Colorado 2024 Regular Session

Colorado Senate Bill SB042 Compare Versions

Version 1 (Old)

Version 2 (New)

Old	New		Differences
	1	+	Second Regular Session
	2	+	Seventy-fourth General Assembly
	3	+	STATE OF COLORADO
	4	+	REREVISED
	5	+	This Version Includes All Amendments
	6	+	Adopted in the Second House
	7	+	LLS NO. 24-0065.02 Brita Darling x2241
1	8		SENATE BILL 24-042
2		-	BY SENATOR(S) Buckner and Fields, Coleman, Exum, Bridges, Cutter,
3		-	Ginal, Gonzales, Hinrichsen, Kolker, Marchman, Mullica, Priola, Roberts,
4		-	Rodriguez, Winter F., Zenzinger;
5		-	also REPRESENTATIVE(S) English and Bacon, Herod, Amabile, Bird,
6		-	Boesenecker, Brown, deGruy Kennedy, Duran, Epps, Froelich, Hamrick,
7		-	Hernandez, Jodeh, Joseph, Kipp, Lieder, Lindsay, Lukens, Mabrey, Marvin,
8		-	McCormick, Ortiz, Ricks, Rutinel, Sirota, Story, Valdez, Vigil, Weissman,
9		-	Willford, Woodrow, Young, McCluskie.
	9	+	Senate Committees House Committees
	10	+	Health & Human Services Health & Human Services
	11	+	Appropriations Appropriations
	12	+	A BILL FOR AN ACT
10	13		C
11		-	ONCERNING THE CREATION OF THE ARIE P. TAYLOR SICKLE CELL DISEASE
12		-	OUTREACH PROGRAM TO PROVIDE SUPPORT TO INDIVIDUALS LIVING
13		-	WITH SICKLE CELL DISEASE
14		-	, AND, IN CONNECTION THEREWITH ,
15		-	MAKING AN APPROPRIATION.
	14	+	ONCERNING THE CREATION OF THE ARIE P. TAYLOR SICKLE CELL101
	15	+	DISEASE OUTREACH PROGRAM TO PROVIDE SUPPORT TO102
	16	+	INDIVIDUALS LIVING WITH SICKLE CELL DISEASE , AND, IN
	17	+	103
	18	+	CONNECTION THEREWITH , MAKING AN APPROPRIATION .104
	19	+	Bill Summary
	20	+	(Note: This summary applies to this bill as introduced and does
	21	+	not reflect any amendments that may be subsequently adopted. If this bill
	22	+	passes third reading in the house of introduction, a bill summary that
	23	+	applies to the reengrossed version of this bill will be available at
	24	+	http://leg.colorado.gov
	25	+	.)
	26	+	The bill creates the Arie P. Taylor sickle cell disease outreach
	27	+	program (outreach program) in the department of public health and
	28	+	environment (department). To implement the outreach program, the bill
	29	+	HOUSE
	30	+	3rd Reading Unamended
	31	+	May 3, 2024
	32	+	HOUSE
	33	+	Amended 2nd Reading
	34	+	May 2, 2024
	35	+	SENATE
	36	+	3rd Reading Unamended
	37	+	April 17, 2024
	38	+	SENATE
	39	+	Amended 2nd Reading
	40	+	April 16, 2024
	41	+	SENATE SPONSORSHIP
	42	+	Buckner and Fields, Coleman, Exum, Bridges, Cutter, Ginal, Gonzales, Hinrichsen,
	43	+	Kolker, Marchman, Mullica, Priola, Roberts, Rodriguez, Winter F., Zenzinger
	44	+	HOUSE SPONSORSHIP
	45	+	English and Bacon, Herod, Amabile, Bird, Boesenecker, Brown, deGruy Kennedy, Duran,
	46	+	Epps, Froelich, Hamrick, Hernandez, Jodeh, Joseph, Kipp, Lieder, Lindsay, Lukens, Mabrey,
	47	+	Marvin, McCluskie, McCormick, Ortiz, Ricks, Rutinel, Sirota, Story, Valdez, Vigil,
	48	+	Weissman, Willford, Woodrow, Young
	49	+	Shading denotes HOUSE amendment. Double underlining denotes SENATE amendment.
	50	+	Capital letters or bold & italic numbers indicate new material to be added to existing law.
	51	+	Dashes through the words or numbers indicate deletions from existing law. requires the department, subject to available appropriations, to contract
	52	+	with one or more community-based nonprofit organizations (outreach
	53	+	organizations) to provide outreach and support services in the community
	54	+	to individuals living with sickle cell disease and their families.
	55	+	The department shall contract with a third-party entity
	56	+	(administrator) to solicit applicants and administer the outreach program.
	57	+	On or before January 1, 2025, the department shall select one or more
	58	+	outreach organizations to implement the outreach program and shall give
	59	+	priority to community organizations with experience in providing services
	60	+	and support to the sickle cell community and that meet other criteria in
	61	+	the bill.
	62	+	The outreach program may include informal counseling and health
	63	+	guidance, direction and support to individuals and their families in
	64	+	locating and accessing services in the community, outreach concerning
	65	+	activities and programs available to individuals and families living with
	66	+	sickle cell disease, peer support and referrals, advocacy regarding the
	67	+	interests of the sickle cell disease community, referrals for screening, and
	68	+	other services and support identified by the department.
	69	+	The department shall approve the services provided through a
	70	+	contract and may consult with the university of Colorado school of
	71	+	medicine's sickle-cell anemia treatment and research center to identify
	72	+	needed services and supports.
	73	+	Prior to the expiration of a contract, the outreach organization, in
	74	+	conjunction with the administrator, shall prepare and submit a written
	75	+	report to the department describing the impact of the outreach program
	76	+	provided under the contract, and the department shall provide the report
	77	+	to certain committees of the general assembly.
	78	+	The bill repeals the outreach program after 5 years.
	79	+	Be it enacted by the General Assembly of the State of Colorado:1
	80	+	SECTION 1. In Colorado Revised Statutes, add 25-1.5-121 as2
	81	+	follows:3
	82	+	25-1.5-121. Arie P. Taylor sickle cell disease outreach program4
	83	+	- contracts - administration - report - legislative declaration -5
	84	+	definitions - repeal. (1) T
	85	+	HE GENERAL ASSEMBLY FINDS AND DECLARES6
	86	+	THAT:7
	87	+	(a) S
	88	+	ICKLE-CELL ANEMIA IS A GENETIC DISORDER OF THE8
	89	+	HEMOGLOBIN IN RED BLOOD CELLS THAT CAUSES RED BLOOD CELLS THAT9
	90	+	042-2- CARRY OXYGEN TO STICK TOGETHER AFTER THE OXYGEN IS RELEASED ,1
	91	+	CAUSING BLOCKAGES IN THE SMALL BLOOD VESSELS ;2
	92	+	(b) T
	93	+	HE MAIN SYMPTOMS OF SICKLE -CELL ANEMIA ARE ANEMIA3
	94	+	AND EPISODES OF SEVERE PAIN CAUSED BY THE BLOCKAGES IN THE SMALL4
	95	+	BLOOD VESSELS; OVER TIME, PEOPLE WITH SICKLE-CELL ANEMIA ARE5
	96	+	INCREASINGLY AT RISK OF OTHER HEALTH COMPLICATIONS , AND THE6
	97	+	DISORDER DAMAGES THEIR ORGANS ;7
	98	+	(c) A
	99	+	CCORDING TO THE 2022-23 "COLORADO SICKLE CELL STATE8
	100	+	A
	101	+	CTION PLAN" PREPARED BY THE COLORADO SICKLE CELL TREATMENT9
	102	+	AND RESEARCH CENTER AT THE UNIVERSITY OF COLORADO SCHOOL OF10
	103	+	MEDICINE, APPROXIMATELY FOUR HUNDRED FIFTY PEOPLE IN COLORADO11
	104	+	ARE LIVING WITH SICKLE-CELL ANEMIA, ALTHOUGH THIS NUMBER LIKELY12
	105	+	UNDERCOUNTS THE POPULATION LIVING WITH SICKLE CELL DISEASE ;13
	106	+	(d) D
	107	+	UE TO THE EFFECTS OF SICKLE CELL DISEASE , INCLUDING14
	108	+	EPISODES OF DEBILITATING PAIN , MANY INDIVIDUALS LIVING WITH15
	109	+	SICKLE-CELL ANEMIA AND THEIR FAMILIES NEED SERVICES AND SUPPORT16
	110	+	IN THE COMMUNITY TO MANAGE THEIR HEALTH CONDITION AND DAILY17
	111	+	LIVES;18
	112	+	(e) A
	113	+	RIE PARKS TAYLOR WAS THE FIRST AFRICAN AMERICAN19
	114	+	WOMAN TO SERVE AS A WOMEN IN THE AIR FORCE, "WAF", CLASSROOM20
	115	+	INSTRUCTOR AND OFFICER; TO BE ELECTED TO SERVE IN THE HOUSE OF21
	116	+	REPRESENTATIVES OF THE COLORADO GENERAL ASSEMBLY ; TO SERVE AS22
	117	+	THE CLERK AND RECORDER FOR THE CITY AND COUNTY OF DENVER OR23
	118	+	ANY COUNTY IN COLORADO; AND TO SERVE AS THE CHIEF CLERK OF THE24
	119	+	D
	120	+	ENVER ELECTION COMMISSION ;25
	121	+	(f) P
	122	+	ASSIONATE ABOUT THE CONCERNS OF INDIVIDUALS LIVING26
	123	+	WITH SICKLE-CELL ANEMIA, DURING HER TIME IN THE GENERAL ASSEMBLY27
	124	+	042
	125	+	-3- REPRESENTATIVE TAYLOR SPONSORED LEGISLATION THAT CREATED THE1
	126	+	SICKLE-CELL ANEMIA TREATMENT AND RESEARCH CENTER AT THE2
	127	+	UNIVERSITY OF COLORADO SCHOOL OF MEDICINE , WHICH PROVIDES3
	128	+	SUPPORT AND TREATMENT FOR INDIVIDUALS WITH SICKLE CELL DISEASE4
	129	+	AND CONDUCTS RESEARCH RELATING TO SICKLE CELL DISEASE ; AND5
	130	+	(g) C
	131	+	REATING AN OUTREACH PROGRAM BY PARTNERING WITH ONE6
	132	+	OR MORE COMMUNITY -BASED NONPROFIT ORGANIZATIONS TO ENHANCE7
	133	+	SERVICES AND SUPPORT IN THE COMMUNITY FOR INDIVI DUALS WITH SICKLE8
	134	+	CELL DISEASE AND THEIR FAMILIES WILL HELP ENSURE A BETTER QUALITY9
	135	+	OF LIFE FOR THESE COLORADANS.10
	136	+	(2) A
	137	+	S USED IN THIS SECTION, UNLESS THE CONTEXT OTHERWISE11
	138	+	REQUIRES, "OUTREACH PROGRAM " MEANS THE ARIE P. TAYLOR SICKLE
	139	+	12
	140	+	CELL DISEASE OUTREACH PROGRAM CREATED IN SUBSECTION (3) OF THIS13
	141	+	SECTION.14
	142	+	(3) THERE IS CREATED IN THE DEPARTMENT THE ARIE P.15
	143	+	T
	144	+	AYLOR SICKLE CELL DISEASE OUTREACH PROGRAM . THE PURPOSE OF THE16
	145	+	OUTREACH PROGRAM IS TO PROVIDE SERVICES AND SUPPORT IN THE17
	146	+	COMMUNITY TO INDIVIDUALS LIVING WITH SICKLE CELL DISEASE AND18
	147	+	THEIR FAMILIES.19
16	148
17		-	Be it enacted by the General Assembly of the State of Colorado:
18		-	SECTION 1. In Colorado Revised Statutes, add 25-1.5-121 as
19		-	follows:
20		-	25-1.5-121. Arie P. Taylor sickle cell disease outreach program
21		-	- contracts - administration - report - legislative declaration -
22		-	definitions - repeal. (1) T
23		-	HE GENERAL ASSEMBLY FINDS AND DECLARES
24		-	NOTE: This bill has been prepared for the signatures of the appropriate legislative
25		-	officers and the Governor. To determine whether the Governor has signed the bill
26		-	or taken other action on it, please consult the legislative status sheet, the legislative
27		-	history, or the Session Laws.
28		-	________
29		-	Capital letters or bold & italic numbers indicate new material added to existing law; dashes
30		-	through words or numbers indicate deletions from existing law and such material is not part of
31		-	the act. THAT:
32		-	(a) S
33		-	ICKLE-CELL ANEMIA IS A GENETIC DISORDER OF THE
34		-	HEMOGLOBIN IN RED BLOOD CELLS THAT CAUSES RED BLOOD CELLS THAT
35		-	CARRY OXYGEN TO STICK TOGETHER AFTER THE OXYGEN IS RELEASED
36		-	,
37		-	CAUSING BLOCKAGES IN THE SMALL BLOOD VESSELS ;
38		-	(b) T
39		-	HE MAIN SYMPTOMS OF SICKLE-CELL ANEMIA ARE ANEMIA AND
40		-	EPISODES OF SEVERE PAIN CAUSED BY THE BLOCKAGES IN THE SMALL BLOOD
41		-	VESSELS
42		-	; OVER TIME, PEOPLE WITH SICKLE-CELL ANEMIA ARE INCREASINGLY
43		-	AT RISK OF OTHER HEALTH COMPLICATIONS
44		-	, AND THE DISORDER DAMAGES
45		-	THEIR ORGANS
46		-	;
47		-	(c) A
48		-	CCORDING TO THE 2022-23 "COLORADO SICKLE CELL STATE
49		-	ACTION PLAN" PREPARED BY THE COLORADO SICKLE CELL TREATMENT AND
50		-	RESEARCH CENTER AT THE UNIVERSITY OF
51		-	COLORADO SCHOOL OF MEDICINE,
52		-	APPROXIMATELY FOUR HUNDRED FIFTY PEOPLE IN COLORADO ARE LIVING
53		-	WITH SICKLE
54		-	-CELL ANEMIA, ALTHOUGH THIS NUMBER LIKELY UNDERCOUNTS
55		-	THE POPULATION LIVING WITH SICKLE CELL DISEASE
56		-	;
57		-	(d) D
58		-	UE TO THE EFFECTS OF SICKLE CELL DISEASE , INCLUDING
59		-	EPISODES OF DEBILITATING PAIN
60		-	, MANY INDIVIDUALS LIVING WITH
61		-	SICKLE
62		-	-CELL ANEMIA AND THEIR FAMILIES NEED SERVICES AND SUPPORT IN
63		-	THE COMMUNITY TO MANAGE THEIR HEALTH CONDITION AND DAILY LIVES
64		-	;
65		-	(e) A
66		-	RIE PARKS TAYLOR WAS THE FIRST AFRICAN AMERICAN
67		-	WOMAN TO SERVE AS A
68		-	WOMEN IN THE AIR FORCE, "WAF", CLASSROOM
69		-	INSTRUCTOR AND OFFICER
70		-	; TO BE ELECTED TO SERVE IN THE HOUSE OF
71		-	REPRESENTATIVES OF THE
72		-	COLORADO GENERAL ASSEMBLY ; TO SERVE AS
73		-	THE CLERK AND RECORDER FOR THE CITY AND COUNTY OF
74		-	DENVER OR ANY
75		-	COUNTY IN
76		-	COLORADO; AND TO SERVE AS THE CHIEF CLERK OF THE DENVER
77		-	ELECTION COMMISSION
78		-	;
79		-	(f) P
80		-	ASSIONATE ABOUT THE CONCERNS OF INDIVIDUALS LIVING WITH
81		-	SICKLE
82		-	-CELL ANEMIA, DURING HER TIME IN THE GENERAL ASSEMBLY
83		-	REPRESENTATIVE
84		-	TAYLOR SPONSORED LEGISLATION THAT CREATED THE
85		-	SICKLE
86		-	-CELL ANEMIA TREATMENT AND RESEARCH CENTER AT THE
87		-	UNIVERSITY OF
88		-	COLORADO SCHOOL OF MEDICINE, WHICH PROVIDES SUPPORT
89		-	AND TREATMENT FOR INDIVIDUALS WITH SICKLE CELL DISEASE AND
90		-	CONDUCTS RESEARCH RELATING TO SICKLE CELL DISEASE
91		-	; AND
92		-	PAGE 2-SENATE BILL 24-042 (g) CREATING AN OUTREACH PROGRAM BY PARTNERING WITH ONE
93		-	OR MORE COMMUNITY
94		-	-BASED NONPROFIT ORGANIZATIONS TO ENHANCE
95		-	SERVICES AND SUPPORT IN THE COMMUNITY FOR INDIVIDUALS WITH SICKLE
96		-	CELL DISEASE AND THEIR FAMILIES WILL HELP ENSURE A BETTER QUALITY OF
97		-	LIFE FOR THESE
98		-	COLORADANS.
99		-	(2) A
100		-	S USED IN THIS SECTION, UNLESS THE CONTEXT OTHERWISE
101		-	REQUIRES
102		-	, "OUTREACH PROGRAM" MEANS THE ARIE P. TAYLOR SICKLE CELL
103		-	DISEASE OUTREACH PROGRAM CREATED IN SUBSECTION
104		-	(3) OF THIS SECTION.
105		-	(3) T
106		-	HERE IS CREATED IN THE DEPARTMENT THE ARIE P. TAYLOR
107		-	SICKLE CELL DISEASE OUTREACH PROGRAM
108		-	. THE PURPOSE OF THE OUTREACH
109		-	PROGRAM IS TO PROVIDE SERVICES AND SUPPORT IN THE COMMUNITY TO
110		-	INDIVIDUALS LIVING WITH SICKLE CELL DISEASE AND THEIR FAMILIES
111		-	.
	149	+	20
112	150		(4) (a) T
113		-	HE DEPARTMENT SHALL SOLICIT APPLICATIONS FROM
114		-	COMMUNITY
115		-	-BASED NONPROFIT ORGANIZATIONS THAT ARE CAPABLE OF
116		-	IMPLEMENTING THE OUTREACH PROGRAM
117		-	.
	151	+	HE DEPARTMENT
	152	+	SHALL SOLICIT APPLICATIONS FROM21
	153	+	COMMUNITY-BASED NONPROFIT ORGANIZATIONS THAT ARE CAPABLE OF22
	154	+	IMPLEMENTING THE OUTREACH PROGRAM . 23
118	155		(b) (I) O
119		-	N OR BEFORE ~~JANUARY 1, 2025, THE DEPARTMENT SHALL~~
120		-	~~CONTRACT WITH ONE OR MORE COMMUNITY~~
121		-	-BASED ~~NONPROFIT~~
122		-	ORGANIZATIONS TO PROVIDE COMMUNITY
123		-	~~-BASED SERVICES~~ AND ~~SUPPORT TO~~
124		-	~~INDIVIDUALS LIVING WITH SICKLE CELL DISEASE AND THEIR FAMILIES~~
125		-	.
	156	+	N OR BEFORE
	157	+	JANUARY 1, 2025, THE DEPARTMENT SHALL24
	158	+	CONTRACT WITH ONE OR MORE COMMUNITY -BASED NONPROFIT25
	159	+	ORGANIZATIONS TO PROVIDE COMMUNITY -BASED SERVICES AND26
	160	+	SUPPORT TO INDIVIDUALS LIVING WITH SICKLE CELL DISEASE AND THEIR27
	161	+	042
	162	+	-4- FAMILIES.1
126	163		(II) T
127	164		HE GENERAL ASSEMBLY SHALL APPROPRIATE TWO HUNDRED
128		-	THOUSAND DOLLARS FOR THE OUTREACH PROGRAM
129		-	, WHICH AMOUNT SHALL
130		-	INCLUDE ADMINISTRATIVE COSTS NOT TO EXCEED EIGHT PERCENT
131		-	.
	165	+	2
	166	+	THOUSAND DOLLARS FOR THE OUTREACH PROGRAM , WHICH AMOUNT3
	167	+	SHALL INCLUDE ADMINISTRATIVE COSTS NOT TO EXCEED EIGHT PERCENT .4
132	168		(c) T
133		-	HE DEPARTMENT SHALL DETERMINE THE INITIAL TERM OF A
134		-	CONTRACT
135		-	, NOT TO EXCEED TWO YEARS, AND SHALL APPROVE THE SERVICES
136		-	AND SUPPORT TO BE INCLUDED IN A CONTRACT
137		-	.
	169	+	HE DEPARTMENT SHALL DETERMINE THE INITIAL TERM OF A5
	170	+	CONTRACT, NOT TO EXCEED TWO YEARS , AND SHALL APPROVE THE6
	171	+	SERVICES AND SUPPORT TO BE INCLUDED IN A CONTRACT .7
138	172		(d) I
139		-	N AWARDING A CONTRACT , THE DEPARTMENT SHALL GIVE
140		-	PRIORITY TO A COMMUNITY
141		-	-BASED NONPROFIT ORGANIZATION THAT :
	173	+	N AWARDING A CONTRACT , THE DEPARTMENT SHALL GIVE8
	174	+	PRIORITY TO A COMMUNITY-BASED NONPROFIT ORGANIZATION THAT :9
142	175		(I) H
143		-	AS A MINIMUM OF TEN YEARS ' EXPERIENCE IN PROVIDING
144		-	SERVICES AND SUPPORT IN
145		-	COLORADO TO INDIVIDUALS LIVING WITH SICKLE
146		-	CELL DISEASE AND THEIR FAMILIES
147		-	, SPECIFICALLY IN THE DENVER
148		-	METROPOLITAN AREA OR
149		-	COLORADO SPRINGS, WHICH AREAS OF THE STATE
150		-	HAVE THE HIGHEST NUMBER OF INDIVIDUALS LIVING WITH SICKLE CELL
151		-	PAGE 3-SENATE BILL 24-042 DISEASE IN COLORADO;
	176	+	AS A MINIMUM OF TEN YEARS ' EXPERIENCE IN PROVIDING10
	177	+	SERVICES AND SUPPORT IN COLORADO TO INDIVIDUALS LIVING WITH11
	178	+	SICKLE CELL DISEASE AND THEIR FAMILIES, SPECIFICALLY IN THE DENVER12
	179	+	METROPOLITAN AREA OR COLORADO SPRINGS, WHICH AREAS OF THE13
	180	+	STATE HAVE THE HIGHEST NUMBER OF INDIVIDUALS LIVING WITH SICKLE14
	181	+	CELL DISEASE IN COLORADO;15
152	182		(II) H
153		-	AS EXPERIENCE PROVIDING THE SERVICES AND SUPPORT
154		-	DESCRIBED IN SUBSECTION
155		-	(5)(a) OF THIS SECTION; AND
156		-	(III) IS ENGAGED IN FUNDRAISING FOR AND RAISING AWARENESS OF
157		-	THE NEEDS OF INDIVIDUALS LIVING WITH SICKLE CELL DISEASE AND THEIR
158		-	FAMILIES AND MAINTAINS A NETWORK OF PERSONS ABLE TO PROVIDE PEER
159		-	ASSISTANCE AND RESOURCES TO THOSE INDIVIDUALS
160		-	.
	183	+	AS EXPERIENCE PROVIDING THE SERVICES AND SUPPORT16
	184	+	DESCRIBED IN SUBSECTION (5)(a) OF THIS SECTION; AND17
	185	+	(III) I
	186	+	S ENGAGED IN FUNDRAISING FOR AND RAISING AWARENESS18
	187	+	OF THE NEEDS OF INDIVIDUALS LIVING WITH SICKLE CELL DISEASE AND19
	188	+	THEIR FAMILIES AND MAINTAINS A NETWORK OF PERSONS ABLE TO20
	189	+	PROVIDE PEER ASSISTANCE AND RESOURCES TO THOSE INDIVIDUALS .21
161	190		(5) (a) D
162		-	EPENDING UPON ~~THE NEEDS TO BE ADDRESSED THROUGH A~~
163		-	~~CONTRACT~~
164		-	, THE COMMUNITY-BASED SERVICES AND ~~SUPPORT PROVIDED~~
165		-	THROUGH THE OUTREACH PROGRAM MAY INCLUDE ~~THE FOLLOWING~~
166		-	SERVICES AND SUPPORT PROVIDED BY A COMMUNITY
167		-	~~-BASED NONPROFIT~~
168		-	~~ORGANIZATION OR~~ BY COMMUNITY ~~HEALTH WORKERS OR SOCIAL WORKERS~~
169		-	~~EMPLOYED BY THE COMMUNITY~~
170		-	-~~BASED NONPROFIT~~ ORGANIZATION :
	191	+	EPENDING UPON
	192	+	THE NEEDS TO BE ADDRESSED22
	193	+	THROUGH A CONTRACT, THE COMMUNITY-BASED SERVICES AND SUPPORT23
	194	+	PROVIDED THROUGH THE OUTREACH PROGRAM MAY INCLUDE THE24
	195	+	FOLLOWING SERVICES AND SUPPORT PROVIDED BY A COMMUNITY -BASED25
	196	+	NONPROFIT ORGANIZATION OR BY COMMUNITY HEALTH WORKERS OR26
	197	+	SOCIAL WORKERS EMPLOYED BY THE COMMUNITY -BASED NONPROFIT27
	198	+	042
	199	+	-5- ORGANIZATION:1
171	200		(I) C
172		-	ULTURALLY APPROPRIATE HEALTH EDUCATION AND
173		-	INFORMATION CONCERNING SICKLE CELL DISEASE AND LIVING WITH SICKLE
174		-	CELL DISEASE
175		-	;
	201	+	ULTURALLY APPROPRIATE HEALTH EDUCATION AND2
	202	+	INFORMATION CONCERNING SICKLE CELL DISEASE AND LIVING WITH SICKLE3
	203	+	CELL DISEASE;4
176	204		(II) I
177		-	NFORMAL COUNSELING AND GUIDANCE ON HEALTH BEHAVIORS ;
	205	+	NFORMAL COUNSELING AND GUIDANCE ON HEALTH5
	206	+	BEHAVIORS;6
178	207		(III) D
179		-	IRECTION AND SUPPORT TO INDIVIDUALS AND THEIR FAMILIES
180		-	IN LOCATING AND ACCESSING SERVICES IN THE COMMUNITY TO ADDRESS
181		-	THEIR NEEDS
182		-	, INCLUDING NONMEDICAL NEEDS SUCH AS HOUSING , FOOD,
183		-	EDUCATION, TRANSPORTATION, EMPLOYMENT, LEGAL SERVICES, AND OTHER
184		-	SUPPORT
185		-	;
	208	+	IRECTION AND SUPPORT TO INDIVIDUALS AND THEIR7
	209	+	FAMILIES IN LOCATING AND ACCESSING SERVICES IN THE COMMUNITY TO8
	210	+	ADDRESS THEIR NEEDS, INCLUDING NONMEDICAL NEEDS SUCH AS HOUSING ,9
	211	+	FOOD, EDUCATION, TRANSPORTATION, EMPLOYMENT, LEGAL SERVICES,10
	212	+	AND OTHER SUPPORT;11
186	213		(IV) O
187		-	UTREACH TO THE SICKLE CELL DISEASE COMMUNITY
188		-	CONCERNING ACTIVITIES AND PROGRAMS AVAILABLE TO INDIVIDUALS LIVING
189		-	WITH THE EFFECTS OF SICKLE CELL DISEASE AND THEIR FAMILIES
190		-	;
	214	+	UTREACH TO THE SICKLE CELL DISEASE COMMUNITY12
	215	+	CONCERNING ACTIVITIES AND PROGRAMS AVAILABLE TO INDIVIDUALS13
	216	+	LIVING WITH THE EFFECTS OF SICKLE CELL DISEASE AND THEIR FAMILIES ;14
191	217		(V) P
192		-	EER SUPPORT SERVICES AND REFERRALS FOR ~~INDIVIDUALS AND~~
193		-	FAMILIES LIVING WITH SICKLE CELL DISEASE IN THE ~~LOCAL COMMUNITY~~
194		-	;
	218	+	EER SUPPORT SERVICES AND REFERRALS FOR INDIVIDUALS15
	219	+	AND FAMILIES LIVING WITH SICKLE CELL DISEASE IN THE LOCAL16
	220	+	COMMUNITY;17
195	221		(VI) A
196		-	DVOCACY REGARDING THE INTERESTS OF THE SICKLE CELL
197		-	DISEASE COMMUNITY THROUGH PARTNERSHIPS WITH THE GENERAL PUBLIC
198		-	,
199		-	STATE AND LOCAL GOVERNMENT ENTITIES , HEALTH-CARE PROVIDERS, AND
200		-	OTHER COMMUNITY
201		-	-BASED ORGANIZATIONS;
202		-	PAGE 4-SENATE BILL 24-042 (VII) REFERRALS FOR SICKLE-CELL ANEMIA SCREENING; AND
203		-	(VIII) ANY OTHER SERVICES AND SUPPORT AS DETERMINED BY THE
204		-	DEPARTMENT
205		-	.
	222	+	DVOCACY REGARDING THE INTERESTS OF THE SICKLE CELL18
	223	+	DISEASE COMMUNITY THROUGH PARTNERSHIPS WITH THE GENERAL19
	224	+	PUBLIC, STATE AND LOCAL GOVERNMENT ENTITIES , HEALTH-CARE20
	225	+	PROVIDERS, AND OTHER COMMUNITY -BASED ORGANIZATIONS;21
	226	+	(VII) R
	227	+	EFERRALS FOR SICKLE-CELL ANEMIA SCREENING; AND22
	228	+	(VIII) A
	229	+	NY OTHER SERVICES AND SUPPORT AS DETERMINED BY THE23
	230	+	DEPARTMENT.24
206	231		(b) I
207		-	N DETERMINING THE SERVICES AND SUPPORT INCLUDED IN A
208		-	CONTRACT
209		-	, THE DEPARTMENT MAY CONSULT WITH THE SICKLE -CELL ANEMIA
210		-	TREATMENT AND RESEARCH CENTER
211		-	, CREATED IN SECTION 23-21-203, TO
212		-	IDENTIFY THE COMMUNITY
213		-	-BASED SERVICES AND SUPPORT THAT IS LIKELY
214		-	TO HAVE THE GREATEST IMPACT ON THE INDIVIDUALS AND FAMILIES SERVED
215		-	THROUGH THE OUTREACH PROGRAM GI VEN THE AMOUNT AND DURATION OF
216		-	THE CONTRACT
217		-	.
	232	+	N DETERMINING THE SERVICES AND SUPPORT INCLUDED IN A25
	233	+	CONTRACT, THE DEPARTMENT MAY CONSULT WITH THE SICKLE -CELL26
	234	+	ANEMIA TREATMENT AND RESEARCH CENTER , CREATED IN SECTION27
	235	+	042
	236	+	-6- 23-21-203, TO IDENTIFY THE COMMUNITY-BASED SERVICES AND SUPPORT1
	237	+	THAT IS LIKELY TO HAVE THE GREATEST IMPACT ON THE INDIVIDUALS AND2
	238	+	FAMILIES SERVED THROUGH THE OUTREACH PROGRAM GIVEN THE AMOUNT3
	239	+	AND DURATION OF THE CONTRACT .4
218	240		(6) (a) P
219		-	RIOR TO THE EXPIRATION OF A CONTRACT , A
220		-	COMMUNITY
221		-	-BASED NONPROFIT ORGANIZATION IMPLEMENTING THE
222		-	OUTREACH PROGRAM SHALL PREPARE AND SUBMIT A WRI TTEN REPORT TO
223		-	THE DEPARTMENT DESCRIBING
224		-	:
	241	+	RIOR TO THE EXPIRATION OF A CONTRACT , A5
	242	+	COMMUNITY-BASED NONPROFIT ORGANIZATION IMPLEMENTING THE6
	243	+	OUTREACH PROGRAM SHALL PREPARE AND SUBMIT
	244	+	A WRITTEN REPORT TO7
	245	+	THE DEPARTMENT DESCRIBING :8
225	246		(I) T
226		-	HE TYPE AND AMOUNT OF SERVICES AND SUPPORT PROVIDED TO
227		-	THE COMMUNITY PURSUANT TO THE OUTREACH PROGRAM
228		-	;
	247	+	HE TYPE AND AMOUNT OF SERVICES AND SUPPORT PROVIDED9
	248	+	TO THE COMMUNITY PURSUANT TO THE OUTREACH PROGRAM ;10
229	249		(II) T
230		-	HE NUMBER OF INDIVIDUALS AND FAMILIES IMPACTED THR OUGH
231		-	THE SERVICES AND SUPPORT
232		-	;
	250	+	HE NUMBER OF INDIVIDUALS AND FAMILIES IMPACTED11
	251	+	THROUGH THE SERVICES AND SUPPORT ;12
233	252		(III) T
234		-	HE CHARACTERISTICS OF THE INDIVIDUALS RECEIVING
235		-	SERVICES AND SUPPORT
236		-	, INCLUDING WHETHER THE SERVICES OR SUPPORT
237		-	WAS PROVIDED TO ADULTS OR CHILDREN WITH SICKLE CELL DISEASE OR
238		-	THEIR FAMILY MEMBERS
239		-	, BUT EXCLUDING PERSONALLY IDENTIFYING
240		-	INFORMATION REGARDING THE INDIVIDUALS
241		-	; AND
242		-	(IV) THE LOCATION WHERE THE SERVICES AND SUPPORT WAS
243		-	PROVIDED
244		-	.
	253	+	HE CHARACTERISTICS OF THE INDIVIDUALS RECEIVING13
	254	+	SERVICES AND SUPPORT, INCLUDING WHETHER THE SERVICES OR SUPPORT14
	255	+	WAS PROVIDED TO ADULTS OR CHILDREN WITH SICKLE CELL DISEASE OR15
	256	+	THEIR FAMILY MEMBERS , BUT EXCLUDING PERSONALLY IDENTIFYING16
	257	+	INFORMATION REGARDING THE INDIVIDUALS ; AND17
	258	+	(IV) T
	259	+	HE LOCATION WHERE THE SERVICES AND SUPPORT WAS18
	260	+	PROVIDED.19
245	261		(b) T
246		-	HE DEPARTMENT SHALL PROVIDE THE REPORT TO THE ~~HOUSE OF~~
247		-	REPRESENTATIVES ~~HEALTH AND HUMAN SERVICES COMMITTEE AND THE~~
248		-	~~SENATE~~ HEALTH AND HUMAN SERVICES COMMITTEE
249		-	, OR ~~THEIR SUCCESSOR~~
250		-	COMMITTEES
251		-	. THE DEPARTMENT ~~MAY INCLUDE WITH THE REPORT~~
252		-	~~INFORMATION KNOWN TO~~ THE ~~DEPARTMENT CONCERNING THE OUTCOMES OF~~
253		-	THE ~~SERVICES AND SUPPORT PROVIDED~~
254		-	~~, AS WELL AS OTHER RELEVANT~~
255		-	~~INFORMATION CONCERNING THE IMPACT OF THE OUTREACH PROGRAM ON~~
256		-	~~PAGE 5-SENATE BILL 24-042 INDIVIDUALS LIVING WITH SICKLE CELL DISEASE AND THEIR~~ FAMILIES .
	262	+	HE DEPARTMENT SHALL PROVIDE THE REPORT TO THE HOUSE20
	263	+	OF REPRESENTATIVES
	264	+	HEALTH AND HUMAN SERVICES COMMITTEE AND21
	265	+	THE SENATE HEALTH AND HUMAN SERVICES COMMITTEE , OR THEIR22
	266	+	SUCCESSOR COMMITTEES . THE DEPARTMENT MAY INCLUDE WITH THE23
	267	+	REPORT INFORMATION KNOWN TO THE DEPARTMENT CONCERNING THE24
	268	+	OUTCOMES OF THE SERVICES AND SUPPORT PROVIDED , AS WELL AS OTHER25
	269	+	RELEVANT INFORMATION CONCERNING THE IMPACT OF THE OUTREACH26
	270	+	PROGRAM ON INDIVIDUALS LIVING WITH SICKLE CELL DISEASE AND THEIR27
	271	+	042
	272	+	-7- FAMILIES.1
257	273		(7) T
258		-	HIS SECTION IS REPEALED, EFFECTIVE JULY 1, 2030.
	274	+	HIS SECTION IS REPEALED, EFFECTIVE JULY 1, 2030.2
259	275		SECTION 2. Appropriation. For the 2024-25 state fiscal year,
260		-	$200,000 is appropriated to the department of public health and
261		-	environment for use by the division of administration and support. This
262		-	appropriation is from the general fund and is based on an assumption that
263		-	the division will require an additional 0.1 FTE. To implement this act, the
264		-	division may use this appropriation for the Arie P. Taylor sickle cell disease
265		-	outreach program.
266		-	SECTION 3. Safety clause. The general assembly finds,
267		-	determines, and declares that this act is necessary for the immediate
268		-	preservation of the public peace, health, or safety or for appropriations for
269		-	PAGE 6-SENATE BILL 24-042 the support and maintenance of the departments of the state and state
270		-	institutions.
271		-	____________________________ ____________________________
272		-	Steve Fenberg Julie McCluskie
273		-	PRESIDENT OF SPEAKER OF THE HOUSE
274		-	THE SENATE OF REPRESENTATIVES
275		-	____________________________ ____________________________
276		-	Cindi L. Markwell Robin Jones
277		-	SECRETARY OF CHIEF CLERK OF THE HOUSE
278		-	THE SENATE OF REPRESENTATIVES
279		-	APPROVED________________________________________
280		-	(Date and Time)
281		-	_________________________________________
282		-	Jared S. Polis
283		-	GOVERNOR OF THE STATE OF COLORADO
284		-	PAGE 7-SENATE BILL 24-042
	276	+	3
	277	+	$200,000 is appropriated to the department of public health and4
	278	+	environment for use by the division of administration and support. This5
	279	+	appropriation is from the general fund and is based on an assumption that6
	280	+	the division will require an additional 0.1 FTE. To implement this act, the7
	281	+	division may use this appropriation for the Arie P. Taylor sickle cell8
	282	+	disease outreach program.9
	283	+	SECTION 3. Safety clause. The general assembly finds,10
	284	+	determines, and declares that this act is necessary for the immediate11
	285	+	preservation of the public peace, health, or safety or for appropriations for12
	286	+	the support and maintenance of the departments of the state and state13
	287	+	institutions.14
	288	+	042
	289	+	-8-