| 1 | 1 | | II |
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| 2 | 2 | | 119THCONGRESS |
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| 3 | 3 | | 1 |
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| 4 | 4 | | STSESSION S. 1227 |
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| 5 | 5 | | To require the Administrator of the Centers for Medicare & Medicaid Services |
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| 6 | 6 | | and the Commissioner of Social Security to review and simplify the |
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| 7 | 7 | | processes, procedures, forms, and communications for family caregivers |
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| 8 | 8 | | to assist individuals in establishing eligibility for, enrolling in, and main- |
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| 9 | 9 | | taining and utilizing coverage and benefits under the Medicare, Medicaid, |
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| 10 | 10 | | CHIP, and Social Security programs respectively, and for other purposes. |
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| 11 | 11 | | IN THE SENATE OF THE UNITED STATES |
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| 12 | 12 | | APRIL1 (legislative day, MARCH31), 2025 |
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| 13 | 13 | | Mr. M |
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| 14 | 14 | | ARKEY(for himself, Mrs. CAPITO, Mr. HICKENLOOPER, Mrs. HYDE- |
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| 15 | 15 | | S |
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| 16 | 16 | | MITH, Mr. BLUMENTHAL, Mr. TILLIS, Ms. KLOBUCHAR, Mr. SCOTTof |
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| 17 | 17 | | Florida, Ms. B |
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| 18 | 18 | | ALDWIN, Ms. LUMMIS, Mr. KELLY, Mrs. BRITT, Ms. |
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| 19 | 19 | | H |
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| 20 | 20 | | IRONO, Mr. ROUNDS, Mr. WHITEHOUSE, Mr. CASSIDY, Mr. COONS, and |
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| 21 | 21 | | Mr. S |
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| 22 | 22 | | CHMITT) introduced the following bill; which was read twice and re- |
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| 23 | 23 | | ferred to the Committee on Finance |
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| 24 | 24 | | A BILL |
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| 25 | 25 | | To require the Administrator of the Centers for Medicare |
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| 26 | 26 | | & Medicaid Services and the Commissioner of Social |
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| 27 | 27 | | Security to review and simplify the processes, procedures, |
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| 28 | 28 | | forms, and communications for family caregivers to assist |
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| 29 | 29 | | individuals in establishing eligibility for, enrolling in, and |
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| 30 | 30 | | maintaining and utilizing coverage and benefits under |
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| 31 | 31 | | the Medicare, Medicaid, CHIP, and Social Security pro- |
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| 32 | 32 | | grams respectively, and for other purposes. |
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| 33 | 33 | | Be it enacted by the Senate and House of Representa-1 |
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| 34 | 34 | | tives of the United States of America in Congress assembled, 2 |
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| 36 | 36 | | kjohnson on DSK7ZCZBW3PROD with $$_JOB 2 |
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| 37 | 37 | | •S 1227 IS |
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| 38 | 38 | | SECTION 1. SHORT TITLE. 1 |
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| 39 | 39 | | This Act may be cited as the ‘‘Alleviating Barriers 2 |
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| 40 | 40 | | for Caregivers Act’’ or the ‘‘ABC Act’’. 3 |
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| 41 | 41 | | SEC. 2. REVIEW OF MEDICARE, MEDICAID, CHIP, AND SO-4 |
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| 42 | 42 | | CIAL SECURITY TO SIMPLIFY PROCESSES. 5 |
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| 43 | 43 | | PROCEDURES, FORMS, AND COMMUNICA-6 |
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| 44 | 44 | | TIONS. 7 |
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| 45 | 45 | | (a) D |
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| 46 | 46 | | EFINITIONS.—In this Act: 8 |
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| 47 | 47 | | (1) A |
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| 48 | 48 | | DMINISTRATOR.—The term ‘‘Adminis-9 |
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| 49 | 49 | | trator’’ means the Administrator of the Centers for 10 |
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| 50 | 50 | | Medicare & Medicaid Services. 11 |
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| 51 | 51 | | (2) CHIP.—The term ‘‘CHIP’’ means the Chil-12 |
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| 52 | 52 | | dren’s Health Insurance Program established under 13 |
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| 53 | 53 | | title XXI of the Social Security Act (42 U.S.C. 14 |
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| 54 | 54 | | 1397aa et seq.). 15 |
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| 55 | 55 | | (3) C |
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| 56 | 56 | | OMMISSIONER.—The term ‘‘Commis-16 |
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| 57 | 57 | | sioner’’ means the Commissioner of Social Security. 17 |
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| 58 | 58 | | (4) C |
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| 59 | 59 | | OVERED AGENCIES .—The term ‘‘covered 18 |
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| 60 | 60 | | agencies’’ means the Centers for Medicare & Med-19 |
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| 61 | 61 | | icaid Services and the Social Security Administra-20 |
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| 62 | 62 | | tion. 21 |
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| 63 | 63 | | (5) C |
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| 64 | 64 | | OVERED OFFICIALS.—The term ‘‘covered 22 |
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| 65 | 65 | | officials’’ means the Administrator and Commis-23 |
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| 66 | 66 | | sioner. 24 |
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| 69 | 69 | | •S 1227 IS |
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| 70 | 70 | | (6) COVERED PROGRAMS .—The term ‘‘covered 1 |
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| 71 | 71 | | programs’’ means Medicare, Medicaid, CHIP, and 2 |
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| 72 | 72 | | the Social Security programs. 3 |
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| 73 | 73 | | (7) D |
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| 74 | 74 | | ISABILITY.—The term ‘‘disability’’ has the 4 |
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| 75 | 75 | | meaning given such term in section 3 of the Ameri-5 |
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| 76 | 76 | | cans with Disabilities Act of 1990 (42 U.S.C. 6 |
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| 77 | 77 | | 12102). 7 |
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| 78 | 78 | | (8) F |
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| 79 | 79 | | AMILY CAREGIVER.—The term ‘‘family 8 |
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| 80 | 80 | | caregiver’’ has the meaning given the term in section 9 |
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| 81 | 81 | | 2 of the RAISE Family Caregivers Act (42 U.S.C. 10 |
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| 82 | 82 | | 3030s note). 11 |
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| 83 | 83 | | (9) M |
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| 84 | 84 | | EDICAID.—The term ‘‘Medicaid’’ means 12 |
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| 85 | 85 | | the Medicaid program established under title XIX of 13 |
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| 86 | 86 | | the Social Security Act (42 U.S.C. 1396 et seq.). 14 |
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| 87 | 87 | | (10) M |
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| 88 | 88 | | EDICARE.—The term ‘‘Medicare’’ means 15 |
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| 89 | 89 | | the Medicare program established under title XVIII 16 |
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| 90 | 90 | | of the Social Security Act (42 U.S.C. 1395 et seq.). 17 |
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| 91 | 91 | | (11) S |
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| 92 | 92 | | TATE.—The term ‘‘State’’ means any of 18 |
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| 93 | 93 | | the 50 States, the District of Columbia, the Com-19 |
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| 94 | 94 | | monwealth of Puerto Rico, the United States Virgin 20 |
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| 95 | 95 | | Islands, Guam, American Samoa, or the Common-21 |
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| 96 | 96 | | wealth of the Northern Mariana Islands. 22 |
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| 97 | 97 | | (12) S |
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| 98 | 98 | | OCIAL SECURITY PROGRAMS .—The term 23 |
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| 99 | 99 | | ‘‘Social Security programs’’ means each of the fol-24 |
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| 100 | 100 | | lowing: 25 |
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| 103 | 103 | | •S 1227 IS |
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| 104 | 104 | | (A) The programs for old-age and sur-1 |
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| 105 | 105 | | vivors insurance benefits and disability insur-2 |
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| 106 | 106 | | ance benefits established under title II of the 3 |
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| 107 | 107 | | Social Security Act (42 U.S.C. 401 et seq.). 4 |
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| 108 | 108 | | (B) The program for supplemental security 5 |
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| 109 | 109 | | income benefits established under title XVI of 6 |
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| 110 | 110 | | such Act (42 U.S.C. 1381 et seq.). 7 |
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| 111 | 111 | | (b) R |
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| 112 | 112 | | EVIEW OFPROGRAMS.— 8 |
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| 113 | 113 | | (1) I |
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| 114 | 114 | | N GENERAL.—The Administrator and the 9 |
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| 115 | 115 | | Commissioner shall jointly conduct a review of the 10 |
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| 116 | 116 | | eligibility determination and application processes, 11 |
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| 117 | 117 | | procedures, forms, and communications of Medicare, 12 |
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| 118 | 118 | | Medicaid, CHIP, and the Social Security programs. 13 |
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| 119 | 119 | | (2) G |
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| 120 | 120 | | OALS OF THE REVIEW.—In conducting the 14 |
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| 121 | 121 | | reviews under paragraph (1), the covered officials 15 |
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| 122 | 122 | | shall seek ways to— 16 |
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| 123 | 123 | | (A) simplify and streamline policies and 17 |
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| 124 | 124 | | procedures for determining eligibility for, enroll-18 |
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| 125 | 125 | | ing in, maintaining coverage in, and utilizing 19 |
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| 126 | 126 | | the full benefits available under the covered 20 |
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| 127 | 127 | | programs; 21 |
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| 128 | 128 | | (B) reduce the frequency of family care-22 |
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| 129 | 129 | | givers having to— 23 |
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| 130 | 130 | | (i) provide the same information to 24 |
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| 131 | 131 | | covered agencies more than once; 25 |
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| 134 | 134 | | •S 1227 IS |
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| 135 | 135 | | (ii) complete— 1 |
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| 136 | 136 | | (I) multiple documents for each 2 |
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| 137 | 137 | | covered agency; or 3 |
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| 138 | 138 | | (II) documents requesting the 4 |
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| 139 | 139 | | same or similar information for mul-5 |
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| 140 | 140 | | tiple covered agencies; or 6 |
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| 141 | 141 | | (iii) provide information to the cov-7 |
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| 142 | 142 | | ered agencies that— 8 |
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| 143 | 143 | | (I) the covered agencies already 9 |
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| 144 | 144 | | have; or 10 |
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| 145 | 145 | | (II) the covered agencies can eas-11 |
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| 146 | 146 | | ily receive from other Federal agen-12 |
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| 147 | 147 | | cies; and 13 |
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| 148 | 148 | | (C) make it easier for family caregivers to 14 |
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| 149 | 149 | | work with the covered agencies and the State 15 |
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| 150 | 150 | | agencies responsible for administering State 16 |
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| 151 | 151 | | Medicaid and CHIP plans by— 17 |
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| 152 | 152 | | (i) providing information on eligibility 18 |
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| 153 | 153 | | for, enrollment in, maintaining coverage in, 19 |
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| 154 | 154 | | and utilizing the full benefits available 20 |
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| 155 | 155 | | under the covered programs to family care-21 |
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| 156 | 156 | | givers; 22 |
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| 157 | 157 | | (ii) improving communications be-23 |
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| 158 | 158 | | tween family caregivers and employees of 24 |
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| 159 | 159 | | covered agencies by— 25 |
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| 162 | 162 | | •S 1227 IS |
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| 163 | 163 | | (I) decreasing call wait times; 1 |
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| 164 | 164 | | (II) ensuring that employees of 2 |
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| 165 | 165 | | covered agencies and the State agen-3 |
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| 166 | 166 | | cies responsible for administering 4 |
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| 167 | 167 | | State Medicaid and CHIP plans pro-5 |
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| 168 | 168 | | vide timely answers to the questions 6 |
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| 169 | 169 | | of family caregivers; 7 |
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| 170 | 170 | | (III) improving the websites of 8 |
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| 171 | 171 | | the covered programs— 9 |
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| 172 | 172 | | (aa) by making it easier for 10 |
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| 173 | 173 | | family caregivers to find informa-11 |
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| 174 | 174 | | tion regarding benefit avail-12 |
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| 175 | 175 | | ability, eligibility, and how to 13 |
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| 176 | 176 | | maintain coverage; and 14 |
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| 177 | 177 | | (bb) by designing such 15 |
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| 178 | 178 | | websites to align with the re-16 |
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| 179 | 179 | | quirements of the Americans 17 |
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| 180 | 180 | | with Disabilities Act (42 U.S.C. 18 |
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| 181 | 181 | | 12101 et seq.) regarding web de-19 |
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| 182 | 182 | | sign; 20 |
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| 183 | 183 | | (IV) improving the timely access 21 |
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| 184 | 184 | | to in-person appointments or meetings 22 |
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| 185 | 185 | | between employees of covered agencies 23 |
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| 186 | 186 | | and family caregivers; 24 |
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| 189 | 189 | | •S 1227 IS |
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| 190 | 190 | | (V) providing translation or in-1 |
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| 191 | 191 | | terpretation services for family care-2 |
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| 192 | 192 | | givers for whom English is not their 3 |
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| 193 | 193 | | primary language; and 4 |
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| 194 | 194 | | (VI) providing information to 5 |
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| 195 | 195 | | family caregivers in accessible for-6 |
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| 196 | 196 | | mats, including formats compatible 7 |
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| 197 | 197 | | with American Sign Language and 8 |
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| 198 | 198 | | multiple languages; 9 |
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| 199 | 199 | | (iii) ensuring that employees of cov-10 |
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| 200 | 200 | | ered agencies and the State agencies re-11 |
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| 201 | 201 | | sponsible for administering State Medicaid 12 |
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| 202 | 202 | | and CHIP plans understand how the cov-13 |
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| 203 | 203 | | ered programs can help family caregivers; 14 |
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| 204 | 204 | | (iv) improving the relationship be-15 |
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| 205 | 205 | | tween family caregivers and the covered 16 |
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| 206 | 206 | | agencies and the State agencies responsible 17 |
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| 207 | 207 | | for administering State Medicaid and 18 |
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| 208 | 208 | | CHIP plans, which may include regularly 19 |
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| 209 | 209 | | meeting with family caregivers, individuals 20 |
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| 210 | 210 | | entitled to, receiving services from, or fil-21 |
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| 211 | 211 | | ing for, 1 or more of the covered programs, 22 |
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| 212 | 212 | | and other stakeholders of the covered pro-23 |
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| 213 | 213 | | grams; 24 |
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| 216 | 216 | | •S 1227 IS |
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| 217 | 217 | | (v) ensuring that employees of covered 1 |
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| 218 | 218 | | agencies and the State agencies responsible 2 |
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| 219 | 219 | | for administering State Medicaid and 3 |
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| 220 | 220 | | CHIP plans who are responsible for resolv-4 |
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| 221 | 221 | | ing disputes, appeals, and grievances with-5 |
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| 222 | 222 | | in the covered programs receive education, 6 |
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| 223 | 223 | | training, and guidance on specific issues 7 |
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| 224 | 224 | | faced by family caregivers who participate 8 |
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| 225 | 225 | | in the covered programs; and 9 |
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| 226 | 226 | | (vi) taking other actions the covered 10 |
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| 227 | 227 | | officials may identify. 11 |
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| 228 | 228 | | (3) I |
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| 229 | 229 | | NPUT FROM FAMILY CAREGIVERS , ORGANI-12 |
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| 230 | 230 | | ZATIONS, AND STATE ENTITIES.—In conducting the 13 |
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| 231 | 231 | | reviews under paragraph (1), the covered officials 14 |
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| 232 | 232 | | shall seek input from— 15 |
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| 233 | 233 | | (A) family caregivers, including family 16 |
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| 234 | 234 | | caregivers with a disability, that have interacted 17 |
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| 235 | 235 | | with the covered programs; 18 |
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| 236 | 236 | | (B) State, regional, national, and Tribal 19 |
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| 237 | 237 | | organizations representing or working with fam-20 |
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| 238 | 238 | | ily caregivers or individuals receiving care from 21 |
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| 239 | 239 | | family caregivers; and 22 |
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| 240 | 240 | | (C) State Medicaid and CHIP programs. 23 |
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| 241 | 241 | | (c) A |
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| 242 | 242 | | CTION.—After the reviews under subsection (b) 24 |
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| 243 | 243 | | have been completed, the covered officials shall take ac-25 |
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| 246 | 246 | | •S 1227 IS |
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| 247 | 247 | | tions that will simplify and streamline policies and proce-1 |
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| 248 | 248 | | dures that improve customer service for individuals enti-2 |
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| 249 | 249 | | tled to, receiving services from, or filing for, any of the 3 |
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| 250 | 250 | | covered programs, and family caregivers. 4 |
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| 251 | 251 | | (d) R |
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| 252 | 252 | | EPORT TOCONGRESS.— 5 |
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| 253 | 253 | | (1) I |
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| 254 | 254 | | N GENERAL.—No later than 2 years after 6 |
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| 255 | 255 | | the date of enactment of this Act, the covered offi-7 |
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| 256 | 256 | | cials shall each submit a report to the Committee on 8 |
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| 257 | 257 | | Finance of the Senate, the Committee on Ways and 9 |
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| 258 | 258 | | Means of the House of Representatives, and the 10 |
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| 259 | 259 | | Committee on Energy and Commerce of the House 11 |
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| 260 | 260 | | of Representatives that details the results of the re-12 |
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| 261 | 261 | | spective reviews each covered official conducted 13 |
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| 262 | 262 | | under subsection (b). 14 |
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| 263 | 263 | | (2) C |
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| 264 | 264 | | ONTENTS OF THE REPORT .—The reports 15 |
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| 265 | 265 | | required under paragraph (1) shall contain— 16 |
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| 266 | 266 | | (A) issues that the covered officials identi-17 |
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| 267 | 267 | | fied in the reviews and their findings; 18 |
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| 268 | 268 | | (B) the actions that the covered officials 19 |
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| 269 | 269 | | are taking to address the issues in subpara-20 |
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| 270 | 270 | | graph (A); 21 |
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| 271 | 271 | | (C) an estimate on when the actions in 22 |
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| 272 | 272 | | subparagraph (B) will be completed; 23 |
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| 273 | 273 | | (D) projected annual costs to implement 24 |
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| 274 | 274 | | the actions identified in subparagraph (B); and 25 |
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| 277 | 277 | | •S 1227 IS |
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| 278 | 278 | | (E) any recommended change in Federal 1 |
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| 279 | 279 | | law to address any issue identified in subpara-2 |
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| 280 | 280 | | graph (A). 3 |
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| 281 | 281 | | (3) U |
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| 282 | 282 | | PDATED REPORTS.—The covered officials 4 |
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| 283 | 283 | | shall each submit a report 2 years after submitting 5 |
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| 284 | 284 | | the report required under paragraph (1) providing 6 |
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| 285 | 285 | | an update to the contents identified in paragraph 7 |
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| 286 | 286 | | (2). 8 |
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| 287 | 287 | | (4) P |
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| 288 | 288 | | UBLICATION OF THE REPORTS .—The cov-9 |
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| 289 | 289 | | ered officials shall make the reports required under 10 |
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| 290 | 290 | | paragraphs (1) and (3) publicly accessible on the 11 |
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| 291 | 291 | | websites of covered agencies. 12 |
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| 292 | 292 | | (e) R |
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| 293 | 293 | | EDUCINGREDTAPE FORSTATEMEDICAID AND 13 |
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| 294 | 294 | | CHIP P |
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| 295 | 295 | | ROGRAMS.—Not later than 1 year after the date 14 |
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| 296 | 296 | | of enactment of this Act, the Administrator shall issue a 15 |
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| 297 | 297 | | letter to each State Medicaid and CHIP Director to— 16 |
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| 298 | 298 | | (1) encourage State Medicaid agencies to con-17 |
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| 299 | 299 | | duct reviews of State Medicaid programs and State 18 |
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| 300 | 300 | | CHIP programs similar to the reviews conducted at 19 |
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| 301 | 301 | | the Federal level under subsection (b); 20 |
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| 302 | 302 | | (2) provide suggestions, informed by the results 21 |
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| 303 | 303 | | of such Federal reviews, for promising practices that 22 |
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| 304 | 304 | | States could take to reduce administrative burdens 23 |
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| 305 | 305 | | on family caregivers in supporting individuals enti-24 |
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| 306 | 306 | | tled to, receiving service from, or filing for, 1 or 25 |
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| 309 | 309 | | •S 1227 IS |
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| 310 | 310 | | more of the covered programs in applying for and 1 |
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| 311 | 311 | | receiving assistance under State Medicaid programs 2 |
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| 312 | 312 | | and State CHIP programs; and 3 |
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| 313 | 313 | | (3) identify best practices to support family 4 |
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| 314 | 314 | | caregivers. 5 |
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| 315 | 315 | | Æ |
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