New Jersey 2024-2025 Regular Session

New Jersey Senate Bill SJR129 Latest Draft

Bill / Introduced Version Filed 09/20/2024

                            SENATE JOINT RESOLUTION  No. 129  STATE OF NEW JERSEY 221st LEGISLATURE    INTRODUCED SEPTEMBER 19, 2024   

SENATE JOINT RESOLUTION 

No. 129 

STATE OF NEW JERSEY

221st LEGISLATURE

  

INTRODUCED SEPTEMBER 19, 2024

 

   Sponsored by: Senator  CARMEN F. AMATO, JR. District 9 (Ocean)         SYNOPSIS      Designates February 12th of each year as "Carly Day" in NJ.   CURRENT VERSION OF TEXT       As introduced.     

 

Sponsored by:

Senator  CARMEN F. AMATO, JR.

District 9 (Ocean)

 

 

 

 

SYNOPSIS

     Designates February 12th of each year as "Carly Day" in NJ.

 

CURRENT VERSION OF TEXT 

     As introduced.

   

 A Joint Resolution designating February 12th of each year as "Carly Day" in New Jersey.   Whereas, Congenital heart defects are problems with the structure of the heart that are present at birth and change the normal flow of blood through the heart; and Whereas, The most common congenital heart defects involve the inside walls of the heart, the valves of the heart, and the large blood vessels that carry blood to and from the heart; and Whereas, Some defects are simple and require no treatment, while others are critical and require treatment soon after birth; and Whereas, 9 out of every 1,000 babies born in the US will be born with a heart defect; and Whereas, As a result of research and medical advances most people with congenital heart defects survive through adulthood.  Adults now outnumber children among the more than 2.4 million people living with a congenital heart defect in the US; and Whereas, Bayville resident Carly Fetzer was born with a congenital heart defect known as hypoplastic left heart syndrome; and Whereas, In Carly's first years of life, she had three surgeries to reroute her body's blood flow and despite the odds she lived 18 remarkable years before she passed away; and Whereas, Carly was a loving person who brought smiles to everyone around her.  Her family and the Berkeley Township community remember Carly for her courage; and Whereas, Her perseverance allowed her to enjoy life while battling a congenital heart defect and graduate from Central Regional High School in 2018; and Whereas, Carly was a special needs ambassador at the Bayville Elks Lodge in Berkeley Township where she played Challenger sports with her peers; and Whereas, Her favorite pastimes included talking on the phone, attending her twin sister Ryanne's softball games, and vacationing in Myrtle Beach; and Whereas, Carly's friends and family established the Carly Fetzer Queen of Hearts Foundation in NJ to honor Carly.  The foundation provides food vouchers to families at the Children's Hospital of Philadelphia and donates money to research studies that focus on children with congenital heart defects; and  Whereas, New Jersey was the first state to implement a legislatively mandated newborn pulse oximetry screening in all licensed birthing facilities to detect critical congenital heart defects; and Whereas, Congenital Heart Defect Awareness Week is observed nationally each year from February 7th to February 14th; and Whereas, Designating February 12th as "Carly Day" would provide New Jerseyans with an annual reminder on the effects that congenital heart defects have on individuals diagnosed with a congenital heart defect in the State; now, therefore,        Be It Resolved by the Senate and General Assembly of the State of New Jersey:        1.  February 12th of each year shall be designated as "Carly Day" in New Jersey to bring awareness to congenital heart defects and their effect on those living with a congenital heart defect in the State.        2.  The Governor is respectfully requested to annually issue a proclamation recognizing February 12th as "Carly Day" in New Jersey.        3. This joint resolution shall take effect immediately.     STATEMENT        This resolution designates February 12th of each year as "Carly Day" in New Jersey.  Bayville resident Carly Fetzer was born with a congenital heart defect known as hypoplastic left heart syndrome.  Congenital heart defects are problems with the structure of the heart that are present at birth and change the normal flow of blood through the heart.  In the US, 9 out of every 1,000 babies will be born with a heart defect.  In Carly's first years of life, she had three surgeries to reroute her body's blood flow and despite the odds she lived 18 remarkable years before she passed away.  Carly's friends and family established the Carly Fetzer Queen of Hearts Foundation to honor Carly.  The foundation provides food vouchers to families at the Children's Hospital of Philadelphia and donates money to research studies that focus on children with congenital heart defects.  Congenital Heart Defect Awareness Week is observed annually from February 7th to February 14th.  Designating February 12th as "Carly Day" would provide New Jerseyans with an annual reminder on the effects that congenital heart defects have on individuals diagnosed with a congenital heart defect in the State. 

A Joint Resolution designating February 12th of each year as "Carly Day" in New Jersey.

 

Whereas, Congenital heart defects are problems with the structure of the heart that are present at birth and change the normal flow of blood through the heart; and

Whereas, The most common congenital heart defects involve the inside walls of the heart, the valves of the heart, and the large blood vessels that carry blood to and from the heart; and

Whereas, Some defects are simple and require no treatment, while others are critical and require treatment soon after birth; and

Whereas, 9 out of every 1,000 babies born in the US will be born with a heart defect; and

Whereas, As a result of research and medical advances most people with congenital heart defects survive through adulthood.  Adults now outnumber children among the more than 2.4 million people living with a congenital heart defect in the US; and

Whereas, Bayville resident Carly Fetzer was born with a congenital heart defect known as hypoplastic left heart syndrome; and

Whereas, In Carly's first years of life, she had three surgeries to reroute her body's blood flow and despite the odds she lived 18 remarkable years before she passed away; and

Whereas, Carly was a loving person who brought smiles to everyone around her.  Her family and the Berkeley Township community remember Carly for her courage; and

Whereas, Her perseverance allowed her to enjoy life while battling a congenital heart defect and graduate from Central Regional High School in 2018; and

Whereas, Carly was a special needs ambassador at the Bayville Elks Lodge in Berkeley Township where she played Challenger sports with her peers; and

Whereas, Her favorite pastimes included talking on the phone, attending her twin sister Ryanne's softball games, and vacationing in Myrtle Beach; and

Whereas, Carly's friends and family established the Carly Fetzer Queen of Hearts Foundation in NJ to honor Carly.  The foundation provides food vouchers to families at the Children's Hospital of Philadelphia and donates money to research studies that focus on children with congenital heart defects; and 

Whereas, New Jersey was the first state to implement a legislatively mandated newborn pulse oximetry screening in all licensed birthing facilities to detect critical congenital heart defects; and

Whereas, Congenital Heart Defect Awareness Week is observed nationally each year from February 7th to February 14th; and

Whereas, Designating February 12th as "Carly Day" would provide New Jerseyans with an annual reminder on the effects that congenital heart defects have on individuals diagnosed with a congenital heart defect in the State; now, therefore,

 

     Be It Resolved by the Senate and General Assembly of the State of New Jersey:

 

     1.  February 12th of each year shall be designated as "Carly Day" in New Jersey to bring awareness to congenital heart defects and their effect on those living with a congenital heart defect in the State.

 

     2.  The Governor is respectfully requested to annually issue a proclamation recognizing February 12th as "Carly Day" in New Jersey.

 

     3. This joint resolution shall take effect immediately.

 

 

STATEMENT

 

     This resolution designates February 12th of each year as "Carly Day" in New Jersey.  Bayville resident Carly Fetzer was born with a congenital heart defect known as hypoplastic left heart syndrome.  Congenital heart defects are problems with the structure of the heart that are present at birth and change the normal flow of blood through the heart.  In the US, 9 out of every 1,000 babies will be born with a heart defect.  In Carly's first years of life, she had three surgeries to reroute her body's blood flow and despite the odds she lived 18 remarkable years before she passed away.  Carly's friends and family established the Carly Fetzer Queen of Hearts Foundation to honor Carly.  The foundation provides food vouchers to families at the Children's Hospital of Philadelphia and donates money to research studies that focus on children with congenital heart defects.  Congenital Heart Defect Awareness Week is observed annually from February 7th to February 14th.  Designating February 12th as "Carly Day" would provide New Jerseyans with an annual reminder on the effects that congenital heart defects have on individuals diagnosed with a congenital heart defect in the State.