1 | 1 | | 1.1 A bill for an act |
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2 | 2 | | 1.2 relating to health; requiring issuance of grants by the commissioner of health to |
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3 | 3 | | 1.3 support education and outreach for myalgic encephalomyelitis/chronic fatigue |
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4 | 4 | | 1.4 syndrome; requiring the commissioner of health to establish a ME/CFS program; |
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5 | 5 | | 1.5 requiring issuance of grants by the commissioner of human services to establish |
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6 | 6 | | 1.6 and improve access to social services for myalgic encephalomyelitis/chronic fatigue |
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7 | 7 | | 1.7 syndrome; requiring a report; appropriating money. |
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8 | 8 | | 1.8BE IT ENACTED BY THE LEGISLATURE OF THE STATE OF MINNESOTA: |
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9 | 9 | | 1.9 Section 1. MYALGIC ENCEPHALOMYELITIS/CHRONIC FATIGUE SYNDROME |
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10 | 10 | | 1.10GRANTS. |
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11 | 11 | | 1.11 Subdivision 1.Grants authorized.(a) The commissioner of health must award grants |
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12 | 12 | | 1.12to increase awareness and understanding of myalgic encephalomyelitis/chronic fatigue |
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13 | 13 | | 1.13syndrome (ME/CFS) among health care professionals, individuals diagnosed with ME/CFS, |
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14 | 14 | | 1.14individuals with symptoms of ME/CFS and who believe they may have ME/CFS, health |
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15 | 15 | | 1.15plan companies, and the public. The commissioner must issue a request for proposals to |
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16 | 16 | | 1.16competitively determine grant recipients. The grants may be awarded to community health |
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17 | 17 | | 1.17boards as defined in Minnesota Statutes, section 145A.02, subdivision 5, state agencies, |
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18 | 18 | | 1.18state councils, or nonprofit corporations. |
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19 | 19 | | 1.19 (b) The commissioner must develop the request for proposals, review the resulting |
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20 | 20 | | 1.20proposals, and determine grant awards in consultation and cooperation with members of |
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21 | 21 | | 1.21the ME/CFS community. |
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22 | 22 | | 1.22 (c) The commissioner may contract with members of the ME/CFS community to perform |
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23 | 23 | | 1.23all or part of the grant award process required under this subdivision. |
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24 | 24 | | 1Section 1. |
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25 | 25 | | REVISOR SGS/BM 25-0499903/27/25 |
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26 | 26 | | State of Minnesota |
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27 | 27 | | This Document can be made available |
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28 | 28 | | in alternative formats upon request |
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29 | 29 | | HOUSE OF REPRESENTATIVES |
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30 | 30 | | H. F. No. 3076 |
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31 | 31 | | NINETY-FOURTH SESSION |
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32 | 32 | | Authored by Hicks04/02/2025 |
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33 | 33 | | The bill was read for the first time and referred to the Committee on Health Finance and Policy 2.1 (d) For purposes of this subdivision, "members of the ME/CFS community" means the |
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34 | 34 | | 2.2following persons among others: |
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35 | 35 | | 2.3 (1) health care providers familiar with the diagnosis, treatment, and awareness of |
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36 | 36 | | 2.4ME/CFS; |
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37 | 37 | | 2.5 (2) individuals diagnosed with or having symptoms of ME/CFS; and |
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38 | 38 | | 2.6 (3) other individuals with subject matter expertise on ME/CFS. |
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39 | 39 | | 2.7 Subd. 2.Use of grant funds.(a) Grant recipients must use grant funds to do one or more |
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40 | 40 | | 2.8of the following: |
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41 | 41 | | 2.9 (1) improve the availability of free, evidence-based, or community best practice |
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42 | 42 | | 2.10educational materials on ME/CFS to health care professionals, human resource professionals, |
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43 | 43 | | 2.11and individuals with ME/CFS symptoms; |
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44 | 44 | | 2.12 (2) raise awareness among health care professionals about ME/CFS symptoms and the |
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45 | 45 | | 2.13importance of an appropriate ME/CFS diagnosis, symptom management, identification of |
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46 | 46 | | 2.14associated comorbidities, and pharmacological treatment options; and |
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47 | 47 | | 2.15 (3) increase public awareness of ME/CFS, ME/CFS symptoms, available community |
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48 | 48 | | 2.16resources, and practices and techniques to effectively access and navigate community |
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49 | 49 | | 2.17resources for those experiencing the effects of ME/CFS. |
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50 | 50 | | 2.18 (b) The commissioner must provide technical assistance and support to grant recipients |
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51 | 51 | | 2.19to improve outreach and education, especially in greater Minnesota, Tribal Nations, and |
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52 | 52 | | 2.20marginalized communities, such as Black, Indigenous, Hispanic, Asian, and other people |
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53 | 53 | | 2.21of color, LGBTQ+ community, and those experiencing economic insecurity, and other |
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54 | 54 | | 2.22groups where services to address the effects of ME/CFS have not been established. |
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55 | 55 | | 2.23 Sec. 2. MYALGIC ENCEPHALOMYELITIS/CHRONIC FATIGUE SYNDROME |
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56 | 56 | | 2.24HUMAN SERVICES GRANTS. |
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57 | 57 | | 2.25 Subdivision 1.Grants authorized.(a) The commissioner of human services must award |
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58 | 58 | | 2.26grants to establish and improve access to services for individuals experiencing effects of |
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59 | 59 | | 2.27myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). The commissioner must |
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60 | 60 | | 2.28issue a request for proposals to competitively determine grant recipients. The grants may |
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61 | 61 | | 2.29be awarded to community health boards as defined in Minnesota Statutes, section 145A.02, |
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62 | 62 | | 2.30subdivision 5, state agencies, state councils, or nonprofit corporations. |
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63 | 63 | | 2Sec. 2. |
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64 | 64 | | REVISOR SGS/BM 25-0499903/27/25 3.1 (b) The commissioner must develop the request for proposals, review the resulting |
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65 | 65 | | 3.2proposals, and determine grant awards in consultation and cooperation with members of |
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66 | 66 | | 3.3the ME/CFS community. |
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67 | 67 | | 3.4 (c) The commissioner may contract with members of the ME/CFS community to perform |
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68 | 68 | | 3.5all or part of the grant award process required under this subdivision. |
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69 | 69 | | 3.6 (d) For purposes of this subdivision, "members of the ME/CFS community" means the |
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70 | 70 | | 3.7following persons among others: |
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71 | 71 | | 3.8 (1) health care providers familiar with the diagnosis, treatment, and awareness of |
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72 | 72 | | 3.9ME/CFS; |
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73 | 73 | | 3.10 (2) individuals diagnosed with or having symptoms of ME/CFS; and |
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74 | 74 | | 3.11 (3) other individuals with subject matter expertise on ME/CFS. |
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75 | 75 | | 3.12 Subd. 2.Use of grant funds.(a) Grant recipients must use grant funds to establish or |
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76 | 76 | | 3.13facilitate access to one or more of the following services for individuals diagnosed with, or |
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77 | 77 | | 3.14seeking a health care or integrative care professional's evaluation for symptoms of, ME/CFS: |
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78 | 78 | | 3.15 (1) professional or peer delivered supportive counseling, such as counseling for an |
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79 | 79 | | 3.16individual with symptoms of ME/CFS and caregivers or family members of an individual |
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80 | 80 | | 3.17with symptoms of ME/CFS; |
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81 | 81 | | 3.18 (2) professional or peer delivered health education; |
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82 | 82 | | 3.19 (3) care coordination; |
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83 | 83 | | 3.20 (4) medical case management, including but not limited to coordination of medical |
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84 | 84 | | 3.21equipment and home health services; |
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85 | 85 | | 3.22 (5) health or social service transportation services; |
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86 | 86 | | 3.23 (6) outpatient ambulatory services; |
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87 | 87 | | 3.24 (7) social work; |
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88 | 88 | | 3.25 (8) financial assistance; |
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89 | 89 | | 3.26 (9) legal and other nonmedical case management; |
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90 | 90 | | 3.27 (10) referrals for supportive services; |
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91 | 91 | | 3.28 (11) practical support home services, such as assistance with cooking, laundry, and |
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92 | 92 | | 3.29cleaning; |
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93 | 93 | | 3.30 (12) workplace and disability accommodation counseling and navigation services; and |
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94 | 94 | | 3Sec. 2. |
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95 | 95 | | REVISOR SGS/BM 25-0499903/27/25 4.1 (13) professional or peer-led support groups for people with ME/CFS symptoms, family |
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96 | 96 | | 4.2members, and caregivers. |
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97 | 97 | | 4.3 (b) The commissioner must provide technical assistance and support to grant recipients |
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98 | 98 | | 4.4to improve outreach and the provision of services, especially in greater Minnesota, Tribal |
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99 | 99 | | 4.5Nations, marginalized communities, such as Black, Indigenous, Hispanic, Asian, and other |
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100 | 100 | | 4.6people of color, LGBTQ+ community, and those experiencing economic insecurity, and |
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101 | 101 | | 4.7other groups where services to address the effects of ME/CFS have not been established. |
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102 | 102 | | 4.8 Sec. 3. ME/CFS PROGRAM. |
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103 | 103 | | 4.9 The commissioner of health must establish a program to conduct community assessments |
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104 | 104 | | 4.10and epidemiologic investigations to monitor and address impacts of ME/CFS and related |
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105 | 105 | | 4.11conditions. The purposes of these activities are to: |
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106 | 106 | | 4.12 (1) monitor trends in: incidence, prevalence, mortality, and health outcomes; changes |
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107 | 107 | | 4.13in disability status, employment, and quality of life; service needs of individuals with |
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108 | 108 | | 4.14ME/CFS or related conditions and to detect potential public health problems, predict risks, |
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109 | 109 | | 4.15and assist in investigating health inequities in ME/CFS and related conditions; |
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110 | 110 | | 4.16 (2) more accurately target information and resources for communities and patients and |
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111 | 111 | | 4.17their families; |
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112 | 112 | | 4.18 (3) inform health professionals and citizens about risks and early detection; |
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113 | 113 | | 4.19 (4) promote evidence-based practices around ME/CFS and related conditions prevention |
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114 | 114 | | 4.20and management, and to address public concerns and questions about ME/CFS and related |
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115 | 115 | | 4.21conditions; |
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116 | 116 | | 4.22 (5) identify demographics of those affected by ME/CFS, including but not limited to: |
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117 | 117 | | 4.23 (i) gender; |
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118 | 118 | | 4.24 (ii) race; |
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119 | 119 | | 4.25 (iii) age; |
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120 | 120 | | 4.26 (iv) geographic location; |
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121 | 121 | | 4.27 (v) economic status; and |
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122 | 122 | | 4.28 (vi) education; and |
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123 | 123 | | 4.29 (6) research and track related conditions. |
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124 | 124 | | 4Sec. 3. |
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125 | 125 | | REVISOR SGS/BM 25-0499903/27/25 5.1 Sec. 4. REPORT TO THE LEGISLATURE. |
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126 | 126 | | 5.2 The commissioners of health and human services must submit a report by December 1, |
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127 | 127 | | 5.32027, to the legislative committees with jurisdiction over health and human services on the |
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128 | 128 | | 5.4effectiveness of the ME/CFS grants established in section 1 and the ME/CFS human services |
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129 | 129 | | 5.5grants established in section 2. The report must include but is not limited to information on: |
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130 | 130 | | 5.6 (1) the ability of grant recipients to achieve the objectives set forth in section 1, |
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131 | 131 | | 5.7subdivision 2, paragraph (a), clauses (1) to (3), and section 2, subdivision 2, paragraph (a), |
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132 | 132 | | 5.8clauses (1) to (13); |
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133 | 133 | | 5.9 (2) additional areas of need for ME/CFS diagnosis, treatment, symptom management, |
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134 | 134 | | 5.10insurance coverage, and access to health or integrative providers and social services; |
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135 | 135 | | 5.11 (3) recommended legislative action and a five-year written plan to improve ME/CFS |
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136 | 136 | | 5.12outcomes, based on quality of life indicators and deliverables from the grants awarded in |
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137 | 137 | | 5.13sections 1 and 2, in Minnesota; and |
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138 | 138 | | 5.14 (4) findings from data collection under the program in section 3, including but not limited |
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139 | 139 | | 5.15to: |
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140 | 140 | | 5.16 (i) demographics, including but not limited to those set forth in section 3, clause (5); |
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141 | 141 | | 5.17 (ii) common challenges; |
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142 | 142 | | 5.18 (iii) gaps in services; |
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143 | 143 | | 5.19 (iv) disease impacts on individuals, other than economic effects; and |
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144 | 144 | | 5.20 (v) future community needs. |
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145 | 145 | | 5.21 Sec. 5. APPROPRIATIONS. |
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146 | 146 | | 5.22 Subdivision 1.ME/CFS grants.$....... in fiscal year 2026 is appropriated from the |
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147 | 147 | | 5.23general fund to the commissioner of health for grants to increase awareness and understanding |
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148 | 148 | | 5.24of ME/CFS among health care professionals, individuals diagnosed with ME/CFS, individuals |
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149 | 149 | | 5.25with symptoms of ME/CFS and who believe they may have ME/CFS, health plan companies, |
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150 | 150 | | 5.26and the public. This is a onetime appropriation and is available until June 30, 2028. |
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151 | 151 | | 5.27 Subd. 2.ME/CFS human services grants.$....... in fiscal year 2026 is appropriated |
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152 | 152 | | 5.28from the general fund to the commissioner of health for grants to improve access to services |
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153 | 153 | | 5.29for individuals experiencing effects of ME/CFS. This is a onetime appropriation and is |
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154 | 154 | | 5.30available until June 30, 2028. |
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155 | 155 | | 5Sec. 5. |
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156 | 156 | | REVISOR SGS/BM 25-0499903/27/25 6.1 Subd. 3.ME/CFS program.$....... in fiscal year 2026 is appropriated from the general |
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157 | 157 | | 6.2fund to the commissioner of health for a program to conduct community assessments and |
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158 | 158 | | 6.3epidemiologic investigations to monitor and address impacts of ME/CFS and related |
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159 | 159 | | 6.4conditions. This is a onetime appropriation and is available until June 30, 2028. |
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160 | 160 | | 6Sec. 5. |
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161 | 161 | | REVISOR SGS/BM 25-0499903/27/25 |
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