1 | 1 | | By: Guillen H.B. No. 3269 |
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2 | 2 | | |
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3 | 3 | | |
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4 | 4 | | |
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5 | 5 | | |
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6 | 6 | | A BILL TO BE ENTITLED |
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7 | 7 | | AN ACT |
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8 | 8 | | relating to the Rita Littlefield Chronic Kidney Disease Centralized |
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9 | 9 | | Resource Center established within the Health and Human Services |
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10 | 10 | | Commission. |
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11 | 11 | | BE IT ENACTED BY THE LEGISLATURE OF THE STATE OF TEXAS: |
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12 | 12 | | SECTION 1. Subtitle D, Title 2, Health and Safety Code, is |
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13 | 13 | | amended by adding Chapter 83A to read as follows: |
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14 | 14 | | CHAPTER 83A. RITA LITTLEFIELD CHRONIC KIDNEY DISEASE CENTRALIZED |
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15 | 15 | | RESOURCE CENTER |
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16 | 16 | | Sec. 83A.001. DEFINITION. In this chapter, "resource |
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17 | 17 | | center" means the Rita Littlefield Chronic Kidney Disease |
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18 | 18 | | Centralized Resource Center established under this chapter. |
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19 | 19 | | Sec. 83A.002. ESTABLISHMENT OF RESOURCE CENTER. The Rita |
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20 | 20 | | Littlefield Chronic Kidney Disease Centralized Resource Center is |
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21 | 21 | | established within the commission to serve as a centralized system |
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22 | 22 | | through which persons may: |
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23 | 23 | | (1) obtain information on: |
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24 | 24 | | (A) chronic kidney disease and related |
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25 | 25 | | illnesses, including each clinical stage of kidney disease and end |
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26 | 26 | | stage renal disease; and |
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27 | 27 | | (2) receive information on clinical trials and |
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28 | 28 | | clinical trial opportunities for chronic kidney disease and related |
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29 | 29 | | illnesses. |
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30 | 30 | | Sec. 83A.003. ADMINISTRATION OF RESOURCE CENTER. (a) The |
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31 | 31 | | commission shall administer the resource center in accordance with |
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32 | 32 | | this chapter. |
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33 | 33 | | (b) The commission shall: |
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34 | 34 | | (1) structure and operate the resource center in a |
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35 | 35 | | manner that provides a comprehensive approach for readily accessing |
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36 | 36 | | information on and resources for chronic kidney disease and related |
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37 | 37 | | illnesses, including for each clinical stage of kidney disease and |
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38 | 38 | | end stage renal disease; and |
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39 | 39 | | (2) establish, and the resource center shall maintain, |
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40 | 40 | | a kidney health clinical trials registry through which patients and |
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41 | 41 | | family members of those patients may register to receive |
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42 | 42 | | educational information on clinical trials and clinical trial |
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43 | 43 | | opportunities based on the clinical stage of a patient's chronic |
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44 | 44 | | kidney disease or end stage renal disease. |
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45 | 45 | | (c) The comprehensive approach described by Subsection |
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46 | 46 | | (b)(1) must allow individuals to obtain or to directly access |
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47 | 47 | | aggregated information on: |
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48 | 48 | | (1) chronic kidney disease awareness, prevention, and |
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49 | 49 | | professional education opportunities, including: |
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50 | 50 | | (A) awareness campaigns for chronic kidney |
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51 | 51 | | disease and related illnesses; |
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52 | 52 | | (B) information on accessing free screenings for |
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53 | 53 | | chronic kidney disease and related illnesses; |
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54 | 54 | | (C) professional resources and continuing |
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55 | 55 | | education opportunities for health care providers who treat |
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56 | 56 | | patients with chronic kidney disease or related illnesses; |
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57 | 57 | | (D) for individuals who register for inclusion in |
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58 | 58 | | the kidney health clinical trials registry established under |
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59 | 59 | | Subsection (b)(2), information on clinical trials and clinical |
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60 | 60 | | trial opportunities for chronic kidney disease and related |
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61 | 61 | | illnesses; and |
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62 | 62 | | (E) information on chronic kidney disease |
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63 | 63 | | partners, including chronic kidney disease patient advocates, |
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64 | 64 | | dialysis professionals, health care providers, researchers, |
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65 | 65 | | manufacturers, and other appropriate persons; |
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66 | 66 | | (2) patient and family resources, including: |
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67 | 67 | | (A) educational resources containing general and |
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68 | 68 | | specific chronic kidney disease information; |
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69 | 69 | | (B) resources containing information on chronic |
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70 | 70 | | kidney disease prevention and early detection of chronic kidney |
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71 | 71 | | disease and related illnesses; |
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72 | 72 | | (C) nutritional and metabolism information for |
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73 | 73 | | individuals with chronic kidney disease and related illnesses; and |
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74 | 74 | | (D) directories for physicians who specialize in |
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75 | 75 | | kidney health; |
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76 | 76 | | (3) resources on chronic kidney disease treatment |
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77 | 77 | | options and modalities, including: |
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78 | 78 | | (A) kidney donations and kidney transplantation |
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79 | 79 | | initiatives; |
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80 | 80 | | (B) deceased and living organ donation programs |
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81 | 81 | | and initiatives; |
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82 | 82 | | (C) organ recipient registries; |
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83 | 83 | | (D) treatment options for chronic kidney disease |
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84 | 84 | | and end stage renal disease; |
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85 | 85 | | (E) financial assistance for obtaining treatment |
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86 | 86 | | for chronic kidney disease or related illnesses. |
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87 | 87 | | (d) The commission shall ensure information provided by the |
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88 | 88 | | resource center is available in both English and Spanish. |
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89 | 89 | | Sec. 83A.004. INTERNET WEBSITE. In collaboration with the |
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90 | 90 | | Chronic Kidney Disease Task Force established under Chapter 83, the |
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91 | 91 | | commission shall add and maintain information and resources of the |
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92 | 92 | | resource center on the commission's Internet website. |
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93 | 93 | | Sec. 83A.005. GIFTS, GRANTS, AND DONATIONS. The commission |
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94 | 94 | | may solicit and accept gifts, grants, and donations from any source |
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95 | 95 | | to implement this chapter. |
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96 | 96 | | SECTION 2. The Health and Human Services Commission is |
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97 | 97 | | required to implement a provision of this Act only if the |
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98 | 98 | | legislature appropriates money specifically for that purpose. If |
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99 | 99 | | the legislature does not appropriate money specifically for that |
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100 | 100 | | purpose, the commission may, but is not required to, implement a |
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101 | 101 | | provision of this Act using other appropriations available for that |
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102 | 102 | | purpose. |
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103 | 103 | | SECTION 3. This Act takes effect September 1, 2025. |
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