Progressive Supranuclear Palsy Month of Awareness.
Impact
The designation of Progressive Supranuclear Palsy Month is intended to foster a greater understanding of PSP among the public and healthcare professionals. By promoting this awareness month, the bill seeks to support continued research efforts into the disease, hoping to reduce misdiagnoses and improve outcomes for those affected. This legislative move enhances state law by aligning with national efforts to promote health awareness and support for neurodegenerative diseases.
Summary
HJR13 is a resolution designating May of each year as Progressive Supranuclear Palsy Month of Awareness in Virginia. This initiative aims to raise awareness about progressive supranuclear palsy (PSP), a severe neurodegenerative disease that primarily affects mobility, balance, and cognitive abilities. The resolution highlights the plight of over 20,000 Americans diagnosed with PSP and the absence of effective treatments or cures, stressing the importance of increased public awareness and research funding to combat the disease.
Sentiment
The sentiment surrounding HJR13 is largely positive, as it brings attention to a lesser-known condition that significantly impacts the lives of those diagnosed. Stakeholders such as CurePSP, the leading nonprofit organization focusing on PSP, as well as legislators in Virginia, express strong support for the bill. There is a shared recognition of the need for heightened awareness and support for research initiatives aimed at addressing this challenging health issue.
Contention
While the bill has received broad support, the potential for ongoing advocacy and funding for PSP research remains a point of discussion. Stakeholders emphasize the importance of not only raising awareness but also ensuring that resources are allocated effectively for research on PSP and similar neurodegenerative diseases. As awareness grows, the challenge will be to translate this recognition into tangible support for individuals and families impacted by PSP.
Alzheimer's and dementia disease; creating the Alzheimer's Disease and Related Dementia Infrastructure Act; definitions; creating the Dementia Caregiver Support Group and Education Program Development Fund; effective date.