1 | 1 | | 87R2906 EAS-D |
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2 | 2 | | By: White H.B. No. 473 |
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3 | 3 | | |
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4 | 4 | | |
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5 | 5 | | A BILL TO BE ENTITLED |
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6 | 6 | | AN ACT |
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7 | 7 | | relating to prohibiting organ transplant recipient discrimination |
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8 | 8 | | on the basis of certain disabilities. |
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9 | 9 | | BE IT ENACTED BY THE LEGISLATURE OF THE STATE OF TEXAS: |
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10 | 10 | | SECTION 1. The heading to Subchapter S, Chapter 161, Health |
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11 | 11 | | and Safety Code, is amended to read as follows: |
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12 | 12 | | SUBCHAPTER S. ALLOCATION OF KIDNEYS AND OTHER ORGANS AVAILABLE FOR |
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13 | 13 | | TRANSPLANT |
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14 | 14 | | SECTION 2. Section 161.471, Health and Safety Code, is |
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15 | 15 | | amended to read as follows: |
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16 | 16 | | Sec. 161.471. DEFINITIONS [DEFINITION]. In this |
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17 | 17 | | subchapter: |
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18 | 18 | | (1) "Auxiliary aids and services" includes: |
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19 | 19 | | (A) qualified interpreters or other effective |
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20 | 20 | | methods of making aurally delivered materials available to |
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21 | 21 | | individuals with hearing impairments; |
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22 | 22 | | (B) qualified readers, taped texts, or other |
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23 | 23 | | effective methods of making visually delivered materials available |
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24 | 24 | | to individuals with visual impairments; |
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25 | 25 | | (C) provision of information in a format |
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26 | 26 | | accessible to individuals with cognitive, neurological, |
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27 | 27 | | developmental, or intellectual disabilities; |
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28 | 28 | | (D) provision of supported decision-making |
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29 | 29 | | services; |
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30 | 30 | | (E) acquisition or modification of equipment or |
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31 | 31 | | devices; and |
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32 | 32 | | (F) other similar services and actions. |
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33 | 33 | | (2) "Disability" has the meaning assigned by the |
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34 | 34 | | Americans with Disabilities Act of 1990 (42 U.S.C. Section 12101 et |
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35 | 35 | | seq.). |
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36 | 36 | | (3) "Health care provider" means: |
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37 | 37 | | (A) an individual or facility licensed, |
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38 | 38 | | certified, or otherwise authorized to provide health care in the |
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39 | 39 | | ordinary course of business or professional practice, including a |
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40 | 40 | | physician, hospital, nursing facility, laboratory, intermediate |
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41 | 41 | | care facility, mental health facility, and any other facility for |
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42 | 42 | | individuals with intellectual or developmental disabilities; and |
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43 | 43 | | (B) an organ procurement organization. |
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44 | 44 | | (4) "Organ [, "organ] procurement organization" means |
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45 | 45 | | an organization that is a qualified organ procurement organization |
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46 | 46 | | under 42 U.S.C. Section 273 that is currently certified or |
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47 | 47 | | recertified in accordance with that federal law. |
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48 | 48 | | (5) "Supported decision making" means the use of a |
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49 | 49 | | support person to assist an individual in making medical decisions, |
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50 | 50 | | communicate information to the individual, or ascertain an |
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51 | 51 | | individual's wishes, including: |
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52 | 52 | | (A) allowing the individual's attorney-in-fact |
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53 | 53 | | or agent under a medical power of attorney or any person the |
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54 | 54 | | individual selects to be included in communications related to the |
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55 | 55 | | individual's medical care; |
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56 | 56 | | (B) permitting the individual to designate a |
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57 | 57 | | person to support the individual in communicating, processing |
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58 | 58 | | information, or making medical decisions; |
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59 | 59 | | (C) providing auxiliary aids and services to |
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60 | 60 | | assist the individual in communicating and processing |
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61 | 61 | | health-related information, including the use of assistive |
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62 | 62 | | communication technology; |
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63 | 63 | | (D) providing information to persons designated |
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64 | 64 | | by the individual in a manner consistent with the Health Insurance |
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65 | 65 | | Portability and Accountability Act of 1996 (Pub. L. No. 104-191), |
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66 | 66 | | regulations adopted under that Act, and other applicable laws and |
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67 | 67 | | regulations governing disclosure of health information; |
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68 | 68 | | (E) providing health information in a format that |
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69 | 69 | | is readily understandable by the individual; and |
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70 | 70 | | (F) if the individual has a court-appointed |
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71 | 71 | | guardian or other individual responsible for making medical |
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72 | 72 | | decisions on behalf of the individual, ensuring that the individual |
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73 | 73 | | is included in decisions involving the individual's health care and |
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74 | 74 | | that medical decisions are made in accordance with the individual's |
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75 | 75 | | expressed interests. |
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76 | 76 | | SECTION 3. Subchapter S, Chapter 161, Health and Safety |
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77 | 77 | | Code, is amended by adding Section 161.473 to read as follows: |
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78 | 78 | | Sec. 161.473. DISCRIMINATION ON BASIS OF DISABILITY |
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79 | 79 | | PROHIBITED. (a) A health care provider may not, solely on the |
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80 | 80 | | basis of an individual's disability: |
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81 | 81 | | (1) determine an individual is ineligible to receive |
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82 | 82 | | an organ transplant; |
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83 | 83 | | (2) deny medical or other services related to an organ |
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84 | 84 | | transplant, including evaluation, surgery, counseling, and |
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85 | 85 | | postoperative treatment; |
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86 | 86 | | (3) refuse to refer the individual to a transplant |
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87 | 87 | | center or other related specialist for evaluation or an organ |
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88 | 88 | | transplant; |
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89 | 89 | | (4) refuse to place an individual on an organ |
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90 | 90 | | transplant waiting list or place the individual at a position lower |
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91 | 91 | | in priority on the list than the position the individual would have |
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92 | 92 | | been placed if not for the individual's disability; or |
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93 | 93 | | (5) decline insurance coverage for any procedure |
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94 | 94 | | associated with the organ transplant, including post-transplant |
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95 | 95 | | care. |
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96 | 96 | | (b) Notwithstanding Subsection (a), a health care provider |
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97 | 97 | | may consider an individual's disability when making a treatment or |
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98 | 98 | | coverage recommendation or decision solely to the extent that a |
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99 | 99 | | physician or surgeon, following an individualized evaluation of the |
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100 | 100 | | potential recipient, determines the disability is medically |
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101 | 101 | | significant to the organ transplant. This section does not require |
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102 | 102 | | a referral or recommendation for, or the performance of, a |
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103 | 103 | | medically inappropriate organ transplant. |
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104 | 104 | | (c) A health care provider may not consider an individual's |
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105 | 105 | | inability to independently comply with post-transplant medical |
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106 | 106 | | requirements as medically significant for the purposes of |
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107 | 107 | | Subsection (b) if the individual has the necessary support system |
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108 | 108 | | to assist the individual in complying with the requirements. |
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109 | 109 | | (d) A health care provider shall make reasonable |
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110 | 110 | | modifications in policies, practices, or procedures as necessary to |
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111 | 111 | | make services, including transplant-related counseling, |
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112 | 112 | | information, coverage, or treatment, available to an individual |
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113 | 113 | | with a disability, unless the health care provider can demonstrate |
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114 | 114 | | that making the modifications would fundamentally alter the nature |
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115 | 115 | | of the services. Reasonable modifications may include: |
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116 | 116 | | (1) communicating with persons responsible for |
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117 | 117 | | supporting an individual with postsurgical and post-transplant |
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118 | 118 | | care, including medication; and |
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119 | 119 | | (2) considering the support available to the |
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120 | 120 | | individual in determining whether the individual is able to comply |
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121 | 121 | | with post-transplant medical requirements, including support |
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122 | 122 | | provided by: |
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123 | 123 | | (A) family; |
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124 | 124 | | (B) friends; or |
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125 | 125 | | (C) home and community-based services, including |
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126 | 126 | | home and community-based services funded by: |
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127 | 127 | | (i) the medical assistance program |
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128 | 128 | | established under Chapter 32, Human Resources Code; |
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129 | 129 | | (ii) Medicare; |
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130 | 130 | | (iii) a health plan in which the individual |
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131 | 131 | | is enrolled; or |
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132 | 132 | | (iv) any other program or source of funding |
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133 | 133 | | available to the individual. |
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134 | 134 | | (e) A health care provider shall ensure that an individual |
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135 | 135 | | with a disability is not denied services, including |
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136 | 136 | | transplant-related counseling, information, coverage, or |
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137 | 137 | | treatment, because auxiliary aids and services are absent unless |
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138 | 138 | | the health care provider can demonstrate that providing the |
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139 | 139 | | services with auxiliary aids and services present would |
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140 | 140 | | fundamentally alter the services provided or would impose an undue |
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141 | 141 | | burden on the health care provider. |
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142 | 142 | | (f) A health care provider shall comply with the |
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143 | 143 | | requirements of Titles II and III of the Americans with |
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144 | 144 | | Disabilities Act of 1990 (42 U.S.C. Section 12131 et seq.). |
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145 | 145 | | (g) This section applies to each stage of the organ |
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146 | 146 | | transplant process. |
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147 | 147 | | (h) A violation of this section is grounds for disciplinary |
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148 | 148 | | action by the regulatory agency that issued a license, certificate, |
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149 | 149 | | or other authority to a health care provider who committed the |
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150 | 150 | | violation. |
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151 | 151 | | SECTION 4. Not later than December 1, 2021, the executive |
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152 | 152 | | commissioner of the Health and Human Services Commission shall |
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153 | 153 | | adopt any rules necessary to implement Subchapter S, Chapter 161, |
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154 | 154 | | Health and Safety Code, as amended by this Act. |
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155 | 155 | | SECTION 5. This Act takes effect September 1, 2021. |
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