1 | 1 | | H.R. No. 1213 |
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2 | 2 | | |
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3 | 3 | | |
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4 | 4 | | R E S O L U T I O N |
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5 | 5 | | WHEREAS, Aromatic L-Amino Acid Decarboxylase (AADC) |
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6 | 6 | | Deficiency Awareness Day is being observed to focus attention on |
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7 | 7 | | this rare disease and to help educate the community, physicians, |
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8 | 8 | | and specialists about its symptoms to facilitate early detection; |
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9 | 9 | | and |
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10 | 10 | | WHEREAS, AADC Deficiency is a rare genetic neurological |
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11 | 11 | | disease, and there have been approximately 200 cases of AADC |
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12 | 12 | | Deficiency reported worldwide; and |
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13 | 13 | | WHEREAS, AADC Deficiency is a life-limiting, severely |
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14 | 14 | | debilitating condition that significantly impacts a patient's |
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15 | 15 | | development, motor skills, growth, cognition, and language skills; |
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16 | 16 | | and |
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17 | 17 | | WHEREAS, The disease results from an inherited genetic |
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18 | 18 | | mutation that causes patients to lack the AADC enzyme that is |
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19 | 19 | | required to create dopamine; without dopamine, patients can never |
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20 | 20 | | achieve motor milestones like holding their heads up, sitting, and |
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21 | 21 | | standing and are unable to develop the ability to communicate or to |
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22 | 22 | | meet the most basic of life's needs; and |
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23 | 23 | | WHEREAS, Patients with AADC Deficiency often have low muscle |
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24 | 24 | | tone that is unexplained and does not improve; such patients also |
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25 | 25 | | suffer from involuntary eye movements and developmental delays; |
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26 | 26 | | AADC Deficiency is often mistaken for other diseases like cerebral |
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27 | 27 | | palsy, epilepsy, or autism; and |
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28 | 28 | | WHEREAS, Patients are diagnosed with AADC Deficiency through |
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29 | 29 | | genetic and other biochemical tests; and |
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30 | 30 | | WHEREAS, AADC Deficiency Awareness Day serves as a vital |
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31 | 31 | | means of helping inform the public and the medical community about |
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32 | 32 | | the condition, and this awareness can help patients who may be |
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33 | 33 | | experiencing the symptoms of AADC to receive appropriate treatment; |
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34 | 34 | | now, therefore, be it |
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35 | 35 | | RESOLVED, That the House of Representatives of the 88th Texas |
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36 | 36 | | Legislature hereby recognize AADC Deficiency Awareness Day and |
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37 | 37 | | encourage Texans to learn more about the disease. |
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38 | 38 | | Oliverson |
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39 | 39 | | ______________________________ |
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40 | 40 | | Speaker of the House |
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41 | 41 | | I certify that H.R. No. 1213 was adopted by the House on May |
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42 | 42 | | 6, 2023, by a non-record vote. |
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43 | 43 | | ______________________________ |
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44 | 44 | | Chief Clerk of the House |
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