1 | 1 | | 86R11429 JG-F |
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2 | 2 | | By: Klick H.B. No. 3735 |
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3 | 3 | | |
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4 | 4 | | |
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5 | 5 | | A BILL TO BE ENTITLED |
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6 | 6 | | AN ACT |
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7 | 7 | | relating to an electronic portal for disclosures and consent |
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8 | 8 | | regarding certain newborn screening information. |
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9 | 9 | | BE IT ENACTED BY THE LEGISLATURE OF THE STATE OF TEXAS: |
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10 | 10 | | SECTION 1. Section 33.0111(c), Health and Safety Code, is |
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11 | 11 | | amended to read as follows: |
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12 | 12 | | (c) At the time a newborn child is subjected to screening |
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13 | 13 | | tests under Section 33.011 or at a time before the screening as |
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14 | 14 | | determined by[,] the physician attending a newborn child or the |
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15 | 15 | | person attending the delivery of a newborn child that is not |
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16 | 16 | | attended by a physician, the physician or person shall provide the |
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17 | 17 | | parent, managing conservator, or guardian of a newborn child a copy |
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18 | 18 | | of the written disclosure statement developed by the department |
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19 | 19 | | under this section. |
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20 | 20 | | SECTION 2. Subchapter B, Chapter 33, Health and Safety |
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21 | 21 | | Code, is amended by adding Section 33.0113 to read as follows: |
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22 | 22 | | Sec. 33.0113. ELECTRONIC PORTAL. (a) Each birthing |
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23 | 23 | | facility or other entity at which screening tests required under |
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24 | 24 | | this chapter are conducted may maintain an electronic portal |
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25 | 25 | | through which a parent, managing conservator, or guardian of a |
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26 | 26 | | newborn child may: |
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27 | 27 | | (1) access and confirm receipt of the disclosure |
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28 | 28 | | statement described by Section 33.0111 before or at the time of the |
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29 | 29 | | newborn screening; |
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30 | 30 | | (2) request an exemption to the screening tests under |
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31 | 31 | | Section 33.012 before the newborn screening; and |
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32 | 32 | | (3) provide electronic consent, including through |
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33 | 33 | | audio or video recording, to the disclosure of screening results |
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34 | 34 | | under Section 33.018(c-1) before or at the time of the screening. |
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35 | 35 | | (b) An electronic portal described by Subsection (a) must |
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36 | 36 | | allow a parent, managing conservator, or guardian of a newborn |
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37 | 37 | | child to revoke or modify the request for an exemption or consent to |
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38 | 38 | | the disclosure of information provided through the portal. |
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39 | 39 | | SECTION 3. Section 47.007(g), Health and Safety Code, is |
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40 | 40 | | amended to read as follows: |
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41 | 41 | | (g) The department shall ensure that the written or |
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42 | 42 | | electronic consent of a parent is obtained before any information |
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43 | 43 | | individually identifying the newborn or infant is released through |
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44 | 44 | | the information management, reporting, and tracking system. |
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45 | 45 | | SECTION 4. Section 47.008(c), Health and Safety Code, is |
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46 | 46 | | amended to read as follows: |
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47 | 47 | | (c) The executive commissioner by rule shall develop |
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48 | 48 | | guidelines to protect the confidentiality of patients in accordance |
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49 | 49 | | with Chapter 159, Occupations Code, and require the written or |
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50 | 50 | | electronic consent of a parent or guardian of a patient before any |
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51 | 51 | | individually identifying information is provided to the department |
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52 | 52 | | as set out in this chapter. The department shall permit a parent or |
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53 | 53 | | guardian at any time to withdraw information provided to the |
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54 | 54 | | department under this chapter. |
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55 | 55 | | SECTION 5. Chapter 47, Health and Safety Code, is amended by |
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56 | 56 | | adding Section 47.0085 to read as follows: |
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57 | 57 | | Sec. 47.0085. ELECTRONIC PORTAL. (a) Each birthing |
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58 | 58 | | facility or other entity at which screening tests required under |
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59 | 59 | | this chapter are conducted may maintain an electronic portal |
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60 | 60 | | through which a parent of a newborn child may: |
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61 | 61 | | (1) receive notice of the screening requirements; |
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62 | 62 | | (2) electronically decline the screening; and |
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63 | 63 | | (3) provide electronic consent, including through |
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64 | 64 | | audio or video recording, to the disclosure of any information for |
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65 | 65 | | which consent is required under Sections 47.007 and 47.008. |
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66 | 66 | | (b) An electronic portal described by Subsection (a) must |
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67 | 67 | | allow a parent of a newborn child to revoke or modify any consent to |
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68 | 68 | | the disclosure of information and other information provided |
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69 | 69 | | through the portal. |
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70 | 70 | | SECTION 6. As soon as practicable after the effective date |
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71 | 71 | | of this Act, the executive commissioner of the Health and Human |
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72 | 72 | | Services Commission shall adopt rules necessary to implement the |
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73 | 73 | | changes in law made by this Act. |
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74 | 74 | | SECTION 7. This Act takes effect September 1, 2019. |
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