The resolution highlights that TED affects a small number of individuals, with an estimated 7,500 Californians diagnosed each year. The recognition of a dedicated awareness week has the potential to improve understanding and support for patients suffering from this condition. Proponents believe that increased awareness could lead to better resources for diagnosis and treatment, as well as support services that may alleviate the psychosocial and economic burdens faced by those living with TED.
Summary
AR64, introduced by Assembly Member Maienschein, is a resolution that aims to establish the week of November 14 to November 20, 2021, as Thyroid Eye Disease Awareness Week in California. This resolution seeks to increase public awareness regarding Thyroid Eye Disease (TED), a serious and rare autoimmune condition that affects the tissue behind the eyes and can lead to debilitating symptoms, including eye bulging and double vision. The bill outlines the severity of the disease and aims to emphasize its impact on those affected, as well as the importance of diagnosis and management of the condition.
Contention
While AR64 generally garnered unanimous support, there may still be discussions around the allocation of state resources towards awareness campaigns for rare diseases like TED compared to more common health issues. Opponents could argue that focusing on such specific ailments diverts attention from broader public health initiatives. However, the resolution itself does not seem to face significant opposition, and its passage indicates a consensus on the need for awareness regarding rare conditions.