitis/chronic fatigue​
1313 1.13syndrome (ME/CFS) among health care professionals, individuals diagnosed with ME/CFS,​
1414 1.14individuals with symptoms of ME/CFS and who believe they may have ME/CFS, health​
1515 1.15plan companies, and the public. The commissioner must issue a request for proposals to​
1616 1.16competitively determine grant recipients. The grants may be awarded to community health​
1717 1.17boards as defined in Minnesota Statutes, section 145A.02, subdivision 5, state agencies,​
1818 1.18state councils, or nonprofit corporations.​
1919 1.19 (b) The commissioner must develop the request for proposals, review the resulting​
2020 1.20proposals, and determine grant awards in consultation and cooperation with members of​
2121 1.21the ME/CFS community.​
2222 1.22 (c) The commissioner may contract with members of the ME/CFS community to perform​
2323 1.23all or part of the grant award process required under this subdivision.​
2424 1​Section 1.​
2525 REVISOR SGS/BM 25-04999​03/27/25 ​
2626 State of Minnesota​
2727 This Document can be made available​
2828 in alternative formats upon request​
2929 HOUSE OF REPRESENTATIVES​
3030 H. F. No. 3076​
3131 NINETY-FOURTH SESSION​
3232 Authored by Hicks​04/02/2025​
3333 The bill was read for the first time and referred to the Committee on Health Finance and Policy​ 2.1 (d) For purposes of this subdivision, "members of the ME/CFS community" means the​
3434 2.2following persons among others:​
3535 2.3 (1) health care providers familiar with the diagnosis, treatment, and awareness of​
3636 2.4ME/CFS;​
3737 2.5 (2) individuals diagnosed with or having symptoms of ME/CFS; and​
3838 2.6 (3) other individuals with subject matter expertise on ME/CFS.​
3939 2.7 Subd. 2.Use of grant funds.(a) Grant recipients must use grant funds to do one or more​
4040 2.8of the following:​
4141 2.9 (1) improve the availability of free, evidence-based, or community best practice​
4242 2.10educational materials on ME/CFS to health care professionals, human resource professionals,​
4343 2.11and individuals with ME/CFS symptoms;​
4444 2.12 (2) raise awareness among health care professionals about ME/CFS symptoms and the​
4545 2.13importance of an appropriate ME/CFS diagnosis, symptom management, identification of​
4646 2.14associated comorbidities, and pharmacological treatment options; and​
4747 2.15 (3) increase public awareness of ME/CFS, ME/CFS symptoms, available community​
4848 2.16resources, and practices and techniques to effectively access and navigate community​
4949 2.17resources for those experiencing the effects of ME/CFS.​
5050 2.18 (b) The commissioner must provide technical assistance and support to grant recipients​
5151 2.19to improve outreach and education, especially in greater Minnesota, Tribal Nations, and​
5252 2.20marginalized communities, such as Black, Indigenous, Hispanic, Asian, and other people​
5353 2.21of color, LGBTQ+ community, and those experiencing economic insecurity, and other​
5454 2.22groups where services to address the effects of ME/CFS have not been established.​
5555 2.23 Sec. 2. MYALGIC ENCEPHALOMYELITIS/CHRONIC FATIGUE SYNDROME​
5656 2.24HUMAN SERVICES GRANTS.​
5757 2.25 Subdivision 1.Grants authorized.(a) The commissioner of human services must award​
5858 2.26grants to establish and improve access to services for individuals experiencing effects of​
5959 2.27myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). The commissioner must​
6060 2.28issue a request for proposals to competitively determine grant recipients. The grants may​
6161 2.29be awarded to community health boards as defined in Minnesota Statutes, section 145A.02,​
6262 2.30subdivision 5, state agencies, state councils, or nonprofit corporations.​
6363 2​Sec. 2.​
6464 REVISOR SGS/BM 25-04999​03/27/25 ​ 3.1 (b) The commissioner must develop the request for proposals, review the resulting​
6565 3.2proposals, and determine grant awards in consultation and cooperation with members of​
6666 3.3the ME/CFS community.​
6767 3.4 (c) The commissioner may contract with members of the ME/CFS community to perform​
6868 3.5all or part of the grant award process required under this subdivision.​
6969 3.6 (d) For purposes of this subdivision, "members of the ME/CFS community" means the​
7070 3.7following persons among others:​
7171 3.8 (1) health care providers familiar with the diagnosis, treatment, and awareness of​
7272 3.9ME/CFS;​
7373 3.10 (2) individuals diagnosed with or having symptoms of ME/CFS; and​
7474 3.11 (3) other individuals with subject matter expertise on ME/CFS.​
7575 3.12 Subd. 2.Use of grant funds.(a) Grant recipients must use grant funds to establish or​
7676 3.13facilitate access to one or more of the following services for individuals diagnosed with, or​
7777 3.14seeking a health care or integrative care professional's evaluation for symptoms of, ME/CFS:​
7878 3.15 (1) professional or peer delivered supportive counseling, such as counseling for an​
7979 3.16individual with symptoms of ME/CFS and caregivers or family members of an individual​
8080 3.17with symptoms of ME/CFS;​
8181 3.18 (2) professional or peer delivered health education;​
8282 3.19 (3) care coordination;​
8383 3.20 (4) medical case management, including but not limited to coordination of medical​
8484 3.21equipment and home health services;​
8585 3.22 (5) health or social service transportation services;​
8686 3.23 (6) outpatient ambulatory services;​
8787 3.24 (7) social work;​
8888 3.25 (8) financial assistance;​
8989 3.26 (9) legal and other nonmedical case management;​
9090 3.27 (10) referrals for supportive services;​
9191 3.28 (11) practical support home services, such as assistance with cooking, laundry, and​
9292 3.29cleaning;​
9393 3.30 (12) workplace and disability accommodation counseling and navigation services; and​
9494 3​Sec. 2.​
9595 REVISOR SGS/BM 25-04999​03/27/25 ​ 4.1 (13) professional or peer-led support groups for people with ME/CFS symptoms, family​
9696 4.2members, and caregivers.​
9797 4.3 (b) The commissioner must provide technical assistance and support to grant recipients​
9898 4.4to improve outreach and the provision of services, especially in greater Minnesota, Tribal​
9999 4.5Nations, marginalized communities, such as Black, Indigenous, Hispanic, Asian, and other​
100100 4.6people of color, LGBTQ+ community, and those experiencing economic insecurity, and​
101101 4.7other groups where services to address the effects of ME/CFS have not been established.​
102102 4.8 Sec. 3. ME/CFS PROGRAM.​
103103 4.9 The commissioner of health must establish a program to conduct community assessments​
104104 4.10and epidemiologic investigations to monitor and address impacts of ME/CFS and related​
105105 4.11conditions. The purposes of these activities are to:​
106106 4.12 (1) monitor trends in: incidence, prevalence, mortality, and health outcomes; changes​
107107 4.13in disability status, employment, and quality of life; service needs of individuals with​
108108 4.14ME/CFS or related conditions and to detect potential public health problems, predict risks,​
109109 4.15and assist in investigating health inequities in ME/CFS and related conditions;​
110110 4.16 (2) more accurately target information and resources for communities and patients and​
111111 4.17their families;​
112112 4.18 (3) inform health professionals and citizens about risks and early detection;​
113113 4.19 (4) promote evidence-based practices around ME/CFS and related conditions prevention​
114114 4.20and management, and to address public concerns and questions about ME/CFS and related​
115115 4.21conditions;​
116116 4.22 (5) identify demographics of those affected by ME/CFS, including but not limited to:​
117117 4.23 (i) gender;​
118118 4.24 (ii) race;​
119119 4.25 (iii) age;​
120120 4.26 (iv) geographic location;​
121121 4.27 (v) economic status; and​
122122 4.28 (vi) education; and​
123123 4.29 (6) research and track related conditions.​
124124 4​Sec. 3.​
125125 REVISOR SGS/BM 25-04999​03/27/25 ​ 5.1 Sec. 4. REPORT TO THE LEGISLATURE.​
126126 5.2 The commissioners of health and human services must submit a report by December 1,​
127127 5.32027, to the legislative committees with jurisdiction over health and human services on the​
128128 5.4effectiveness of the ME/CFS grants established in section 1 and the ME/CFS human services​
129129 5.5grants established in section 2. The report must include but is not limited to information on:​
130130 5.6 (1) the ability of grant recipients to achieve the objectives set forth in section 1,​
131131 5.7subdivision 2, paragraph (a), clauses (1) to (3), and section 2, subdivision 2, paragraph (a),​
132132 5.8clauses (1) to (13);​
133133 5.9 (2) additional areas of need for ME/CFS diagnosis, treatment, symptom management,​
134134 5.10insurance coverage, and access to health or integrative providers and social services;​
135135 5.11 (3) recommended legislative action and a five-year written plan to improve ME/CFS​
136136 5.12outcomes, based on quality of life indicators and deliverables from the grants awarded in​
137137 5.13sections 1 and 2, in Minnesota; and​
138138 5.14 (4) findings from data collection under the program in section 3, including but not limited​
139139 5.15to:​
140140 5.16 (i) demographics, including but not limited to those set forth in section 3, clause (5);​
141141 5.17 (ii) common challenges;​
142142 5.18 (iii) gaps in services;​
143143 5.19 (iv) disease impacts on individuals, other than economic effects; and​
144144 5.20 (v) future community needs.​
145145 5.21 Sec. 5. APPROPRIATIONS.​
146146 5.22 Subdivision 1.ME/CFS grants.$....... in fiscal year 2026 is appropriated from the​
147147 5.23general fund to the commissioner of health for grants to increase awareness and understanding​
148148 5.24of ME/CFS among health care professionals, individuals diagnosed with ME/CFS, individuals​
149149 5.25with symptoms of ME/CFS and who believe they may have ME/CFS, health plan companies,​
150150 5.26and the public. This is a onetime appropriation and is available until June 30, 2028.​
151151 5.27 Subd. 2.ME/CFS human services grants.$....... in fiscal year 2026 is appropriated​
152152 5.28from the general fund to the commissioner of health for grants to improve access to services​
153153 5.29for individuals experiencing effects of ME/CFS. This is a onetime appropriation and is​
154154 5.30available until June 30, 2028.​
155155 5​Sec. 5.​
156156 REVISOR SGS/BM 25-04999​03/27/25 ​ 6.1 Subd. 3.ME/CFS program.$....... in fiscal year 2026 is appropriated from the general​
157157 6.2fund to the commissioner of health for a program to conduct community assessments and​
158158 6.3epidemiologic investigations to monitor and address impacts of ME/CFS and related​
159159 6.4conditions. This is a onetime appropriation and is available until June 30, 2028.​
160160 6​Sec. 5.​
161161 REVISOR SGS/BM 25-04999​03/27/25 ​