DeOndra Dixon INCLUDE Project Act of 2024
The passage of HB7406 would significantly enhance federal efforts in Down syndrome research by mandating a structured program that facilitates coordination among various federal entities. The authorized appropriations of $90 million annually for FY 2025 through 2029 signal a long-term investment in Down syndrome research that seeks to advance knowledge of the medical and developmental challenges faced by affected individuals. This comprehensive approach aims not only to improve outcomes for those living with Down syndrome but also to equip families with better resources and knowledge about the condition and its associated challenges.
House Bill 7406, known as the DeOndra Dixon INCLUDE Project Act of 2024, aims to amend the Public Health Service Act to authorize the Secretary of Health and Human Services to establish a comprehensive program focusing on research and investigation related to Down syndrome. The INCLUDE Project is intended to explore a range of initiatives, including high-risk scientific studies, expanding clinical trials for individuals with Down syndrome, and identifying biomarkers for diagnosis and treatment of associated conditions. This legislation reflects an increased commitment to understanding and improving the lives of individuals affected by Down syndrome.
The sentiment surrounding HB7406 is largely positive among advocacy groups and families affected by Down syndrome, who view the bill as a necessary step toward enhancing research and support systems. Advocates are optimistic that the program will lead to impactful breakthroughs in clinical practice, ultimately improving the quality of life for individuals with Down syndrome. However, discussions may arise regarding the allocation and potential efficacy of the appropriated funds, as stakeholders assess whether the proposed initiatives will meet the diverse needs of the Down syndrome community.
While the bill is expected to garner wide support, there may be points of contention regarding the specific allocation of research funds and the priorities set by the Secretary of Health and Human Services. As the INCLUDE Project aims at a multitude of targets, discussions may focus on whether enough attention will be given to co-occurring conditions like Alzheimer’s Disease, which disproportionately affect people with Down syndrome. Critics may also call for greater transparency in how research initiatives are selected and implemented under the new program.