California 2021-2022 Regular Session

California Assembly Bill AR119 Compare Versions

Only one version of the bill is available at this time.

Old	New	Differences
1	1	CALIFORNIA LEGISLATURE 20212022 REGULAR SESSION House Resolution No. 119Introduced by Assembly Member LevineJune 16, 2022 Relative to X-Linked Hypophosphatemia awareness. LEGISLATIVE COUNSEL'S DIGESTHR 119, as introduced, Levine. Digest KeyBill TextWHEREAS, X-Linked Hypophosphatemia (XLH) is a whole-body, whole-life rare genetic disorder that affects the person from birth through childhood, adulthood, and advanced age, affecting the patients muscular, skeletal, auditory, and nervous systems; andWHEREAS, XLH affects about one in 20,000 newborns, according to the National Institutes of Health; andWHEREAS, The effects of the disease cause serious and debilitating symptoms that have a major impact on the lives of those people who suffer from XLH and their families; andWHEREAS, Patients affected by XLH and their families often encounter a variety of problems outside of the illness itself, such as difficulty in obtaining accurate and timely diagnoses, finding effective treatment options, and being able to afford the appropriate treatment; andWHEREAS, XLH is not a curable disease; however, dedicated researchers around the world continue their efforts to understand how genetic mutations work with the hope that a cure will be developed one day; andWHEREAS, Educational programs must be public and constant so that new parents and health providers can be exposed to the most up-to-date information; andWHEREAS, The XLH Network, Inc., (www.xlhnetwork.org) is a nonprofit organization in support of caregivers and patients affected by XLH; now, therefore, be itResolved by the Assembly of the State of California, That the Assembly hereby proclaims June 23, 2022, as X-Linked Hypophosphatemia Awareness Day and June 2022 as XLH Awareness Month in California; and be it furtherResolved, That the Chief Clerk of the Assembly transmit copies of this resolution to the author for appropriate distribution.
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3	3	CALIFORNIA LEGISLATURE 20212022 REGULAR SESSION House Resolution No. 119Introduced by Assembly Member LevineJune 16, 2022 Relative to X-Linked Hypophosphatemia awareness. LEGISLATIVE COUNSEL'S DIGESTHR 119, as introduced, Levine. Digest Key
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9	9	CALIFORNIA LEGISLATURE 20212022 REGULAR SESSION
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11	11	House Resolution
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13	13	No. 119
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15	15	Introduced by Assembly Member LevineJune 16, 2022
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17	17	Introduced by Assembly Member Levine
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20	20	Relative to X-Linked Hypophosphatemia awareness.
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22	22	LEGISLATIVE COUNSEL'S DIGEST
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24	24	## LEGISLATIVE COUNSEL'S DIGEST
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26	26	HR 119, as introduced, Levine.
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30	30	## Digest Key
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32	32	## Bill Text
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34	34	WHEREAS, X-Linked Hypophosphatemia (XLH) is a whole-body, whole-life rare genetic disorder that affects the person from birth through childhood, adulthood, and advanced age, affecting the patients muscular, skeletal, auditory, and nervous systems; and
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36	36	WHEREAS, XLH affects about one in 20,000 newborns, according to the National Institutes of Health; and
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38	38	WHEREAS, The effects of the disease cause serious and debilitating symptoms that have a major impact on the lives of those people who suffer from XLH and their families; and
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40	40	WHEREAS, Patients affected by XLH and their families often encounter a variety of problems outside of the illness itself, such as difficulty in obtaining accurate and timely diagnoses, finding effective treatment options, and being able to afford the appropriate treatment; and
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42	42	WHEREAS, XLH is not a curable disease; however, dedicated researchers around the world continue their efforts to understand how genetic mutations work with the hope that a cure will be developed one day; and
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44	44	WHEREAS, Educational programs must be public and constant so that new parents and health providers can be exposed to the most up-to-date information; and
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46	46	WHEREAS, The XLH Network, Inc., (www.xlhnetwork.org) is a nonprofit organization in support of caregivers and patients affected by XLH; now, therefore, be it
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48	48	Resolved by the Assembly of the State of California, That the Assembly hereby proclaims June 23, 2022, as X-Linked Hypophosphatemia Awareness Day and June 2022 as XLH Awareness Month in California; and be it further
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50	50	Resolved, That the Chief Clerk of the Assembly transmit copies of this resolution to the author for appropriate distribution.