| 1 | 1 | | II |
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| 2 | 2 | | 118THCONGRESS |
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| 3 | 3 | | 1 |
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| 4 | 4 | | STSESSION S. 1800 |
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| 5 | 5 | | To amend the Public Health Service Act to reauthorize and extend the |
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| 6 | 6 | | Fetal Alcohol Spectrum Disorders Prevention and Services program, and |
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| 7 | 7 | | for other purposes. |
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| 8 | 8 | | IN THE SENATE OF THE UNITED STATES |
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| 9 | 9 | | JUNE1, 2023 |
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| 10 | 10 | | Ms. M |
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| 11 | 11 | | URKOWSKI(for herself, Ms. KLOBUCHAR, Mr. MORAN, and Mr. KING) |
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| 12 | 12 | | introduced the following bill; which was read twice and referred to the |
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| 13 | 13 | | Committee on Health, Education, Labor, and Pensions |
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| 14 | 14 | | A BILL |
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| 15 | 15 | | To amend the Public Health Service Act to reauthorize and |
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| 16 | 16 | | extend the Fetal Alcohol Spectrum Disorders Prevention |
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| 17 | 17 | | and Services program, and for other purposes. |
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| 18 | 18 | | Be it enacted by the Senate and House of Representa-1 |
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| 19 | 19 | | tives of the United States of America in Congress assembled, 2 |
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| 20 | 20 | | SECTION 1. SHORT TITLE. 3 |
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| 21 | 21 | | This Act may be cited as the ‘‘Advancing FASD Re-4 |
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| 22 | 22 | | search, Services and Prevention Act’’ or the ‘‘FASD Re-5 |
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| 23 | 23 | | spect Act’’. 6 |
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| 25 | 25 | | kjohnson on DSK79L0C42PROD with BILLS 2 |
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| 26 | 26 | | •S 1800 IS |
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| 27 | 27 | | SEC. 2. HHS PROGRAM ON FETAL ALCOHOL SPECTRUM 1 |
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| 28 | 28 | | DISORDERS. 2 |
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| 29 | 29 | | (a) I |
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| 30 | 30 | | NGENERAL.—Part O of title III of the Public 3 |
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| 31 | 31 | | Health Service Act (42 U.S.C. 280f et seq.) is amended— 4 |
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| 32 | 32 | | (1) by amending the part heading to read as 5 |
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| 33 | 33 | | follows: ‘‘ |
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| 34 | 34 | | FETAL ALCOHOL SPECTRUM DIS -6 |
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| 35 | 35 | | ORDERS PREVENTION AND SERVICES PRO -7 |
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| 36 | 36 | | GRAM’’; 8 |
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| 37 | 37 | | (2) in section 399H (42 U.S.C. 280f)— 9 |
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| 38 | 38 | | (A) in the section heading, by striking 10 |
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| 39 | 39 | | ‘‘ |
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| 40 | 40 | | ESTABLISHMENT OF FETAL ALCOHOL 11 |
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| 41 | 41 | | SYNDROME PREVENTION ’’ and inserting 12 |
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| 42 | 42 | | ‘‘ |
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| 43 | 43 | | FETAL ALCOHOL SPECTRUM DISORDERS 13 |
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| 44 | 44 | | PREVENTION , INTERVENTION ,’’; 14 |
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| 45 | 45 | | (B) by striking ‘‘Fetal Alcohol Syndrome 15 |
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| 46 | 46 | | and Fetal Alcohol Effect’’ each place it appears 16 |
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| 47 | 47 | | and inserting ‘‘FASD’’; 17 |
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| 48 | 48 | | (C) in subsection (a)— 18 |
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| 49 | 49 | | (i) by amending the heading to read 19 |
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| 50 | 50 | | as follows: ‘‘I |
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| 51 | 51 | | NGENERAL’’; 20 |
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| 52 | 52 | | (ii) in the matter preceding paragraph 21 |
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| 53 | 53 | | (1)— 22 |
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| 54 | 54 | | (I) by inserting ‘‘or continue ac-23 |
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| 55 | 55 | | tivities to support’’ after ‘‘shall estab-24 |
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| 56 | 56 | | lish’’; 25 |
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| 59 | 59 | | •S 1800 IS |
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| 60 | 60 | | (II) by striking ‘‘FASD’’ (as 1 |
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| 61 | 61 | | amended by subparagraph (B)) and 2 |
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| 62 | 62 | | inserting ‘‘fetal alcohol spectrum dis-3 |
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| 63 | 63 | | orders (referred to in this section as 4 |
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| 64 | 64 | | ‘FASD’)’’; 5 |
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| 65 | 65 | | (III) by striking ‘‘prevention, 6 |
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| 66 | 66 | | intervention’’ and inserting ‘‘aware-7 |
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| 67 | 67 | | ness, prevention, identification, inter-8 |
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| 68 | 68 | | vention,’’; and 9 |
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| 69 | 69 | | (IV) by striking ‘‘that shall’’ and 10 |
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| 70 | 70 | | inserting ‘‘, which may’’; 11 |
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| 71 | 71 | | (iii) in paragraph (1)— 12 |
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| 72 | 72 | | (I) in subparagraph (A)— 13 |
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| 73 | 73 | | (aa) by striking ‘‘medical 14 |
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| 74 | 74 | | schools’’ and inserting ‘‘health 15 |
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| 75 | 75 | | professions schools’’; and 16 |
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| 76 | 76 | | (bb) by inserting ‘‘infants,’’ 17 |
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| 77 | 77 | | after ‘‘provision of services for’’; 18 |
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| 78 | 78 | | and 19 |
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| 79 | 79 | | (II) in subparagraph (D), by 20 |
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| 80 | 80 | | striking ‘‘medical and mental’’ and in-21 |
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| 81 | 81 | | serting ‘‘agencies providing’’; 22 |
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| 82 | 82 | | (iv) in paragraph (2)— 23 |
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| 83 | 83 | | (I) in the matter preceding sub-24 |
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| 84 | 84 | | paragraph (A), by striking ‘‘a preven-25 |
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| 86 | 86 | | kjohnson on DSK79L0C42PROD with BILLS 4 |
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| 87 | 87 | | •S 1800 IS |
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| 88 | 88 | | tion and diagnosis program to support 1 |
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| 89 | 89 | | clinical studies, demonstrations and 2 |
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| 90 | 90 | | other research as appropriate’’ and in-3 |
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| 91 | 91 | | serting ‘‘supporting and conducting 4 |
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| 92 | 92 | | research on FASD, as appropriate, in-5 |
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| 93 | 93 | | cluding’’; 6 |
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| 94 | 94 | | (II) in subparagraph (B)— 7 |
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| 95 | 95 | | (aa) by striking ‘‘prevention 8 |
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| 96 | 96 | | services and interventions for 9 |
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| 97 | 97 | | pregnant, alcohol-dependent 10 |
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| 98 | 98 | | women’’ and inserting ‘‘culturally 11 |
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| 99 | 99 | | and linguistically informed evi-12 |
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| 100 | 100 | | dence-based or practice-based 13 |
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| 101 | 101 | | interventions and appropriate so-14 |
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| 102 | 102 | | cietal supports for preventing 15 |
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| 103 | 103 | | prenatal alcohol exposure, which 16 |
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| 104 | 104 | | may co-occur with exposure to 17 |
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| 105 | 105 | | other substances’’; and 18 |
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| 106 | 106 | | (bb) by striking ‘‘; and’’ and 19 |
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| 107 | 107 | | inserting a semicolon; 20 |
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| 108 | 108 | | (v) by striking paragraph (3) and in-21 |
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| 109 | 109 | | serting the following: 22 |
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| 110 | 110 | | ‘‘(3) integrating into surveillance practice an 23 |
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| 111 | 111 | | evidence-based standard case definition for fetal al-24 |
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| 112 | 112 | | cohol syndrome and, in collaboration with other Fed-25 |
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| 114 | 114 | | kjohnson on DSK79L0C42PROD with BILLS 5 |
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| 115 | 115 | | •S 1800 IS |
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| 116 | 116 | | eral and outside partners, support organizations of 1 |
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| 117 | 117 | | appropriate medical and mental health professionals 2 |
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| 118 | 118 | | in their development and refinement of evidence- 3 |
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| 119 | 119 | | based clinical diagnostic guidelines and criteria for 4 |
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| 120 | 120 | | all fetal alcohol spectrum disorders; and 5 |
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| 121 | 121 | | ‘‘(4) building State and Tribal capacity for the 6 |
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| 122 | 122 | | identification, treatment, and support of individuals 7 |
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| 123 | 123 | | with FASD and their families, which may include— 8 |
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| 124 | 124 | | ‘‘(A) utilizing and adapting existing Fed-9 |
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| 125 | 125 | | eral, State, or Tribal programs to include 10 |
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| 126 | 126 | | FASD identification and FASD-informed sup-11 |
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| 127 | 127 | | port; 12 |
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| 128 | 128 | | ‘‘(B) developing and expanding screening 13 |
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| 129 | 129 | | and diagnostic capacity for FASD; 14 |
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| 130 | 130 | | ‘‘(C) developing, implementing, and evalu-15 |
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| 131 | 131 | | ating targeted FASD-informed intervention 16 |
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| 132 | 132 | | programs for FASD; 17 |
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| 133 | 133 | | ‘‘(D) increasing awareness of FASD; 18 |
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| 134 | 134 | | ‘‘(E) providing training with respect to 19 |
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| 135 | 135 | | FASD for professionals across relevant sectors; 20 |
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| 136 | 136 | | and 21 |
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| 137 | 137 | | ‘‘(F) disseminating information about 22 |
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| 138 | 138 | | FASD and support services to affected individ-23 |
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| 139 | 139 | | uals and their families.’’; 24 |
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| 140 | 140 | | (D) in subsection (b)— 25 |
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| 143 | 143 | | •S 1800 IS |
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| 144 | 144 | | (i) by striking ‘‘described in section 1 |
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| 145 | 145 | | 399I’’; 2 |
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| 146 | 146 | | (ii) by striking ‘‘The Secretary’’ and 3 |
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| 147 | 147 | | inserting the following: 4 |
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| 148 | 148 | | ‘‘(1) I |
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| 149 | 149 | | N GENERAL.—The Secretary’’; and 5 |
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| 150 | 150 | | (iii) by adding at the end the fol-6 |
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| 151 | 151 | | lowing: 7 |
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| 152 | 152 | | ‘‘(2) E |
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| 153 | 153 | | LIGIBLE ENTITIES.—To be eligible to re-8 |
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| 154 | 154 | | ceive a grant, or enter into a cooperative agreement 9 |
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| 155 | 155 | | or contract, under this section, an entity shall— 10 |
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| 156 | 156 | | ‘‘(A) be a State, Indian Tribe or Tribal or-11 |
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| 157 | 157 | | ganization, local government, scientific or aca-12 |
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| 158 | 158 | | demic institution, or nonprofit organization; 13 |
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| 159 | 159 | | and 14 |
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| 160 | 160 | | ‘‘(B) prepare and submit to the Secretary 15 |
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| 161 | 161 | | an application at such time, in such manner, 16 |
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| 162 | 162 | | and containing such information as the Sec-17 |
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| 163 | 163 | | retary may require, including a description of 18 |
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| 164 | 164 | | the activities that the entity intends to carry 19 |
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| 165 | 165 | | out using amounts received under this sec-20 |
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| 166 | 166 | | tion.’’; and 21 |
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| 167 | 167 | | (E) by striking subsections (c) and (d); 22 |
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| 168 | 168 | | and 23 |
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| 169 | 169 | | (F) by adding at the end the following: 24 |
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| 172 | 172 | | •S 1800 IS |
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| 173 | 173 | | ‘‘(c) DEFINITION OFFASD-INFORMED.—For pur-1 |
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| 174 | 174 | | poses of this section, the term ‘FASD-informed’, with re-2 |
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| 175 | 175 | | spect to support or an intervention program, means that 3 |
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| 176 | 176 | | such support or intervention program uses culturally and 4 |
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| 177 | 177 | | linguistically informed evidence-based or practice-based 5 |
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| 178 | 178 | | interventions and appropriate societal supports to support 6 |
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| 179 | 179 | | an improved quality of life for an individual with FASD 7 |
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| 180 | 180 | | and the family of such individual.’’; 8 |
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| 181 | 181 | | (3) by striking sections 399I, 399J, and 399K 9 |
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| 182 | 182 | | (42 U.S.C. 280f–1, 280f–2, 280f–3) and inserting 10 |
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| 183 | 183 | | the following: 11 |
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| 184 | 184 | | ‘‘SEC. 399I. FETAL ALCOHOL SPECTRUM DISORDERS CEN-12 |
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| 185 | 185 | | TERS FOR EXCELLENCE. 13 |
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| 186 | 186 | | ‘‘(a) I |
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| 187 | 187 | | NGENERAL.—The Secretary shall, as appro-14 |
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| 188 | 188 | | priate, award grants, cooperative agreements, or contracts 15 |
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| 189 | 189 | | to public or nonprofit entities with demonstrated expertise 16 |
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| 190 | 190 | | in the prevention of, identification of, and intervention 17 |
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| 191 | 191 | | services with respect to, fetal alcohol spectrum disorders 18 |
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| 192 | 192 | | (referred to in this section as ‘FASD’) and other related 19 |
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| 193 | 193 | | adverse conditions. Such awards shall be for the purposes 20 |
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| 194 | 194 | | of establishing Fetal Alcohol Spectrum Disorders Centers 21 |
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| 195 | 195 | | for Excellence to build local, Tribal, State, and national 22 |
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| 196 | 196 | | capacities to prevent the occurrence of FASD and other 23 |
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| 197 | 197 | | related adverse conditions, and to respond to the needs 24 |
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| 200 | 200 | | •S 1800 IS |
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| 201 | 201 | | of individuals with FASD and their families by carrying 1 |
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| 202 | 202 | | out the programs described in subsection (b). 2 |
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| 203 | 203 | | ‘‘(b) P |
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| 204 | 204 | | ROGRAMS.—An entity receiving an award 3 |
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| 205 | 205 | | under subsection (a) may use such award for the following 4 |
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| 206 | 206 | | purposes: 5 |
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| 207 | 207 | | ‘‘(1) Initiating or expanding diagnostic capacity 6 |
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| 208 | 208 | | for FASD by increasing screening, assessment, iden-7 |
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| 209 | 209 | | tification, and diagnosis. 8 |
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| 210 | 210 | | ‘‘(2) Developing and supporting public aware-9 |
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| 211 | 211 | | ness and outreach activities, including the use of a 10 |
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| 212 | 212 | | range of media and public outreach, to raise public 11 |
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| 213 | 213 | | awareness of the risks associated with alcohol con-12 |
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| 214 | 214 | | sumption during pregnancy, with the goals of reduc-13 |
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| 215 | 215 | | ing the prevalence of FASD and improving the de-14 |
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| 216 | 216 | | velopmental, health (including mental health), and 15 |
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| 217 | 217 | | educational outcomes of individuals with FASD and 16 |
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| 218 | 218 | | supporting families caring for individuals with 17 |
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| 219 | 219 | | FASD. 18 |
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| 220 | 220 | | ‘‘(3) Acting as a clearinghouse for evidence- 19 |
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| 221 | 221 | | based resources on FASD prevention, identification, 20 |
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| 222 | 222 | | and culturally and linguistically informed best prac-21 |
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| 223 | 223 | | tices, including the maintenance of a national data- 22 |
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| 224 | 224 | | based directory on FASD-specific services in States, 23 |
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| 225 | 225 | | Indian Tribes, and local communities, and dissemi-24 |
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| 226 | 226 | | nating ongoing research and developing resources on 25 |
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| 229 | 229 | | •S 1800 IS |
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| 230 | 230 | | FASD to help inform systems of care for individuals 1 |
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| 231 | 231 | | with FASD across their lifespan. 2 |
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| 232 | 232 | | ‘‘(4) Increasing awareness and understanding 3 |
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| 233 | 233 | | of efficacious, evidence-based FASD screening tools 4 |
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| 234 | 234 | | and culturally- and linguistically-appropriate evi-5 |
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| 235 | 235 | | dence-based intervention services and best practices, 6 |
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| 236 | 236 | | which may include by conducting national, regional, 7 |
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| 237 | 237 | | State, Tribal, or peer cross-State webinars, work-8 |
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| 238 | 238 | | shops, or conferences for training community lead-9 |
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| 239 | 239 | | ers, medical and mental health and substance use 10 |
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| 240 | 240 | | disorder professionals, education and disability pro-11 |
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| 241 | 241 | | fessionals, families, law enforcement personnel, 12 |
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| 242 | 242 | | judges, individuals working in financial assistance 13 |
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| 243 | 243 | | programs, social service personnel, child welfare pro-14 |
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| 244 | 244 | | fessionals, and other service providers. 15 |
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| 245 | 245 | | ‘‘(5) Improving capacity for State, Tribal, and 16 |
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| 246 | 246 | | local affiliates dedicated to FASD awareness, pre-17 |
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| 247 | 247 | | vention, and identification and family and individual 18 |
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| 248 | 248 | | support programs and services. 19 |
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| 249 | 249 | | ‘‘(6) Providing technical assistance to grantees 20 |
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| 250 | 250 | | under section 399H, as appropriate. 21 |
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| 251 | 251 | | ‘‘(7) Carrying out other functions, as appro-22 |
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| 252 | 252 | | priate. 23 |
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| 253 | 253 | | ‘‘(c) A |
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| 254 | 254 | | PPLICATION.—To be eligible for a grant, con-24 |
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| 255 | 255 | | tract, or cooperative agreement under this section, an enti-25 |
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| 258 | 258 | | •S 1800 IS |
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| 259 | 259 | | ty shall submit to the Secretary an application at such 1 |
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| 260 | 260 | | time, in such manner, and containing such information as 2 |
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| 261 | 261 | | the Secretary may require. 3 |
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| 262 | 262 | | ‘‘(d) S |
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| 263 | 263 | | UBCONTRACTING.—A public or private non-4 |
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| 264 | 264 | | profit entity may carry out the following activities required 5 |
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| 265 | 265 | | under this section through contracts or cooperative agree-6 |
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| 266 | 266 | | ments with other public and private nonprofit entities with 7 |
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| 267 | 267 | | demonstrated expertise in FASD: 8 |
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| 268 | 268 | | ‘‘(1) Prevention activities. 9 |
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| 269 | 269 | | ‘‘(2) Screening and identification. 10 |
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| 270 | 270 | | ‘‘(3) Resource development and dissemination, 11 |
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| 271 | 271 | | training and technical assistance, administration, 12 |
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| 272 | 272 | | and support of FASD partner networks. 13 |
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| 273 | 273 | | ‘‘(4) Intervention services. 14 |
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| 274 | 274 | | ‘‘SEC. 399J. AUTHORIZATION OF APPROPRIATIONS. 15 |
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| 275 | 275 | | ‘‘There are authorized to be appropriated to carry out 16 |
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| 276 | 276 | | this part such sums as may be necessary for each of fiscal 17 |
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| 277 | 277 | | years 2024 through 2028.’’. 18 |
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| 278 | 278 | | (b) R |
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| 279 | 279 | | EPORT.—Not later than 4 years after the date 19 |
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| 280 | 280 | | of enactment of this Act, the Secretary of Health and 20 |
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| 281 | 281 | | Human Services shall submit to the Committee on Health, 21 |
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| 282 | 282 | | Education, Labor, and Pensions of the Senate and the 22 |
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| 283 | 283 | | Committee on Energy and Commerce of the House of 23 |
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| 284 | 284 | | Representatives a report on the efforts of the Department 24 |
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| 285 | 285 | | of Health and Human Services to advance public aware-25 |
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| 288 | 288 | | •S 1800 IS |
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| 289 | 289 | | ness on, and facilitate the identification of best practices 1 |
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| 290 | 290 | | related to, fetal alcohol spectrum disorders identification, 2 |
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| 291 | 291 | | prevention, treatment, and support. 3 |
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| 292 | 292 | | Æ |
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