12 | 13 | | A BILL TO BE ENTITLED 1 |
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13 | 14 | | AN ACT ENACTING A COMPACT TO AWARD PRIZES FOR CURING DISEASES. 2 |
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14 | 15 | | The General Assembly of North Carolina enacts: 3 |
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15 | 16 | | SECTION 1. Chapter 90 of the General Statutes is amended by adding a new Article 4 |
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16 | 17 | | to read: 5 |
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17 | 18 | | "Article 23B. 6 |
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18 | 19 | | "Compact to Award Prizes for the Cure of Diseases. 7 |
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19 | 20 | | "§ 90-326. Definitions. 8 |
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20 | 21 | | As used in this Article, the following definitions have the following meanings: 9 |
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21 | 22 | | (1) Compact. – The Solemn Covenant of the States to Award Prizes for Curing 10 |
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22 | 23 | | Diseases enacted in this Article. 11 |
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23 | 24 | | (2) Compacting state. – Either of the following: 12 |
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24 | 25 | | a. Any state that has enacted the compact and has not withdrawn or been 13 |
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25 | 26 | | suspended pursuant to G.S. 90-326.14. 14 |
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26 | 27 | | b. The federal government in accordance with the Commission's bylaws. 15 |
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27 | 28 | | (3) Non-compacting state. – Any state or the federal government if it is not at the 16 |
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28 | 29 | | time a compacting state. 17 |
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29 | 30 | | (4) Public health expenses. – The amount of all costs paid by taxpayers in a 18 |
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30 | 31 | | specified geographic area relating to a particular disease. 19 |
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31 | 32 | | (5) State. – Any state, district, or territory of the United States of America. 20 |
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32 | 33 | | "§ 90-326.1. Establishment of the Commission; membership. 21 |
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33 | 34 | | (1) Upon the enactment of the compact by six states, the compacting states shall 22 |
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34 | 35 | | establish the Solemn Covenant of States Commission. 23 |
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35 | 36 | | (2) The Commission is a body corporate and politic and an instrumentality of each 24 |
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36 | 37 | | of the compacting states and is solely responsible for its liabilities, except as 25 |
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37 | 38 | | otherwise specifically provided in the compact. 26 |
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38 | 39 | | (3) Each compacting state shall be represented by one member as selected by the 27 |
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39 | 40 | | compacting state. Each compacting state shall determine its member's 28 |
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40 | 41 | | qualifications and period of service and shall be responsible for any action to 29 |
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41 | 42 | | remove or suspend its member or to fill the member's position if it becomes 30 |
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42 | 43 | | vacant. Nothing in the compact shall be construed to affect a compacting 31 |
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43 | 44 | | state's authority regarding the qualification, selection, or service of its own 32 |
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44 | 45 | | member. 33 |
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47 | 52 | | (1) To adopt bylaws and rules pursuant to G.S. 90-326.4 and G.S. 90-326.5, 1 |
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48 | 53 | | which shall have the force and effect of law and shall be binding in the 2 |
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49 | 54 | | compacting states to the extent and in the manner provided in the compact. 3 |
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50 | 55 | | (2) To receive and review in an expeditious manner treatments and therapeutic 4 |
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51 | 56 | | protocols for the cure of disease submitted to the Commission and to award 5 |
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52 | 57 | | prizes for submissions that meet the Commission's standards for a successful 6 |
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53 | 58 | | cure treatment or therapeutic protocol. 7 |
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54 | 59 | | (3) To make widely available a cure treatment or therapeutic protocol upon a prize 8 |
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55 | 60 | | winner claiming a prize and transferring any intellectual property necessary 9 |
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56 | 61 | | for the manufacture and distribution of the cure in accordance with 10 |
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57 | 62 | | G.S. 90-326.5(a)(4)g.1., including by arranging or contracting for the 11 |
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58 | 63 | | manufacturing, production, or provision of any drug, serum, or other 12 |
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59 | 64 | | substance, device, or process, provided that the Commission does not market 13 |
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60 | 65 | | the cure or conduct any other activity regarding the cure not specifically 14 |
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61 | 66 | | authorized in the compact. 15 |
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62 | 67 | | (4) To establish a selling price for the cure, which shall be not more than the 16 |
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63 | 68 | | expenses for the cure's manufacturing, distribution, licensing, and any other 17 |
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64 | 69 | | necessary governmental requirements for compacting states, or those 18 |
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65 | 70 | | expenses plus any royalty fees, for non-compacting states; the price shall not 19 |
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66 | 71 | | include the expenses of any other activities. 20 |
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67 | 72 | | (5) In non-compacting states and foreign countries, to establish and collect royalty 21 |
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68 | 73 | | fees imposed on manufacturers, producers, and providers of any drug, serum, 22 |
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69 | 74 | | or other substance, device, or process used for a cure treatment or therapeutic 23 |
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70 | 75 | | protocol, for which a prize is awarded; royalty fees may be added to the sales 24 |
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71 | 76 | | price of the cure pursuant to subdivision (4) of this section; provided that the 25 |
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72 | 77 | | royalty fees shall cumulatively be not more than the estimated five-year 26 |
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73 | 78 | | savings in public health expenses for that state or country, as calculated by 27 |
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74 | 79 | | actuaries employed or contracted by the Commission. 28 |
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75 | 80 | | (6) To do the following regarding the collected royalty fees: 29 |
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76 | 81 | | a. Pay or reimburse expenses related to the payment of a prize, which 30 |
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77 | 82 | | shall include employing or contracting actuaries to calculate annual 31 |
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78 | 83 | | taxpayer savings amounts in compacting states in accordance with 32 |
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79 | 84 | | G.S. 90-326.5(a)(4)g.3., and payment of interest and other expenses 33 |
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80 | 85 | | related to a loan obtained in accordance with G.S. 90-326.5(a)(4)g.6. 34 |
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81 | 86 | | b. Annually disburse any amounts remaining after making payments or 35 |
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82 | 87 | | reimbursements under sub-subdivision a. of this subdivision as 36 |
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83 | 88 | | refunds to compacting states based on the percent of the state's prize 37 |
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84 | 89 | | obligation in relation to the total obligation amount of all compacting 38 |
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85 | 90 | | states. 39 |
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86 | 91 | | (7) To bring and prosecute legal proceedings or actions in its name as the 40 |
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87 | 92 | | Commission. 41 |
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88 | 93 | | (8) To issue subpoenas requiring the attendance and testimony of witnesses and 42 |
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89 | 94 | | the production of evidence. 43 |
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90 | 95 | | (9) To establish and maintain offices. 44 |
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91 | 96 | | (10) To borrow, accept, or contract for personnel services, including personnel 45 |
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92 | 97 | | services from employees of a compacting state. 46 |
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93 | 98 | | (11) To hire employees, professionals, or specialists, and elect or appoint officers, 47 |
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94 | 99 | | and to fix their compensation, define their duties, and give them appropriate 48 |
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95 | 100 | | authority to carry out the purposes of the compact, and determine their 49 |
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96 | 101 | | qualifications; and to establish the Commission's personnel policies and 50 General Assembly Of North Carolina Session 2025 |
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98 | 103 | | programs relating to, among other things, conflicts of interest, rates of 1 |
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99 | 104 | | compensation, and qualifications of personnel. 2 |
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100 | 105 | | (12) To accept any and all appropriate donations and grants of money, equipment, 3 |
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101 | 106 | | supplies, materials, and services, and to receive, utilize, and dispose of the 4 |
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102 | 107 | | same; provided that at all times the Commission shall strive to avoid any 5 |
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103 | 108 | | appearance of impropriety. 6 |
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104 | 109 | | (13) To lease, purchase, or accept appropriate gifts or donations of, or otherwise to 7 |
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105 | 110 | | own, hold, improve, or use, any property, real, personal, or mixed; provided, 8 |
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106 | 111 | | that at all times the Commission shall strive to avoid any appearance of 9 |
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107 | 112 | | impropriety. 10 |
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108 | 113 | | (14) To sell, convey, mortgage, pledge, lease, exchange, abandon, or otherwise 11 |
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109 | 114 | | dispose of any property, real, personal, or mixed. 12 |
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110 | 115 | | (15) To monitor compacting states for compliance with the Commission's bylaws 13 |
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111 | 116 | | and rules. 14 |
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112 | 117 | | (16) To enforce compliance by compacting states with the Commission's bylaws 15 |
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113 | 118 | | and rules. 16 |
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114 | 119 | | (17) To provide for dispute resolution among compacting states or between the 17 |
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115 | 120 | | Commission and those who submit treatments and therapeutic protocols for 18 |
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116 | 121 | | the cure of disease for consideration. 19 |
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117 | 122 | | (18) To establish a budget and make expenditures. 20 |
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118 | 123 | | (19) To borrow money. 21 |
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119 | 124 | | (20) To appoint committees, including management, legislative, and advisory 22 |
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120 | 125 | | committees comprised of members, state legislators or their representatives, 23 |
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121 | 126 | | medical professionals, and such other interested persons as may be designated 24 |
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122 | 127 | | by the Commission. 25 |
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123 | 128 | | (21) To establish annual membership dues for compacting states, which shall be 26 |
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124 | 129 | | used for daily expenses of the Commission and not for interest or prize 27 |
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125 | 130 | | payments. 28 |
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126 | 131 | | (22) To adopt and use a corporate seal. 29 |
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127 | 132 | | (23) To perform such other functions as may be necessary or appropriate to achieve 30 |
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128 | 133 | | the purposes of this compact. 31 |
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129 | 134 | | "§ 90-326.3. Meetings and voting. 32 |
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130 | 135 | | (1) The Commission shall meet and take such actions as are consistent with the 33 |
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131 | 136 | | compact, bylaws, and rules. 34 |
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132 | 137 | | (2) A majority of the members of the Commission shall constitute a quorum 35 |
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133 | 138 | | necessary in order to conduct business or take actions at meetings of the 36 |
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134 | 139 | | Commission. 37 |
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135 | 140 | | (3) Each member of the Commission shall have the right and power to cast one 38 |
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136 | 141 | | vote regarding matters determined or actions to be taken by the Commission. 39 |
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137 | 142 | | Each member shall have the right and power to participate in the business and 40 |
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138 | 143 | | affairs of the Commission. 41 |
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139 | 144 | | (4) A member shall vote in person or by such other means as provided in the 42 |
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140 | 145 | | Commission's bylaws. The Commission's bylaws may provide for members' 43 |
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141 | 146 | | participation in meetings by telephone or other means of communication. 44 |
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142 | 147 | | (5) The Commission shall meet at least once during each calendar year. 45 |
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143 | 148 | | Additional meetings shall be held as set forth in the Commission's bylaws. 46 |
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144 | 149 | | (6) No decision of the Commission with respect to the approval of an award for a 47 |
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145 | 150 | | treatment or therapeutic process for the cure of a disease shall be effective 48 |
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146 | 151 | | unless two-thirds of all the members of the Commission vote in favor thereof. 49 |
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147 | 152 | | (7) Guidelines and voting requirements for all other decisions of the Commission 50 |
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148 | 153 | | shall be established in the Commission's bylaws. 51 General Assembly Of North Carolina Session 2025 |
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150 | 155 | | "§ 90-326.4. Bylaws. 1 |
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151 | 156 | | The Commission shall, by a majority vote of all the members of the Commission, prescribe 2 |
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152 | 157 | | bylaws to govern its conduct as may be necessary or appropriate to carry out the purposes and 3 |
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153 | 158 | | exercise the powers of the compact, including, but not limited to: 4 |
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154 | 159 | | (1) Establishing the fiscal year of the Commission. 5 |
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155 | 160 | | (2) Providing reasonable procedures for appointing and electing members, as well 6 |
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156 | 161 | | as holding meetings, of the management committee. 7 |
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157 | 162 | | (3) Providing reasonable standards and procedures for the following: 8 |
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158 | 163 | | a. For the establishment and meetings of other committees. 9 |
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159 | 164 | | b. Governing any general or specific delegation of any authority or 10 |
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160 | 165 | | function of the Commission. 11 |
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161 | 166 | | c. Voting guidelines and procedures for Commission decisions. 12 |
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162 | 167 | | (4) Providing reasonable procedures for calling and conducting meetings of the 13 |
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163 | 168 | | Commission that shall consist of requiring a quorum to be present, ensuring 14 |
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164 | 169 | | reasonable advance notice of each such meeting, and providing for the right 15 |
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165 | 170 | | of citizens to attend each such meeting with enumerated exceptions designed 16 |
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166 | 171 | | to protect the public's interest and the privacy of individuals. 17 |
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167 | 172 | | (5) Providing a list of matters about which the Commission may go into executive 18 |
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168 | 173 | | session and requiring a majority of all members of the Commission to vote to 19 |
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169 | 174 | | enter into such session. As soon as practicable, the Commission shall make 20 |
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170 | 175 | | public: 21 |
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171 | 176 | | a. A copy of the vote to go into executive session, revealing the vote of 22 |
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172 | 177 | | each member with no proxy votes allowed. 23 |
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173 | 178 | | b. The matter requiring executive session, without identifying the actual 24 |
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174 | 179 | | issues or individuals involved. 25 |
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175 | 180 | | (6) Establishing the titles, duties, authority, and reasonable procedures for the 26 |
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176 | 181 | | election of the officers of the Commission. 27 |
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177 | 182 | | (7) Providing reasonable standards and procedures for the establishment of the 28 |
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178 | 183 | | personnel policies and programs of the Commission. Notwithstanding any 29 |
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179 | 184 | | civil service or other similar laws of any compacting state, the Commission's 30 |
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180 | 185 | | bylaws shall exclusively govern the personnel policies and programs of the 31 |
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181 | 186 | | Commission. 32 |
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182 | 187 | | (8) Allowing a mechanism for the following: 33 |
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183 | 188 | | a. The federal government to join as a compacting state. 34 |
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184 | 189 | | b. Foreign countries or subdivisions of those countries to join as liaison 35 |
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185 | 190 | | members by adopting the compact; provided that adopting countries 36 |
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186 | 191 | | or subdivisions shall not have voting power or the power to bind the 37 |
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187 | 192 | | Commission in any way. 38 |
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188 | 193 | | (9) Adopting a code of ethics to address permissible and prohibited activities of 39 |
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189 | 194 | | members and employees. 40 |
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190 | 195 | | (10) Providing for the maintenance of the Commission's books and records. 41 |
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191 | 196 | | (11) Governing the acceptance of and accounting for donations, annual member 42 |
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192 | 197 | | dues, and other sources of funding and establishing the proportion of these 43 |
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193 | 198 | | funds to be allocated to prize amounts for treatments and therapeutic protocols 44 |
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194 | 199 | | that cure disease. 45 |
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195 | 200 | | (12) Governing any fundraising efforts in which the Commission wishes to engage. 46 |
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196 | 201 | | (13) Providing a mechanism for winding up the operations of the Commission and 47 |
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197 | 202 | | the equitable disposition of any surplus funds that may exist after the 48 |
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198 | 203 | | termination of the compact after the payment and reserving of all its debts and 49 |
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199 | 204 | | obligations. 50 |
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200 | 205 | | "§ 90-326.5. Rules. 51 General Assembly Of North Carolina Session 2025 |
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202 | 207 | | (a) The Commission shall adopt rules to do the following: 1 |
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203 | 208 | | (1) Effectively and efficiently achieve the purposes of this compact. 2 |
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204 | 209 | | (2) Govern the methods, processes, and any other aspect of the research, creation, 3 |
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205 | 210 | | and testing of a treatment or therapeutic protocol for each disease for which a 4 |
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206 | 211 | | prize may be awarded. 5 |
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207 | 212 | | (3) Establishing the criteria for defining and classifying the diseases for which 6 |
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208 | 213 | | prizes shall be awarded. The Commission may define and classify subsets of 7 |
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209 | 214 | | diseases, for example, tubular carcinoma of the breast. For purposes of 8 |
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210 | 215 | | sub-subdivisions a. and c. of subdivision (4) of this subsection, a subset of a 9 |
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211 | 216 | | disease shall be considered one disease. The Commission may consult the 10 |
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212 | 217 | | most recent edition of the International Classification of Diseases as published 11 |
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213 | 218 | | by the World Health Organization or other definitions agreed to by a 12 |
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214 | 219 | | two-thirds vote of the Commission. 13 |
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215 | 220 | | (4) Regarding prizes for curing diseases that establish the following: 14 |
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216 | 221 | | a. At least 10 major diseases for which to create prizes, which shall be 15 |
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217 | 222 | | determined based on the following factors: 16 |
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218 | 223 | | 1. The severity of the disease to a human individual's overall 17 |
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219 | 224 | | health and well-being. 18 |
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220 | 225 | | 2. The survival rate or severity of impact of the disease. 19 |
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221 | 226 | | 3. The public health expenses and treatment expenses for the 20 |
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222 | 227 | | disease. 21 |
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223 | 228 | | b. The criteria a treatment or therapeutic protocol must meet in order to 22 |
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224 | 229 | | be considered a cure for any of the diseases for which a prize may be 23 |
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225 | 230 | | awarded, which shall include the following requirements: 24 |
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226 | 231 | | 1. It must be approved by the federal Food and Drug 25 |
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227 | 232 | | Administration or have otherwise obtained legal status for the 26 |
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228 | 233 | | compact to immediately contract to manufacture and distribute 27 |
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229 | 234 | | in the United States. 28 |
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230 | 235 | | 2. Except as provided in subsection (b) of this section, it must 29 |
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231 | 236 | | yield a significant increase in survival with respect to the 30 |
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232 | 237 | | diseases if early death is the usual outcome. 31 |
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233 | 238 | | 3. It requires less than one year of the treatment or protocol to 32 |
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234 | 239 | | completely cure the disease. 33 |
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235 | 240 | | c. The procedure for determining the diseases for which to award prizes, 34 |
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236 | 241 | | which includes the option to award prizes for more than 10 diseases 35 |
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237 | 242 | | that meet the above criteria, if agreed to by two-thirds vote of the 36 |
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238 | 243 | | Commission, and a requirement to update the list every three years. 37 |
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239 | 244 | | d. The submission and evaluation procedures and guidelines, including 38 |
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240 | 245 | | filing and review procedures, a requirement that the person or entity 39 |
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241 | 246 | | submitting the cure bears the burden of proof in demonstrating that the 40 |
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242 | 247 | | treatment or therapeutic protocol meets the above criteria, and 41 |
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243 | 248 | | limitations preventing public access to treatment or protocol 42 |
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244 | 249 | | submissions. 43 |
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245 | 250 | | e. The estimated five-year public health savings that would result from a 44 |
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246 | 251 | | cure, which shall be equal to the five-year public health expenses for 45 |
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247 | 252 | | each disease in each compacting state, and a procedure to update these 46 |
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248 | 253 | | expenses every three years in conjunction with the requirements in 47 |
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249 | 254 | | sub-subdivision c. of this subdivision. The estimated five-year public 48 |
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250 | 255 | | health savings amount shall be calculated, estimated, and publicized 49 |
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251 | 256 | | every three years by actuaries employed or contracted by the 50 |
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252 | 257 | | Commission. 51 General Assembly Of North Carolina Session 2025 |
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254 | 259 | | f. The prize amount with respect to cures for each disease, which shall 1 |
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255 | 260 | | be equal to the most recent estimated total five-year savings in public 2 |
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256 | 261 | | health expenses for the disease as calculated in sub-subdivision e. of 3 |
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257 | 262 | | this subdivision in all of the compacting states; amounts donated by 4 |
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258 | 263 | | charities, individuals, and any other entities intended for the prize; and 5 |
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259 | 264 | | any other factors that the Commission deems appropriate. 6 |
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260 | 265 | | g. The prize distribution procedures and guidelines, which shall include 7 |
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261 | 266 | | the following requirements: 8 |
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262 | 267 | | 1. Upon acceptance of a cure, the prize winner shall transfer to 9 |
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263 | 268 | | the Commission the patent and all related intellectual property 10 |
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264 | 269 | | for the manufacture and distribution of the treatment or 11 |
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265 | 270 | | therapeutic protocol in exchange for the prize, except in the 12 |
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266 | 271 | | case that the prize money is considered by the Commission to 13 |
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267 | 272 | | be too low, and that a prize will be awarded only to the first 14 |
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268 | 273 | | person or entity that submits a successful cure for a disease for 15 |
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269 | 274 | | which a prize may be awarded. 16 |
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270 | 275 | | 2. Donation amounts intended for the prize shall be kept in a 17 |
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271 | 276 | | separate, interest-bearing account maintained by the 18 |
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272 | 277 | | Commission. This account shall be the only account in which 19 |
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273 | 278 | | prize money is kept. 20 |
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274 | 279 | | 3. Each compacting state shall have the responsibility to pay 21 |
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275 | 280 | | annually the compacting state's actual one-year savings in 22 |
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276 | 281 | | public health expenses for the particular disease for which a 23 |
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277 | 282 | | cure has been accepted. The compacting state shall make such 24 |
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278 | 283 | | an annual payment until it has fulfilled its prize responsibility 25 |
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279 | 284 | | as established in sub-subdivision f. of this subdivision. Each 26 |
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280 | 285 | | compacting state's payment responsibility begins one year after 27 |
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281 | 286 | | the date the cure becomes widely available. The Commission 28 |
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282 | 287 | | shall employ or contract with actuaries to calculate each state's 29 |
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283 | 288 | | actual one-year savings in public health expenses at the end of 30 |
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284 | 289 | | each year to determine each state's responsibility for the 31 |
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285 | 290 | | succeeding year. 32 |
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286 | 291 | | 4. Compacting states may meet prize responsibilities by any 33 |
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287 | 292 | | method including the issuance of bonds or other obligations, 34 |
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288 | 293 | | with the principal and interest of those bonds or obligations to 35 |
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289 | 294 | | be repaid only from revenue derived from estimated public 36 |
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290 | 295 | | health expense savings from a cure to a disease. If the 37 |
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291 | 296 | | compacting state does not make such revenue available to 38 |
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292 | 297 | | repay some or all of the revenue bonds or obligations issued, 39 |
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293 | 298 | | the owners or holders of those bonds or obligations have no 40 |
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294 | 299 | | right to have excises or taxes levied to pay the principal or 41 |
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295 | 300 | | interest on them. The revenue bonds and obligations are not a 42 |
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296 | 301 | | debt of the issuing compacting state. 43 |
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297 | 302 | | 5. A compacting state may issue bonds or other debt that are 44 |
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298 | 303 | | general obligations, under which the full faith and credit, 45 |
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299 | 304 | | revenue, and taxing power of the state is pledged to pay the 46 |
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300 | 305 | | principal and interest under those obligations, only if 47 |
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301 | 306 | | authorized by the compacting state's constitution or, if 48 |
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302 | 307 | | constitutional authorization is not required, by other law of the 49 |
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303 | 308 | | compacting state. 50 General Assembly Of North Carolina Session 2025 |
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305 | 310 | | 6. Upon acceptance of a cure, the Commission shall obtain a loan 1 |
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306 | 311 | | from a financial institution in an amount equal to the most 2 |
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307 | 312 | | recently calculated total estimated five-year public health 3 |
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308 | 313 | | expenses for the disease in all compacting states, in accordance 4 |
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309 | 314 | | with sub-subdivision f. of this subdivision. The Commission 5 |
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310 | 315 | | reserves the right to continuously evaluate the cure in the 6 |
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311 | 316 | | interim and rescind a prize offer if the Commission finds that 7 |
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312 | 317 | | the cure no longer meets the Commission's criteria. 8 |
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313 | 318 | | (5) The Commission also shall adopt rules to do the following: 9 |
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314 | 319 | | a. Establish the following regarding Commission records: 10 |
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315 | 320 | | 1. Conditions and procedures for public inspection and copying 11 |
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316 | 321 | | of its information and official records, except such information 12 |
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317 | 322 | | and records involving the privacy of individuals or that would 13 |
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318 | 323 | | otherwise violate privacy laws under federal law and the laws 14 |
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319 | 324 | | of the compacting states. 15 |
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320 | 325 | | 2. Procedures for sharing with federal and state agencies, 16 |
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321 | 326 | | including law enforcement agencies, records and information 17 |
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322 | 327 | | otherwise exempt from disclosure. 18 |
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323 | 328 | | 3. Guidelines for entering into agreements with federal and state 19 |
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324 | 329 | | agencies to receive or exchange information or records subject 20 |
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325 | 330 | | to nondisclosure and confidentiality provisions. 21 |
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326 | 331 | | b. Provide a process for Commission review of submitted treatments and 22 |
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327 | 332 | | therapeutic protocols for curing diseases that includes the following: 23 |
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328 | 333 | | 1. An opportunity for an appeal, not later than 30 days after a 24 |
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329 | 334 | | rejection of a treatment or protocol for prize consideration, to 25 |
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330 | 335 | | a review panel established under the Commission's dispute 26 |
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331 | 336 | | resolution process. 27 |
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332 | 337 | | 2. Commission monitoring and review of treatment and protocol 28 |
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333 | 338 | | effectiveness consistent with the cure criteria established by 29 |
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334 | 339 | | the Commission for the particular disease. 30 |
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335 | 340 | | 3. Commission reconsideration, modification, or withdrawal of 31 |
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336 | 341 | | approval of a treatment or protocol for prize consideration for 32 |
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337 | 342 | | failure to continue to meet the cure criteria established by the 33 |
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338 | 343 | | Commission for the particular disease. 34 |
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339 | 344 | | c. Establish a dispute resolution process to resolve disputes or other 35 |
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340 | 345 | | issues under the compact that may arise between two or more 36 |
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341 | 346 | | compacting states or between the Commission and individuals or 37 |
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342 | 347 | | entities who submit treatments and therapeutic protocols to cure 38 |
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343 | 348 | | diseases, which process shall provide for: 39 |
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344 | 349 | | 1. Administrative review by a review panel appointed by the 40 |
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345 | 350 | | Commission. 41 |
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346 | 351 | | 2. Judicial review of decisions issued after an administrative 42 |
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347 | 352 | | review. 43 |
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348 | 353 | | 3. Qualifications to be appointed to a panel, due process 44 |
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349 | 354 | | requirements, including notice and hearing procedures, and 45 |
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350 | 355 | | any other procedure, requirement, or standard necessary to 46 |
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351 | 356 | | provide adequate dispute resolution. 47 |
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352 | 357 | | d. Establish and impose annual member dues on compacting states, 48 |
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353 | 358 | | which shall be calculated based on the percentage of each compacting 49 |
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354 | 359 | | state's population in relation to the population of all the compacting 50 |
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355 | 360 | | states. 51 General Assembly Of North Carolina Session 2025 |
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357 | 362 | | (b) The Commission may award a prize for a treatment or therapeutic protocol that yields 1 |
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358 | 363 | | a survival rate that is less than what is established in the cure criteria through at least five years 2 |
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359 | 364 | | after the treatment or protocol has ended. In that case, the prize amount awarded for that treatment 3 |
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360 | 365 | | or therapeutic protocol shall be reduced from the prize amount originally determined by the 4 |
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361 | 366 | | Commission for a cure for that disease. The reduction shall be in proportion to the survival rate 5 |
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362 | 367 | | yielded by that treatment or protocol as compared to the survival rate established in the cure 6 |
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363 | 368 | | criteria. 7 |
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364 | 369 | | (c) Recognizing that the goal of the compact is to pool the potential savings of as many 8 |
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365 | 370 | | states and countries as possible to generate sufficient financial incentive to develop a cure for 9 |
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366 | 371 | | many of the world's most devastating diseases, the compact will respect the laws of each of these 10 |
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367 | 372 | | United States by adopting rules that establish ethical standards for research that shall be followed 11 |
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368 | 373 | | in order for a prize to be claimed. The compact, in the rules, shall establish a common set of 12 |
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369 | 374 | | ethical standards that embodies the laws and restrictions in each of the states so that to be eligible 13 |
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370 | 375 | | for claiming a prize the entity submitting a cure must not have violated any of the ethical 14 |
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371 | 376 | | standards in any one of the 50 states, whether the states have joined the compact or not. The 15 |
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372 | 377 | | compact will publish these common ethical standards along with the specific criteria for a cure 16 |
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373 | 378 | | for each of the diseases the compact has targeted. So long as a researcher follows the common 17 |
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374 | 379 | | ethical standards in effect at the time the research is done, an entity presenting a cure will be 18 |
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375 | 380 | | deemed to have followed the standards. On or before January 1 of each year, the compact shall 19 |
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376 | 381 | | review all state laws to determine if additional ethical standards have been enacted by any of the 20 |
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377 | 382 | | 50 states and the federal government. Any changes to the common ethical standards rules based 21 |
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378 | 383 | | on new state laws shall be adopted and published by the compact but shall not take effect in cure 22 |
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379 | 384 | | criteria for a period of three years to allow for sufficient notice to researchers. 23 |
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380 | 385 | | (d) All rules may be amended as the Commission sees necessary. 24 |
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381 | 386 | | (e) All rules shall be adopted pursuant to a rulemaking process that conforms to the 25 |
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382 | 387 | | Model State Administrative Procedure Act of 1981 by the uniform law commissioners, as 26 |
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383 | 388 | | amended, as may be appropriate to the operations of the Commission. 27 |
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384 | 389 | | (f) In the event the Commission exercises its rulemaking authority in a manner that is 28 |
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385 | 390 | | beyond the scope of the purpose of this compact or the powers granted hereunder, then such rule 29 |
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386 | 391 | | shall be invalid and have no force and effect. 30 |
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387 | 392 | | "§ 90-326.6. Management committee. 31 |
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388 | 393 | | (a) The Commission may establish a management committee comprised of not more than 32 |
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389 | 394 | | 14 members when 26 states enact the compact. 33 |
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390 | 395 | | (b) The committee shall consist of those members representing compacting states whose 34 |
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391 | 396 | | total public health expenses of all of the established diseases are the highest. 35 |
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392 | 397 | | (c) The committee shall have such authority and duties as may be set forth in the 36 |
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393 | 398 | | Commission's bylaws and rules, including: 37 |
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394 | 399 | | (1) Managing authority over the day-to-day affairs of the Commission in a 38 |
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395 | 400 | | manner consistent with the Commission's bylaws and rules and the purposes 39 |
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396 | 401 | | of the compact. 40 |
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397 | 402 | | (2) Overseeing the offices of the Commission. 41 |
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398 | 403 | | (3) Planning, implementing, and coordinating communications and activities with 42 |
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399 | 404 | | state, federal, and local government organizations in order to advance the 43 |
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400 | 405 | | goals of the compact. 44 |
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401 | 406 | | (d) The Commission annually shall elect officers for the committee, with each having 45 |
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402 | 407 | | such authority and duties as may be specified in the Commission's bylaws and rules. 46 |
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403 | 408 | | (e) The management committee, subject to Commission approval, may appoint or retain 47 |
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404 | 409 | | an executive director for such period, upon such terms and conditions, and for such compensation 48 |
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405 | 410 | | as the committee determines. The executive director shall serve as secretary to the Commission 49 |
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406 | 411 | | but shall not be a member of the Commission. The executive director shall hire and supervise 50 |
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407 | 412 | | such other staff as may be authorized by the committee. 51 General Assembly Of North Carolina Session 2025 |
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409 | 414 | | "§ 90-326.7. Advisory committees. 1 |
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410 | 415 | | The Commission may appoint advisory committees to monitor all operations related to the 2 |
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411 | 416 | | purposes of the compact and make recommendations to the Commission; provided that the 3 |
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412 | 417 | | manner of selection and term of any committee member shall be as set forth in the Commission's 4 |
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413 | 418 | | bylaws and rules. The Commission shall consult with an advisory committee, to the extent 5 |
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414 | 419 | | required by the Commission's bylaws or rules, before doing any of the following: 6 |
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415 | 420 | | (1) Approving cure criteria. 7 |
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416 | 421 | | (2) Amending, enacting, or repealing any bylaw or rule. 8 |
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417 | 422 | | (3) Adopting the Commission's annual budget. 9 |
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418 | 423 | | (4) Addressing any other significant matter or taking any other significant action. 10 |
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419 | 424 | | "§ 90-326.8. Finance. 11 |
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420 | 425 | | (a) The Commission annually shall establish a budget to pay or provide for the payment 12 |
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421 | 426 | | of its reasonable expenses. To fund the cost of initial operations, the Commission may accept 13 |
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422 | 427 | | contributions and other forms of funding from the compacting states and other sources. 14 |
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423 | 428 | | Contributions and other forms of funding from other sources shall be of such a nature that the 15 |
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424 | 429 | | independence of the Commission concerning the performance of its duties shall not be 16 |
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425 | 430 | | compromised. 17 |
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426 | 431 | | (b) The Commission shall be exempt from all taxation in and by the compacting states. 18 |
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427 | 432 | | (c) The Commission shall keep complete and accurate accounts of all of its internal 19 |
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428 | 433 | | receipts, including grants and donations, and disbursements of all funds under its control. The 20 |
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429 | 434 | | internal financial accounts of the Commission shall be subject to the accounting procedures 21 |
---|
430 | 435 | | established under the Commission's bylaws or rules. The financial accounts and reports, 22 |
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431 | 436 | | including the system of internal controls and procedures of the Commission, shall be audited 23 |
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432 | 437 | | annually by an independent certified public accountant. Upon the determination of the 24 |
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433 | 438 | | Commission but not less frequently than every three years, the review of the independent auditor 25 |
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434 | 439 | | shall include a management and performance audit of the Commission. The Commission shall 26 |
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435 | 440 | | make an annual report to the governors and legislatures of the compacting states, which shall 27 |
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436 | 441 | | include a report of the independent audit. The Commission's internal accounts shall not be 28 |
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437 | 442 | | confidential, and such materials may be shared with any compacting state upon request, provided, 29 |
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438 | 443 | | however, that any work papers related to any internal or independent audit and any information 30 |
---|
439 | 444 | | subject to the compacting states' privacy laws shall remain confidential. 31 |
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440 | 445 | | (d) No compacting state shall have any claim or ownership of any property held by or 32 |
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441 | 446 | | vested in the Commission or to any Commission funds held pursuant to the provisions of the 33 |
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442 | 447 | | compact. 34 |
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443 | 448 | | "§ 90-326.9. Records. 35 |
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444 | 449 | | Except as to privileged records, data, and information, the laws of any compacting state 36 |
---|
445 | 450 | | pertaining to confidentiality or nondisclosure shall not relieve any member of the duty to disclose 37 |
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446 | 451 | | any relevant records, data, or information to the Commission; provided, that disclosure to the 38 |
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447 | 452 | | Commission shall not be deemed to waive or otherwise affect any confidentiality requirement; 39 |
---|
448 | 453 | | and further provided, that, except as otherwise expressly provided in the compact, the 40 |
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449 | 454 | | Commission shall not be subject to the compacting state's laws pertaining to confidentiality and 41 |
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450 | 455 | | nondisclosure with respect to records, data, and information in its possession. Confidential 42 |
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451 | 456 | | information of the Commission shall remain confidential after such information is provided to 43 |
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452 | 457 | | any member. All cure submissions received by the Commission are confidential. 44 |
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453 | 458 | | "§ 90-326.10. Compliance. 45 |
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454 | 459 | | The Commission shall notify a compacting state in writing of any noncompliance with 46 |
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455 | 460 | | Commission bylaws and rules. If a compacting state fails to remedy its noncompliance within 47 |
---|
456 | 461 | | the time specified in the notice, the compacting state shall be deemed to be in default as set forth 48 |
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457 | 462 | | in G.S. 90-326.14. 49 |
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458 | 463 | | "§ 90-326.11. Venue. 50 General Assembly Of North Carolina Session 2025 |
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460 | 465 | | Venue for any judicial proceedings by or against the Commission shall be brought in the 1 |
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461 | 466 | | appropriate court of competent jurisdiction for the geographical area in which the principal office 2 |
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462 | 467 | | of the Commission is located. 3 |
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463 | 468 | | "§ 90-326.12. Qualified immunity, defense, and indemnification. 4 |
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464 | 469 | | (a) The members, officers, executive director, employees, and representatives of the 5 |
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465 | 470 | | Commission shall be immune from suit and liability, either personally or in their official capacity, 6 |
---|
466 | 471 | | for any claim for damage to or loss of property or personal injury or other civil liability caused 7 |
---|
467 | 472 | | by or arising out of any actual or alleged act, error, or omission that occurred, or that such person 8 |
---|
468 | 473 | | had a reasonable basis for believing occurred within the scope of the person's Commission 9 |
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469 | 474 | | employment, duties, or responsibilities; provided, that nothing in this subsection shall be 10 |
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470 | 475 | | construed to protect any such person from suit or liability for any damage, loss, injury, or liability 11 |
---|
471 | 476 | | caused by the intentional or willful and wanton misconduct of that person. 12 |
---|
472 | 477 | | (b) The Commission shall defend any member, officer, executive director, employee, or 13 |
---|
473 | 478 | | representative of the Commission in any civil action seeking to impose liability arising out of 14 |
---|
474 | 479 | | any actual or alleged act, error, or omission that occurred within the scope of the person's 15 |
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475 | 480 | | Commission employment, duties, or responsibilities, or that such person had a reasonable basis 16 |
---|
476 | 481 | | for believing occurred within the scope of the person's Commission employment, duties, or 17 |
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477 | 482 | | responsibilities; provided, that nothing in the compact or Commission bylaws or rules shall be 18 |
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478 | 483 | | construed to prohibit that person from retaining his or her own counsel; and provided further, 19 |
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479 | 484 | | that the actual or alleged act, error, or omission did not result from that person's intentional or 20 |
---|
480 | 485 | | willful and wanton misconduct. 21 |
---|
481 | 486 | | (c) The Commission shall indemnify and hold harmless any member, officer, executive 22 |
---|
482 | 487 | | director, employee, or representative of the Commission for the amount of any settlement or 23 |
---|
483 | 488 | | judgment obtained against the person arising out of any actual or alleged act, error, or omission 24 |
---|
484 | 489 | | that occurred within the scope of the person's Commission employment, duties, or 25 |
---|
485 | 490 | | responsibilities, or that such person had a reasonable basis for believing occurred within the scope 26 |
---|
486 | 491 | | of Commission employment, duties, or responsibilities; provided, that the actual or alleged act, 27 |
---|
487 | 492 | | error, or omission did not result from the intentional or willful and wanton misconduct of that 28 |
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488 | 493 | | person. 29 |
---|
489 | 494 | | "§ 90-326.13. Compacting states, effective date, amendments, and funding. 30 |
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490 | 495 | | (a) Compacting States. – Any state is eligible to become a compacting state. 31 |
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491 | 496 | | (b) Effective Date. – The compact shall become effective and binding upon legislative 32 |
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492 | 497 | | enactment of the compact into law by two compacting states; provided that the Commission shall 33 |
---|
493 | 498 | | only be established after six states become compacting states. Thereafter, the compact shall 34 |
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494 | 499 | | become effective and binding as to any other compacting state upon enactment of the compact 35 |
---|
495 | 500 | | into law by that state. 36 |
---|
496 | 501 | | (c) Amendments. – Amendments to the compact may be proposed by the Commission 37 |
---|
497 | 502 | | for enactment by the compacting states. No amendment shall become effective and binding until 38 |
---|
498 | 503 | | all compacting states enact the amendment into law. 39 |
---|
499 | 504 | | (d) Funding. – If funding is requested or required, the legislative authority of each 40 |
---|
500 | 505 | | compacting state shall be responsible for making the appropriations it determines necessary to 41 |
---|
501 | 506 | | pay for the costs of the compact, including annual member dues and prize distributions. 42 |
---|
502 | 507 | | "§ 90-326.14. Withdrawal, default, and expulsion. 43 |
---|
503 | 508 | | (a) Once effective, the compact shall continue in force and remain binding upon each and 44 |
---|
504 | 509 | | every compacting state; provided, that a compacting state may withdraw from the compact by 45 |
---|
505 | 510 | | doing both of the following: 46 |
---|
506 | 511 | | (1) Repealing the law enacting the compact in that state. 47 |
---|
507 | 512 | | (2) Notifying the Commission in writing of the intent to withdraw on a date that 48 |
---|
508 | 513 | | is both of the following: 49 |
---|
509 | 514 | | a. At least three years after the date the notice is sent. 50 |
---|
510 | 515 | | b. After the repeal takes effect. 51 General Assembly Of North Carolina Session 2025 |
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512 | 517 | | (b) The effective date of withdrawal is the date described in subdivision (2) of subsection 1 |
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513 | 518 | | (a) of this section. 2 |
---|
514 | 519 | | (c) The member representing the withdrawing state shall immediately notify the 3 |
---|
515 | 520 | | management committee in writing upon the introduction of legislation in that state repealing the 4 |
---|
516 | 521 | | compact. If a management committee has not been established, the member shall immediately 5 |
---|
517 | 522 | | notify the Commission. 6 |
---|
518 | 523 | | (d) The Commission or management committee, as applicable, shall notify the other 7 |
---|
519 | 524 | | compacting states of the introduction of such legislation within 10 days after its receipt of notice 8 |
---|
520 | 525 | | thereof. 9 |
---|
521 | 526 | | (e) The withdrawing state is responsible for all obligations, duties, and liabilities incurred 10 |
---|
522 | 527 | | through the effective date of withdrawal, including any obligations, the performance of which 11 |
---|
523 | 528 | | extend beyond the effective date of withdrawal. The Commission's actions shall continue to be 12 |
---|
524 | 529 | | effective and be given full force and effect in the withdrawing state. 13 |
---|
525 | 530 | | "§ 90-326.15. Reinstatement. 14 |
---|
526 | 531 | | Reinstatement following a state's withdrawal shall become effective upon the effective date 15 |
---|
527 | 532 | | of the subsequent enactment of the compact by that state. 16 |
---|
528 | 533 | | "§ 90-326.16. Default. 17 |
---|
529 | 534 | | (a) If the Commission determines that any compacting state has at any time defaulted in 18 |
---|
530 | 535 | | the performance of any of its obligations or responsibilities under the compact or the 19 |
---|
531 | 536 | | Commission's bylaws or rules, then, after notice and hearing as set forth in the bylaws, all rights, 20 |
---|
532 | 537 | | privileges, and benefits conferred by this compact on the defaulting state shall be suspended from 21 |
---|
533 | 538 | | the effective date of default as fixed by the Commission. The grounds for default include failure 22 |
---|
534 | 539 | | of a compacting state to perform its obligations or responsibilities and any other grounds 23 |
---|
535 | 540 | | designated in Commission rules. The Commission shall immediately notify the defaulting state 24 |
---|
536 | 541 | | in writing of the suspension pending cure of the default. The Commission shall stipulate the 25 |
---|
537 | 542 | | conditions and the time period within which the defaulting state shall cure its default. If the 26 |
---|
538 | 543 | | defaulting state fails to cure the default within the time period specified by the Commission, the 27 |
---|
539 | 544 | | defaulting state shall be expelled from the compact, and all rights, privileges, and benefits 28 |
---|
540 | 545 | | conferred by the compact shall be terminated from the effective date of the expulsion. Any state 29 |
---|
541 | 546 | | that is expelled from the compact shall be liable for any cure prize or prizes for three years after 30 |
---|
542 | 547 | | its removal. The Commission shall also take appropriate legal action to ensure that any 31 |
---|
543 | 548 | | compacting state that withdraws from the compact remains liable for paying its responsibility 32 |
---|
544 | 549 | | toward a prize for a cure that was accepted while the compacting state was a member of the 33 |
---|
545 | 550 | | Commission. 34 |
---|
546 | 551 | | (b) The expelled state must reenact the compact in order to become a compacting state. 35 |
---|
547 | 552 | | "§ 90-326.17. Dissolution of compact. 36 |
---|
548 | 553 | | (a) The compact dissolves effective upon the date of either of the following: 37 |
---|
549 | 554 | | (1) The withdrawal or expulsion of a compacting state, which withdrawal or 38 |
---|
550 | 555 | | expulsion reduces membership in the compact to one compacting state. 39 |
---|
551 | 556 | | (2) The Commission votes to dissolve the compact. 40 |
---|
552 | 557 | | (b) Upon the dissolution of the compact, the compact becomes null and void and shall be 41 |
---|
553 | 558 | | of no further force or effect, and the business and affairs of the Commission shall be wound up, 42 |
---|
554 | 559 | | and any surplus funds shall be distributed in accordance with the Commission's bylaws, provided, 43 |
---|
555 | 560 | | that the Commission shall pay all outstanding prizes awarded before the dissolution of the 44 |
---|
556 | 561 | | compact, as well as any other outstanding debts and obligations incurred during the existence of 45 |
---|
557 | 562 | | the compact. Any unawarded funds donated to be part of a prize shall be returned to the donor, 46 |
---|
558 | 563 | | along with any interest earned on the amount. 47 |
---|
559 | 564 | | "§ 90-326.18. Severability and construction. 48 |
---|
560 | 565 | | (a) The provisions of the compact shall be severable, and if any phrase, clause, sentence, 49 |
---|
561 | 566 | | or provision is deemed unenforceable, the remaining provisions of the compact shall be 50 |
---|
562 | 567 | | enforceable. 51 General Assembly Of North Carolina Session 2025 |
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564 | 569 | | (b) The provisions of the compact shall be liberally construed to effectuate its purposes. 1 |
---|
565 | 570 | | "§ 90-326.19. Binding effect of compact and other laws. 2 |
---|
566 | 571 | | (a) Other Laws. – Nothing in this Article prevents the enforcement of any other law of a 3 |
---|
567 | 572 | | compacting state, except as provided in subdivision (2) of subsection (b) of this section. 4 |
---|
568 | 573 | | (b) Binding Effect of the Compact. – All of the following are binding: 5 |
---|
569 | 574 | | (1) All lawful actions of the Commission, including all Commission rules, are 6 |
---|
570 | 575 | | binding upon the compacting states. 7 |
---|
571 | 576 | | (2) All agreements between the Commission and the compacting states are 8 |
---|
572 | 577 | | binding in accordance with their terms. 9 |
---|
573 | 578 | | (3) Except to the extent authorized by the compacting state's constitution or, if 10 |
---|
574 | 579 | | constitutional authorization is not required, by other law of the compacting 11 |
---|
575 | 580 | | state, such state, by entering into the compact, does not: 12 |
---|
576 | 581 | | a. Commit the full faith and credit or taxing power of the compacting 13 |
---|
577 | 582 | | state for the payment of prizes or other obligations under the compact. 14 |
---|
578 | 583 | | b. Make prize payment responsibilities or other obligations under the 15 |
---|
579 | 584 | | compact a debt of the compacting state. 16 |
---|
580 | 585 | | (4) Upon the request of a party to a conflict over the meaning or interpretation of 17 |
---|
581 | 586 | | Commission actions, and upon a majority vote of the compacting states, the 18 |
---|
582 | 587 | | Commission may issue advisory opinions regarding the meaning or 19 |
---|
583 | 588 | | interpretation in dispute. 20 |
---|
584 | 589 | | (5) In the event any provision of the compact exceeds the constitutional limits 21 |
---|
585 | 590 | | imposed on any compacting state, the obligations, duties, powers, or 22 |
---|
586 | 591 | | jurisdiction sought to be conferred by that provision upon the Commission 23 |
---|
587 | 592 | | shall be ineffective as to that compacting state, and those obligations, duties, 24 |
---|
588 | 593 | | powers, or jurisdiction shall remain in the compacting state and shall be 25 |
---|
589 | 594 | | exercised by the agency thereof to which those obligations, duties, powers, or 26 |
---|
590 | 595 | | jurisdiction are delegated by law in effect at the time the compact becomes 27 |
---|
591 | 596 | | effective." 28 |
---|
592 | 597 | | SECTION 2. This act becomes effective upon the enactment of the compact into law 29 |
---|
593 | 598 | | by at least two compacting states. 30 |
---|