Us Congress House Bill HR1479

Us Congress 2023-2024 Regular Session

• Introduced: 9/20/24
• Refer: 9/20/24

Caption

Expressing support for the goals and ideas of "National Hydrocephalus Awareness Month" and "World Hydrocephalus Day".

Impact

The resolution under HR1479 aims to bring attention to the challenges faced by individuals suffering from hydrocephalus, which often goes undiagnosed. It notes that significant hospital financial burdens amount to over $2 billion per year due to the medical costs associated with the treatment and management of hydrocephalus. The bill also stresses the importance of research funding and support for those living with this condition, especially among veterans and children who are disproportionately affected.

Summary

HR1479 is a resolution expressing support for 'National Hydrocephalus Awareness Month' and 'World Hydrocephalus Day'. The bill highlights the significance of raising awareness about hydrocephalus, a condition characterized by the abnormal accumulation of cerebrospinal fluid in the brain. It is a life-threatening condition that affects around one million individuals in the United States and has an incidence rate of about 85 per 100,000 globally. This resolution aims to encourage further education and support for those affected by hydrocephalus.

Contention

While HR1479 is broadly supportive in nature, the discussions around it revolve around the funding and resources allocated for research and treatment options. There may be concerns about the adequacy of existing healthcare infrastructure and whether enough emphasis is placed on transitioning young adults from pediatric to adult care for those with hydrocephalus. Additionally, there are discussions on the importance of advocacy groups in raising awareness and how they can further influence policy and funding decisions in this area.