A resolution to recognize June 10, 2025, as Focal Segmental Glomerulosclerosis (FSGS) Day.
Impact
By designating a specific day to raise awareness about FSGS, the resolution serves to inform and support patients and families affected by this disease. It aims to underscore the need for early detection, improved diagnosis, and innovative treatments, thereby benefiting not only individuals suffering from FSGS but also the broader healthcare system in Michigan. Acknowledging the disproportionate impact of kidney diseases on marginalized communities, particularly those of African descent, the resolution advocates for a more focused approach in nephrology care and research to alleviate this burden.
Summary
Senate Resolution No. 59 aims to recognize June 10, 2025, as Focal Segmental Glomerulosclerosis (FSGS) Day. This resolution highlights the significance of FSGS, a critical kidney condition that leads to progressive scarring in the kidneys, often resulting in severe health challenges and complications such as kidney failure. The resolution emphasizes that approximately 1 in 7 American adults have chronic kidney disease and outlines the dire consequences faced by patients with FSGS, including high rates of dialysis and kidney transplants needed shortly after diagnosis.
Contention
Notably, the resolution addresses the systemic challenges present in the diagnosis and treatment of FSGS. It mentions the typical diagnostic odyssey that patients endure—averaging 5-7 years—due to the rarity of the disease and the current shortage of nephrology specialists in the United States. The resolution also brings attention to the high costs associated with FSGS, which pose significant economic strains on healthcare providers and systems, with estimates reaching about $2 billion annually. Furthermore, it highlights ongoing efforts from various stakeholders, including advocacy organizations, researchers, and pharmaceutical companies, to foster advancements in treatment and awareness for patients affected by FSGS.
A resolution to recognize September 2023 as Cholesterol Education Month and September 1, 2023, as Low-Density Lipoprotein Cholesterol (LDL-C) Awareness Day.