1 | 1 | | 89R15741 EAS-F |
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2 | 2 | | By: Perry S.B. No. 2397 |
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3 | 3 | | |
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4 | 4 | | |
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5 | 5 | | |
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6 | 6 | | |
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7 | 7 | | A BILL TO BE ENTITLED |
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8 | 8 | | AN ACT |
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9 | 9 | | relating to the establishment of the task force on disability |
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10 | 10 | | policy. |
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11 | 11 | | BE IT ENACTED BY THE LEGISLATURE OF THE STATE OF TEXAS: |
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12 | 12 | | SECTION 1. Subtitle I, Title 4, Government Code, is amended |
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13 | 13 | | by adding Chapter 550A to read as follows: |
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14 | 14 | | CHAPTER 550A. TASK FORCE ON DISABILITY POLICY |
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15 | 15 | | Sec. 550A.0001. DEFINITION. In this chapter, "task force" |
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16 | 16 | | means the task force on disability policy established under Section |
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17 | 17 | | 550A.0002. |
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18 | 18 | | Sec. 550A.0002. ESTABLISHMENT; PURPOSE. The task force on |
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19 | 19 | | disability policy is established to: |
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20 | 20 | | (1) develop a comprehensive 10-year plan for this |
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21 | 21 | | state's disability policy; and |
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22 | 22 | | (2) provide strategic recommendations for state |
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23 | 23 | | policies to emphasize innovation, efficiency, and dignity for |
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24 | 24 | | individuals with a disability who reside in this state. |
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25 | 25 | | Sec. 550A.0003. COMPOSITION. (a) The task force is |
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26 | 26 | | composed of: |
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27 | 27 | | (1) at least 17 voting members appointed by the |
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28 | 28 | | governor as follows: |
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29 | 29 | | (A) two members of the senate; |
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30 | 30 | | (B) two members of the house of representatives; |
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31 | 31 | | (C) at least two members who are or are related to |
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32 | 32 | | someone who has a lived experience with: |
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33 | 33 | | (i) medical fragility or chronic complex |
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34 | 34 | | medical needs; |
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35 | 35 | | (ii) autism; |
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36 | 36 | | (iii) mental health issues; |
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37 | 37 | | (iv) intellectual and developmental |
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38 | 38 | | disabilities; |
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39 | 39 | | (v) transitional care services; or |
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40 | 40 | | (vi) physical disabilities; |
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41 | 41 | | (D) four members who are health care |
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42 | 42 | | professionals; |
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43 | 43 | | (E) two members who represent relevant advocacy |
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44 | 44 | | organizations; |
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45 | 45 | | (F) two members who represent institutions of |
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46 | 46 | | higher education in this state; and |
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47 | 47 | | (G) three members who are policy experts |
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48 | 48 | | specializing in health care, Medicaid services, special education, |
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49 | 49 | | mental health care, or disability services; |
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50 | 50 | | (2) at least one nonvoting member appointed by the |
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51 | 51 | | governor who is a representative of a local mental health authority |
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52 | 52 | | or a local intellectual and developmental disability authority, as |
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53 | 53 | | those terms are defined by Section 531.002, Health and Safety Code; |
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54 | 54 | | and |
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55 | 55 | | (3) additional nonvoting members as the task force |
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56 | 56 | | considers necessary who represent: |
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57 | 57 | | (A) relevant state agencies, appointed by the |
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58 | 58 | | executive head of each agency; and |
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59 | 59 | | (B) other interested persons or subject matter |
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60 | 60 | | experts. |
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61 | 61 | | (b) The governor shall consult with the lieutenant governor |
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62 | 62 | | and the speaker of the house of representatives in appointing task |
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63 | 63 | | force members to ensure bipartisan representation, engagement of |
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64 | 64 | | residents of this state, and diverse expertise on the task force. |
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65 | 65 | | Sec. 550A.0004. PRESIDING OFFICER. The governor shall |
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66 | 66 | | designate a member of the task force to serve as presiding officer |
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67 | 67 | | of the task force. |
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68 | 68 | | Sec. 550A.0005. VACANCY. A vacancy on the task force shall |
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69 | 69 | | be filled in the same manner as the original appointment. |
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70 | 70 | | Sec. 550A.0006. MEETINGS. (a) The task force shall meet at |
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71 | 71 | | least once each quarter at the call of the presiding officer. |
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72 | 72 | | (b) The task force shall provide opportunities for members |
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73 | 73 | | of the public to participate in at least three meetings held at a |
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74 | 74 | | variety of locations in this state each calendar year. |
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75 | 75 | | Sec. 550A.0007. SUBCOMMITTEES ON SPECIFIC ISSUES; REPORTS. |
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76 | 76 | | (a) The task force shall establish subcommittees to address |
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77 | 77 | | specific issues impacting individuals with a disability, |
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78 | 78 | | including: |
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79 | 79 | | (1) health care; |
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80 | 80 | | (2) education; |
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81 | 81 | | (3) early childhood care; |
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82 | 82 | | (4) transitional care; |
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83 | 83 | | (5) crisis prevention and intervention; |
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84 | 84 | | (6) juvenile justice; |
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85 | 85 | | (7) mental health care; |
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86 | 86 | | (8) long-term community-based services and supports; |
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87 | 87 | | and |
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88 | 88 | | (9) alternative funding sources and service delivery |
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89 | 89 | | models for the issues described by Subdivisions (1)-(8). |
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90 | 90 | | (b) Each subcommittee must include: |
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91 | 91 | | (1) at least two task force members to serve as chair |
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92 | 92 | | and vice-chair of the subcommittee; and |
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93 | 93 | | (2) subject matter experts in fields relevant to the |
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94 | 94 | | subcommittee to provide specialized knowledge and guidance. |
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95 | 95 | | (c) Consistent with its purpose, each subcommittee shall: |
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96 | 96 | | (1) consult with relevant subject matter experts, |
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97 | 97 | | advocacy organizations, state agency personnel, and parents or |
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98 | 98 | | consumers who have used relevant services; |
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99 | 99 | | (2) report the subcommittee's determinations and |
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100 | 100 | | recommendations at a task force meeting at least once each year; and |
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101 | 101 | | (3) biennially provide a written report with |
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102 | 102 | | recommendations for integration into the task force report required |
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103 | 103 | | under Section 550A.0010 not later than the 60th day before the date |
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104 | 104 | | the report is scheduled for release. |
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105 | 105 | | Sec. 550A.0008. TASK FORCE PLAN. (a) The task force shall |
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106 | 106 | | develop a plan for this state to address for each issue described in |
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107 | 107 | | Section 550A.0007: |
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108 | 108 | | (1) this state's policies, services, programs, and |
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109 | 109 | | funding mechanisms; |
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110 | 110 | | (2) redundancies in, allocations of, and uses of state |
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111 | 111 | | resources; |
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112 | 112 | | (3) best practices in, trends of, and minimum |
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113 | 113 | | standards of care; |
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114 | 114 | | (4) service delivery disparities, service provision |
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115 | 115 | | entry points, and service provision obstacles; |
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116 | 116 | | (5) recommendations for policy integration among |
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117 | 117 | | state agencies and innovative solutions to improve care and foster |
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118 | 118 | | independence for residents who are provided care; and |
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119 | 119 | | (6) development of cost-effective, family-focused |
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120 | 120 | | state policies that prioritize dignity, autonomy, and unified |
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121 | 121 | | families and improve the care, quality, and efficiency of the |
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122 | 122 | | provided care and services. |
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123 | 123 | | (b) In developing the plan under Subsection (a), the task |
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124 | 124 | | force shall evaluate: |
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125 | 125 | | (1) outdated, redundant, ineffective, and fragmented |
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126 | 126 | | state agency policies; |
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127 | 127 | | (2) current and future state agency policies regarding |
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128 | 128 | | service provision and the planning and funding necessary to |
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129 | 129 | | implement those policies; |
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130 | 130 | | (3) incentives for family-focused, quality outcome |
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131 | 131 | | measures for provision of care and services; |
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132 | 132 | | (4) long-term or alternative funding sources and |
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133 | 133 | | sustainable care models; |
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134 | 134 | | (5) long-term cost-effectiveness and a cost-benefit |
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135 | 135 | | analysis of appropriate access to home and community-based services |
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136 | 136 | | and other critical programs and services to unite families and |
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137 | 137 | | provide care and services to individuals with a disability in the |
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138 | 138 | | individuals' communities; and |
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139 | 139 | | (6) possible alternative service delivery options. |
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140 | 140 | | (c) In developing the plan under Subsection (a), the task |
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141 | 141 | | force shall: |
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142 | 142 | | (1) identify the individual or state agency |
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143 | 143 | | responsible for implementing each task specified in the plan and |
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144 | 144 | | set a time for implementing each recommendation; |
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145 | 145 | | (2) establish benchmarks to measure the progress |
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146 | 146 | | toward goals and objectives specified in the plan; |
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147 | 147 | | (3) consult with the Legislative Budget Board to |
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148 | 148 | | coordinate relevant cost studies and account for long-term savings |
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149 | 149 | | of short-term investments for the issues specified in the plan; |
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150 | 150 | | (4) consult with personnel from other states to |
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151 | 151 | | identify best practices related to the specified issues; |
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152 | 152 | | (5) consult with the state demographer and relevant |
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153 | 153 | | federal agencies to account for future demographic trends in |
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154 | 154 | | addressing the specified issues; |
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155 | 155 | | (6) coordinate with federal and state agencies to |
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156 | 156 | | compile a list of opportunities to increase flexible funding for |
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157 | 157 | | services provided to individuals with a disability, including |
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158 | 158 | | alternative funding sources and service delivery options; |
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159 | 159 | | (7) consult with pediatric specialists and other |
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160 | 160 | | health care professionals to determine best medical practices for |
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161 | 161 | | care provided to individuals with a disability; |
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162 | 162 | | (8) coordinate with mental health, education, and |
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163 | 163 | | disability advocates; |
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164 | 164 | | (9) consider comments of interested persons, |
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165 | 165 | | including testimony from parents in each health and human services |
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166 | 166 | | region; |
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167 | 167 | | (10) consider current barriers that prevent this state |
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168 | 168 | | from accomplishing each recommendation described by Section |
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169 | 169 | | 550A.0010; |
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170 | 170 | | (11) consider additional resource needs; |
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171 | 171 | | (12) consider resource redirection for more efficient |
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172 | 172 | | and effective service provision; |
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173 | 173 | | (13) propose recommendations for legislative or other |
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174 | 174 | | action; and |
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175 | 175 | | (14) compose feasibility statements on related |
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176 | 176 | | recommendations. |
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177 | 177 | | Sec. 550A.0009. COLLABORATION WITH INSTITUTION OF HIGHER |
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178 | 178 | | EDUCATION. To assist with developing the plan under Section |
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179 | 179 | | 550A.0008 and to leverage data-focused approaches and research in |
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180 | 180 | | informing task force recommendations, the task force shall |
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181 | 181 | | collaborate with: |
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182 | 182 | | (1) at least one institution of higher education in |
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183 | 183 | | this state engaged in research relevant to the task force's duties |
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184 | 184 | | described by Section 550A.0008; and |
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185 | 185 | | (2) health-related institutions of higher education |
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186 | 186 | | in this state. |
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187 | 187 | | Sec. 550A.0010. RECOMMENDATIONS AND REPORTS. (a) The plan |
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188 | 188 | | created under Section 550A.0008 must provide recommendations for |
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189 | 189 | | the provision of disability services to: |
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190 | 190 | | (1) maximize the use of federal funds available to |
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191 | 191 | | this state for the duties described by Section 550A.0008; |
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192 | 192 | | (2) reduce the number of families who experience |
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193 | 193 | | crisis due to insufficient and ineffective interventions or |
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194 | 194 | | services or lack of coordination and planning of interventions or |
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195 | 195 | | services; |
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196 | 196 | | (3) improve families' ability to navigate this state's |
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197 | 197 | | system of services through improved coordination between service |
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198 | 198 | | providers and increased outreach; |
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199 | 199 | | (4) remove barriers to local coordination of services |
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200 | 200 | | and supports; |
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201 | 201 | | (5) improve outcomes and family supports; |
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202 | 202 | | (6) improve early detection and intervention |
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203 | 203 | | services; |
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204 | 204 | | (7) increase the number of community-based options for |
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205 | 205 | | individuals with disabilities; |
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206 | 206 | | (8) improve accountability for each state agency |
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207 | 207 | | represented on the task force and other service providers; |
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208 | 208 | | (9) reduce existing fragmentation of service delivery |
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209 | 209 | | to reflect best practices and eliminate ineffective interventions; |
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210 | 210 | | (10) evaluate the feasibility of a third-party care |
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211 | 211 | | coordinator for a legally authorized representative program to |
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212 | 212 | | provide support services for individuals with disabilities; |
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213 | 213 | | (11) reduce service disparities and redundancies; |
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214 | 214 | | (12) improve data management; |
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215 | 215 | | (13) prevent unnecessary parental relinquishment of |
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216 | 216 | | custody; |
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217 | 217 | | (14) create a core set of quality measures to |
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218 | 218 | | determine quality of care and improvements to quality of life; and |
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219 | 219 | | (15) improve availability of superior community-based |
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220 | 220 | | acute and long-term care services and supports. |
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221 | 221 | | (b) Not later than September 1, 2026, the task force shall |
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222 | 222 | | submit a preliminary report to the governor, lieutenant governor, |
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223 | 223 | | speaker of the house of representatives, and appropriate standing |
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224 | 224 | | committees of each house of the legislature. The preliminary |
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225 | 225 | | report must outline initial determinations, recommendations, and |
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226 | 226 | | priority areas for action and provide a plan for future |
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227 | 227 | | legislation, policy changes, and implementation. The preliminary |
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228 | 228 | | report must be published on the Internet website of each state |
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229 | 229 | | agency represented on the task force. |
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230 | 230 | | (c) Not later than September 1, 2028, the task force shall |
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231 | 231 | | submit a final report, including a comprehensive disability policy |
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232 | 232 | | plan and strategic recommendations to the governor, lieutenant |
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233 | 233 | | governor, speaker of the house of representatives, and appropriate |
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234 | 234 | | standing committees of each house of the legislature. The final |
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235 | 235 | | report must include: |
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236 | 236 | | (1) a review and analysis of current state agency |
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237 | 237 | | programs, policies, procedures, and resource allocations related |
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238 | 238 | | to the issues studied by the task force; |
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239 | 239 | | (2) identification of service delivery disparities, |
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240 | 240 | | entry points to the state's system for service provision, and |
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241 | 241 | | service obstacles; |
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242 | 242 | | (3) recommendations for innovative, cost-effective |
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243 | 243 | | state policies and priority action areas; |
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244 | 244 | | (4) strategies to incentivize family-focused quality |
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245 | 245 | | outcomes; |
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246 | 246 | | (5) metrics for evaluating state policy |
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247 | 247 | | implementation and effectiveness; |
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248 | 248 | | (6) a review of alternative funding sources and |
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249 | 249 | | service delivery models for the state's system; and |
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250 | 250 | | (7) a plan and proposed time for state policy changes |
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251 | 251 | | and implementation. |
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252 | 252 | | Sec. 550A.0011. FUNDING. The task force may accept gifts, |
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253 | 253 | | grants, and donations to accomplish the purposes of the task force. |
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254 | 254 | | Sec. 550A.0012. EXPIRATION. This chapter expires and the |
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255 | 255 | | task force is abolished September 1, 2028. |
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256 | 256 | | SECTION 2. (a) As soon as practicable after the effective |
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257 | 257 | | date of this Act, the appointing authorities shall appoint the |
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258 | 258 | | members of the task force on disability policy established by |
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259 | 259 | | Section 550A.0002, Government Code, as added by this Act. |
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260 | 260 | | (b) Not later than September 30, 2025, the task force on |
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261 | 261 | | disability policy established by Section 550A.0002, Government |
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262 | 262 | | Code, as added by this Act, shall hold its initial meeting. |
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263 | 263 | | (c) Not later than September 1, 2028, the task force on |
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264 | 264 | | disability policy shall submit the plan required under Section |
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265 | 265 | | 550A.0008, Government Code, as added by this Act, and the final |
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266 | 266 | | report required under Section 550A.0010, Government Code, as added |
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267 | 267 | | by this Act. |
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268 | 268 | | SECTION 3. This Act takes effect September 1, 2025. |
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