Texas 2021 - 87th Regular

Texas House Bill HB473 Compare Versions

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11 87R2906 EAS-D
22 By: White H.B. No. 473
33
44
55 A BILL TO BE ENTITLED
66 AN ACT
77 relating to prohibiting organ transplant recipient discrimination
88 on the basis of certain disabilities.
99 BE IT ENACTED BY THE LEGISLATURE OF THE STATE OF TEXAS:
1010 SECTION 1. The heading to Subchapter S, Chapter 161, Health
1111 and Safety Code, is amended to read as follows:
1212 SUBCHAPTER S. ALLOCATION OF KIDNEYS AND OTHER ORGANS AVAILABLE FOR
1313 TRANSPLANT
1414 SECTION 2. Section 161.471, Health and Safety Code, is
1515 amended to read as follows:
1616 Sec. 161.471. DEFINITIONS [DEFINITION]. In this
1717 subchapter:
1818 (1) "Auxiliary aids and services" includes:
1919 (A) qualified interpreters or other effective
2020 methods of making aurally delivered materials available to
2121 individuals with hearing impairments;
2222 (B) qualified readers, taped texts, or other
2323 effective methods of making visually delivered materials available
2424 to individuals with visual impairments;
2525 (C) provision of information in a format
2626 accessible to individuals with cognitive, neurological,
2727 developmental, or intellectual disabilities;
2828 (D) provision of supported decision-making
2929 services;
3030 (E) acquisition or modification of equipment or
3131 devices; and
3232 (F) other similar services and actions.
3333 (2) "Disability" has the meaning assigned by the
3434 Americans with Disabilities Act of 1990 (42 U.S.C. Section 12101 et
3535 seq.).
3636 (3) "Health care provider" means:
3737 (A) an individual or facility licensed,
3838 certified, or otherwise authorized to provide health care in the
3939 ordinary course of business or professional practice, including a
4040 physician, hospital, nursing facility, laboratory, intermediate
4141 care facility, mental health facility, and any other facility for
4242 individuals with intellectual or developmental disabilities; and
4343 (B) an organ procurement organization.
4444 (4) "Organ [, "organ] procurement organization" means
4545 an organization that is a qualified organ procurement organization
4646 under 42 U.S.C. Section 273 that is currently certified or
4747 recertified in accordance with that federal law.
4848 (5) "Supported decision making" means the use of a
4949 support person to assist an individual in making medical decisions,
5050 communicate information to the individual, or ascertain an
5151 individual's wishes, including:
5252 (A) allowing the individual's attorney-in-fact
5353 or agent under a medical power of attorney or any person the
5454 individual selects to be included in communications related to the
5555 individual's medical care;
5656 (B) permitting the individual to designate a
5757 person to support the individual in communicating, processing
5858 information, or making medical decisions;
5959 (C) providing auxiliary aids and services to
6060 assist the individual in communicating and processing
6161 health-related information, including the use of assistive
6262 communication technology;
6363 (D) providing information to persons designated
6464 by the individual in a manner consistent with the Health Insurance
6565 Portability and Accountability Act of 1996 (Pub. L. No. 104-191),
6666 regulations adopted under that Act, and other applicable laws and
6767 regulations governing disclosure of health information;
6868 (E) providing health information in a format that
6969 is readily understandable by the individual; and
7070 (F) if the individual has a court-appointed
7171 guardian or other individual responsible for making medical
7272 decisions on behalf of the individual, ensuring that the individual
7373 is included in decisions involving the individual's health care and
7474 that medical decisions are made in accordance with the individual's
7575 expressed interests.
7676 SECTION 3. Subchapter S, Chapter 161, Health and Safety
7777 Code, is amended by adding Section 161.473 to read as follows:
7878 Sec. 161.473. DISCRIMINATION ON BASIS OF DISABILITY
7979 PROHIBITED. (a) A health care provider may not, solely on the
8080 basis of an individual's disability:
8181 (1) determine an individual is ineligible to receive
8282 an organ transplant;
8383 (2) deny medical or other services related to an organ
8484 transplant, including evaluation, surgery, counseling, and
8585 postoperative treatment;
8686 (3) refuse to refer the individual to a transplant
8787 center or other related specialist for evaluation or an organ
8888 transplant;
8989 (4) refuse to place an individual on an organ
9090 transplant waiting list or place the individual at a position lower
9191 in priority on the list than the position the individual would have
9292 been placed if not for the individual's disability; or
9393 (5) decline insurance coverage for any procedure
9494 associated with the organ transplant, including post-transplant
9595 care.
9696 (b) Notwithstanding Subsection (a), a health care provider
9797 may consider an individual's disability when making a treatment or
9898 coverage recommendation or decision solely to the extent that a
9999 physician or surgeon, following an individualized evaluation of the
100100 potential recipient, determines the disability is medically
101101 significant to the organ transplant. This section does not require
102102 a referral or recommendation for, or the performance of, a
103103 medically inappropriate organ transplant.
104104 (c) A health care provider may not consider an individual's
105105 inability to independently comply with post-transplant medical
106106 requirements as medically significant for the purposes of
107107 Subsection (b) if the individual has the necessary support system
108108 to assist the individual in complying with the requirements.
109109 (d) A health care provider shall make reasonable
110110 modifications in policies, practices, or procedures as necessary to
111111 make services, including transplant-related counseling,
112112 information, coverage, or treatment, available to an individual
113113 with a disability, unless the health care provider can demonstrate
114114 that making the modifications would fundamentally alter the nature
115115 of the services. Reasonable modifications may include:
116116 (1) communicating with persons responsible for
117117 supporting an individual with postsurgical and post-transplant
118118 care, including medication; and
119119 (2) considering the support available to the
120120 individual in determining whether the individual is able to comply
121121 with post-transplant medical requirements, including support
122122 provided by:
123123 (A) family;
124124 (B) friends; or
125125 (C) home and community-based services, including
126126 home and community-based services funded by:
127127 (i) the medical assistance program
128128 established under Chapter 32, Human Resources Code;
129129 (ii) Medicare;
130130 (iii) a health plan in which the individual
131131 is enrolled; or
132132 (iv) any other program or source of funding
133133 available to the individual.
134134 (e) A health care provider shall ensure that an individual
135135 with a disability is not denied services, including
136136 transplant-related counseling, information, coverage, or
137137 treatment, because auxiliary aids and services are absent unless
138138 the health care provider can demonstrate that providing the
139139 services with auxiliary aids and services present would
140140 fundamentally alter the services provided or would impose an undue
141141 burden on the health care provider.
142142 (f) A health care provider shall comply with the
143143 requirements of Titles II and III of the Americans with
144144 Disabilities Act of 1990 (42 U.S.C. Section 12131 et seq.).
145145 (g) This section applies to each stage of the organ
146146 transplant process.
147147 (h) A violation of this section is grounds for disciplinary
148148 action by the regulatory agency that issued a license, certificate,
149149 or other authority to a health care provider who committed the
150150 violation.
151151 SECTION 4. Not later than December 1, 2021, the executive
152152 commissioner of the Health and Human Services Commission shall
153153 adopt any rules necessary to implement Subchapter S, Chapter 161,
154154 Health and Safety Code, as amended by this Act.
155155 SECTION 5. This Act takes effect September 1, 2021.