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5 | 5 | | 2025 -- S 0247 |
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6 | 6 | | ======== |
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7 | 7 | | LC001170 |
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8 | 8 | | ======== |
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9 | 9 | | S T A T E O F R H O D E I S L A N D |
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10 | 10 | | IN GENERAL ASSEMBLY |
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11 | 11 | | JANUARY SESSION, A.D. 2025 |
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12 | 12 | | ____________ |
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13 | 13 | | |
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14 | 14 | | A N A C T |
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15 | 15 | | RELATING TO HEALTH AND SAFETY -- MATERNAL AND CHILD HEALTH SERVICES |
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16 | 16 | | FOR CHILDREN WITH SPECIAL HEALTHCARE NEE DS-EARLY INTERVENTION |
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17 | 17 | | PROGRAM FOR DEVELOPM ENTALLY DISABLED INFANTS |
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18 | 18 | | Introduced By: Senators Valverde, DiPalma, Lawson, Acosta, Appollonio, Pearson, |
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19 | 19 | | Lauria, Gallo, DiMario, and Zurier |
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20 | 20 | | Date Introduced: February 13, 2025 |
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21 | 21 | | Referred To: Senate Education |
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22 | 22 | | |
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23 | 23 | | |
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24 | 24 | | It is enacted by the General Assembly as follows: |
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25 | 25 | | SECTION 1. Legislative findings. 1 |
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26 | 26 | | The general assembly finds and declares the following: 2 |
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27 | 27 | | (1) Rhode Island has long been committed to delivering high-quality services to support 3 |
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28 | 28 | | positive early childhood development and learning of children with developmental delays and 4 |
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29 | 29 | | disabilities under Part C and Part B, Section 619 of the federal Individuals with Disabilities 5 |
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30 | 30 | | Education Act ("IDEA") from infancy to kindergarten entry. 6 |
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31 | 31 | | (2) Early identification and delivery of high-quality early childhood IDEA services to 7 |
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32 | 32 | | children with developmental challenges, developmental delays, and disabilities can improve 8 |
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33 | 33 | | educational outcomes, reduce long-term costs of special education, and maximize the long-term 9 |
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34 | 34 | | potential of children succeeding in school and life. 10 |
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35 | 35 | | (3) Effective early childhood IDEA services can help children make substantial 11 |
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36 | 36 | | developmental progress. In Rhode Island, two (2) out of three (3) children with disabilities who 12 |
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37 | 37 | | entered preschool below age expectations substantially increased their acquisition of knowledge 13 |
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38 | 38 | | and skills to close or narrow the gap with same-age peers. 14 |
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39 | 39 | | (4) The Rhode Island Early Intervention program established pursuant to § 23-13-22, 15 |
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40 | 40 | | managed by the RI Executive Office of Health and Human Services, is the state's comprehensive, 16 |
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41 | 41 | | coordinated, multidisciplinary, interagency system that provides early intervention services for 17 |
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42 | 42 | | infants and toddlers with developmental delays and disabilities and their families, as described and 18 |
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43 | 43 | | |
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44 | 44 | | |
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45 | 45 | | LC001170 - Page 2 of 5 |
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46 | 46 | | partially funded through Part C of the federal Individuals with Disabilities Education Act. 1 |
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47 | 47 | | (5) The Rhode Island Department of Education oversees the state's early childhood special 2 |
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48 | 48 | | education services providing free, appropriate, public education to all eligible children ages three 3 |
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49 | 49 | | (3) to five (5) with developmental delays and disabilities, partially funded through a preschool 4 |
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50 | 50 | | formula grant under Part B, Section 619 of the IDEA. 5 |
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51 | 51 | | (6) Currently in Rhode Island, there is a strict cut off at a child’s third birthday of Part C 6 |
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52 | 52 | | Early Intervention services. For children enrolled in Early Intervention who have spring or summer 7 |
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53 | 53 | | birthdays, this cutoff can lead to a gap of services before they start the early childhood special 8 |
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54 | 54 | | education services in September. Gaps are also created when a child’s transition from Part C to Part 9 |
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55 | 55 | | B services is delayed for other reasons. 10 |
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56 | 56 | | (7) Federal law allows states to create an option for families to extend Early Intervention 11 |
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57 | 57 | | services beyond a child’s third birthday. See 34 C.F.R. § 303.211. 12 |
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58 | 58 | | (8) Six (6) states (CO, CT, IL, MD, MO, TN) and the District of Columbia (DC) have 13 |
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59 | 59 | | implemented federally-approved frameworks to allow families to extend Early Intervention beyond 14 |
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60 | 60 | | the child’s third birthday. This helps ensure continuity of services, fewer gaps in services and more 15 |
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61 | 61 | | students starting school in September with services in place. 16 |
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62 | 62 | | (9) Under 34 C.F.R. § 303.734, the federal government reserves fifteen percent (15%) of 17 |
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63 | 63 | | any Part C appropriations in excess of four hundred sixty million dollars ($460,000,000) for states 18 |
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64 | 64 | | with federally-approved Early Intervention extension options. In Federal Fiscal Year 2023, the 19 |
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65 | 65 | | federal government appropriated five hundred forty million dollars ($540,000,000) for Part C, 20 |
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66 | 66 | | meaning that the funds reserved for Early Intervention extension states totaled twelve million 21 |
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67 | 67 | | dollars ($12,000,000). 22 |
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68 | 68 | | SECTION 2. Section 23-13-22 of the General Laws in Chapter 23-13 entitled "Maternal 23 |
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69 | 69 | | and Child Health Services for Children with Special Health Care Needs" is hereby amended to read 24 |
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70 | 70 | | as follows: 25 |
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71 | 71 | | 23-13-22. Early intervention program for developmentally disabled infants. 26 |
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72 | 72 | | (a) The director secretary of the department of human services executive office of health 27 |
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73 | 73 | | and human services (EOHHS) shall ensure that all developmentally disabled infants from birth to 28 |
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74 | 74 | | three (3) years of age shall be enrolled in the early intervention program. Beginning July 1, 2025, 29 |
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75 | 75 | | EOHHS shall create a plan to allow children to remain in early intervention until the September 30 |
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76 | 76 | | after their third birthday, as allowed by federal law 20 U.S.C. § 1435(c), including seeking any 31 |
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77 | 77 | | federal approvals necessary or desirable to implement this new policy. By January 1, 2028, EOHHS 32 |
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78 | 78 | | shall begin allowing children who turn three (3) years old between April 1, 2028, and August 31, 33 |
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79 | 79 | | 2028, to remain in early intervention until September 1, 2028. Beginning January 1, 2029, EOHHS 34 |
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80 | 80 | | |
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81 | 81 | | |
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82 | 82 | | LC001170 - Page 3 of 5 |
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83 | 83 | | shall allow children who turn three (3) in between January 1, 2029, and August 31, 2029, to remain 1 |
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84 | 84 | | in early intervention until September 1, 2029. Beginning September 1, 2029, EOHHS shall allow 2 |
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85 | 85 | | all eligible children to remain in early intervention until the September 1 following the child’s third 3 |
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86 | 86 | | birthday. Regulations governing the delivery of services under this program, including eligibility 4 |
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87 | 87 | | criteria, shall be promulgated by the department of human services, with the advice of the 5 |
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88 | 88 | | interagency coordinating council; provided, however, that all regulations promulgated by the 6 |
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89 | 89 | | department of health shall remain in full force and effect until the time they are replaced by 7 |
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90 | 90 | | regulations promulgated by the department of human services EOHHS. The regulations shall 8 |
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91 | 91 | | stipulate, at a minimum, the following provisions that are consistent with the intent of this chapter: 9 |
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92 | 92 | | (1) The director secretary shall develop and maintain a procedure for the earliest possible 10 |
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93 | 93 | | identification and efficient referral of all developmentally disabled infants; 11 |
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94 | 94 | | (2) The director secretary shall ensure that every infant identified and referred to this 12 |
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95 | 95 | | program is enrolled as soon as possible after birth; and further, that for infants placed on a waiting 13 |
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96 | 96 | | list for facility based group programming, an early intervention program shall be made available 14 |
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97 | 97 | | within a thirty (30) day period from the time a need is identified in the individual program plan; 15 |
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98 | 98 | | (3) Unless parents refuse the service, the home visiting component of the program shall 16 |
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99 | 99 | | commence as soon as the infant has been identified as having a possible developmental disability; 17 |
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100 | 100 | | (4) Any parent(s) who is/are dissatisfied with decisions or termination of service or with 18 |
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101 | 101 | | practices and procedures of a particular agency or the department of human services EOHHS shall 19 |
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102 | 102 | | notify the director of the department of human services secretary of EOHHS in writing within thirty 20 |
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103 | 103 | | (30) calendar days and the complaint shall be reviewed in accordance with department of health 21 |
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104 | 104 | | EOHHS policy and procedures, as amended, and the Administrative Procedures Act, chapter 35 of 22 |
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105 | 105 | | title 42. 23 |
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106 | 106 | | (5) An early intervention program for purposes of this section shall mean a comprehensive 24 |
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107 | 107 | | array of educational, developmental, health, and social services provided on a calendar year basis 25 |
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108 | 108 | | to eligible infants, children, and their families as specified in program regulations. 26 |
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109 | 109 | | (b) Within ninety (90) days after October 1, 2004, an evaluation plan describing outcome 27 |
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110 | 110 | | measures that document the program’s successes and shortcomings from the previous fiscal year 28 |
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111 | 111 | | shall be submitted to the speaker of the house of representatives, the president of the senate and the 29 |
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112 | 112 | | house oversight committee and the governor and the interagency coordinating council. 30 |
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113 | 113 | | Development of the plan shall be made in consultation with the entities with expertise in this area 31 |
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114 | 114 | | and the interagency coordinating council. The plan shall include a memorandum of understanding 32 |
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115 | 115 | | between the department of health, department of human services and the department of elementary 33 |
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116 | 116 | | and secondary education that demonstrates coordination and continuity of early intervention 34 |
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117 | 117 | | |
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118 | 118 | | |
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119 | 119 | | LC001170 - Page 4 of 5 |
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120 | 120 | | services among these departments. 1 |
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121 | 121 | | (c) Within six (6) months after January 1, 2005 where prescribed outcomes documented in 2 |
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122 | 122 | | the evaluation plan have not been accomplished the responsible agencies shall submit written 3 |
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123 | 123 | | explanations for the shortfalls, together with their proposed remedies. The report shall also include 4 |
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124 | 124 | | evaluation of the progress of the coordination efforts between the department of health and the 5 |
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125 | 125 | | department of human services and the department of elementary and secondary education and the 6 |
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126 | 126 | | interagency coordinating council and shall include any recommendations regarding modifications 7 |
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127 | 127 | | of the reimbursement mechanisms of this chapter. 8 |
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128 | 128 | | (d) Within twelve (12) months after August 1, 2005 a final report shall include the progress 9 |
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129 | 129 | | of the coordination efforts between the department of health and the department of human services 10 |
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130 | 130 | | and department of elementary and secondary education, interagency coordinating council and shall 11 |
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131 | 131 | | include any recommendations regarding modifications to the comprehensive array of educational, 12 |
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132 | 132 | | developmental, health and social services provided on a calendar year basis to eligible infants, 13 |
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133 | 133 | | children and their families as specified in an early intervention system. 14 |
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134 | 134 | | (e) All reports or documents required to be produced pursuant to 20 U.S.C. § 1471 et seq., 15 |
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135 | 135 | | shall be submitted to the speaker of the house, president of the senate and the chairpersons of the 16 |
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136 | 136 | | appropriate house of representatives and senate oversight committees and the governor and the 17 |
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137 | 137 | | interagency coordinating council. Adherence to such plans and reporting requirements, and budgets 18 |
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138 | 138 | | and the timely achievement of goals contained therein shall be considered by the oversight 19 |
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139 | 139 | | committees of the house of representatives and senate, among other relevant factors, in determining 20 |
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140 | 140 | | appropriations or other systemic changes. 21 |
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141 | 141 | | SECTION 3. This act shall take effect upon passage. 22 |
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143 | 143 | | LC001170 |
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145 | 145 | | |
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146 | 146 | | |
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147 | 147 | | LC001170 - Page 5 of 5 |
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148 | 148 | | EXPLANATION |
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149 | 149 | | BY THE LEGISLATIVE COUNCIL |
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150 | 150 | | OF |
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151 | 151 | | A N A C T |
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152 | 152 | | RELATING TO HEALTH AND SAFETY -- MATERNAL AND CHILD HEALTH SERVICES |
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153 | 153 | | FOR CHILDREN WITH SPECIAL HEALTHCARE NEE DS-EARLY INTERVENTION |
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154 | 154 | | PROGRAM FOR DEVELOPMEN TALLY DISABLED INFANTS |
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155 | 155 | | *** |
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156 | 156 | | This act would provide that the early intervention program for developmentally disabled 1 |
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157 | 157 | | infants be under the jurisdiction of the executive office of health and human services (EOHHS). 2 |
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158 | 158 | | The act would also extend eligibility for early intervention services. 3 |
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159 | 159 | | This act would take effect upon passage. 4 |
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160 | 160 | | ======== |
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161 | 161 | | LC001170 |
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