North Carolina 2025-2026 Regular Session

North Carolina Senate Bill S283 Compare Versions

Version 1 (Old)

Version 2 (New)

Old	New		Differences
1	1		GENERAL ASSEMBLY OF NORTH CAROLINA
2	2		SESSION 2025
3		-	S 1
4		-	SENATE BILL 283
	3	+	S D
	4	+	SENATE BILL DRS45136-MGa-29
	5	+
5	6
6	7
7	8		Short Title: Expand Sickle Cell Disease Programs & Svcs. (Public)
8	9		Sponsors: Senators Robinson and Lowe (Primary Sponsors).
9		-	Referred to: ~~Rules and Operations of the Senate~~
10		-	~~March 17, 2025~~
11		-	~~S283 -v-1~~
	10	+	Referred to:
	11	+
	12	+	DRS45136 -MGa-29
12	13		A BILL TO BE ENTITLED 1
13	14		AN ACT APPROPRIATING FUNDS TO THE DEPARTMENT OF HEALTH AND HUMAN 2
14	15		SERVICES, DIVISION OF PUBLIC HEALTH, TO EXPAND PROGRAMS AND 3
15	16		SERVICES FOR NORTH CAROLINIANS WITH SICKLE CELL DISEASE. 4
16	17		Whereas, recent findings from the North Carolina Sickle Cell Data Collection 5
17	18		Program funded by the Centers for Disease Control and Prevention (CDC) estimate that the 6
18	19		number of individuals living with sickle cell disease in our State has risen to at least 7,000; and 7
19	20		Whereas, this represents a twenty-five percent (25%) increase from the previously 8
20	21		estimated 5,578 persons living with sickle cell disease in our State from 2004-2008, based on the 9
21	22		North Carolina Registry and Surveillance System for Hemoglobinopathies funded by the CDC; 10
22	23		and 11
23	24		Whereas, the Department of Health and Human Services, Division of Public Health, 12
24	25		requires additional State funds to ensure that essential services are available statewide to support 13
25	26		the growing number of North Carolinians affected by sickle cell disease; Now, therefore, 14
26	27		The General Assembly of North Carolina enacts: 15
27	28		SECTION 1. There is appropriated from the General Fund to the Department of 16
28	29		Health and Human Services, Division of Public Health, the sum of one million six hundred 17
29	30		seventy-eight thousand four hundred dollars ($1,678,400) in recurring funds and six hundred 18
30	31		twenty-nine thousand eight hundred seventy-three dollars ($629,873) in nonrecurring funds for 19
31	32		the 2025-2026 fiscal year; and the sum of one million six hundred seventy-eight thousand four 20
32	33		hundred dollars ($1,678,400) in recurring funds and six hundred thirteen thousand two hundred 21
33	34		fifty dollars ($613,250) in nonrecurring funds for the 2026-2027 fiscal year to be allocated and 22
34	35		used as follows: 23
35	36		(1) Funds for comprehensive sickle cell medical centers. – The sum of one million 24
36	37		three hundred sixteen thousand three hundred sixty-four dollars ($1,316,364) 25
37	38		in recurring funds for each year of the 2025-2027 fiscal biennium to be 26
38	39		distributed in the following amounts to the following comprehensive sickle 27
39	40		cell medical centers each fiscal year to support the multifaceted needs of 28
40	41		individuals with sickle cell disease, including social and behavioral health 29
41	42		services and assistance for young adults transitioning from pediatric to adult 30
42	43		care: 31
43	44		a. Atrium Health. – The sum of two hundred three thousand seven 32
44	45		hundred thirteen dollars ($203,713). 33
45	46		b. Duke University Medical Center. – The sum of two hundred forty-four 34
46		-	thousand nine hundred ninety-nine dollars ($244,999). 35 General Assembly Of North Carolina Session 2025
47		-	Page 2 Senate Bill 283-First Edition
	47	+	thousand nine hundred ninety-nine dollars ($244,999). 35
	48	+	FILED SENATE
	49	+	Mar 13, 2025
	50	+	S.B. 283
	51	+	PRINCIPAL CLERK General Assembly Of North Carolina Session 2025
	52	+	Page 2 DRS45136-MGa-29
48	53		c. East Carolina University School of Medicine. – The sum of two 1
49	54		hundred thirty-five thousand five hundred thirty-six dollars 2
50	55		($235,536). 3
51	56		d. Mission Hospitals. – The sum of one hundred thirty-seven thousand 4
52	57		six hundred one dollars ($137,601). 5
53	58		e. The University of North Carolina at Chapel Hill School of Medicine. 6
54	59		– The sum of two hundred eighty-one thousand thirty-one dollars 7
55	60		($281,031). 8
56	61		f. Wake Forest University Baptist Medical Center. – The sum of two 9
57	62		hundred thirteen thousand four hundred eighty-four dollars 10
58	63		($213,484). 11
59	64		(2) Funds for one Transition Coordinator position at each comprehensive sickle 12
60	65		cell medical center. – Of the funds allocated in subdivision (1) of this section, 13
61	66		the sum of seventy-five thousand dollars ($75,000) in recurring funds for each 14
62	67		year of the 2025-2027 fiscal biennium shall be used by each comprehensive 15
63	68		sickle cell medical center to create one full-time, permanent Transition 16
64	69		Coordinator position at each medical center to conduct transition readiness 17
65	70		assessments and other coordination activities to ensure a seamless referral 18
66	71		process for individuals with sickle cell disease who are transitioning from 19
67	72		pediatric to adult care. 20
68	73		(3) Funds to provide directed grants to community-based organizations. – The 21
69	74		sum of three hundred fifty-three thousand two hundred fifty dollars 22
70	75		($353,250) in nonrecurring funds for each year of the 2025-2027 fiscal 23
71	76		biennium to award grants to one or more nonprofit corporations to provide 24
72	77		services to individuals with sickle cell disease. In selecting grantees, the 25
73	78		Department of Health and Human Services, Division of Public Health, shall 26
74	79		prioritize community-based, nonprofit organizations that provide a 27
75	80		comprehensive array of services to individuals with sickle cell disease, their 28
76	81		families, and the surrounding community in counties that are lacking these 29
77	82		services. Each grantee shall use a portion of their grant award to facilitate the 30
78	83		transition of individuals with sickle cell disease from pediatric to adult care at 31
79	84		the local level. 32
80	85		(4) Funds to support North Carolina Sickle Cell Syndrome Program operations. – 33
81	86		The following amounts to the Women, Infant and Community Wellness 34
82	87		Section of the Division of Public Health within the Department of Health and 35
83	88		Human Services to support the operations of the North Carolina Sickle Cell 36
84	89		Syndrome Program authorized by G.S. 130A-129: 37
85	90		a. The sum of three hundred sixty-two thousand thirty-six dollars 38
86	91		($362,036) in recurring funds for each year of the 2025-2027 fiscal 39
87	92		biennium to create additional full-time, permanent positions to support 40
88	93		the work of the North Carolina Sickle Cell Syndrome Program. 41
89	94		b. The sum of sixteen thousand six hundred twenty-three dollars 42
90	95		($16,623) in nonrecurring funds for the 2025-2026 fiscal year to 43
91	96		purchase office equipment and furniture to support any positions 44
92	97		created under sub-subdivision (4)a. of this section. 45
93	98		c. The sum of two hundred sixty thousand dollars ($260,000) in 46
94	99		nonrecurring funds for each year of the 2025-2027 fiscal biennium to 47
95	100		disseminate an evidence-based sickle cell disease toolkit to emergency 48
96	101		department providers throughout the State and to facilitate their 49
97	102		implementation of the toolkit in order to improve emergency 50
98	103		department care for patients with sickle cell disease. 51 General Assembly Of North Carolina Session 2025
99		-	~~Senate Bill 283-First Edition~~ Page 3
	104	+	DRS45136-MGa-29 Page 3
100	105		SECTION 2. This act becomes effective July 1, 2025. 1