CS/HB 1089 2025
CODING: Words stricken are deletions; words underlined are additions.
hb1089-01-c1
Page 1 of 2
F L O R I D A H O U S E O F R E P R E S E N T A T I V E S
A bill to be entitled 1
An act relating to newborn screenings; amending s. 2
383.14, F.S.; beginning on a specified date, subject 3
to appropriation, requiring that the Department of 4
Health's rules require that newborns be screened for 5
Duchenne muscular dystrophy at the appropriate age; 6
providing an effective date. 7
8
Be It Enacted by the Legislature of the State of Florida: 9
10
Section 1. Paragraph (a) of subsection (2) of section 11
383.14, Florida Statutes, is amended to read: 12
383.14 Screening for metabolic disorders, other hereditary 13
and congenital disorders, and environmental risk factors. — 14
(2) RULES.— 15
(a) After consultation with the Genetics and Newborn 16
Screening Advisory Co uncil, the department shall adopt and 17
enforce rules requiring that every newborn in this state shall: 18
1. Before becoming 1 week of age, have a blood specimen 19
collected for newborn screenings; 20
2. Be tested for any condition included on the federal 21
Recommended Uniform Screening Panel which the council advises 22
the department should be included under the state's screening 23
program. After the council recommends that a condition be 24
included, the department shall submit a legislative budget 25
CS/HB 1089 2025
CODING: Words stricken are deletions; words underlined are additions.
hb1089-01-c1
Page 2 of 2
F L O R I D A H O U S E O F R E P R E S E N T A T I V E S
request to seek an a ppropriation to add testing of the condition 26
to the newborn screening program. The department shall expand 27
statewide screening of newborns to include screening for such 28
conditions within 18 months after the council renders such 29
advice, if a test approved b y the United States Food and Drug 30
Administration or a test offered by an alternative vendor is 31
available. If such a test is not available within 18 months 32
after the council makes its recommendation, the department shall 33
implement such screening as soon as a test offered by the United 34
States Food and Drug Administration or by an alternative vendor 35
is available; and 36
3. At the appropriate age, be tested for such other 37
metabolic diseases and hereditary or congenital disorders as the 38
department may deem necess ary. Subject to legislative 39
appropriation, beginning January 1, 2027, the rules must require 40
that newborns be screened for Duchenne muscular dystrophy at the 41
appropriate age. 42
Section 2. This act shall take effect July 1, 2025. 43