1 | 1 | | By: Uresti S.B. No. 1720 |
---|
2 | 2 | | |
---|
3 | 3 | | |
---|
4 | 4 | | A BILL TO BE ENTITLED |
---|
5 | 5 | | AN ACT |
---|
6 | 6 | | relating to newborn screening and the creation of the Newborn |
---|
7 | 7 | | Screening Advisory Committee. |
---|
8 | 8 | | BE IT ENACTED BY THE LEGISLATURE OF THE STATE OF TEXAS: |
---|
9 | 9 | | SECTION 1. This Act may be cited as "Greyson's Law" in |
---|
10 | 10 | | memory of Greyson Morris. |
---|
11 | 11 | | SECTION 2. Subsection (a-1), Section 33.011, Health and |
---|
12 | 12 | | Safety Code, is amended to read as follows: |
---|
13 | 13 | | (a-1) Except as provided by this subsection and to [To] the |
---|
14 | 14 | | extent funding is available for the screening, the department shall |
---|
15 | 15 | | require newborn screening tests to screen for disorders listed in |
---|
16 | 16 | | the core [uniform] panel and in the secondary targets of the uniform |
---|
17 | 17 | | newborn screening panel [conditions] recommended in the 2005 report |
---|
18 | 18 | | by the American College of Medical Genetics entitled "Newborn |
---|
19 | 19 | | Screening: Toward a Uniform Screening Panel and System" or another |
---|
20 | 20 | | report determined by the department to provide more stringent |
---|
21 | 21 | | [appropriate] newborn screening guidelines to protect the health |
---|
22 | 22 | | and welfare of this state's newborns. The department, with the |
---|
23 | 23 | | advice of the Newborn Screening Advisory Committee, may require |
---|
24 | 24 | | additional newborn screening tests under this subsection to screen |
---|
25 | 25 | | for other disorders or conditions. The department may exclude from |
---|
26 | 26 | | the newborn screening tests required under this subsection |
---|
27 | 27 | | screenings for galactose epimerase and galactokinase. |
---|
28 | 28 | | SECTION 3. Subchapter B, Chapter 33, Health and Safety |
---|
29 | 29 | | Code, is amended by adding Section 33.017 to read as follows: |
---|
30 | 30 | | Sec. 33.017. NEWBORN SCREENING ADVISORY COMMITTEE. |
---|
31 | 31 | | (a) The department shall establish the Newborn Screening Advisory |
---|
32 | 32 | | Committee. |
---|
33 | 33 | | (b) The advisory committee consists of members appointed by |
---|
34 | 34 | | the commissioner of state health services. The advisory committee |
---|
35 | 35 | | must include the following members: |
---|
36 | 36 | | (1) health care providers; |
---|
37 | 37 | | (2) a hospital representative; |
---|
38 | 38 | | (3) persons who have family members affected by a |
---|
39 | 39 | | condition for which newborn screening is or may be required under |
---|
40 | 40 | | this subchapter; and |
---|
41 | 41 | | (4) persons who are involved in the delivery of |
---|
42 | 42 | | newborn screening services, follow-up, or treatment in this state. |
---|
43 | 43 | | (c) The advisory committee shall advise the department |
---|
44 | 44 | | regarding strategic planning, policy, rules, and services related |
---|
45 | 45 | | to newborn screening and additional newborn screening tests. |
---|
46 | 46 | | (d) The advisory committee shall adopt bylaws governing the |
---|
47 | 47 | | committee's operations. |
---|
48 | 48 | | (e) The advisory committee may appoint subcommittees. |
---|
49 | 49 | | (f) The advisory committee shall meet at least three times |
---|
50 | 50 | | each year and at other times at the call of the commissioner of |
---|
51 | 51 | | state health services. |
---|
52 | 52 | | (g) A member of the advisory committee is not entitled to |
---|
53 | 53 | | compensation, but is entitled to reimbursement for travel or other |
---|
54 | 54 | | expenses incurred by the member while conducting the business of |
---|
55 | 55 | | the advisory committee, as provided by the General Appropriations |
---|
56 | 56 | | Act. |
---|
57 | 57 | | (h) The advisory committee is not subject to Chapter 2110, |
---|
58 | 58 | | Government Code. |
---|
59 | 59 | | SECTION 4. (a) As soon as practicable after the effective |
---|
60 | 60 | | date of this Act, the commissioner of state health services shall |
---|
61 | 61 | | appoint members to the Newborn Screening Advisory Committee as |
---|
62 | 62 | | required under Section 33.017, Health and Safety Code, as added by |
---|
63 | 63 | | this Act. |
---|
64 | 64 | | (b) Notwithstanding Section 33.011, Health and Safety Code, |
---|
65 | 65 | | as amended by this Act, a physician or person attending the delivery |
---|
66 | 66 | | of a newborn child is not required to subject the child to the |
---|
67 | 67 | | additional newborn screening tests required under Subsection |
---|
68 | 68 | | (a-1), Section 33.011, Health and Safety Code, as amended by this |
---|
69 | 69 | | Act, until January 1, 2010. |
---|
70 | 70 | | SECTION 5. This Act does not make an appropriation. A |
---|
71 | 71 | | provision in this Act that creates a new governmental program, |
---|
72 | 72 | | creates a new entitlement, or imposes a new duty on a governmental |
---|
73 | 73 | | entity is not mandatory during a fiscal period for which the |
---|
74 | 74 | | legislature has not made a specific appropriation to implement the |
---|
75 | 75 | | provision. |
---|
76 | 76 | | SECTION 6. This Act takes effect September 1, 2009. |
---|