Texas 2023 88th 2nd C.S.

Texas Senate Bill SR14 Introduced / Bill

Filed 07/05/2023

                    88S10223 TBO-D
 By: Parker S.R. No. 14


 R E S O L U T I O N
 WHEREAS, Ehlers-Danlos Syndromes and Hypermobility Spectrum
 Disorders Awareness Month took place in May 2023; and
 WHEREAS, Ehlers-Danlos syndromes (EDS) include 13 heritable
 connective tissue disorders that together affect an estimated 1 in
 5,000 people; each disorder has its own set of symptoms, but all
 types of EDS are characterized by joint hypermobility, skin
 hyperextensibility, and tissue fragility; and
 WHEREAS, Hypermobility spectrum disorders (HSD) are
 connective tissue disorders that cause joint hypermobility,
 instability, injury, and pain; in addition, other symptoms such as
 fatigue, headaches, gastrointestinal problems, and autonomic
 dysfunction are often a result of HSD; and
 WHEREAS, There is currently no available cure for any type of
 EDS or HSD, and treatments typically focus on addressing symptoms;
 because the conditions can affect many different areas of the body,
 patients often require multiple providers in different specialties
 to manage their care; and
 WHEREAS, Numerous patients impacted by EDS and HSD have
 limited access to professionals who are knowledgeable about these
 health issues; increased awareness about each condition is
 necessary to help diagnose patients, improve symptom management,
 and promote research initiatives; and
 WHEREAS, More work remains to be done to ensure that all EDS
 and HSD patients have access to quality health care, and the
 observance of Ehlers-Danlos Syndromes and Hypermobility Spectrum
 Disorders Awareness Month unites people across Texas and around the
 world in their commitment to that endeavor; now, therefore, be it
 RESOLVED, That the Senate of the 88th Texas Legislature, 1st
 Called Session, hereby recognize May 2023 as Ehlers-Danlos
 Syndromes and Hypermobility Spectrum Disorders Awareness Month.