2023 Senate Joint Resolution 68
ENROLLED JOINT RESOLUTION
Relating to: proclaiming September 17, 2023, as Kleefstra Syndrome Awareness Day in Wisconsin.
Whereas, Kleefstra syndrome is rare genetic disorder characterized by intellectual disability
and often accompanied by a spectrum of complex physical and clinical features; and
Whereas, Kleefstra syndrome is primarily caused by a tiny missing piece from the end of
chromosome 9 but may also be caused by genetic mutation or intragenic duplication; and
Whereas, Kleefstra syndrome presents as a wide range of symptoms and an even wider range
in the severity of those symptoms, due in part to the number of damaged or deleted genes in the
9q34.3 region of chromosome 9; and
Whereas, most cases of Kleefstra syndrome are not inherited from either parent, and only
rarely have individuals with Kleefstra syndrome been known to pass the disorder on to their children;
and
Whereas, addressing the complex medical needs of people with Kleefstra syndrome early in
life is imperative to helping families successfully care for their children who are affected by the
syndrome; and
Whereas, the need for more education, awareness, and support for families dealing with
Kleefstra syndrome is essential; and
Whereas, Kleefstra Syndrome Awareness Day is observed on September 17 because the
majority of members of this community have a deletion on chromosome 9 in the 9q34.3 region, and
the ninth month of the year is September, and the 17th letter of the alphabet is q; now, therefore, be
it
Resolved by the senate, the assembly concurring, That the members of the Wisconsin
Legislature proclaim September 17, 2023, as Kleefstra Syndrome Awareness Day in Wisconsin.
Representative Robin J. Vos
Speaker of the Assembly
Senator Chris Kapenga
President of the Senate
Date
Richard A. Champagne
Acting Senate Chief Clerk