| 1 | 1 | | |
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| 2 | 2 | | <BillNo> <Sponsor> |
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| 3 | 3 | | |
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| 4 | 4 | | HOUSE JOINT RESOLUTION 120 |
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| 5 | 5 | | By Powers |
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| 6 | 6 | | |
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| 7 | 7 | | |
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| 8 | 8 | | HJR0120 |
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| 9 | 9 | | 002037 |
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| 10 | 10 | | - 1 - |
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| 11 | 11 | | |
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| 12 | 12 | | A RESOLUTION relative to a voluntary reporting system for |
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| 13 | 13 | | Charcot-Marie-Tooth Disease in Tennessee. |
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| 14 | 14 | | |
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| 15 | 15 | | WHEREAS, Charcot-Marie-Tooth Disease (CMT) is one of the most common inherited |
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| 16 | 16 | | neurological disorders, affecting an estimated one in 2,500 people in the United States; this |
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| 17 | 17 | | statistic suggests that approximately 2,800 Tennesseans may be affected by CMT; and |
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| 18 | 18 | | WHEREAS, the Department of Health currently maintains voluntary reporting systems |
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| 19 | 19 | | for various health conditions through its existing web-based information technology system; and |
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| 20 | 20 | | WHEREAS, thus, no additional state appropriation would be required to implement CMT |
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| 21 | 21 | | reporting through existing departmental resources and systems; and |
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| 22 | 22 | | WHEREAS, accurate enumeration of CMT patients would enhance Tennessee's |
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| 23 | 23 | | competitiveness for federal research grants and specialized care centers; and |
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| 24 | 24 | | WHEREAS, this General Assembly recognizes that improved data collection for rare |
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| 25 | 25 | | diseases aligns with the State's commitment to efficient healthcare resource allocation; and |
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| 26 | 26 | | WHEREAS, voluntary reporting through existing healthcare networks would impose no |
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| 27 | 27 | | mandatory costs on healthcare providers or the State; and |
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| 28 | 28 | | WHEREAS, this data collection effort would support Tennessee's healthcare providers in |
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| 29 | 29 | | delivering more targeted and effective care to CMT patients; now, therefore, |
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| 30 | 30 | | BE IT RESOLVED BY THE HOUSE OF REPRESENTATIVES OF THE ONE HUNDRED |
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| 31 | 31 | | FOURTEENTH GENERAL ASSEMBLY OF THE STATE OF TENNESSEE, THE SENATE |
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| 32 | 32 | | CONCURRING, that this General Assembly encourages the Department of Health to: |
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| 33 | 33 | | (a) Implement voluntary reporting of Charcot-Marie-Tooth Disease (CMT) cases |
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| 34 | 34 | | through existing electronic health record systems; |
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| 35 | 35 | | |
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| 36 | 36 | | |
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| 37 | 37 | | - 2 - 002037 |
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| 38 | 38 | | |
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| 39 | 39 | | (b) Utilize current departmental resources and infrastructure for such data |
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| 40 | 40 | | collection; and |
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| 41 | 41 | | (c) Provide an annual report to the House of Representatives committee having |
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| 42 | 42 | | jurisdiction over subject matters concerning health and the Senate Health and Welfare |
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| 43 | 43 | | Committee on the progress of this voluntary initiative. |
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| 44 | 44 | | BE IT FURTHER RESOLVED, that it is the intent of this General Assembly that such |
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| 45 | 45 | | voluntary reporting system shall not create any new financial obligations for the State of |
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| 46 | 46 | | Tennessee. |
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