North Carolina 2025-2026 Regular Session

North Carolina House Bill H633 Compare Versions

Version 1 (Old)

Version 2 (New)

Old	New		Differences
1	1		GENERAL ASSEMBLY OF NORTH CAROLINA
2	2		SESSION 2025
3		-	H 1
4		-	HOUSE BILL 633
	3	+	H D
	4	+	HOUSE BILL DRH10258-MGa-133
	5	+
5	6
6	7
7	8		Short Title: Expand Sickle Cell Disease Programs & Svcs. (Public)
8		-	Sponsors: Representatives T. Brown and Cunningham (Primary Sponsors).
9		-	For a complete list of sponsors, refer to the North Carolina General Assembly web site.
10		-	Referred to: Appropriations, if favorable, Rules, Calendar, and Operations of the House
11		-	April 2, 2025
12		-	H633 -v-1
	9	+	Sponsors: Representative T. Brown.
	10	+	Referred to:
	11	+
	12	+	DRH10258 -MGa-133
13	13		A BILL TO BE ENTITLED 1
14	14		AN ACT APPROPRIATING FUNDS TO THE DEPARTMENT OF HEALTH AND HUMAN 2
15	15		SERVICES, DIVISION OF PUBLIC HEALTH, TO EXPAND PROGRAMS AND 3
16	16		SERVICES FOR NORTH CAROLINIANS WITH SICKLE CELL DISEASE. 4
17	17		Whereas, recent findings from the North Carolina Sickle Cell Data Collection 5
18	18		Program funded by the Centers for Disease Control and Prevention (CDC) estimate that the 6
19	19		number of individuals living with sickle cell disease in our State has risen to at least 7,000; and 7
20	20		Whereas, this represents a twenty-five percent (25%) increase from the previously 8
21	21		estimated 5,578 persons living with sickle cell disease in our State from 2004-2008, based on the 9
22	22		North Carolina Registry and Surveillance System for Hemoglobinopathies funded by the CDC; 10
23	23		and 11
24	24		Whereas, the Department of Health and Human Services, Division of Public Health, 12
25	25		requires additional State funds to ensure that essential services are available statewide to support 13
26	26		the growing number of North Carolinians affected by sickle cell disease; Now, therefore, 14
27	27		The General Assembly of North Carolina enacts: 15
28	28		SECTION 1. There is appropriated from the General Fund to the Department of 16
29	29		Health and Human Services, Division of Public Health, the sum of one million six hundred 17
30	30		seventy-eight thousand four hundred dollars ($1,678,400) in recurring funds and six hundred 18
31	31		twenty-nine thousand eight hundred seventy-three dollars ($629,873) in nonrecurring funds for 19
32	32		the 2025-2026 fiscal year; and the sum of one million six hundred seventy-eight thousand four 20
33	33		hundred dollars ($1,678,400) in recurring funds and six hundred thirteen thousand two hundred 21
34	34		fifty dollars ($613,250) in nonrecurring funds for the 2026-2027 fiscal year to be allocated and 22
35	35		used as follows: 23
36	36		(1) Funds for comprehensive sickle cell medical centers. – The sum of one million 24
37	37		three hundred sixteen thousand three hundred sixty-four dollars ($1,316,364) 25
38	38		in recurring funds for each year of the 2025-2027 fiscal biennium to be 26
39	39		distributed in the following amounts to the following comprehensive sickle 27
40	40		cell medical centers each fiscal year to support the multifaceted needs of 28
41	41		individuals with sickle cell disease, including social and behavioral health 29
42	42		services and assistance for young adults transitioning from pediatric to adult 30
43	43		care: 31
44	44		a. Atrium Health. – The sum of two hundred three thousand seven 32
45	45		hundred thirteen dollars ($203,713). 33
46	46		b. Duke University Medical Center. – The sum of two hundred forty-four 34
47		-	thousand nine hundred ninety-nine dollars ($244,999). 35 General Assembly Of North Carolina Session 2025
48		-	Page 2 House Bill 633-First Edition
	47	+	thousand nine hundred ninety-nine dollars ($244,999). 35
	48	+	H.B. 633
	49	+	Mar 31, 2025
	50	+	HOUSE PRINCIPAL CLERK General Assembly Of North Carolina Session 2025
	51	+	Page 2 DRH10258-MGa-133
49	52		c. East Carolina University School of Medicine. – The sum of two 1
50	53		hundred thirty-five thousand five hundred thirty-six dollars 2
51	54		($235,536). 3
52	55		d. Mission Hospitals. – The sum of one hundred thirty-seven thousand 4
53	56		six hundred one dollars ($137,601). 5
54	57		e. The University of North Carolina at Chapel Hill School of Medicine. 6
55	58		– The sum of two hundred eighty-one thousand thirty-one dollars 7
56	59		($281,031). 8
57	60		f. Wake Forest University Baptist Medical Center. – The sum of two 9
58	61		hundred thirteen thousand four hundred eighty-four dollars 10
59	62		($213,484). 11
60	63		(2) Funds for one Transition Coordinator position at each comprehensive sickle 12
61	64		cell medical center. – Of the funds allocated in subdivision (1) of this section, 13
62	65		the sum of seventy-five thousand dollars ($75,000) in recurring funds for each 14
63	66		year of the 2025-2027 fiscal biennium shall be used by each comprehensive 15
64	67		sickle cell medical center to create one full-time, permanent Transition 16
65	68		Coordinator position at each medical center to conduct transition readiness 17
66	69		assessments and other coordination activities to ensure a seamless referral 18
67	70		process for individuals with sickle cell disease who are transitioning from 19
68	71		pediatric to adult care. 20
69	72		(3) Funds to provide directed grants to community-based organizations. – The 21
70	73		sum of three hundred fifty-three thousand two hundred fifty dollars 22
71	74		($353,250) in nonrecurring funds for each year of the 2025-2027 fiscal 23
72	75		biennium to award grants to one or more nonprofit corporations to provide 24
73	76		services to individuals with sickle cell disease. In selecting grantees, the 25
74	77		Department of Health and Human Services, Division of Public Health, shall 26
75	78		prioritize community-based, nonprofit organizations that provide a 27
76	79		comprehensive array of services to individuals with sickle cell disease, their 28
77	80		families, and the surrounding community in counties that are lacking these 29
78	81		services. Each grantee shall use a portion of their grant award to facilitate the 30
79	82		transition of individuals with sickle cell disease from pediatric to adult care at 31
80	83		the local level. 32
81	84		(4) Funds to support North Carolina Sickle Cell Syndrome Program operations. – 33
82	85		The following amounts to the Women, Infant and Community Wellness 34
83	86		Section of the Division of Public Health within the Department of Health and 35
84	87		Human Services to support the operations of the North Carolina Sickle Cell 36
85	88		Syndrome Program authorized by G.S. 130A-129: 37
86	89		a. The sum of three hundred sixty-two thousand thirty-six dollars 38
87	90		($362,036) in recurring funds for each year of the 2025-2027 fiscal 39
88	91		biennium to create additional full-time, permanent positions to support 40
89	92		the work of the North Carolina Sickle Cell Syndrome Program. 41
90	93		b. The sum of sixteen thousand six hundred twenty-three dollars 42
91	94		($16,623) in nonrecurring funds for the 2025-2026 fiscal year to 43
92	95		purchase office equipment and furniture to support any positions 44
93	96		created under sub-subdivision a. of this subdivision. 45
94	97		c. The sum of two hundred sixty thousand dollars ($260,000) in 46
95	98		nonrecurring funds for each year of the 2025-2027 fiscal biennium to 47
96	99		disseminate an evidence-based sickle cell disease toolkit to emergency 48
97	100		department providers throughout the State and to facilitate their 49
98	101		implementation of the toolkit in order to improve emergency 50
99	102		department care for patients with sickle cell disease. 51 General Assembly Of North Carolina Session 2025
100		-	~~House Bill 633-First Edition~~ Page 3
	103	+	DRH10258-MGa-133 Page 3
101	104		SECTION 2. This act becomes effective July 1, 2025. 1