CALIFORNIA LEGISLATURE 20212022 REGULAR SESSION House Resolution No. 119Introduced by Assembly Member LevineJune 16, 2022 Relative to X-Linked Hypophosphatemia awareness. LEGISLATIVE COUNSEL'S DIGESTHR 119, as introduced, Levine. Digest KeyBill TextWHEREAS, X-Linked Hypophosphatemia (XLH) is a whole-body, whole-life rare genetic disorder that affects the person from birth through childhood, adulthood, and advanced age, affecting the patients muscular, skeletal, auditory, and nervous systems; andWHEREAS, XLH affects about one in 20,000 newborns, according to the National Institutes of Health; andWHEREAS, The effects of the disease cause serious and debilitating symptoms that have a major impact on the lives of those people who suffer from XLH and their families; andWHEREAS, Patients affected by XLH and their families often encounter a variety of problems outside of the illness itself, such as difficulty in obtaining accurate and timely diagnoses, finding effective treatment options, and being able to afford the appropriate treatment; andWHEREAS, XLH is not a curable disease; however, dedicated researchers around the world continue their efforts to understand how genetic mutations work with the hope that a cure will be developed one day; andWHEREAS, Educational programs must be public and constant so that new parents and health providers can be exposed to the most up-to-date information; andWHEREAS, The XLH Network, Inc., (www.xlhnetwork.org) is a nonprofit organization in support of caregivers and patients affected by XLH; now, therefore, be itResolved by the Assembly of the State of California, That the Assembly hereby proclaims June 23, 2022, as X-Linked Hypophosphatemia Awareness Day and June 2022 as XLH Awareness Month in California; and be it furtherResolved, That the Chief Clerk of the Assembly transmit copies of this resolution to the author for appropriate distribution.
CALIFORNIA LEGISLATURE 20212022 REGULAR SESSION House Resolution No. 119Introduced by Assembly Member LevineJune 16, 2022 Relative to X-Linked Hypophosphatemia awareness. LEGISLATIVE COUNSEL'S DIGESTHR 119, as introduced, Levine. Digest Key
CALIFORNIA LEGISLATURE 20212022 REGULAR SESSION
House Resolution
No. 119
Introduced by Assembly Member LevineJune 16, 2022
Introduced by Assembly Member Levine
June 16, 2022
Relative to X-Linked Hypophosphatemia awareness.
LEGISLATIVE COUNSEL'S DIGEST
## LEGISLATIVE COUNSEL'S DIGEST
HR 119, as introduced, Levine.
## Digest Key
## Bill Text
WHEREAS, X-Linked Hypophosphatemia (XLH) is a whole-body, whole-life rare genetic disorder that affects the person from birth through childhood, adulthood, and advanced age, affecting the patients muscular, skeletal, auditory, and nervous systems; and
WHEREAS, XLH affects about one in 20,000 newborns, according to the National Institutes of Health; and
WHEREAS, The effects of the disease cause serious and debilitating symptoms that have a major impact on the lives of those people who suffer from XLH and their families; and
WHEREAS, Patients affected by XLH and their families often encounter a variety of problems outside of the illness itself, such as difficulty in obtaining accurate and timely diagnoses, finding effective treatment options, and being able to afford the appropriate treatment; and
WHEREAS, XLH is not a curable disease; however, dedicated researchers around the world continue their efforts to understand how genetic mutations work with the hope that a cure will be developed one day; and
WHEREAS, Educational programs must be public and constant so that new parents and health providers can be exposed to the most up-to-date information; and
WHEREAS, The XLH Network, Inc., (www.xlhnetwork.org) is a nonprofit organization in support of caregivers and patients affected by XLH; now, therefore, be it
Resolved by the Assembly of the State of California, That the Assembly hereby proclaims June 23, 2022, as X-Linked Hypophosphatemia Awareness Day and June 2022 as XLH Awareness Month in California; and be it further
Resolved, That the Chief Clerk of the Assembly transmit copies of this resolution to the author for appropriate distribution.