| 1 | 1 | | 88R12986 MCF-F |
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| 2 | 2 | | By: Miles S.B. No. 1757 |
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| 3 | 3 | | |
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| 4 | 4 | | |
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| 5 | 5 | | A BILL TO BE ENTITLED |
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| 6 | 6 | | AN ACT |
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| 7 | 7 | | relating to the treatment of and education on sickle cell disease |
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| 8 | 8 | | and the sickle cell task force. |
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| 9 | 9 | | BE IT ENACTED BY THE LEGISLATURE OF THE STATE OF TEXAS: |
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| 10 | 10 | | SECTION 1. Subchapter A, Chapter 533, Government Code, is |
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| 11 | 11 | | amended by adding Section 533.0091 to read as follows: |
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| 12 | 12 | | Sec. 533.0091. SICKLE CELL DISEASE TREATMENT. The |
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| 13 | 13 | | commission shall: |
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| 14 | 14 | | (1) in collaboration with the sickle cell task force |
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| 15 | 15 | | established under Chapter 52, Health and Safety Code: |
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| 16 | 16 | | (A) ensure that health care services provided |
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| 17 | 17 | | under a managed care plan to recipients diagnosed with sickle cell |
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| 18 | 18 | | disease align with national clinical practice guidelines and |
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| 19 | 19 | | protocols for sickle cell disease treatment; and |
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| 20 | 20 | | (B) increase sickle cell disease education for |
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| 21 | 21 | | Medicaid providers, including emergency room providers; and |
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| 22 | 22 | | (2) use the commission's existing data to identify |
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| 23 | 23 | | opportunities for improving health outcomes of recipients |
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| 24 | 24 | | diagnosed with sickle cell disease by: |
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| 25 | 25 | | (A) reducing hospital admissions and |
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| 26 | 26 | | readmissions; and |
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| 27 | 27 | | (B) connecting those recipients to a sickle cell |
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| 28 | 28 | | disease expert. |
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| 29 | 29 | | SECTION 2. Sections 52.0003 and 52.0007, Health and Safety |
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| 30 | 30 | | Code, are amended to read as follows: |
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| 31 | 31 | | Sec. 52.0003. COMPOSITION OF TASK FORCE. The task force is |
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| 32 | 32 | | composed of the following members appointed by the executive |
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| 33 | 33 | | commissioner: |
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| 34 | 34 | | (1) two members from community-based organizations |
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| 35 | 35 | | with experience addressing the needs of individuals with sickle |
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| 36 | 36 | | cell disease; |
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| 37 | 37 | | (2) two physicians specializing in hematology; |
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| 38 | 38 | | (3) two members of the public, each of whom either has |
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| 39 | 39 | | sickle cell disease or is a parent of a person with sickle cell |
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| 40 | 40 | | disease or trait; [and] |
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| 41 | 41 | | (4) one representative of a health-related |
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| 42 | 42 | | institution; |
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| 43 | 43 | | (5) one representative of the Texas Education Agency; |
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| 44 | 44 | | and |
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| 45 | 45 | | (6) one representative of the commission. |
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| 46 | 46 | | Sec. 52.0007. ANNUAL REPORT. (a) Not later than December 1 |
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| 47 | 47 | | of each year, the task force shall prepare and submit to the |
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| 48 | 48 | | governor and the legislature an annual written report that |
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| 49 | 49 | | summarizes the task force's work and includes any recommended |
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| 50 | 50 | | actions or policy changes endorsed by the task force. |
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| 51 | 51 | | (b) The task force shall, in collaboration with the |
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| 52 | 52 | | commission, include in the task force's annual report |
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| 53 | 53 | | recommendations for improving sickle cell disease education for |
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| 54 | 54 | | health care providers. |
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| 55 | 55 | | SECTION 3. Subtitle B, Title 2, Health and Safety Code, is |
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| 56 | 56 | | amended by adding Chapter 52A to read as follows: |
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| 57 | 57 | | CHAPTER 52A. SICKLE CELL DISEASE CARE EDUCATION |
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| 58 | 58 | | Sec. 52A.001. EMERGENCY AND PRIMARY CARE MEDICINE GRADUATE |
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| 59 | 59 | | MEDICAL EDUCATION PROGRAM CURRICULUM. (a) In this section, |
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| 60 | 60 | | "medical school" has the meaning assigned by Section 58A.001, |
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| 61 | 61 | | Education Code. |
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| 62 | 62 | | (b) A medical school in this state that offers an emergency |
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| 63 | 63 | | medicine, family medicine, or internal medicine residency program |
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| 64 | 64 | | shall include in the curriculum requirements for the program |
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| 65 | 65 | | education focused on sickle cell disease and sickle cell trait. The |
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| 66 | 66 | | medical school may enter into agreements as necessary for the |
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| 67 | 67 | | purposes of this section. |
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| 68 | 68 | | Sec. 52A.002. INFORMATION FOR PUBLIC SCHOOL DISTRICT |
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| 69 | 69 | | PERSONNEL. (a) The Texas Education Agency shall collaborate with |
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| 70 | 70 | | sickle cell disease community-based organizations to provide |
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| 71 | 71 | | information on sickle cell disease and sickle cell trait to public |
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| 72 | 72 | | school districts and district staff, including school nurses, |
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| 73 | 73 | | teachers, and coaches. |
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| 74 | 74 | | (b) The commission in collaboration with the sickle cell |
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| 75 | 75 | | task force established under Chapter 52 shall explore methods for |
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| 76 | 76 | | improving sickle cell disease education and awareness within the |
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| 77 | 77 | | public school system and provide recommendations to the Texas |
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| 78 | 78 | | Education Agency on the improvement methods. |
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| 79 | 79 | | SECTION 4. As soon as practicable after the effective date |
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| 80 | 80 | | of this Act, the executive commissioner of the Health and Human |
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| 81 | 81 | | Services Commission shall appoint the new members of the sickle |
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| 82 | 82 | | cell task force as required by Section 52.0003, Health and Safety |
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| 83 | 83 | | Code, as amended by this Act. |
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| 84 | 84 | | SECTION 5. Section 52A.001, Health and Safety Code, as |
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| 85 | 85 | | added by this Act, applies to residents entering an emergency |
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| 86 | 86 | | medicine, family medicine, or internal residency program at a |
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| 87 | 87 | | medical school in this state on or after January 1, 2024. |
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| 88 | 88 | | SECTION 6. This Act takes effect September 1, 2023. |
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