LRB-4334/1
JKS:skw
2023 - 2024 LEGISLATURE
2023 SENATE JOINT RESOLUTIO N 68
September 12, 2023 - Introduced by Senator W ANGGAARD, cosponsored by
Representative VOS. Referred to Committee on Senate Organization.
***AUTHORS SUBJECT TO CHANGE***
Relating to: proclaiming September 17, 2023, as Kleefstra Syndrome Awareness
Day in Wisconsin.
Whereas, Kleefstra syndrome is rare genetic disorder characterized by
intellectual disability and often accompanied by a spectrum of complex physical and
clinical features; and
Whereas, Kleefstra syndrome is primarily caused by a tiny missing piece from
the end of chromosome 9 but may also be caused by genetic mutation or intragenic
duplication; and
Whereas, Kleefstra syndrome presents as a wide range of symptoms and an
even wider range in the severity of those symptoms, due in part to the number of
damaged or deleted genes in the 9q34.3 region of chromosome 9; and
Whereas, most cases of Kleefstra syndrome are not inherited from either
parent, and only rarely have individuals with Kleefstra syndrome been known to
pass the disorder on to their children; and
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LRB-4334/1
JKS:skw
2023 - 2024 Legislature
Whereas, addressing the complex medical needs of people with Kleefstra
syndrome early in life is imperative to helping families successfully care for their
children who are affected by the syndrome; and
Whereas, the need for more education, awareness, and support for families
dealing with Kleefstra syndrome is essential; and
Whereas, Kleefstra Syndrome Awareness Day is observed on September 17
because the majority of members of this community have a deletion on chromosome
9 in the 9q34.3 region, and the ninth month of the year is September, and the 17th
letter of the alphabet is q; now, therefore, be it
Resolved by the senate, the assembly concurring, That the members of the
Wisconsin Legislature proclaim September 17, 2023, as Kleefstra Syndrome
Awareness Day in Wisconsin.
(END)
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