| 1 | 1 | | 88R20398 MPF-D |
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| 2 | 2 | | By: Guillen H.B. No. 1876 |
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| 3 | 3 | | |
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| 4 | 4 | | |
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| 5 | 5 | | A BILL TO BE ENTITLED |
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| 6 | 6 | | AN ACT |
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| 7 | 7 | | relating to the Rita Littlefield Chronic Kidney Disease Centralized |
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| 8 | 8 | | Resource Center established within the Health and Human Services |
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| 9 | 9 | | Commission. |
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| 10 | 10 | | BE IT ENACTED BY THE LEGISLATURE OF THE STATE OF TEXAS: |
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| 11 | 11 | | SECTION 1. Subtitle D, Title 2, Health and Safety Code, is |
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| 12 | 12 | | amended by adding Chapter 83A to read as follows: |
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| 13 | 13 | | CHAPTER 83A. RITA LITTLEFIELD CHRONIC KIDNEY DISEASE CENTRALIZED |
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| 14 | 14 | | RESOURCE CENTER |
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| 15 | 15 | | Sec. 83A.001. DEFINITION. In this chapter, "resource |
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| 16 | 16 | | center" means the Rita Littlefield Chronic Kidney Disease |
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| 17 | 17 | | Centralized Resource Center established under this chapter. |
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| 18 | 18 | | Sec. 83A.002. ESTABLISHMENT OF RESOURCE CENTER. The Rita |
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| 19 | 19 | | Littlefield Chronic Kidney Disease Centralized Resource Center is |
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| 20 | 20 | | established within the commission to serve as a centralized system |
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| 21 | 21 | | through which persons may: |
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| 22 | 22 | | (1) request and obtain information on: |
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| 23 | 23 | | (A) chronic kidney disease and related |
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| 24 | 24 | | illnesses, including each clinical stage of kidney disease and end |
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| 25 | 25 | | stage renal disease; and |
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| 26 | 26 | | (B) genetic testing and genetic counseling for |
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| 27 | 27 | | genetic kidney diseases, including APOL1-mediated kidney disease; |
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| 28 | 28 | | and |
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| 29 | 29 | | (2) register for inclusion in a kidney health clinical |
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| 30 | 30 | | trials registry to receive information on clinical trials and |
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| 31 | 31 | | clinical trial opportunities for chronic kidney disease and related |
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| 32 | 32 | | illnesses. |
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| 33 | 33 | | Sec. 83A.003. ADMINISTRATION OF RESOURCE CENTER. (a) The |
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| 34 | 34 | | commission shall administer the resource center in accordance with |
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| 35 | 35 | | this chapter. |
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| 36 | 36 | | (b) The commission shall: |
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| 37 | 37 | | (1) structure and operate the resource center in a |
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| 38 | 38 | | manner that provides a comprehensive approach for readily accessing |
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| 39 | 39 | | information on and resources for chronic kidney disease and related |
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| 40 | 40 | | illnesses, including for each clinical stage of kidney disease and |
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| 41 | 41 | | end stage renal disease; and |
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| 42 | 42 | | (2) establish, and the resource center shall maintain, |
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| 43 | 43 | | a kidney health clinical trials registry through which patients and |
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| 44 | 44 | | family members of those patients may register to receive |
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| 45 | 45 | | educational information on clinical trials and clinical trial |
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| 46 | 46 | | opportunities based on the clinical stage of a patient's chronic |
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| 47 | 47 | | kidney disease or end stage renal disease. |
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| 48 | 48 | | (c) The comprehensive approach described by Subsection |
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| 49 | 49 | | (b)(1) must allow individuals to request and obtain or to directly |
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| 50 | 50 | | access aggregated information on: |
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| 51 | 51 | | (1) chronic kidney disease awareness, prevention, and |
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| 52 | 52 | | professional education opportunities, including: |
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| 53 | 53 | | (A) awareness campaigns for chronic kidney |
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| 54 | 54 | | disease and related illnesses; |
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| 55 | 55 | | (B) information on accessing free screenings for |
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| 56 | 56 | | chronic kidney disease and related illnesses; |
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| 57 | 57 | | (C) professional resources and continuing |
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| 58 | 58 | | education opportunities for health care providers who treat |
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| 59 | 59 | | patients with chronic kidney disease or related illnesses; |
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| 60 | 60 | | (D) for individuals who register for inclusion in |
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| 61 | 61 | | the clinical trials registry established under Subsection (b)(2), |
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| 62 | 62 | | information on clinical trials and clinical trial opportunities for |
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| 63 | 63 | | chronic kidney disease and related illnesses; and |
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| 64 | 64 | | (E) information on chronic kidney disease |
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| 65 | 65 | | partners, including chronic kidney disease patient advocates, |
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| 66 | 66 | | dialysis professionals, health care providers, researchers, |
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| 67 | 67 | | manufacturers, and other appropriate persons; |
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| 68 | 68 | | (2) patient and family resources, including: |
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| 69 | 69 | | (A) educational resources containing general and |
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| 70 | 70 | | specific chronic kidney disease information; |
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| 71 | 71 | | (B) resources containing information on chronic |
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| 72 | 72 | | kidney disease prevention and early detection of chronic kidney |
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| 73 | 73 | | disease and related illnesses; |
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| 74 | 74 | | (C) nutritional and metabolism information for |
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| 75 | 75 | | individuals with chronic kidney disease and related illnesses; |
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| 76 | 76 | | (D) resources appropriately tailored to provide |
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| 77 | 77 | | information on chronic kidney disease and related illnesses to |
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| 78 | 78 | | individuals within groups that experience health disparities, |
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| 79 | 79 | | including racial minorities; |
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| 80 | 80 | | (E) directories for physicians who specialize in |
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| 81 | 81 | | kidney health; and |
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| 82 | 82 | | (F) programs through which an individual may |
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| 83 | 83 | | obtain a kidney donation or be placed on a kidney donation list; |
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| 84 | 84 | | (3) resources on chronic kidney disease treatment |
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| 85 | 85 | | options and modalities, including: |
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| 86 | 86 | | (A) kidney donations and kidney transplantation |
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| 87 | 87 | | initiatives; |
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| 88 | 88 | | (B) deceased and living organ donation programs |
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| 89 | 89 | | and initiatives; |
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| 90 | 90 | | (C) organ recipient registries; |
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| 91 | 91 | | (D) treatment options for chronic kidney disease |
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| 92 | 92 | | and end stage renal disease; |
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| 93 | 93 | | (E) financial assistance for obtaining treatment |
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| 94 | 94 | | for chronic kidney disease or related illnesses; and |
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| 95 | 95 | | (F) options for receiving treatment for chronic |
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| 96 | 96 | | kidney disease or related illnesses through the use of telehealth |
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| 97 | 97 | | service or telemedicine medical service, as those terms are defined |
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| 98 | 98 | | by Section 111.001, Occupations Code; and |
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| 99 | 99 | | (4) genetic testing and genetic counseling for genetic |
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| 100 | 100 | | kidney diseases, including APOL1-mediated kidney disease. |
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| 101 | 101 | | (d) The commission shall ensure information provided by the |
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| 102 | 102 | | resource center is available in both English and Spanish. |
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| 103 | 103 | | Sec. 83A.004. INTERNET WEBSITE. In collaboration with the |
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| 104 | 104 | | Chronic Kidney Disease Task Force established under Chapter 83, the |
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| 105 | 105 | | commission shall establish and the resource center shall maintain |
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| 106 | 106 | | an Internet website through which: |
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| 107 | 107 | | (1) resource center employees and members of the |
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| 108 | 108 | | public may directly communicate and exchange information on chronic |
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| 109 | 109 | | kidney disease and related illnesses; and |
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| 110 | 110 | | (2) individuals may register in the clinical trials |
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| 111 | 111 | | registry established under Section 83A.003(b)(2). |
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| 112 | 112 | | Sec. 83A.005. GIFTS, GRANTS, AND DONATIONS. The commission |
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| 113 | 113 | | may solicit and accept gifts, grants, and donations from any source |
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| 114 | 114 | | to implement this chapter. |
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| 115 | 115 | | SECTION 2. This Act takes effect September 1, 2025. |
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