Designates March of each year as "Fibromuscular Dysplasia Awareness Month."
The establishment of FMD Awareness Month is a significant step toward addressing the lack of awareness surrounding this rare condition. Many individuals and families affected by FMD face challenges in obtaining accurate diagnoses and optimal treatment options. The designation aims to foster a supportive environment for patients and raise the profile of FMD within both the medical community and the general populace. The Fibromuscular Dysplasia Society of America (FMDSA) has been actively engaged in raising awareness and promoting education around FMD since its founding in 2003. By spotlighting this disease, the resolution hopes to mobilize further research and support for affected individuals.
SJR107 is a Senate Joint Resolution that designates March of each year as 'Fibromuscular Dysplasia Awareness Month' in New Jersey. The resolution aims to increase public understanding of Fibromuscular dysplasia (FMD), a rare disease characterized by abnormal growth in the arterial walls, leading to complications such as narrowing or tearing of arteries. FMD is often under-diagnosed, particularly affecting women, and can result in significant health challenges, including hypertension and other serious cardiovascular issues. The resolution will be advocated annually through a proclamation from the Governor, encouraging public officials and citizens to engage in awareness activities and programs related to this health issue.
While the bill is primarily focused on raising awareness, some may question the effectiveness of designating a month for disease awareness compared to concrete legislative measures that directly affect patient treatment and care. Additionally, given the nature of rare diseases, critics may argue that more resources could be allocated towards research and the development of treatment protocols rather than awareness alone. Nevertheless, supporters contend that such efforts are essential for fostering community understanding and encouraging open dialogues about the struggles faced by those living with fibromuscular dysplasia.