2 | | - | BY SENATOR(S) Buckner and Fields, Coleman, Exum, Bridges, Cutter, |
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3 | | - | Ginal, Gonzales, Hinrichsen, Kolker, Marchman, Mullica, Priola, Roberts, |
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4 | | - | Rodriguez, Winter F., Zenzinger; |
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5 | | - | also REPRESENTATIVE(S) English and Bacon, Herod, Amabile, Bird, |
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6 | | - | Boesenecker, Brown, deGruy Kennedy, Duran, Epps, Froelich, Hamrick, |
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7 | | - | Hernandez, Jodeh, Joseph, Kipp, Lieder, Lindsay, Lukens, Mabrey, Marvin, |
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8 | | - | McCormick, Ortiz, Ricks, Rutinel, Sirota, Story, Valdez, Vigil, Weissman, |
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9 | | - | Willford, Woodrow, Young, McCluskie. |
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| 9 | + | Senate Committees House Committees |
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| 10 | + | Health & Human Services Health & Human Services |
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| 11 | + | Appropriations Appropriations |
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| 12 | + | A BILL FOR AN ACT |
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11 | | - | ONCERNING THE CREATION OF THE ARIE P. TAYLOR SICKLE CELL DISEASE |
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12 | | - | OUTREACH PROGRAM TO PROVIDE SUPPORT TO INDIVIDUALS LIVING |
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13 | | - | WITH SICKLE CELL DISEASE |
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14 | | - | , AND, IN CONNECTION THEREWITH , |
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15 | | - | MAKING AN APPROPRIATION. |
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| 14 | + | ONCERNING THE CREATION OF THE ARIE P. TAYLOR SICKLE CELL101 |
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| 15 | + | DISEASE OUTREACH PROGRAM TO PROVIDE SUPPORT TO102 |
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| 16 | + | INDIVIDUALS LIVING WITH SICKLE CELL DISEASE , AND, IN |
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| 17 | + | 103 |
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| 18 | + | CONNECTION THEREWITH , MAKING AN APPROPRIATION .104 |
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| 19 | + | Bill Summary |
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| 20 | + | (Note: This summary applies to this bill as introduced and does |
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| 21 | + | not reflect any amendments that may be subsequently adopted. If this bill |
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| 22 | + | passes third reading in the house of introduction, a bill summary that |
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| 23 | + | applies to the reengrossed version of this bill will be available at |
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| 24 | + | http://leg.colorado.gov |
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| 25 | + | .) |
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| 26 | + | The bill creates the Arie P. Taylor sickle cell disease outreach |
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| 27 | + | program (outreach program) in the department of public health and |
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| 28 | + | environment (department). To implement the outreach program, the bill |
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| 29 | + | HOUSE |
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| 30 | + | 3rd Reading Unamended |
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| 31 | + | May 3, 2024 |
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| 32 | + | HOUSE |
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| 33 | + | Amended 2nd Reading |
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| 34 | + | May 2, 2024 |
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| 35 | + | SENATE |
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| 36 | + | 3rd Reading Unamended |
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| 37 | + | April 17, 2024 |
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| 38 | + | SENATE |
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| 39 | + | Amended 2nd Reading |
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| 40 | + | April 16, 2024 |
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| 41 | + | SENATE SPONSORSHIP |
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| 42 | + | Buckner and Fields, Coleman, Exum, Bridges, Cutter, Ginal, Gonzales, Hinrichsen, |
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| 43 | + | Kolker, Marchman, Mullica, Priola, Roberts, Rodriguez, Winter F., Zenzinger |
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| 44 | + | HOUSE SPONSORSHIP |
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| 45 | + | English and Bacon, Herod, Amabile, Bird, Boesenecker, Brown, deGruy Kennedy, Duran, |
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| 46 | + | Epps, Froelich, Hamrick, Hernandez, Jodeh, Joseph, Kipp, Lieder, Lindsay, Lukens, Mabrey, |
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| 47 | + | Marvin, McCluskie, McCormick, Ortiz, Ricks, Rutinel, Sirota, Story, Valdez, Vigil, |
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| 48 | + | Weissman, Willford, Woodrow, Young |
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| 49 | + | Shading denotes HOUSE amendment. Double underlining denotes SENATE amendment. |
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| 50 | + | Capital letters or bold & italic numbers indicate new material to be added to existing law. |
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| 51 | + | Dashes through the words or numbers indicate deletions from existing law. requires the department, subject to available appropriations, to contract |
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| 52 | + | with one or more community-based nonprofit organizations (outreach |
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| 53 | + | organizations) to provide outreach and support services in the community |
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| 54 | + | to individuals living with sickle cell disease and their families. |
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| 55 | + | The department shall contract with a third-party entity |
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| 56 | + | (administrator) to solicit applicants and administer the outreach program. |
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| 57 | + | On or before January 1, 2025, the department shall select one or more |
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| 58 | + | outreach organizations to implement the outreach program and shall give |
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| 59 | + | priority to community organizations with experience in providing services |
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| 60 | + | and support to the sickle cell community and that meet other criteria in |
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| 61 | + | the bill. |
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| 62 | + | The outreach program may include informal counseling and health |
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| 63 | + | guidance, direction and support to individuals and their families in |
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| 64 | + | locating and accessing services in the community, outreach concerning |
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| 65 | + | activities and programs available to individuals and families living with |
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| 66 | + | sickle cell disease, peer support and referrals, advocacy regarding the |
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| 67 | + | interests of the sickle cell disease community, referrals for screening, and |
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| 68 | + | other services and support identified by the department. |
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| 69 | + | The department shall approve the services provided through a |
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| 70 | + | contract and may consult with the university of Colorado school of |
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| 71 | + | medicine's sickle-cell anemia treatment and research center to identify |
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| 72 | + | needed services and supports. |
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| 73 | + | Prior to the expiration of a contract, the outreach organization, in |
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| 74 | + | conjunction with the administrator, shall prepare and submit a written |
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| 75 | + | report to the department describing the impact of the outreach program |
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| 76 | + | provided under the contract, and the department shall provide the report |
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| 77 | + | to certain committees of the general assembly. |
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| 78 | + | The bill repeals the outreach program after 5 years. |
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| 79 | + | Be it enacted by the General Assembly of the State of Colorado:1 |
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| 80 | + | SECTION 1. In Colorado Revised Statutes, add 25-1.5-121 as2 |
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| 81 | + | follows:3 |
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| 82 | + | 25-1.5-121. Arie P. Taylor sickle cell disease outreach program4 |
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| 83 | + | - contracts - administration - report - legislative declaration -5 |
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| 84 | + | definitions - repeal. (1) T |
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| 85 | + | HE GENERAL ASSEMBLY FINDS AND DECLARES6 |
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| 86 | + | THAT:7 |
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| 87 | + | (a) S |
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| 88 | + | ICKLE-CELL ANEMIA IS A GENETIC DISORDER OF THE8 |
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| 89 | + | HEMOGLOBIN IN RED BLOOD CELLS THAT CAUSES RED BLOOD CELLS THAT9 |
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| 90 | + | 042-2- CARRY OXYGEN TO STICK TOGETHER AFTER THE OXYGEN IS RELEASED ,1 |
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| 91 | + | CAUSING BLOCKAGES IN THE SMALL BLOOD VESSELS ;2 |
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| 92 | + | (b) T |
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| 93 | + | HE MAIN SYMPTOMS OF SICKLE -CELL ANEMIA ARE ANEMIA3 |
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| 94 | + | AND EPISODES OF SEVERE PAIN CAUSED BY THE BLOCKAGES IN THE SMALL4 |
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| 95 | + | BLOOD VESSELS; OVER TIME, PEOPLE WITH SICKLE-CELL ANEMIA ARE5 |
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| 96 | + | INCREASINGLY AT RISK OF OTHER HEALTH COMPLICATIONS , AND THE6 |
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| 97 | + | DISORDER DAMAGES THEIR ORGANS ;7 |
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| 98 | + | (c) A |
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| 99 | + | CCORDING TO THE 2022-23 "COLORADO SICKLE CELL STATE8 |
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| 100 | + | A |
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| 101 | + | CTION PLAN" PREPARED BY THE COLORADO SICKLE CELL TREATMENT9 |
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| 102 | + | AND RESEARCH CENTER AT THE UNIVERSITY OF COLORADO SCHOOL OF10 |
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| 103 | + | MEDICINE, APPROXIMATELY FOUR HUNDRED FIFTY PEOPLE IN COLORADO11 |
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| 104 | + | ARE LIVING WITH SICKLE-CELL ANEMIA, ALTHOUGH THIS NUMBER LIKELY12 |
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| 105 | + | UNDERCOUNTS THE POPULATION LIVING WITH SICKLE CELL DISEASE ;13 |
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| 106 | + | (d) D |
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| 107 | + | UE TO THE EFFECTS OF SICKLE CELL DISEASE , INCLUDING14 |
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| 108 | + | EPISODES OF DEBILITATING PAIN , MANY INDIVIDUALS LIVING WITH15 |
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| 109 | + | SICKLE-CELL ANEMIA AND THEIR FAMILIES NEED SERVICES AND SUPPORT16 |
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| 110 | + | IN THE COMMUNITY TO MANAGE THEIR HEALTH CONDITION AND DAILY17 |
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| 111 | + | LIVES;18 |
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| 112 | + | (e) A |
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| 113 | + | RIE PARKS TAYLOR WAS THE FIRST AFRICAN AMERICAN19 |
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| 114 | + | WOMAN TO SERVE AS A WOMEN IN THE AIR FORCE, "WAF", CLASSROOM20 |
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| 115 | + | INSTRUCTOR AND OFFICER; TO BE ELECTED TO SERVE IN THE HOUSE OF21 |
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| 116 | + | REPRESENTATIVES OF THE COLORADO GENERAL ASSEMBLY ; TO SERVE AS22 |
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| 117 | + | THE CLERK AND RECORDER FOR THE CITY AND COUNTY OF DENVER OR23 |
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| 118 | + | ANY COUNTY IN COLORADO; AND TO SERVE AS THE CHIEF CLERK OF THE24 |
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| 119 | + | D |
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| 120 | + | ENVER ELECTION COMMISSION ;25 |
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| 121 | + | (f) P |
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| 122 | + | ASSIONATE ABOUT THE CONCERNS OF INDIVIDUALS LIVING26 |
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| 123 | + | WITH SICKLE-CELL ANEMIA, DURING HER TIME IN THE GENERAL ASSEMBLY27 |
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| 124 | + | 042 |
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| 125 | + | -3- REPRESENTATIVE TAYLOR SPONSORED LEGISLATION THAT CREATED THE1 |
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| 126 | + | SICKLE-CELL ANEMIA TREATMENT AND RESEARCH CENTER AT THE2 |
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| 127 | + | UNIVERSITY OF COLORADO SCHOOL OF MEDICINE , WHICH PROVIDES3 |
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| 128 | + | SUPPORT AND TREATMENT FOR INDIVIDUALS WITH SICKLE CELL DISEASE4 |
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| 129 | + | AND CONDUCTS RESEARCH RELATING TO SICKLE CELL DISEASE ; AND5 |
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| 130 | + | (g) C |
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| 131 | + | REATING AN OUTREACH PROGRAM BY PARTNERING WITH ONE6 |
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| 132 | + | OR MORE COMMUNITY -BASED NONPROFIT ORGANIZATIONS TO ENHANCE7 |
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| 133 | + | SERVICES AND SUPPORT IN THE COMMUNITY FOR INDIVI DUALS WITH SICKLE8 |
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| 134 | + | CELL DISEASE AND THEIR FAMILIES WILL HELP ENSURE A BETTER QUALITY9 |
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| 135 | + | OF LIFE FOR THESE COLORADANS.10 |
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| 136 | + | (2) A |
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| 137 | + | S USED IN THIS SECTION, UNLESS THE CONTEXT OTHERWISE11 |
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| 138 | + | REQUIRES, "OUTREACH PROGRAM " MEANS THE ARIE P. TAYLOR SICKLE |
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| 139 | + | 12 |
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| 140 | + | CELL DISEASE OUTREACH PROGRAM CREATED IN SUBSECTION (3) OF THIS13 |
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| 141 | + | SECTION.14 |
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| 142 | + | (3) THERE IS CREATED IN THE DEPARTMENT THE ARIE P.15 |
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| 143 | + | T |
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| 144 | + | AYLOR SICKLE CELL DISEASE OUTREACH PROGRAM . THE PURPOSE OF THE16 |
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| 145 | + | OUTREACH PROGRAM IS TO PROVIDE SERVICES AND SUPPORT IN THE17 |
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| 146 | + | COMMUNITY TO INDIVIDUALS LIVING WITH SICKLE CELL DISEASE AND18 |
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| 147 | + | THEIR FAMILIES.19 |
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17 | | - | Be it enacted by the General Assembly of the State of Colorado: |
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18 | | - | SECTION 1. In Colorado Revised Statutes, add 25-1.5-121 as |
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19 | | - | follows: |
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20 | | - | 25-1.5-121. Arie P. Taylor sickle cell disease outreach program |
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21 | | - | - contracts - administration - report - legislative declaration - |
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22 | | - | definitions - repeal. (1) T |
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23 | | - | HE GENERAL ASSEMBLY FINDS AND DECLARES |
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24 | | - | NOTE: This bill has been prepared for the signatures of the appropriate legislative |
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25 | | - | officers and the Governor. To determine whether the Governor has signed the bill |
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26 | | - | or taken other action on it, please consult the legislative status sheet, the legislative |
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27 | | - | history, or the Session Laws. |
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28 | | - | ________ |
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29 | | - | Capital letters or bold & italic numbers indicate new material added to existing law; dashes |
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30 | | - | through words or numbers indicate deletions from existing law and such material is not part of |
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31 | | - | the act. THAT: |
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32 | | - | (a) S |
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33 | | - | ICKLE-CELL ANEMIA IS A GENETIC DISORDER OF THE |
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34 | | - | HEMOGLOBIN IN RED BLOOD CELLS THAT CAUSES RED BLOOD CELLS THAT |
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35 | | - | CARRY OXYGEN TO STICK TOGETHER AFTER THE OXYGEN IS RELEASED |
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36 | | - | , |
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37 | | - | CAUSING BLOCKAGES IN THE SMALL BLOOD VESSELS ; |
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38 | | - | (b) T |
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39 | | - | HE MAIN SYMPTOMS OF SICKLE-CELL ANEMIA ARE ANEMIA AND |
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40 | | - | EPISODES OF SEVERE PAIN CAUSED BY THE BLOCKAGES IN THE SMALL BLOOD |
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41 | | - | VESSELS |
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42 | | - | ; OVER TIME, PEOPLE WITH SICKLE-CELL ANEMIA ARE INCREASINGLY |
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43 | | - | AT RISK OF OTHER HEALTH COMPLICATIONS |
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44 | | - | , AND THE DISORDER DAMAGES |
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45 | | - | THEIR ORGANS |
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46 | | - | ; |
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47 | | - | (c) A |
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48 | | - | CCORDING TO THE 2022-23 "COLORADO SICKLE CELL STATE |
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49 | | - | ACTION PLAN" PREPARED BY THE COLORADO SICKLE CELL TREATMENT AND |
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50 | | - | RESEARCH CENTER AT THE UNIVERSITY OF |
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51 | | - | COLORADO SCHOOL OF MEDICINE, |
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52 | | - | APPROXIMATELY FOUR HUNDRED FIFTY PEOPLE IN COLORADO ARE LIVING |
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53 | | - | WITH SICKLE |
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54 | | - | -CELL ANEMIA, ALTHOUGH THIS NUMBER LIKELY UNDERCOUNTS |
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55 | | - | THE POPULATION LIVING WITH SICKLE CELL DISEASE |
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56 | | - | ; |
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57 | | - | (d) D |
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58 | | - | UE TO THE EFFECTS OF SICKLE CELL DISEASE , INCLUDING |
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59 | | - | EPISODES OF DEBILITATING PAIN |
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60 | | - | , MANY INDIVIDUALS LIVING WITH |
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61 | | - | SICKLE |
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62 | | - | -CELL ANEMIA AND THEIR FAMILIES NEED SERVICES AND SUPPORT IN |
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63 | | - | THE COMMUNITY TO MANAGE THEIR HEALTH CONDITION AND DAILY LIVES |
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64 | | - | ; |
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65 | | - | (e) A |
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66 | | - | RIE PARKS TAYLOR WAS THE FIRST AFRICAN AMERICAN |
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67 | | - | WOMAN TO SERVE AS A |
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68 | | - | WOMEN IN THE AIR FORCE, "WAF", CLASSROOM |
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69 | | - | INSTRUCTOR AND OFFICER |
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70 | | - | ; TO BE ELECTED TO SERVE IN THE HOUSE OF |
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71 | | - | REPRESENTATIVES OF THE |
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72 | | - | COLORADO GENERAL ASSEMBLY ; TO SERVE AS |
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73 | | - | THE CLERK AND RECORDER FOR THE CITY AND COUNTY OF |
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74 | | - | DENVER OR ANY |
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75 | | - | COUNTY IN |
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76 | | - | COLORADO; AND TO SERVE AS THE CHIEF CLERK OF THE DENVER |
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77 | | - | ELECTION COMMISSION |
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78 | | - | ; |
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79 | | - | (f) P |
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80 | | - | ASSIONATE ABOUT THE CONCERNS OF INDIVIDUALS LIVING WITH |
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81 | | - | SICKLE |
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82 | | - | -CELL ANEMIA, DURING HER TIME IN THE GENERAL ASSEMBLY |
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83 | | - | REPRESENTATIVE |
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84 | | - | TAYLOR SPONSORED LEGISLATION THAT CREATED THE |
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85 | | - | SICKLE |
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86 | | - | -CELL ANEMIA TREATMENT AND RESEARCH CENTER AT THE |
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87 | | - | UNIVERSITY OF |
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88 | | - | COLORADO SCHOOL OF MEDICINE, WHICH PROVIDES SUPPORT |
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89 | | - | AND TREATMENT FOR INDIVIDUALS WITH SICKLE CELL DISEASE AND |
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90 | | - | CONDUCTS RESEARCH RELATING TO SICKLE CELL DISEASE |
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91 | | - | ; AND |
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92 | | - | PAGE 2-SENATE BILL 24-042 (g) CREATING AN OUTREACH PROGRAM BY PARTNERING WITH ONE |
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93 | | - | OR MORE COMMUNITY |
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94 | | - | -BASED NONPROFIT ORGANIZATIONS TO ENHANCE |
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95 | | - | SERVICES AND SUPPORT IN THE COMMUNITY FOR INDIVIDUALS WITH SICKLE |
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96 | | - | CELL DISEASE AND THEIR FAMILIES WILL HELP ENSURE A BETTER QUALITY OF |
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97 | | - | LIFE FOR THESE |
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98 | | - | COLORADANS. |
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99 | | - | (2) A |
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100 | | - | S USED IN THIS SECTION, UNLESS THE CONTEXT OTHERWISE |
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101 | | - | REQUIRES |
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102 | | - | , "OUTREACH PROGRAM" MEANS THE ARIE P. TAYLOR SICKLE CELL |
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103 | | - | DISEASE OUTREACH PROGRAM CREATED IN SUBSECTION |
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104 | | - | (3) OF THIS SECTION. |
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105 | | - | (3) T |
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106 | | - | HERE IS CREATED IN THE DEPARTMENT THE ARIE P. TAYLOR |
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107 | | - | SICKLE CELL DISEASE OUTREACH PROGRAM |
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108 | | - | . THE PURPOSE OF THE OUTREACH |
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109 | | - | PROGRAM IS TO PROVIDE SERVICES AND SUPPORT IN THE COMMUNITY TO |
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110 | | - | INDIVIDUALS LIVING WITH SICKLE CELL DISEASE AND THEIR FAMILIES |
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111 | | - | . |
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| 149 | + | 20 |
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260 | | - | $200,000 is appropriated to the department of public health and |
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261 | | - | environment for use by the division of administration and support. This |
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262 | | - | appropriation is from the general fund and is based on an assumption that |
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263 | | - | the division will require an additional 0.1 FTE. To implement this act, the |
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264 | | - | division may use this appropriation for the Arie P. Taylor sickle cell disease |
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265 | | - | outreach program. |
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266 | | - | SECTION 3. Safety clause. The general assembly finds, |
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267 | | - | determines, and declares that this act is necessary for the immediate |
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268 | | - | preservation of the public peace, health, or safety or for appropriations for |
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269 | | - | PAGE 6-SENATE BILL 24-042 the support and maintenance of the departments of the state and state |
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270 | | - | institutions. |
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271 | | - | ____________________________ ____________________________ |
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272 | | - | Steve Fenberg Julie McCluskie |
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273 | | - | PRESIDENT OF SPEAKER OF THE HOUSE |
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274 | | - | THE SENATE OF REPRESENTATIVES |
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275 | | - | ____________________________ ____________________________ |
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276 | | - | Cindi L. Markwell Robin Jones |
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277 | | - | SECRETARY OF CHIEF CLERK OF THE HOUSE |
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278 | | - | THE SENATE OF REPRESENTATIVES |
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279 | | - | APPROVED________________________________________ |
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280 | | - | (Date and Time) |
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281 | | - | _________________________________________ |
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282 | | - | Jared S. Polis |
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283 | | - | GOVERNOR OF THE STATE OF COLORADO |
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284 | | - | PAGE 7-SENATE BILL 24-042 |
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| 276 | + | 3 |
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| 277 | + | $200,000 is appropriated to the department of public health and4 |
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| 278 | + | environment for use by the division of administration and support. This5 |
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| 279 | + | appropriation is from the general fund and is based on an assumption that6 |
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| 280 | + | the division will require an additional 0.1 FTE. To implement this act, the7 |
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| 281 | + | division may use this appropriation for the Arie P. Taylor sickle cell8 |
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| 282 | + | disease outreach program.9 |
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| 283 | + | SECTION 3. Safety clause. The general assembly finds,10 |
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| 284 | + | determines, and declares that this act is necessary for the immediate11 |
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| 285 | + | preservation of the public peace, health, or safety or for appropriations for12 |
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| 286 | + | the support and maintenance of the departments of the state and state13 |
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| 287 | + | institutions.14 |
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| 288 | + | 042 |
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| 289 | + | -8- |
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