LRB-5638/1
CMH:cjs
2023 - 2024 LEGISLATURE
2023 ASSEMBLY JOINT RESOLUTIO N 111
January 25, 2024 - Introduced by Representatives DITTRICH, ZIMMERMAN, SINICKI,
NEDWESKI, GUNDRUM, MURSAU, BARE, BINSFELD, CONLEY, STUBBS, OHNSTAD,
MURPHY, EDMING, JACOBSON, TITTL, O'CONNOR, SUBECK, MOSES, DRAKE,
EMERSON, TUSLER, SHANKLAND and RATCLIFF, cosponsored by Senators TESTIN,
WIRCH, SPREITZER, AGARD and LARSON. Referred to Committee on Rules.
***AUTHORS SUBJECT TO CHANGE***
Relating to: observing February 29, 2024, as Rare Disease Day in Wisconsin.
Whereas, there are nearly 7,000 diseases and conditions considered rare (each
affecting fewer than 200,000 Americans) in the United States, according to the
National Institutes of Health (NIH); and
Whereas, while each of these diseases may affect small numbers of people, rare
diseases as a group affect approximately 25 to 30 million Americans; and
Whereas, many rare diseases are serious and debilitating conditions that have
a significant impact on the lives of those affected; and
Whereas, while more than 800 drugs and biologics have been approved for the
treatment of rare diseases according to the Food and Drug Administration (FDA),
millions of Americans still have rare diseases for which there is no approved
treatment; and
Whereas, individuals and families affected by rare diseases often experience
problems such as diagnosis delay, difficulty finding a medical expert, and lack of
access to treatments or ancillary services; and
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LRB-5638/1
CMH:cjs
2023 - 2024 Legislature
Whereas, while the public is familiar with some rare diseases, many patients
and families affected by less widely known rare diseases bear a large share of the
burden of funding research and raising public awareness to support the search for
treatments; and
Whereas, residents of Wisconsin are among those affected by rare diseases
because nearly one in 10 Americans have rare diseases; and
Whereas, the National Organization for Rare Disorders (NORD) is organizing
a nationwide observance of Rare Disease Day on February 29, 2024; now, therefore,
be it
Resolved by the assembly, the senate concurring, That February 29, 2024,
will be observed as Rare Disease Day in Wisconsin.
(END)
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