87R11576 SRA-D
By: J. Johnson of Harris, Thompson of Harris, H.B. No. 3673
Klick, Oliverson, Rose, et al.
A BILL TO BE ENTITLED
AN ACT
relating to the establishment of a sickle cell disease registry.
BE IT ENACTED BY THE LEGISLATURE OF THE STATE OF TEXAS:
SECTION 1. Subtitle B, Title 2, Health and Safety Code, is
amended by adding Chapter 52A to read as follows:
CHAPTER 52A. SICKLE CELL DISEASE REGISTRY
Sec. 52A.001. DEFINITION. In this chapter, "health care
facility" means:
(1) a hospital licensed under Chapter 241; or
(2) any other facility that provides diagnostic or
treatment services to patients with sickle cell disease.
Sec. 52A.002. REGISTRY; CONTENTS. (a) The department shall
establish and maintain a registry of individuals diagnosed with
sickle cell disease in accordance with this chapter for use as a
single repository of accurate, complete records to aid in the cure
and treatment of sickle cell disease in this state.
(b) The sickle cell disease registry must include:
(1) a record of individuals in this state who have been
diagnosed with sickle cell disease; and
(2) any other information regarding individuals who
have been diagnosed with sickle cell disease that the executive
commissioner considers necessary and appropriate for inclusion on
the registry.
Sec. 52A.003. DATA FROM HEALTH CARE FACILITIES. A health
care facility shall provide to the department, in the form and
manner prescribed by the department, data regarding individuals who
have been diagnosed with sickle cell disease.
Sec. 52A.004. RULES. The executive commissioner by rule
shall develop guidelines to:
(1) obtain information regarding individuals
diagnosed with sickle cell disease from health care facilities;
(2) protect the confidentiality of the individuals in
accordance with Section 159.002, Occupations Code; and
(3) ensure that the registry is developed in a manner
consistent with the Health Insurance Portability and
Accountability Act of 1996 (Pub. L. No. 104-191), regulations
adopted under that Act, and other applicable laws and regulations
governing disclosure of health information.
Sec. 52A.005. REPORTS. (a) The department shall publish an
annual report to the legislature of the information obtained under
this chapter.
(b) The department, in cooperation with other sickle cell
disease reporting organizations and research institutions, may
publish reports the department determines are necessary to carry
out the purposes of this chapter.
SECTION 2. As soon as practicable after the effective date
of this act, the executive commissioner of the Health and Human
Services Commission shall adopt rules necessary to implement
Chapter 52A, Health and Safety Code, as added by this Act.
SECTION 3. This Act takes effect September 1, 2021.