The resolution does not change state laws but serves an important purpose in raising awareness about FSGS and its repercussions on affected individuals and families. Notably, the resolution points out that FSGS contributes to high healthcare costs—estimated at around $2 billion annually for related medical expenses. By designating a specific awareness day, state officials aim to foster discussions around better diagnosis, treatment options, and resources for affected patients, which can indirectly lead to improvements in healthcare practices and policies related to kidney diseases.
Summary
Senate Concurrent Resolution No. 87 (SCR87), introduced by Weber Pierson, aims to designate June 10, 2025, as Focal Segmental Glomerulosclerosis Awareness Day. This proposed resolution highlights a crucial health issue related to Focal Segmental Glomerulosclerosis (FSGS), a rare and serious kidney disease that significantly impacts individuals' health and well-being. FSGS is a condition characterized by scarring in the kidneys, often leading to kidney failure, which may require dialysis or transplant. The resolution's intent is to draw attention to a disease that affects a considerable segment of the population, particularly among African Americans who are disproportionately impacted by this condition due to genetic predispositions.
Sentiment
Overall, the sentiment surrounding SCR87 is positive, reflecting a shared commitment among lawmakers, healthcare providers, and advocacy organizations to support those living with FSGS. The resolution has garnered unanimous support, indicating a mutual understanding of the need to combat this health crisis through education and heightened awareness. Advocates argue that increased visibility can lead to enhanced research funding and the development of innovative treatments, while critics may express concerns that designating an awareness day does not tackle systemic healthcare issues directly affecting FSGS patients.
Contention
While there are no significant points of contention recorded against SCR87 in terms of its intent, discussions within the healthcare community often revolve around the challenges of diagnosing rare kidney diseases like FSGS—typically taking five to seven years. The resolution highlights the need for more specialized practitioners and resources, emphasizing the disparity in healthcare access, especially for minority communities. SCR87 serves as a platform to initiate further advocacy for better healthcare resources and supports for those affected by kidney disease.
Designates June 2019 as Nephrotic Awareness Month in Louisiana, and commends NephCure for their continued efforts in finding a cure for diseases and conditions of the kidneys.