Us Congress 2025-2026 Regular Session

Us Congress House Bill HR394 Compare Versions

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22 119THCONGRESS
33 1
44 STSESSION H. RES. 394
55 Expressing support for the designation of July 16, 2025, as ‘‘Glioblastoma
66 Awareness Day’’.
77 IN THE HOUSE OF REPRESENTATIVES
88 MAY6, 2025
99 Mr. W
1010 ILLIAMSof Texas (for himself, Mr. MAST, Ms. SCHAKOWSKY, and Mr.
1111 A
1212 UCHINCLOSS) submitted the following resolution; which was referred to
1313 the Committee on Energy and Commerce
1414 RESOLUTION
1515 Expressing support for the designation of July 16, 2025,
1616 as ‘‘Glioblastoma Awareness Day’’.
1717 Whereas it is estimated that more than 13,000 Americans
1818 will be diagnosed with glioblastoma in 2025;
1919 Whereas glioblastoma is—
2020 (1) the most common malignant (cancerous) brain
2121 tumor, accounting for approximately
2222 1
2323 ⁄2of all primary
2424 malignant brain tumors; and
2525 (2) the most aggressive, complex, difficult to treat,
2626 and deadly type of brain tumor;
2727 Whereas it is estimated that more than 10,000 individuals in
2828 the United States will succumb to glioblastoma each year;
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3232 Whereas the 5-year survival rate for glioblastoma patients is
3333 only 6.9 percent, and the median length of survival for
3434 glioblastoma patients is only 8 months;
3535 Whereas glioblastoma is described as a disease that affects
3636 the ‘‘essence of self’’, as the treatment and removal of
3737 glioblastoma presents significant challenges due to the
3838 uniquely complex and fragile nature of the brain, the pri-
3939 mary organ in the human body that controls not only
4040 cognitive ability, but also the actions of every organ and
4141 limb;
4242 Whereas patients and caregivers play a critical role in fur-
4343 thering research for glioblastoma;
4444 Whereas, relative to other types of cancers, brain cancer pa-
4545 tients pay the second highest out-of-pocket costs for med-
4646 ical services in both the initial and end-of-life phases of
4747 care;
4848 Whereas, although research advances may fuel the develop-
4949 ment of new treatments for glioblastoma, challenging ob-
5050 stacles to accelerating progress toward new treatments
5151 for glioblastoma remain, and there are no screening or
5252 early detection methods;
5353 Whereas, in 2021, significant changes were made to the mo-
5454 lecular characteristics of a glioblastoma diagnosis, neces-
5555 sitating critical biomarker testing for patients suspected
5656 of having a possible glioblastoma;
5757 Whereas, although glioblastoma was first described in medical
5858 and scientific literature in the 1920s, and despite its dev-
5959 astating prognosis, only 5 drugs and 1 medical device
6060 have been approved by the Food and Drug Administra-
6161 tion to specifically treat glioblastoma since the 1920s,
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6565 and the mortality rates associated with glioblastoma have
6666 changed little during the past 30 years;
6767 Whereas, since the first Glioblastoma Awareness Day, the
6868 National Cancer Institute established the Glioblastoma
6969 Therapeutics Network (referred to in this preamble as
7070 ‘‘GTN’’) in 2020 as part of a national infrastructure to
7171 enhance and support the discovery and development of
7272 glioblastoma therapies available for multi-institutional
7373 GTN teams to drive therapeutic agents through pre-
7474 clinical studies and early phase clinical trials, which are
7575 necessary to rapidly evaluate potential treatments to ad-
7676 vance toward cures and improved quality of life;
7777 Whereas there is a need for greater public awareness of glio-
7878 blastoma, including awareness of both—
7979 (1) the urgent unmet medical needs of glioblastoma
8080 patients; and
8181 (2) the opportunities for research of, and treatment
8282 advances for, glioblastoma; and
8383 Whereas the House of Representatives supports designating
8484 July 16, 2025, as ‘‘Glioblastoma Awareness Day’’: Now,
8585 therefore, be it
8686 Resolved, That the House of Representatives— 1
8787 (1) expresses support for the designation of 2
8888 ‘‘Glioblastoma Awareness Day’’; 3
8989 (2) encourages increased public awareness of 4
9090 glioblastoma; 5
9191 (3) honors the individuals who have died from 6
9292 the devastating disease of glioblastoma or are cur-7
9393 rently living with the disease; 8
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9797 (4) supports efforts to develop better treat-1
9898 ments for glioblastoma that will improve the long- 2
9999 term prognosis for, and the quality of life of, individ-3
100100 uals diagnosed with the disease; 4
101101 (5) recognizes the importance of molecular bio-5
102102 marker testing to the diagnosis and treatment of 6
103103 glioblastoma; 7
104104 (6) expresses support for the individuals who 8
105105 are battling brain tumors, as well as the families, 9
106106 friends, and caregivers of those individuals; 10
107107 (7) urges a collaborative approach to brain 11
108108 tumor research among governmental, private, and 12
109109 nonprofit organizations, which is a promising means 13
110110 of advancing the understanding and treatment of 14
111111 glioblastoma; and 15
112112 (8) encourages continued investments in glio-16
113113 blastoma research and treatments, including through 17
114114 the Glioblastoma Therapeutics Network and other 18
115115 existing brain tumor research resources. 19
116116 Æ
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