Texas 2025 - 89th Regular

Texas Senate Bill SB1044 Compare Versions

Version 1 (Old)

Version 2 (New)

Old	New		Differences
	1	+	89R9499 EAS-F
1	2		By: Parker S.B. No. 1044
2		-	(In the Senate - Filed January 31, 2025; February 24, 2025,
3		-	read first time and referred to Committee on Health & Human
4		-	Services; April 14, 2025, reported adversely, with favorable
5		-	Committee Substitute by the following vote: Yeas 9, Nays 0;
6		-	April 14, 2025, sent to printer.)
7		-	Click here to see the committee vote
8		-	COMMITTEE SUBSTITUTE FOR S.B. No. 1044 By: Perry
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13	7		A BILL TO BE ENTITLED
14	8		AN ACT
15	9		relating to newborn screening tests for Duchenne muscular
16	10		dystrophy.
17	11		BE IT ENACTED BY THE LEGISLATURE OF THE STATE OF TEXAS:
18	12		SECTION 1. The heading to Chapter 33, Health and Safety
19	13		Code, is amended to read as follows:
20	14		CHAPTER 33. DUCHENNE MUSCULAR DYSTROPHY, PHENYLKETONURIA, OTHER
21	15		HERITABLE DISEASES, HYPOTHYROIDISM, AND CERTAIN OTHER DISORDERS
22	16		SECTION 2. Section 33.001, Health and Safety Code, is
23	17		amended by adding Subdivision (6) to read as follows:
24	18		(6) "Duchenne muscular dystrophy" means a progressive
25	19		muscular degeneration disorder caused by alterations of the protein
26	20		dystrophin and characterized by progressive muscle degeneration
27	21		and weakness.
28	22		SECTION 3. Sections 33.002(a) and (c), Health and Safety
29	23		Code, are amended to read as follows:
30	24		(a) The department shall carry out a program to combat
31	25		morbidity, including intellectual disability, and mortality in
32	26		persons who have Duchenne muscular dystrophy, phenylketonuria,
33	27		other heritable diseases, or hypothyroidism.
34	28		(c) The department shall establish and maintain a
35	29		laboratory to:
36	30		(1) conduct experiments, projects, and other
37	31		activities necessary to develop screening or diagnostic tests for
38	32		the early detection of Duchenne muscular dystrophy,
39	33		phenylketonuria, other heritable diseases, and hypothyroidism;
40	34		(2) develop ways and means or discover methods to be
41	35		used to prevent or treat Duchenne muscular dystrophy,
42	36		phenylketonuria, other heritable diseases, and hypothyroidism; and
43	37		(3) serve other purposes considered necessary by the
44	38		department to carry out the program.
45	39		SECTION 4. Section 33.011(a), Health and Safety Code, is
46	40		amended to read as follows:
47	41		(a) The physician attending a newborn child or the person
48	42		attending the delivery of a newborn child that is not attended by a
49	43		physician shall cause the child to be subjected to screening tests
50	44		approved by the department for Duchenne muscular dystrophy,
51	45		phenylketonuria, other heritable diseases, hypothyroidism, and
52	46		other disorders for which screening is required by the department.
53	47		SECTION 5. Section 33.014(a), Health and Safety Code, is
54	48		amended to read as follows:
55	49		(a) If, because of an analysis of a specimen submitted under
56	50		Section 33.011, the department reasonably suspects that a newborn
57	51		child may have Duchenne muscular dystrophy, phenylketonuria,
58	52		another heritable disease, hypothyroidism, or another disorder for
59	53		which the screening tests are required, the department shall notify
60	54		the person who submits the specimen that the results are abnormal
61	55		and provide the test results to that person. The department may
62	56		notify one or more of the following that the results of the analysis
63	57		are abnormal and recommend further testing when necessary:
64	58		(1) the physician attending the newborn child or the
65	59		physician's designee;
66	60		(2) the person attending the delivery of the newborn
67	61		child that was not attended by a physician;
68	62		(3) the parents of the newborn child;
69	63		(4) the health authority of the jurisdiction in which
70	64		the newborn child was born or in which the child resides, if known;
71	65		or
72	66		(5) physicians who are cooperating pediatric
73	67		specialists for the program.
74	68		SECTION 6. Section 33.031(a), Health and Safety Code, is
75	69		amended to read as follows:
76	70		(a) All newborn children and other individuals under 21
77	71		years of age who have been screened, have been found to be
78	72		presumptively positive through the newborn screening program for
79	73		Duchenne muscular dystrophy, phenylketonuria, other heritable
80	74		diseases, hypothyroidism, or another disorder for which the
81	75		screening tests are required, and may be financially eligible may
82	76		be referred to the department's services program for children with
83	77		special health care needs.
84	78		SECTION 7. Section 33.032(a), Health and Safety Code, is
85	79		amended to read as follows:
86	80		(a) Within the limits of funds available for this purpose
87	81		and in cooperation with the individual's physician, the department
88	82		may provide services directly or through approved providers to
89	83		individuals of any age who meet the eligibility criteria specified
90	84		by department rules on the confirmation of a positive test for
91	85		Duchenne muscular dystrophy, phenylketonuria, other heritable
92	86		diseases, hypothyroidism, or another disorder for which the
93	87		screening tests are required.
94	88		SECTION 8. Section 203.355(c), Occupations Code, is amended
95	89		to read as follows:
96	90		(c) The laboratory services must include the performance of
97	91		the standard serological tests for syphilis and the collection of
98	92		blood specimens for newborn screening tests for Duchenne muscular
99	93		dystrophy, phenylketonuria, hypothyroidism, and other heritable
100	94		diseases as required by law.
101		-	SECTION 9. Upon completion of the laboratory described by
102		-	Section 33.002(c), Health and Safety Code, as amended by this Act,
103		-	the Department of State Health Services shall implement the changes
104		-	in law made by this Act to the newborn screening program under
105		-	Chapter 33, Health and Safety Code.
106		-	SECTION 10. The Department of State Health Services is
107		-	required to implement a provision of this Act only if the
108		-	legislature appropriates money specifically for that purpose. If
109		-	the legislature does not appropriate money specifically for that
110		-	purpose, the department may, but is not required to, implement a
111		-	provision of this Act using other money available for that purpose.
112		-	SECTION 11. This Act takes effect September 1, 2025.
113		-	* * * * *
	95	+	SECTION 9. Not later than September 1, 2027, the Department
	96	+	of State Health Services shall implement the changes in law made by
	97	+	this Act to the newborn screening program under Chapter 33, Health
	98	+	and Safety Code.
	99	+	SECTION 10. This Act takes effect September 1, 2025.