| 1 | 1 | | 2025 - 2026 LEGISLATURE |
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| 2 | 2 | | LRB-1368/1 |
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| 3 | 3 | | CMH:cjs |
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| 4 | 4 | | 2025 ASSEMBLY RESOLUTION 3 |
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| 5 | 5 | | February 3, 2025 - Introduced by Representatives DITTRICH, ARMSTRONG, ARNEY, |
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| 6 | 6 | | BARE, BROWN, FITZGERALD, GREEN, GUNDRUM, HONG, HYSELL, KIRSCH, |
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| 7 | 7 | | KRUG, MADISON, MURSAU, NEDWESKI, NOVAK, O'CONNOR, ORTIZ-VELEZ, |
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| 8 | 8 | | PALMERI, PHELPS, SINICKI, SNODGRASS, SUBECK, TAYLOR, TENORIO, TUSLER, |
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| 9 | 9 | | J. JACOBSON and VINING. Referred to Committee on Rules. |
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| 10 | 10 | | |
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| 11 | 11 | | ***AUTHORS SUBJECT TO CHANGE*** |
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| 12 | 12 | | Relating to: observing February 28, 2025, as Rare Disease Day in Wisconsin. |
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| 13 | 13 | | Whereas, there are nearly 10,000 diseases and conditions considered rare |
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| 14 | 14 | | (each affecting fewer than 200,000 Americans) in the United States, according to |
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| 15 | 15 | | the National Institutes of Health (NIH); and |
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| 16 | 16 | | Whereas, while each of these diseases may affect small numbers of people, |
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| 17 | 17 | | rare diseases as a group affect approximately 25 to 30 million Americans; and |
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| 18 | 18 | | Whereas, many rare diseases are serious and debilitating conditions that have |
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| 19 | 19 | | a significant impact on the lives of those affected; and |
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| 20 | 20 | | Whereas, while more than 800 drugs and biologics have been approved for the |
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| 21 | 21 | | treatment of rare diseases according to the Food and Drug Administration (FDA), |
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| 22 | 22 | | millions of Americans still have rare diseases for which there is no approved |
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| 23 | 23 | | treatment; and |
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| 24 | 24 | | Whereas, individuals and families affected by rare diseases often experience 2025 - 2026 Legislature - 2 - LRB-1368/1 |
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| 25 | 25 | | CMH:cjs |
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| 26 | 26 | | problems such as diagnosis delay, difficulty finding a medical expert, and lack of |
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| 27 | 27 | | access to treatments or ancillary services; and |
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| 28 | 28 | | Whereas, while the public is familiar with some rare diseases, many patients |
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| 29 | 29 | | and families affected by less widely known rare diseases bear a large share of the |
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| 30 | 30 | | burden of funding research and raising public awareness to support the search for |
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| 31 | 31 | | treatments; and |
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| 32 | 32 | | Whereas, residents of Wisconsin are among those affected by rare diseases |
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| 33 | 33 | | because nearly one in 10 Americans have rare diseases; and |
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| 34 | 34 | | Whereas, the National Organization for Rare Disorders (NORD) is organizing |
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| 35 | 35 | | a nationwide observance of Rare Disease Day on February 28, 2025; now, therefore, |
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| 36 | 36 | | be it |
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| 37 | 37 | | Resolved by the assembly, That February 28, 2025, will be observed as Rare |
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| 38 | 38 | | Disease Day in Wisconsin. |
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| 39 | 39 | | (END) |
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