SENATE RESOLUTION NO. 14
WHEREAS, Ehlers-Danlos Syndromes and Hypermobility
Spectrum Disorders Awareness Month took place in May 2023; and
WHEREAS, Ehlers-Danlos syndromes (EDS) include 13 heritable
connective tissue disorders that together affect an estimated 1 in
5,000 people; each disorder has its own set of symptoms, but all
types of EDS are characterized by joint hypermobility, skin
hyperextensibility, and tissue fragility; and
WHEREAS, Hypermobility spectrum disorders (HSD) are
connective tissue disorders that cause joint hypermobility,
instability, injury, and pain; in addition, other symptoms such
as fatigue, headaches, gastrointestinal problems, and autonomic
dysfunction are often a result of HSD; and
WHEREAS, There is currently no available cure for any type
of EDS or HSD, and treatments typically focus on addressing
symptoms; because the conditions can affect many different areas
of the body, patients often require multiple providers in
different specialties to manage their care; and
WHEREAS, Numerous patients impacted by EDS and HSD have
limited access to professionals who are knowledgeable about
these health issues; increased awareness about each condition is
necessary to help diagnose patients, improve symptom management,
and promote research initiatives; and
WHEREAS, More work remains to be done to ensure that all
EDS and HSD patients have access to quality health care, and the
observance of Ehlers-Danlos Syndromes and Hypermobility Spectrum
Disorders Awareness Month unites people across Texas and around
the world in their commitment to that endeavor; now, therefore,
be it
RESOLVED, That the Senate of the State of Texas, 88th
Legislature, 2nd Called Session, hereby recognize May 2023 as
Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders
Awareness Month.
Parker
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President of the Senate
I hereby certify that the
above Resolution was adopted by
the Senate on July 5, 2023.
________________________________
Secretary of the Senate
________________________________
Member, Texas Senate