1 | 1 | | IV |
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2 | 2 | | 119THCONGRESS |
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3 | 3 | | 1 |
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4 | 4 | | STSESSION H. RES. 277 |
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5 | 5 | | Supporting the designation of May 2025 as ‘‘National Myositis Awareness |
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6 | 6 | | Month’’. |
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7 | 7 | | IN THE HOUSE OF REPRESENTATIVES |
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8 | 8 | | MARCH31, 2025 |
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9 | 9 | | Mr. M |
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10 | 10 | | CCORMICKsubmitted the following resolution; which was referred to the |
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11 | 11 | | Committee on Energy and Commerce |
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12 | 12 | | RESOLUTION |
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13 | 13 | | Supporting the designation of May 2025 as ‘‘National |
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14 | 14 | | Myositis Awareness Month’’. |
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15 | 15 | | Whereas residents of the United States of America are |
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16 | 16 | | among those affected by myositis and other rare diseases, |
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17 | 17 | | with nearly 1 in 10 Americans having rare diseases; |
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18 | 18 | | Whereas idiopathic inflammatory myopathies (collectively re- |
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19 | 19 | | ferred to as myositis) are rare, chronic, autoimmune |
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20 | 20 | | muscle-wasting diseases that often feature debilitating |
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21 | 21 | | muscle inflammation and other symptoms, such as pain, |
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22 | 22 | | fatigue, and trouble swallowing, and can result in myosi- |
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23 | 23 | | tis-associated interstitial lung disease; |
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24 | 24 | | Whereas more research is needed to identify the causes of |
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25 | 25 | | and modes of treatments for the myositis group of dis- |
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26 | 26 | | eases, which includes anti-MDA5 autoantibody-positive |
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27 | 27 | | myositis, antisynthetase syndrome, dermatomyositis, juve- |
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28 | 28 | | VerDate Sep 11 2014 02:54 Apr 01, 2025 Jkt 059200 PO 00000 Frm 00001 Fmt 6652 Sfmt 6300 E:\BILLS\HR277.IH HR277 |
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29 | 29 | | ssavage on LAPJG3WLY3PROD with BILLS 2 |
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30 | 30 | | •HRES 277 IH |
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31 | 31 | | nile dermatomyositis, immune-mediated necrotizing my- |
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32 | 32 | | opathy, inclusion body myositis, and polymyositis; |
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33 | 33 | | Whereas myositis is difficult to diagnose which leads myositis |
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34 | 34 | | patients to frequently experience delayed treatment and |
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35 | 35 | | difficulty finding a health care provider with expertise in |
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36 | 36 | | their condition; |
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37 | 37 | | Whereas all who suffer with myositis experience reduced qual- |
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38 | 38 | | ity of life, particularly since no cure has been found and |
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39 | 39 | | life expectancy is shortened, especially for those with in- |
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40 | 40 | | clusion body myositis, and women and people of color |
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41 | 41 | | with all forms of myositis experience particularly pro- |
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42 | 42 | | nounced health disparities; and |
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43 | 43 | | Whereas public awareness and education campaigns on myo- |
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44 | 44 | | sitis detection and treatment are held during the month |
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45 | 45 | | of May: Now, therefore, be it |
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46 | 46 | | Resolved, That the House of Representatives— 1 |
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47 | 47 | | (1) supports the designation of ‘‘National Myo-2 |
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48 | 48 | | sitis Awareness Month’’; 3 |
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49 | 49 | | (2) recognizes the importance of raising aware-4 |
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50 | 50 | | ness about myositis and its impact on United States 5 |
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51 | 51 | | veterans and citizens; and 6 |
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52 | 52 | | (3) encourages all people in the United States 7 |
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53 | 53 | | to become more informed about myositis and to sup-8 |
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54 | 54 | | port the individuals and families who are affected by 9 |
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55 | 55 | | these conditions. 10 |
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56 | 56 | | Æ |
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57 | 57 | | VerDate Sep 11 2014 02:54 Apr 01, 2025 Jkt 059200 PO 00000 Frm 00002 Fmt 6652 Sfmt 6301 E:\BILLS\HR277.IH HR277 |
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58 | 58 | | ssavage on LAPJG3WLY3PROD with BILLS |
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