Us Congress 2025-2026 Regular Session

Us Congress House Bill HB2178 Compare Versions

Only one version of the bill is available at this time.

Old	New	Differences
1	1	I
2	2	119THCONGRESS
3	3	1
4	4	STSESSION H. R. 2178
5	5	To amend the Public Health Service Act to authorize the Secretary of Health
6	6	and Human Services to carry out a program of research related to
7	7	cerebral palsy, and for other purposes.
8	8	IN THE HOUSE OF REPRESENTATIVES
9	9	MARCH18, 2025
10	10	Mr. C
11	11	OHEN(for himself, Mr. FITZPATRICK, Mr. CLEAVER, and Ms. NORTON)
12	12	introduced the following bill; which was referred to the Committee on En-
13	13	ergy and Commerce
14	14	A BILL
15	15	To amend the Public Health Service Act to authorize the
16	16	Secretary of Health and Human Services to carry out
17	17	a program of research related to cerebral palsy, and
18	18	for other purposes.
19	19	Be it enacted by the Senate and House of Representa-1
20	20	tives of the United States of America in Congress assembled, 2
21	21	SECTION 1. SHORT TITLE. 3
22	22	This Act may be cited as the ‘‘Cerebral Palsy Re-4
23	23	search Program Authorization Act of 2025’’. 5
24	24	SEC. 2. FINDINGS. 6
25	25	Congress finds the following: 7
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29	29	(1) Cerebral palsy is the most common lifelong 1
30	30	motor impairment in children, affecting more than 2
31	31	1,000,000 Americans, 1 in 345 children, and over 3
32	32	17,000,000 people worldwide. 4
33	33	(2) In the United States, more than 10,000 ba-5
34	34	bies are diagnosed with cerebral palsy each year. 6
35	35	(3) Cerebral palsy is a broad group of disorders 7
36	36	disrupting a person’s ability to move, sit, stand, 8
37	37	walk, talk, and use their hands. 9
38	38	(4) In more than 80 percent of cases, the cause 10
39	39	of cerebral palsy is unknown. 11
40	40	(5) Seventy-five percent of individuals with cer-12
41	41	ebral palsy also have 1 or more additional develop-13
42	42	mental disabilities including epilepsy, intellectual dis-14
43	43	abilities, communication problems, learning and at-15
44	44	tention disorders, chronic pain, autism, hearing dis-16
45	45	orders, and visual impairments or blindness. 17
46	46	(6) Children with cerebral palsy are more likely 18
47	47	to die from the flu and related viruses, including 19
48	48	COVID–19, than children without neurologic dis-20
49	49	orders. 21
50	50	(7) There is no consensus of best practices for 22
51	51	a person with cerebral palsy at the time of diagnosis 23
52	52	or through the lifespan. 24
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56	56	(8) It is estimated that the lifetime care and 1
57	57	medical costs for all people with cerebral palsy who 2
58	58	were born in 2000 alone will total more than 3
59	59	$13,500,000,000. The loss of productivity and lost 4
60	60	wages of the individual with cerebral palsy and their 5
61	61	family members is more than $35,000,000,000. 6
62	62	(9) Although there is not yet a known cure for 7
63	63	many types of cerebral palsy, we know that treat-8
64	64	ment breakthroughs and the prevention of many 9
65	65	types of cerebral palsy is possible. 10
66	66	SEC. 3. CEREBRAL PALSY RESEARCH. 11
67	67	Title III of the Public Health Service Act is amended 12
68	68	by inserting after section 317C of such Act (42 U.S.C. 13
69	69	247b–4) the following new section: 14
70	70	‘‘SEC. 317C–1. CEREBRAL PALSY RESEARCH. 15
71	71	‘‘(a) I
72	72	NGENERAL.—The Secretary, acting through 16
73	73	the Director of the Centers for Disease Control and Pre-17
74	74	vention, and in consultation with other Federal agencies 18
75	75	and partners, shall carry out (directly or through grants 19
76	76	or contracts) a program of research related to cerebral 20
77	77	palsy, including— 21
78	78	‘‘(1) research on— 22
79	79	‘‘(A) the most promising avenues of cere-23
80	80	bral palsy diagnosis and treatment; 24
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84	84	‘‘(B) factors that may mitigate the preva-1
85	85	lence of cerebral palsy; and 2
86	86	‘‘(C) the health care and societal costs of 3
87	87	cerebral palsy; 4
88	88	‘‘(2) public health surveillance; and 5
89	89	‘‘(3) other research that the Director of the 6
90	90	Centers for Disease Control and Prevention deter-7
91	91	mines to be appropriate to provide education and 8
92	92	training for health professionals and the general 9
93	93	public for purposes of diagnosing, treating, and ex-10
94	94	plaining the causes, prevalence, and lifelong effects 11
95	95	of cerebral palsy. 12
96	96	‘‘(b) T
97	97	ECHNICALASSISTANCE.—The Secretary may 13
98	98	(directly or through grants or contracts) provide technical 14
99	99	assistance to public and nonprofit private entities in fur-15
100	100	therance of research under this section. 16
101	101	‘‘(c) E
102	102	VALUATIONS.—The Secretary shall (directly or 17
103	103	through grants or contracts) provide for the evaluation of 18
104	104	activities under subsection (a) in order to determine the 19
105	105	extent to which such activities have been effective, includ-20
106	106	ing evaluation of the effects of such activities on various 21
107	107	demographic populations. 22
108	108	‘‘(d) A
109	109	UTHORIZATION OF APPROPRIATIONS.—To 23
110	110	carry out this section, there is authorized to be appro-24
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113	113	•HR 2178 IH
114	114	priated $5,000,000 for each of fiscal years 2026 through 1
115	115	2031.’’. 2
116	116	Æ
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