1 | 1 | | 89R11037 EAS-F |
---|
2 | 2 | | By: Simmons H.B. No. 1989 |
---|
3 | 3 | | |
---|
4 | 4 | | |
---|
5 | 5 | | |
---|
6 | 6 | | |
---|
7 | 7 | | A BILL TO BE ENTITLED |
---|
8 | 8 | | AN ACT |
---|
9 | 9 | | relating to the confidentiality and reporting of certain maternal |
---|
10 | 10 | | mortality information to the Department of State Health Services, |
---|
11 | 11 | | to an exception to certain reporting requirements for health care |
---|
12 | 12 | | providers reviewing certain information on maternal mortality and |
---|
13 | 13 | | morbidity, to the reimbursement of travel expenses incurred by |
---|
14 | 14 | | Texas Maternal Mortality and Morbidity Review Committee members, |
---|
15 | 15 | | and to a work group establishing a maternal mortality and morbidity |
---|
16 | 16 | | data registry. |
---|
17 | 17 | | BE IT ENACTED BY THE LEGISLATURE OF THE STATE OF TEXAS: |
---|
18 | 18 | | SECTION 1. This Act shall be known as Tomara's Bill. |
---|
19 | 19 | | SECTION 2. Section 34.001, Health and Safety Code, is |
---|
20 | 20 | | amended by adding Subdivision (11-a) and amending Subdivision (12) |
---|
21 | 21 | | to read as follows: |
---|
22 | 22 | | (11-a) "Pregnancy-associated death" means the death |
---|
23 | 23 | | of a woman from any cause that occurs during or within one year of |
---|
24 | 24 | | delivery or end of pregnancy, regardless of the outcome or location |
---|
25 | 25 | | of the pregnancy. |
---|
26 | 26 | | (12) "Pregnancy-related death" means the death of a |
---|
27 | 27 | | woman while pregnant or within one year of delivery or end of |
---|
28 | 28 | | pregnancy, regardless of the outcome, duration, or location [and |
---|
29 | 29 | | site] of the pregnancy, from any cause related to or aggravated by |
---|
30 | 30 | | the pregnancy or its management, but not from accidental or |
---|
31 | 31 | | incidental causes. |
---|
32 | 32 | | SECTION 3. The heading to Section 34.002, Health and Safety |
---|
33 | 33 | | Code, is amended to read as follows: |
---|
34 | 34 | | Sec. 34.002. TEXAS MATERNAL MORTALITY AND MORBIDITY REVIEW |
---|
35 | 35 | | COMMITTEE; REFERENCE IN LAW. |
---|
36 | 36 | | SECTION 4. Section 34.002, Health and Safety Code, is |
---|
37 | 37 | | amended by adding Subsection (a-1) and amending Subsection (e) to |
---|
38 | 38 | | read as follows: |
---|
39 | 39 | | (a-1) Notwithstanding any other law, a reference in this |
---|
40 | 40 | | chapter or other law to the Maternal Mortality and Morbidity Task |
---|
41 | 41 | | Force means the Texas Maternal Mortality and Morbidity Review |
---|
42 | 42 | | Committee. |
---|
43 | 43 | | (e) A member of the review committee appointed under |
---|
44 | 44 | | Subsection (b)(1) is not entitled to compensation for service on |
---|
45 | 45 | | the review committee, but may receive [or] reimbursement from the |
---|
46 | 46 | | department as provided by Section 2110.004, Government Code, for |
---|
47 | 47 | | travel [or other] expenses incurred by the member while conducting |
---|
48 | 48 | | the business of the review committee. |
---|
49 | 49 | | SECTION 5. Section 34.008, Health and Safety Code, is |
---|
50 | 50 | | amended by adding Subsection (e) to read as follows: |
---|
51 | 51 | | (e) Notwithstanding any other law and for purposes of this |
---|
52 | 52 | | chapter, a health care provider, including a nurse, who during the |
---|
53 | 53 | | review of information relevant to a case of pregnancy-associated |
---|
54 | 54 | | death, pregnancy-related death, or severe maternal morbidity |
---|
55 | 55 | | obtained under this chapter learns of conduct related to the |
---|
56 | 56 | | provider's profession that is subject to a reporting requirement is |
---|
57 | 57 | | exempt from that reporting requirement for the reviewed |
---|
58 | 58 | | information. |
---|
59 | 59 | | SECTION 6. Section 34.009(a), Health and Safety Code, is |
---|
60 | 60 | | amended to read as follows: |
---|
61 | 61 | | (a) Any information pertaining to a pregnancy-associated |
---|
62 | 62 | | death, a pregnancy-related death, or severe maternal morbidity is |
---|
63 | 63 | | confidential for purposes of this chapter. |
---|
64 | 64 | | SECTION 7. Section 34.014, Health and Safety Code, is |
---|
65 | 65 | | amended to read as follows: |
---|
66 | 66 | | Sec. 34.014. FUNDING. (a) The department may accept gifts |
---|
67 | 67 | | and grants from any source to fund the duties of the department and |
---|
68 | 68 | | the review committee under this chapter. |
---|
69 | 69 | | (b) The department may use only gifts, grants, or federal |
---|
70 | 70 | | funds to reimburse travel or other expenses incurred by a member of |
---|
71 | 71 | | the review committee in accordance with Section 34.002(e). |
---|
72 | 72 | | SECTION 8. Section 34.017, Health and Safety Code, is |
---|
73 | 73 | | amended by adding Subsections (c), (d), and (e) to read as follows: |
---|
74 | 74 | | (c) The department may allow voluntary and confidential |
---|
75 | 75 | | reporting to the department of pregnancy-associated deaths and |
---|
76 | 76 | | pregnancy-related deaths by health care professionals, health care |
---|
77 | 77 | | facilities, and persons who complete the medical certification for |
---|
78 | 78 | | a death certificate for deaths reviewed or analyzed by the review |
---|
79 | 79 | | committee. |
---|
80 | 80 | | (d) The department shall allow voluntary and confidential |
---|
81 | 81 | | reporting to the department of pregnancy-associated deaths and |
---|
82 | 82 | | pregnancy-related deaths by family members of or other appropriate |
---|
83 | 83 | | individuals associated with a deceased patient. The department |
---|
84 | 84 | | shall: |
---|
85 | 85 | | (1) post on the department's Internet website the |
---|
86 | 86 | | contact information of the person to whom a report may be submitted |
---|
87 | 87 | | under this subsection; and |
---|
88 | 88 | | (2) conduct outreach to local health organizations on |
---|
89 | 89 | | the availability of the review committee to review and analyze the |
---|
90 | 90 | | deaths described by this subsection. |
---|
91 | 91 | | (e) Information reported to the department under this |
---|
92 | 92 | | section is confidential in accordance with Section 34.009. |
---|
93 | 93 | | SECTION 9. Chapter 34, Health and Safety Code, is amended by |
---|
94 | 94 | | adding Section 34.022 to read as follows: |
---|
95 | 95 | | Sec. 34.022. DEVELOPMENT OF WORK GROUP ON ESTABLISHMENT OF |
---|
96 | 96 | | MATERNAL MORTALITY AND MORBIDITY DATA REGISTRY. (a) In this |
---|
97 | 97 | | section, "maternal mortality and morbidity data registry" means an |
---|
98 | 98 | | Internet website or database established to collect individualized |
---|
99 | 99 | | patient information and aggregate statistical reports on the health |
---|
100 | 100 | | status, health behaviors, and service delivery needs of maternal |
---|
101 | 101 | | patients. |
---|
102 | 102 | | (b) The department shall establish a work group to provide |
---|
103 | 103 | | advice and consultation services to the department on the report |
---|
104 | 104 | | and recommendations required by Subsection (e). The work group |
---|
105 | 105 | | consists of the following members appointed by the commissioner |
---|
106 | 106 | | unless otherwise provided: |
---|
107 | 107 | | (1) one member with appropriate expertise appointed by |
---|
108 | 108 | | the governor; |
---|
109 | 109 | | (2) two members with appropriate expertise appointed |
---|
110 | 110 | | by the lieutenant governor; |
---|
111 | 111 | | (3) two members with appropriate expertise appointed |
---|
112 | 112 | | by the speaker of the house of representatives; |
---|
113 | 113 | | (4) the chair of the Texas Hospital Association or the |
---|
114 | 114 | | chair's designee; |
---|
115 | 115 | | (5) the president of the Texas Medical Association or |
---|
116 | 116 | | the president's designee; |
---|
117 | 117 | | (6) the president of the Texas Nurses Association or |
---|
118 | 118 | | the president's designee; |
---|
119 | 119 | | (7) one member who is a physician specializing in |
---|
120 | 120 | | obstetrics and gynecology; |
---|
121 | 121 | | (8) one member who is a physician specializing in |
---|
122 | 122 | | maternal and fetal medicine; |
---|
123 | 123 | | (9) one member who is a registered nurse specializing |
---|
124 | 124 | | in labor and delivery; |
---|
125 | 125 | | (10) one member who is a representative of a hospital |
---|
126 | 126 | | located in a rural area of this state; |
---|
127 | 127 | | (11) one member who is a representative of a hospital |
---|
128 | 128 | | located in a county with a population of four million or more; |
---|
129 | 129 | | (12) one member who is a representative of a hospital |
---|
130 | 130 | | located in an urban area of this state in a county with a population |
---|
131 | 131 | | of less than four million; |
---|
132 | 132 | | (13) one member who is a representative of a public |
---|
133 | 133 | | hospital; |
---|
134 | 134 | | (14) one member who is a representative of a private |
---|
135 | 135 | | hospital; |
---|
136 | 136 | | (15) one member who is an epidemiologist; |
---|
137 | 137 | | (16) one member who is a statistician; |
---|
138 | 138 | | (17) one member who is a public health expert; and |
---|
139 | 139 | | (18) any other member with appropriate expertise as |
---|
140 | 140 | | the commissioner determines necessary. |
---|
141 | 141 | | (c) The work group shall elect from among the membership a |
---|
142 | 142 | | presiding officer. |
---|
143 | 143 | | (d) The work group shall meet periodically and at the call |
---|
144 | 144 | | of the presiding officer. |
---|
145 | 145 | | (e) With the goals of improving the quality of maternal care |
---|
146 | 146 | | and combating maternal mortality and morbidity and with the advice |
---|
147 | 147 | | of the work group established under this section, the department |
---|
148 | 148 | | shall assess and prepare a report and recommendations on the |
---|
149 | 149 | | establishment of a secure maternal mortality and morbidity data |
---|
150 | 150 | | registry to record information submitted by participating health |
---|
151 | 151 | | care providers on the health status of maternal patients over |
---|
152 | 152 | | varying periods, including the frequency and characteristics of |
---|
153 | 153 | | maternal mortality and morbidity during pregnancy and the |
---|
154 | 154 | | postpartum period. |
---|
155 | 155 | | (f) In developing the report and recommendations required |
---|
156 | 156 | | by Subsection (e), the department shall: |
---|
157 | 157 | | (1) consider individual maternal patient information |
---|
158 | 158 | | related to health status and health care received over varying |
---|
159 | 159 | | periods that should be submitted to the registry; |
---|
160 | 160 | | (2) review existing and developing registries used |
---|
161 | 161 | | within and outside this state that serve the same or a similar |
---|
162 | 162 | | purpose as a maternal mortality and morbidity data registry; |
---|
163 | 163 | | (3) review ongoing health data collection efforts and |
---|
164 | 164 | | initiatives in this state to avoid duplication and ensure |
---|
165 | 165 | | efficiency; |
---|
166 | 166 | | (4) review and consider existing laws that govern data |
---|
167 | 167 | | submission and sharing, including laws governing the |
---|
168 | 168 | | confidentiality and security of individually identifiable health |
---|
169 | 169 | | information; and |
---|
170 | 170 | | (5) evaluate the clinical period during which a health |
---|
171 | 171 | | care provider should submit to a maternal mortality and morbidity |
---|
172 | 172 | | data registry known and available information, including |
---|
173 | 173 | | information: |
---|
174 | 174 | | (A) from a maternal patient's first appointment |
---|
175 | 175 | | with an obstetrician and each subsequent appointment until the date |
---|
176 | 176 | | of delivery; |
---|
177 | 177 | | (B) for the 42 days following the date of a |
---|
178 | 178 | | patient's delivery; and |
---|
179 | 179 | | (C) until the 364th day following the date of a |
---|
180 | 180 | | patient's delivery. |
---|
181 | 181 | | (g) If the department recommends the establishment of a |
---|
182 | 182 | | maternal mortality and morbidity data registry, the report under |
---|
183 | 183 | | Subsection (e) must include specific recommendations on the |
---|
184 | 184 | | relevant individual patient information and categories of |
---|
185 | 185 | | information to be submitted to the registry, including |
---|
186 | 186 | | recommendations on the intervals for submission of information. |
---|
187 | 187 | | The categories must include: |
---|
188 | 188 | | (1) notifiable maternal deaths, including |
---|
189 | 189 | | individualized patient data on: |
---|
190 | 190 | | (A) patients who die during pregnancy; and |
---|
191 | 191 | | (B) patients who were pregnant at any point |
---|
192 | 192 | | during the 12 months preceding their death; |
---|
193 | 193 | | (2) individualized patient information on each |
---|
194 | 194 | | pregnancy and birth; |
---|
195 | 195 | | (3) individualized patient data on the most common |
---|
196 | 196 | | high-risk conditions for maternal patients and severe cases of |
---|
197 | 197 | | maternal morbidity; |
---|
198 | 198 | | (4) nonidentifying demographic data from the |
---|
199 | 199 | | provider's patient admissions records, including age, race, and |
---|
200 | 200 | | patient health benefit coverage status; and |
---|
201 | 201 | | (5) a statistical summary based on an aggregate of |
---|
202 | 202 | | individualized patient data that includes the following: |
---|
203 | 203 | | (A) total live births; |
---|
204 | 204 | | (B) maternal age distributions; |
---|
205 | 205 | | (C) maternal race and ethnicity distributions; |
---|
206 | 206 | | (D) health benefit plan issuer distributions; |
---|
207 | 207 | | (E) incidence of diabetes, hypertension, and |
---|
208 | 208 | | hemorrhage among patients; |
---|
209 | 209 | | (F) gestational age distributions; |
---|
210 | 210 | | (G) birth weight distributions; |
---|
211 | 211 | | (H) total preterm birth rate; |
---|
212 | 212 | | (I) rate of vaginal deliveries; and |
---|
213 | 213 | | (J) rate of cesarean sections. |
---|
214 | 214 | | (h) If the department establishes a maternal mortality and |
---|
215 | 215 | | morbidity data registry, a health care provider submitting |
---|
216 | 216 | | information to the registry shall comply with all applicable |
---|
217 | 217 | | federal and state laws relating to patient confidentiality and |
---|
218 | 218 | | quality of health care information. |
---|
219 | 219 | | (i) The report and recommendations required under |
---|
220 | 220 | | Subsection (e) must outline potential uses of a maternal mortality |
---|
221 | 221 | | and morbidity data registry, including: |
---|
222 | 222 | | (1) periodic department analysis of information |
---|
223 | 223 | | submitted to the registry; and |
---|
224 | 224 | | (2) the feasibility of preparing and issuing reports, |
---|
225 | 225 | | using aggregated information, to each health care provider |
---|
226 | 226 | | participating in the registry to improve the quality of maternal |
---|
227 | 227 | | care. |
---|
228 | 228 | | (j) Not later than September 1, 2026, the department shall |
---|
229 | 229 | | prepare and submit to the governor, the lieutenant governor, the |
---|
230 | 230 | | speaker of the house of representatives, the Legislative Budget |
---|
231 | 231 | | Board, and each standing committee of the legislature having |
---|
232 | 232 | | primary jurisdiction over the department and post on the |
---|
233 | 233 | | department's Internet website the report and recommendations |
---|
234 | 234 | | required under Subsection (e). |
---|
235 | 235 | | (k) This section expires September 1, 2027. |
---|
236 | 236 | | SECTION 10. Not later than December 1, 2025, the executive |
---|
237 | 237 | | commissioner of the Health and Human Services Commission shall |
---|
238 | 238 | | adopt rules as necessary to implement Section 34.022, Health and |
---|
239 | 239 | | Safety Code, as added by this Act. |
---|
240 | 240 | | SECTION 11. This Act takes effect September 1, 2025. |
---|