Recognizing May 17, 2017, as Diffuse Intrinsic Pontine Glioma Awareness Day in memory of Brock Hunter Fleming.
The resolution itself does not create or amend state laws but serves to promote awareness about DIPG. By establishing a designated day for recognition, it seeks to generate community engagement, educate the public on the challenges faced by those affected by the disease, and rally support for ongoing research efforts into treatments. This initiative may not change laws directly but aims to inform and influence public perception and policies related to pediatric cancer research.
H.R. No. 2109 is a resolution recognizing May 17, 2017, as Diffuse Intrinsic Pontine Glioma (DIPG) Awareness Day. The bill highlights the severe impact of DIPG, a highly aggressive brain tumor primarily affecting children aged five to nine. The resolution acknowledges the difficulty in treating this cancer, which leads to a median survival rate of just nine months from diagnosis. In memory of Brock Hunter Fleming, a child who succumbed to this disease, the resolution aims to elevate awareness and encourage support for further research and education regarding DIPG.
The general sentiment surrounding H.R. 2109 appears to be positive, as it seeks to honor and recognize the struggles of families affected by DIPG while raising awareness of a critical health issue. The bill is supported by patient advocates and community members who aim to spotlight the necessity for better treatment options and research funding for pediatric brain tumors. There seems to be a collective empathy towards families confronting this devastating diagnosis.
While there does not seem to be significant contention reported specifically against the recognition of DIPG Awareness Day, there are inherent challenges related to the broader issues of healthcare funding and the allocation of research resources toward pediatric diseases. Those involved in advocating for DIPG awareness may encounter hurdles in ensuring sufficient support and urgency for research funding from policymakers amidst competing health priorities.