Wisconsin 2023-2024 Regular Session

Wisconsin Assembly Bill AJR111 Compare Versions

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	1	+	LRB-5638/1
	2	+	CMH:cjs
	3	+	2023 - 2024 LEGISLATURE
1	4		2023 ASSEMBLY JOINT RESOLUTIO N 111
2		-
3		-	ENROLLED JOINT RESOLUTION
4		-
	5	+	January 25, 2024 - Introduced by Representatives DITTRICH, ZIMMERMAN, SINICKI,
	6	+	NEDWESKI, GUNDRUM, MURSAU, BARE, BINSFELD, CONLEY, STUBBS, OHNSTAD,
	7	+	MURPHY, EDMING, JACOBSON, TITTL, O'CONNOR, SUBECK, MOSES, DRAKE,
	8	+	EMERSON, TUSLER, SHANKLAND and RATCLIFF, cosponsored by Senators TESTIN,
	9	+	WIRCH, SPREITZER, AGARD and LARSON. Referred to Committee on Rules.
	10	+	*AUTHORS SUBJECT TO CHANGE*
5	11		Relating to: observing February 29, 2024, as Rare Disease Day in Wisconsin.
6		-	Whereas, there are nearly 7,000 diseases and conditions considered rare (each affecting fewer
7		-	than 200,000 Americans) in the United States, according to the National Institutes of Health (NIH);
8		-	and
9		-	Whereas, while each of these diseases may affect small numbers of people, rare diseases as
10		-	a group affect approximately 25 to 30 million Americans; and
11		-	Whereas, many rare diseases are serious and debilitating conditions that have a significant
12		-	impact on the lives of those affected; and
13		-	Whereas, while more than 800 drugs and biologics have been approved for the treatment of
14		-	rare diseases according to the Food and Drug Administration (FDA), millions of Americans still
15		-	have rare diseases for which there is no approved treatment; and
16		-	Whereas, individuals and families affected by rare diseases often experience problems such
17		-	as diagnosis delay, difficulty finding a medical expert, and lack of access to treatments or ancillary
18		-	services; and
19		-	Whereas, while the public is familiar with some rare diseases, many patients and families
20		-	affected by less widely known rare diseases bear a large share of the burden of funding research and
21		-	raising public awareness to support the search for treatments; and
22		-	Whereas, residents of Wisconsin are among those affected by rare diseases because nearly one
23		-	in 10 Americans have rare diseases; and
24		-	Whereas, the National Organization for Rare Disorders (NORD) is organizing a nationwide
25		-	observance of Rare Disease Day on February 29, 2024; now, therefore, be it
26		-	Resolved by the assembly, the senate concurring, That February 29, 2024, will be observed
27		-	as Rare Disease Day in Wisconsin.
28		-	Senator Chris Kapenga
29		-	President of the Senate
30		-	Representative Robin J. Vos
31		-	Speaker of the Assembly
32		-	Date
33		-	Edward A. Blazel
34		-	Assembly Chief Clerk
	12	+	Whereas, there are nearly 7,000 diseases and conditions considered rare (each
	13	+	affecting fewer than 200,000 Americans) in the United States, according to the
	14	+	National Institutes of Health (NIH); and
	15	+	Whereas, while each of these diseases may affect small numbers of people, rare
	16	+	diseases as a group affect approximately 25 to 30 million Americans; and
	17	+	Whereas, many rare diseases are serious and debilitating conditions that have
	18	+	a significant impact on the lives of those affected; and
	19	+	Whereas, while more than 800 drugs and biologics have been approved for the
	20	+	treatment of rare diseases according to the Food and Drug Administration (FDA),
	21	+	millions of Americans still have rare diseases for which there is no approved
	22	+	treatment; and
	23	+	Whereas, individuals and families affected by rare diseases often experience
	24	+	problems such as diagnosis delay, difficulty finding a medical expert, and lack of
	25	+	access to treatments or ancillary services; and
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	41	+	LRB-5638/1
	42	+	CMH:cjs
	43	+	2023 - 2024 Legislature
	44	+	Whereas, while the public is familiar with some rare diseases, many patients
	45	+	and families affected by less widely known rare diseases bear a large share of the
	46	+	burden of funding research and raising public awareness to support the search for
	47	+	treatments; and
	48	+	Whereas, residents of Wisconsin are among those affected by rare diseases
	49	+	because nearly one in 10 Americans have rare diseases; and
	50	+	Whereas, the National Organization for Rare Disorders (NORD) is organizing
	51	+	a nationwide observance of Rare Disease Day on February 29, 2024; now, therefore,
	52	+	be it
	53	+	Resolved by the assembly, the senate concurring, That February 29, 2024,
	54	+	will be observed as Rare Disease Day in Wisconsin.
	55	+	(END)
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