1 | 1 | | IV |
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2 | 2 | | 119THCONGRESS |
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3 | 3 | | 1 |
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4 | 4 | | STSESSION H. RES. 394 |
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5 | 5 | | Expressing support for the designation of July 16, 2025, as ‘‘Glioblastoma |
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6 | 6 | | Awareness Day’’. |
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7 | 7 | | IN THE HOUSE OF REPRESENTATIVES |
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8 | 8 | | MAY6, 2025 |
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9 | 9 | | Mr. W |
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10 | 10 | | ILLIAMSof Texas (for himself, Mr. MAST, Ms. SCHAKOWSKY, and Mr. |
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11 | 11 | | A |
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12 | 12 | | UCHINCLOSS) submitted the following resolution; which was referred to |
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13 | 13 | | the Committee on Energy and Commerce |
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14 | 14 | | RESOLUTION |
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15 | 15 | | Expressing support for the designation of July 16, 2025, |
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16 | 16 | | as ‘‘Glioblastoma Awareness Day’’. |
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17 | 17 | | Whereas it is estimated that more than 13,000 Americans |
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18 | 18 | | will be diagnosed with glioblastoma in 2025; |
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19 | 19 | | Whereas glioblastoma is— |
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20 | 20 | | (1) the most common malignant (cancerous) brain |
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21 | 21 | | tumor, accounting for approximately |
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22 | 22 | | 1 |
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23 | 23 | | ⁄2of all primary |
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24 | 24 | | malignant brain tumors; and |
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25 | 25 | | (2) the most aggressive, complex, difficult to treat, |
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26 | 26 | | and deadly type of brain tumor; |
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27 | 27 | | Whereas it is estimated that more than 10,000 individuals in |
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28 | 28 | | the United States will succumb to glioblastoma each year; |
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30 | 30 | | ssavage on LAPJG3WLY3PROD with BILLS 2 |
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31 | 31 | | •HRES 394 IH |
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32 | 32 | | Whereas the 5-year survival rate for glioblastoma patients is |
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33 | 33 | | only 6.9 percent, and the median length of survival for |
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34 | 34 | | glioblastoma patients is only 8 months; |
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35 | 35 | | Whereas glioblastoma is described as a disease that affects |
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36 | 36 | | the ‘‘essence of self’’, as the treatment and removal of |
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37 | 37 | | glioblastoma presents significant challenges due to the |
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38 | 38 | | uniquely complex and fragile nature of the brain, the pri- |
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39 | 39 | | mary organ in the human body that controls not only |
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40 | 40 | | cognitive ability, but also the actions of every organ and |
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41 | 41 | | limb; |
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42 | 42 | | Whereas patients and caregivers play a critical role in fur- |
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43 | 43 | | thering research for glioblastoma; |
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44 | 44 | | Whereas, relative to other types of cancers, brain cancer pa- |
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45 | 45 | | tients pay the second highest out-of-pocket costs for med- |
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46 | 46 | | ical services in both the initial and end-of-life phases of |
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47 | 47 | | care; |
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48 | 48 | | Whereas, although research advances may fuel the develop- |
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49 | 49 | | ment of new treatments for glioblastoma, challenging ob- |
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50 | 50 | | stacles to accelerating progress toward new treatments |
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51 | 51 | | for glioblastoma remain, and there are no screening or |
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52 | 52 | | early detection methods; |
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53 | 53 | | Whereas, in 2021, significant changes were made to the mo- |
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54 | 54 | | lecular characteristics of a glioblastoma diagnosis, neces- |
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55 | 55 | | sitating critical biomarker testing for patients suspected |
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56 | 56 | | of having a possible glioblastoma; |
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57 | 57 | | Whereas, although glioblastoma was first described in medical |
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58 | 58 | | and scientific literature in the 1920s, and despite its dev- |
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59 | 59 | | astating prognosis, only 5 drugs and 1 medical device |
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60 | 60 | | have been approved by the Food and Drug Administra- |
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61 | 61 | | tion to specifically treat glioblastoma since the 1920s, |
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63 | 63 | | ssavage on LAPJG3WLY3PROD with BILLS 3 |
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64 | 64 | | •HRES 394 IH |
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65 | 65 | | and the mortality rates associated with glioblastoma have |
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66 | 66 | | changed little during the past 30 years; |
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67 | 67 | | Whereas, since the first Glioblastoma Awareness Day, the |
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68 | 68 | | National Cancer Institute established the Glioblastoma |
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69 | 69 | | Therapeutics Network (referred to in this preamble as |
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70 | 70 | | ‘‘GTN’’) in 2020 as part of a national infrastructure to |
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71 | 71 | | enhance and support the discovery and development of |
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72 | 72 | | glioblastoma therapies available for multi-institutional |
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73 | 73 | | GTN teams to drive therapeutic agents through pre- |
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74 | 74 | | clinical studies and early phase clinical trials, which are |
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75 | 75 | | necessary to rapidly evaluate potential treatments to ad- |
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76 | 76 | | vance toward cures and improved quality of life; |
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77 | 77 | | Whereas there is a need for greater public awareness of glio- |
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78 | 78 | | blastoma, including awareness of both— |
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79 | 79 | | (1) the urgent unmet medical needs of glioblastoma |
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80 | 80 | | patients; and |
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81 | 81 | | (2) the opportunities for research of, and treatment |
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82 | 82 | | advances for, glioblastoma; and |
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83 | 83 | | Whereas the House of Representatives supports designating |
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84 | 84 | | July 16, 2025, as ‘‘Glioblastoma Awareness Day’’: Now, |
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85 | 85 | | therefore, be it |
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86 | 86 | | Resolved, That the House of Representatives— 1 |
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87 | 87 | | (1) expresses support for the designation of 2 |
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88 | 88 | | ‘‘Glioblastoma Awareness Day’’; 3 |
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89 | 89 | | (2) encourages increased public awareness of 4 |
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90 | 90 | | glioblastoma; 5 |
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91 | 91 | | (3) honors the individuals who have died from 6 |
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92 | 92 | | the devastating disease of glioblastoma or are cur-7 |
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93 | 93 | | rently living with the disease; 8 |
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97 | 97 | | (4) supports efforts to develop better treat-1 |
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98 | 98 | | ments for glioblastoma that will improve the long- 2 |
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99 | 99 | | term prognosis for, and the quality of life of, individ-3 |
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100 | 100 | | uals diagnosed with the disease; 4 |
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101 | 101 | | (5) recognizes the importance of molecular bio-5 |
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102 | 102 | | marker testing to the diagnosis and treatment of 6 |
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103 | 103 | | glioblastoma; 7 |
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104 | 104 | | (6) expresses support for the individuals who 8 |
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105 | 105 | | are battling brain tumors, as well as the families, 9 |
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106 | 106 | | friends, and caregivers of those individuals; 10 |
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107 | 107 | | (7) urges a collaborative approach to brain 11 |
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108 | 108 | | tumor research among governmental, private, and 12 |
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109 | 109 | | nonprofit organizations, which is a promising means 13 |
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110 | 110 | | of advancing the understanding and treatment of 14 |
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111 | 111 | | glioblastoma; and 15 |
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112 | 112 | | (8) encourages continued investments in glio-16 |
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113 | 113 | | blastoma research and treatments, including through 17 |
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114 | 114 | | the Glioblastoma Therapeutics Network and other 18 |
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115 | 115 | | existing brain tumor research resources. 19 |
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116 | 116 | | Æ |
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