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5 | 5 | | 2025 -- H 5164 |
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6 | 6 | | ======== |
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7 | 7 | | LC000794 |
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8 | 8 | | ======== |
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9 | 9 | | S T A T E O F R H O D E I S L A N D |
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10 | 10 | | IN GENERAL ASSEMBLY |
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11 | 11 | | JANUARY SESSION, A.D. 2025 |
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12 | 12 | | ____________ |
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13 | 13 | | |
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14 | 14 | | A N A C T |
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15 | 15 | | RELATING TO EDUCATION -- CHILDREN WITH DISABILITIES |
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16 | 16 | | Introduced By: Representatives Carson, Shallcross Smith, McNamara, Cotter, Donovan, |
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17 | 17 | | Caldwell, Noret, Diaz, and Casimiro |
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18 | 18 | | Date Introduced: January 24, 2025 |
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19 | 19 | | Referred To: House Education |
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20 | 20 | | |
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21 | 21 | | |
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22 | 22 | | It is enacted by the General Assembly as follows: |
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23 | 23 | | SECTION 1. Findings of fact. 1 |
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24 | 24 | | The General Assembly hereby finds and declares the following: 2 |
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25 | 25 | | (l) Rhode Island is committed to delivering high-quality services to support positive early 3 |
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26 | 26 | | childhood development and learning of children with developmental delays and disabilities under 4 |
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27 | 27 | | Part C and Part B, Section 619 of the federal Individuals with Disabilities Education Act ("IDEA"), 5 |
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28 | 28 | | 20 U.S.C. S 1400 et seq., from infancy to kindergarten entry. 6 |
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29 | 29 | | (2) Early identification and delivery of high-quality early childhood IDEA services to 7 |
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30 | 30 | | children with developmental challenges, developmental delays, and disabilities can improve 8 |
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31 | 31 | | educational outcomes, reduce long-term costs of special education, and maximize the long-term 9 |
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32 | 32 | | potential of children succeeding in school and life. 10 |
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33 | 33 | | (3) Nationally, young children with disabilities and delays and their families face 11 |
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34 | 34 | | challenges with accessing inclusive early childhood services individualized to their needs in all 12 |
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35 | 35 | | settings, particularly young children of color. 13 |
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36 | 36 | | (4) Effective early childhood IDEA services can help children make substantial 14 |
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37 | 37 | | developmental progress. Research has shown that about one-third of children who receive timely 15 |
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38 | 38 | | Early Intervention services no longer had a developmental delay or special education need in 16 |
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39 | 39 | | kindergarten. 17 |
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40 | 40 | | (5) The Rhode Island Early Intervention program established pursuant to § 23-13-23, 18 |
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41 | 41 | | currently managed by the R.I. Executive Office of Health and Human Services, is the state's 19 |
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42 | 42 | | |
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43 | 43 | | |
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44 | 44 | | LC000794 - Page 2 of 7 |
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45 | 45 | | comprehensive, coordinated, multidisciplinary, interagency system that provides early intervention 1 |
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46 | 46 | | services for infants and toddlers with developmental delays and disabilities and their families, as 2 |
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47 | 47 | | described and partially funded through Part C of the federal Individuals with Disabilities Education 3 |
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48 | 48 | | Act. 4 |
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49 | 49 | | (6) In Rhode Island, after twenty (20) years without a Medicaid rate increase, Early 5 |
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50 | 50 | | Intervention financing and staffing challenges became so severe that in November 2021 the state 6 |
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51 | 51 | | established a waiting list for Early Intervention services. As of January 2025, even after two 7 |
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52 | 52 | | Medicaid rate increases, the Early Intervention program was still not fully staffed and there were 8 |
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53 | 53 | | 283 infants and toddlers who had been waiting for an Early Intervention evaluation for more than 9 |
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54 | 54 | | 45 days. 10 |
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55 | 55 | | (7) The Rhode Island Department of Elementary and Secondary Education oversees the 11 |
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56 | 56 | | state's early childhood special education services providing free, appropriate, public education to 12 |
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57 | 57 | | all eligible children ages three (3) to five (5) with developmental delays and disabilities, partially 13 |
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58 | 58 | | funded through a preschool formula grant under Part B, Section 619 of IDEA. 14 |
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59 | 59 | | (8) In Rhode Island in 2022-2023, school districts completed developmental screenings for 15 |
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60 | 60 | | only thirty-six percent (36%) of children ages three (3) to kindergarten entry. More than one-third 16 |
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61 | 61 | | (1/3) of children ages three (3) to kindergarten entry who were referred to a school district with 17 |
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62 | 62 | | developmental concerns were not evaluated to determine eligibility for special education. 18 |
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63 | 63 | | (9) There is significant variation by school district in the percentage of children ages three 19 |
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64 | 64 | | (3) to kindergarten entry who receive their early childhood special education services in a general 20 |
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65 | 65 | | early childhood class. For example, ninety-five percent (95%) of children in East Greenwich 21 |
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66 | 66 | | received their IEP services in an inclusive setting as of June 2023 compared to only thirty-eight 22 |
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67 | 67 | | percent (38%) of children in the city of Providence. 23 |
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68 | 68 | | (10) In March 2023, school districts in Rhode Island, particularly Providence Public 24 |
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69 | 69 | | Schools, began reporting significant staffing challenges that were causing delays and disruptions 25 |
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70 | 70 | | in delivering early childhood IDEA services to children ages three (3) to kindergarten entry. 26 |
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71 | 71 | | SECTION 2. Chapter 16-24 of the General Laws entitled "Children With Disabilities [See 27 |
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72 | 72 | | Title 16 Chapter 97 — The Rhode Island Board of Education Act]" is hereby amended by adding 28 |
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73 | 73 | | thereto the following section: 29 |
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74 | 74 | | 16-24-20. Early childhood IDEA services task force established. 30 |
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75 | 75 | | (a) As used in this section, the term "IDEA" refers to the Individuals with Disabilities 31 |
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76 | 76 | | Education Act, as amended, 20 U.S.C. §1400 et seq. 32 |
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77 | 77 | | (b) There shall be created an early childhood IDEA services task force (the "task force") 33 |
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78 | 78 | | co-chaired by: 34 |
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79 | 79 | | |
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80 | 80 | | |
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81 | 81 | | LC000794 - Page 3 of 7 |
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82 | 82 | | (1) The commissioner of elementary and secondary education, or designee; 1 |
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83 | 83 | | (2) The secretary of the executive office of health and human services (“EOHHS”), or 2 |
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84 | 84 | | designee; 3 |
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85 | 85 | | (3) The president of the RI Chapter of the American Academy of Pediatrics, or designee; 4 |
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86 | 86 | | (4) The executive director of Parents Leading for Educational Equity, or designee; and 5 |
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87 | 87 | | (5) The executive director of Rhode Island Kids Count, or designee. 6 |
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88 | 88 | | (c) The task force shall have the following additional members: 7 |
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89 | 89 | | (1) Three (3) parents of children with developmental delays or disabilities ages birth to 8 |
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90 | 90 | | kindergarten entry, one each to be appointed by the executive director of Parents Leading for 9 |
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91 | 91 | | Educational Equity, the Rhode Island Parent Information Network, and the Autism Project; 10 |
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92 | 92 | | (2) The executive director of the Rhode Island Parent Information Network ("RIPIN"), or 11 |
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93 | 93 | | designee; 12 |
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94 | 94 | | (3) The executive director of The Autism Project, or designee; 13 |
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95 | 95 | | (4) The executive director of the Rhode Island Developmental Disabilities Council, or 14 |
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96 | 96 | | designee; 15 |
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97 | 97 | | (5) One superintendent of a Rhode Island school district providing IDEA services to 16 |
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98 | 98 | | children ages three (3) to kindergarten entry, to be appointed by the Rhode Island School 17 |
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99 | 99 | | Superintendents Association; 18 |
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100 | 100 | | (6) One early childhood special education coordinator of a Rhode Island school district 19 |
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101 | 101 | | responsible for IDEA services for children ages three (3) to kindergarten entry, to be appointed by 20 |
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102 | 102 | | the Association for Rhode Island Administrators of Special Education; 21 |
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103 | 103 | | (7) One leader of a certified early intervention program to be appointed by the Rhode Island 22 |
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104 | 104 | | Association of Early Intervention Programs; 23 |
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105 | 105 | | (8) One Early Head Start or Head Start program leader to be appointed by the Rhode Island 24 |
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106 | 106 | | Head Start Association; and 25 |
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107 | 107 | | (9) One leader of a licensed early care and education programs that serves children ages 26 |
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108 | 108 | | birth to kindergarten entry with developmental delays or disabilities who receive a subsidy from 27 |
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109 | 109 | | the RI child care assistance program, to be appointed by the co-chairs of the Rhode Island 28 |
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110 | 110 | | permanent legislative commission on child care. 29 |
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111 | 111 | | (d) The task force shall be convened within thirty (30) days after the executive office of 30 |
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112 | 112 | | human services has secured funding in the amount of two-hundred fifty thousand dollars 31 |
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113 | 113 | | ($250,000) to support the task force, and expert consultants have been hired to support the work of 32 |
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114 | 114 | | the task force. Immediately upon obtaining sufficient funding, the EOHHS shall notify, in writing, 33 |
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115 | 115 | | the governor, the speaker of the house, the president of the senate, and the chairperson of the 34 |
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116 | 116 | | |
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117 | 117 | | |
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118 | 118 | | LC000794 - Page 4 of 7 |
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119 | 119 | | children’s cabinet established pursuant to §42-72.5-1, that the required funding has been secured. 1 |
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120 | 120 | | The task force shall be convened and staffed by the children's cabinet which shall also oversee the 2 |
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121 | 121 | | experts selected to facilitate the development of a plan to improve the delivery of early childhood 3 |
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122 | 122 | | IDEA services for children with developmental delays and disabilities from infancy through 4 |
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123 | 123 | | kindergarten entry. 5 |
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124 | 124 | | (e) The task force shall meet for and over a period of eighteen (18) months which period 6 |
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125 | 125 | | shall commence the day following the date the EOHHS provides the written notice that the required 7 |
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126 | 126 | | funding has been secured, pursuant to subsection (d) of this section. The task force shall seek input 8 |
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127 | 127 | | from the Rhode Island early learning council, the early intervention interagency coordinating 9 |
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128 | 128 | | council established pursuant to § 23-13-23, and other stakeholders, to develop recommendations 10 |
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129 | 129 | | which shall be finalized through consensus decision-making among members of the task force, or, 11 |
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130 | 130 | | if consensus is not possible, through a majority vote among members of the task force with the 12 |
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131 | 131 | | report specifying major areas of disagreement among task force members. 13 |
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132 | 132 | | (f) The task force shall submit an interim report within twelve (12) months after the initial 14 |
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133 | 133 | | convening of the task force to the governor, speaker of the house, president of the senate, and the 15 |
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134 | 134 | | chairs of the house and senate finance and education committees, that shall include 16 |
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135 | 135 | | recommendations regarding immediate strategies to stabilize and improve young children's access 17 |
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136 | 136 | | to early childhood IDEA services, including specific recommended strategies to address staffing 18 |
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137 | 137 | | challenges that have been delaying and disrupting the provision of early childhood IDEA services. 19 |
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138 | 138 | | (g) The task force shall submit a final report within eighteen (18) months after the initial 20 |
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139 | 139 | | convening to the governor, speaker of the house, president of the senate, and the chairs of the house 21 |
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140 | 140 | | and senate finance and education committees, which shall include recommendations to stabilize 22 |
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141 | 141 | | and improve young children's access to early childhood IDEA services in the state. The 23 |
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142 | 142 | | recommendations shall address, but need not be limited to: 24 |
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143 | 143 | | (1) Suggested updates to Rhode Island general laws and regulations to promote the early 25 |
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144 | 144 | | identification, evaluation, eligibility determination, and consistent delivery of high-quality IDEA 26 |
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145 | 145 | | services to young children from birth through kindergarten entry, with attention to equitable access 27 |
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146 | 146 | | for historically and currently marginalized populations; 28 |
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147 | 147 | | (2) Cost estimates and recommended funding and staffing strategies to ensure the timely 29 |
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148 | 148 | | provision of high-quality early childhood IDEA services by qualified educators and professionals 30 |
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149 | 149 | | in natural and inclusive settings with sufficient dosage and duration. The task force shall review a 31 |
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150 | 150 | | variety of financing options including modifications to the state education funding formula, 32 |
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151 | 151 | | categorical funding administered by the department of education, local funding, federal IDEA 33 |
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152 | 152 | | funding, and billing through Medicaid and commercial insurance. Recommendations shall include 34 |
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153 | 153 | | |
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154 | 154 | | |
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155 | 155 | | LC000794 - Page 5 of 7 |
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156 | 156 | | methods to adjust funding annually to meet demand and to ensure program costs are covered 1 |
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157 | 157 | | including competitive compensation to attract and retain qualified staff; 2 |
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158 | 158 | | (3) Removal of barriers and expanding access to education and training to increase the 3 |
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159 | 159 | | number of qualified professionals and the diversity of the early childhood IDEA workforce, 4 |
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160 | 160 | | including designing and funding an education pipeline to help bilingual people and people of color 5 |
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161 | 161 | | earn degrees, credentials, and professional licenses needed to deliver high-quality early childhood 6 |
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162 | 162 | | IDEA services; 7 |
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163 | 163 | | (4) An implementation plan and cost estimates to establish and maintain an ongoing 8 |
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164 | 164 | | multilingual public awareness and outreach campaign to educate families with children from birth 9 |
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165 | 165 | | through kindergarten entry about developmental delays and disabilities and how to access early 10 |
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166 | 166 | | childhood IDEA services; 11 |
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167 | 167 | | (5) An implementation plan and cost estimates to establish and maintain a multilingual 12 |
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168 | 168 | | family resource center for families with children from birth through kindergarten entry who need 13 |
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169 | 169 | | help getting evaluations, starting, or maintaining access to early childhood IDEA services; 14 |
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170 | 170 | | (6) Strategies and action steps to ensure at least eighty percent (80%) of young children 15 |
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171 | 171 | | from infancy to kindergarten entry receive developmental screenings and all referrals for children 16 |
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172 | 172 | | who need follow-up IDEA eligibility evaluations are monitored; 17 |
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173 | 173 | | (7) Strategies to ensure children receive early childhood IDEA services in natural 18 |
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174 | 174 | | environments and least restrictive environments including community-based early care and 19 |
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175 | 175 | | education settings chosen by families for children from infancy to kindergarten entry, which may 20 |
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176 | 176 | | or may not be located in the same municipality where families reside; 21 |
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177 | 177 | | (8) Strategies to maximize continuity and minimize disruption of IDEA services for 22 |
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178 | 178 | | children from infancy through entry to kindergarten; and 23 |
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179 | 179 | | (9) Strategies to enable community-based early care and education programs to hire and 24 |
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180 | 180 | | retain sufficient qualified staff to support the enrollment, attendance, and full inclusion of young 25 |
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181 | 181 | | children with special health care needs, developmental delays, and disabilities. 26 |
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182 | 182 | | SECTION 3. The executive office of health and human services ("EOHHS"), is directed to 27 |
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183 | 183 | | pursue federal funding opportunities to secure two hundred fifty thousand dollars ($250,000) for 28 |
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184 | 184 | | the support of the early childhood IDEA services taskforce, established under chapter 24 of title 16 29 |
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185 | 185 | | ("Children with Disabilities"), to secure experts to facilitate the development of a plan to improve 30 |
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186 | 186 | | the delivery of early childhood Individuals with Disabilities Education Act ("IDEA") services for 31 |
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187 | 187 | | children with developmental delay and disabilities from infancy through kindergarten entry. This 32 |
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188 | 188 | | work shall include gathering information through focus groups and interviews with families of 33 |
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189 | 189 | | young children and frontline professionals working in early intervention and early childhood 34 |
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191 | 191 | | |
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192 | 192 | | LC000794 - Page 6 of 7 |
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193 | 193 | | special education to understand the challenges that cause disruptions and delays in providing high-1 |
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194 | 194 | | quality early childhood IDEA services. EOHHS shall provide written updates to the governor, the 2 |
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195 | 195 | | speaker of the house, and the senate president every six (6) months about the status of efforts to 3 |
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196 | 196 | | secure federal funding and convene the task force, and shall also provide written notice to the same 4 |
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197 | 197 | | persons immediately upon securing the federal funding. The task force shall be convened within 5 |
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198 | 198 | | thirty (30) days after funding is secured and expert consultants have been hired to support the work 6 |
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199 | 199 | | of the task force. 7 |
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200 | 200 | | SECTION 4. This act shall take effect upon passage. 8 |
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201 | 201 | | ======== |
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202 | 202 | | LC000794 |
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204 | 204 | | |
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205 | 205 | | |
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206 | 206 | | LC000794 - Page 7 of 7 |
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207 | 207 | | EXPLANATION |
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208 | 208 | | BY THE LEGISLATIVE COUNCIL |
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209 | 209 | | OF |
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210 | 210 | | A N A C T |
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211 | 211 | | RELATING TO EDUCATION -- CHILDREN WITH DISABILITIES |
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212 | 212 | | *** |
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213 | 213 | | This act would establish a public-private task force managed by the children’s cabinet to 1 |
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214 | 214 | | develop recommendations with cost estimates that, when implemented, would improve access to 2 |
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215 | 215 | | high-quality early intervention and early childhood special education services for children with 3 |
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216 | 216 | | developmental delays and disabilities from birth up to kindergarten entry. This act would further 4 |
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217 | 217 | | direct the Executive Office of Health and Human Services to seek $250,000 in federal funding to 5 |
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218 | 218 | | support the work of the task force over an eighteen (18) month period. 6 |
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219 | 219 | | This act would take effect upon passage. 7 |
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220 | 220 | | ======== |
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221 | 221 | | LC000794 |
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