Illinois 2023-2024 Regular Session

Illinois Senate Bill SB3499 Compare Versions

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11 103RD GENERAL ASSEMBLY State of Illinois 2023 and 2024 SB3499 Introduced 2/9/2024, by Sen. Linda Holmes SYNOPSIS AS INTRODUCED: New Act Creates the End-of-Life Options for Terminally Ill Patients Act. Authorizes a qualified patient with a terminal disease to request that a physician prescribe aid-in-dying medication that will allow the patient to end the patient's life in a peaceful manner. Contains provisions concerning: the procedures and forms to be used to request aid-in-dying medication; the responsibilities of attending and consulting physicians; the referral of patients for determinations of mental capacity; the residency of qualified patients; the safe disposal of unused medications; the obligations of health care entities; the immunities granted for actions taken in good faith reliance upon the Act; the reporting requirements of physicians; the effect of the Act on the construction of wills, contracts, and statutes; the effect of the Act on insurance policies and annuities; the procedures for the completion of death certificates; the liabilities and penalties provided by the Act; the construction of the Act; the definitions of terms used in the Act; and other matters. Effective 6 months after becoming law. LRB103 38464 RPS 68600 b A BILL FOR 103RD GENERAL ASSEMBLY State of Illinois 2023 and 2024 SB3499 Introduced 2/9/2024, by Sen. Linda Holmes SYNOPSIS AS INTRODUCED: New Act New Act Creates the End-of-Life Options for Terminally Ill Patients Act. Authorizes a qualified patient with a terminal disease to request that a physician prescribe aid-in-dying medication that will allow the patient to end the patient's life in a peaceful manner. Contains provisions concerning: the procedures and forms to be used to request aid-in-dying medication; the responsibilities of attending and consulting physicians; the referral of patients for determinations of mental capacity; the residency of qualified patients; the safe disposal of unused medications; the obligations of health care entities; the immunities granted for actions taken in good faith reliance upon the Act; the reporting requirements of physicians; the effect of the Act on the construction of wills, contracts, and statutes; the effect of the Act on insurance policies and annuities; the procedures for the completion of death certificates; the liabilities and penalties provided by the Act; the construction of the Act; the definitions of terms used in the Act; and other matters. Effective 6 months after becoming law. LRB103 38464 RPS 68600 b LRB103 38464 RPS 68600 b A BILL FOR
22 103RD GENERAL ASSEMBLY State of Illinois 2023 and 2024 SB3499 Introduced 2/9/2024, by Sen. Linda Holmes SYNOPSIS AS INTRODUCED:
33 New Act New Act
44 New Act
55 Creates the End-of-Life Options for Terminally Ill Patients Act. Authorizes a qualified patient with a terminal disease to request that a physician prescribe aid-in-dying medication that will allow the patient to end the patient's life in a peaceful manner. Contains provisions concerning: the procedures and forms to be used to request aid-in-dying medication; the responsibilities of attending and consulting physicians; the referral of patients for determinations of mental capacity; the residency of qualified patients; the safe disposal of unused medications; the obligations of health care entities; the immunities granted for actions taken in good faith reliance upon the Act; the reporting requirements of physicians; the effect of the Act on the construction of wills, contracts, and statutes; the effect of the Act on insurance policies and annuities; the procedures for the completion of death certificates; the liabilities and penalties provided by the Act; the construction of the Act; the definitions of terms used in the Act; and other matters. Effective 6 months after becoming law.
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1111 1 AN ACT concerning health.
1212 2 Be it enacted by the People of the State of Illinois,
1313 3 represented in the General Assembly:
1414 4 Section 1. Short title. This Act may be cited as the
1515 5 End-of-Life Options for Terminally Ill Patients Act.
1616 6 Section 5. Definitions. As used in this Act:
1717 7 "Adult" means an individual 18 years of age or older.
1818 8 "Advanced practice registered nurse" means an advanced
1919 9 practice registered nurse licensed under the Nurse Practice
2020 10 Act who is certified as a psychiatric mental health
2121 11 practitioner.
2222 12 "Aid in dying" means an end-of-life care option that
2323 13 allows a qualified patient to obtain a prescription for
2424 14 medication pursuant to this Act.
2525 15 "Attending physician" means the physician who has primary
2626 16 responsibility for the care of the patient and treatment of
2727 17 the patient's terminal disease.
2828 18 "Clinical psychologist" means a psychologist licensed
2929 19 under the Clinical Psychologist Licensing Act.
3030 20 "Clinical social worker" means a person licensed under the
3131 21 Clinical Social Work and Social Work Practice Act.
3232 22 "Coercion or undue influence" means the willful attempt,
3333 23 whether by deception, intimidation, or any other means to:
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3737 103RD GENERAL ASSEMBLY State of Illinois 2023 and 2024 SB3499 Introduced 2/9/2024, by Sen. Linda Holmes SYNOPSIS AS INTRODUCED:
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4040 Creates the End-of-Life Options for Terminally Ill Patients Act. Authorizes a qualified patient with a terminal disease to request that a physician prescribe aid-in-dying medication that will allow the patient to end the patient's life in a peaceful manner. Contains provisions concerning: the procedures and forms to be used to request aid-in-dying medication; the responsibilities of attending and consulting physicians; the referral of patients for determinations of mental capacity; the residency of qualified patients; the safe disposal of unused medications; the obligations of health care entities; the immunities granted for actions taken in good faith reliance upon the Act; the reporting requirements of physicians; the effect of the Act on the construction of wills, contracts, and statutes; the effect of the Act on insurance policies and annuities; the procedures for the completion of death certificates; the liabilities and penalties provided by the Act; the construction of the Act; the definitions of terms used in the Act; and other matters. Effective 6 months after becoming law.
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6868 1 (1) cause a patient to request, obtain, or
6969 2 self-administer medication pursuant to this Act with
7070 3 intent to cause the death of the patient; or
7171 4 (2) prevent a qualified patient, in a manner that
7272 5 conflicts with the Health Care Right of Conscience Act,
7373 6 from obtaining or self-administering medication pursuant
7474 7 to this Act.
7575 8 "Consulting physician" means a physician who is qualified
7676 9 by specialty or experience to make a professional diagnosis
7777 10 and prognosis regarding the patient's disease.
7878 11 "Department" means the Department of Public Health.
7979 12 "Health care entity" means a hospital or hospital
8080 13 affiliate, nursing home, hospice or any other facility
8181 14 licensed under any of the following Acts: the Ambulatory
8282 15 Surgical Treatment Center Act; the Home Health, Home Services,
8383 16 and Home Nursing Agency Licensing Act; the Hospice Program
8484 17 Licensing Act; the Hospital Licensing Act; the Nursing Home
8585 18 Care Act; or the University of Illinois Hospital Act. "Health
8686 19 care entity" does not include a physician.
8787 20 "Health care professional" means a physician, pharmacist,
8888 21 or licensed mental health professional.
8989 22 "Informed decision" means a decision by a patient with
9090 23 mental capacity and a terminal disease to request and obtain a
9191 24 prescription for medication pursuant to this Act, that the
9292 25 qualified patient may self-administer to bring about a
9393 26 peaceful death, after being fully informed by the attending
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104104 1 physician and consulting physician of:
105105 2 (1) the patient's diagnosis and prognosis;
106106 3 (2) the potential risks and benefits associated with
107107 4 taking the medication to be prescribed;
108108 5 (3) the probable result of taking the medication to be
109109 6 prescribed;
110110 7 (4) the feasible end-of-life care and treatment
111111 8 options for the patient's terminal disease, including, but
112112 9 not limited to, comfort care, palliative care, hospice
113113 10 care, and pain control, and the risks and benefits of
114114 11 each;
115115 12 (5) the patient's right to withdraw a request pursuant
116116 13 this Act, or consent for any other treatment, at any time;
117117 14 and
118118 15 (6) the patient's right to choose not to obtain the
119119 16 drug or to choose to obtain the drug but not to ingest it.
120120 17 "Licensed mental health care professional" means a
121121 18 psychiatrist, clinical psychologist, clinical social worker,
122122 19 or advanced practice registered nurse.
123123 20 "Mental capacity" means that, in the opinion of the
124124 21 attending physician or the consulting physician or, if the
125125 22 opinion of a licensed mental health care professional is
126126 23 required under Section 40, the licensed mental health care
127127 24 professional, the patient requesting medication pursuant to
128128 25 this Act has the ability to make and communicate an informed
129129 26 decision.
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140140 1 "Oral request" means an affirmative statement that
141141 2 demonstrates a contemporaneous affirmatively stated desire by
142142 3 the patient seeking aid in dying.
143143 4 "Pharmacist" means an individual licensed to engage in the
144144 5 practice of pharmacy under the Pharmacy Practice Act.
145145 6 "Physician" means a person licensed to practice medicine
146146 7 in all of its branches under the Medical Practice Act of 1987.
147147 8 "Psychiatrist" means a physician who has successfully
148148 9 completed a residency program in psychiatry accredited by
149149 10 either the Accreditation Council for Graduate Medical
150150 11 Education or the American Osteopathic Association.
151151 12 "Qualified patient" means an adult Illinois resident with
152152 13 the mental capacity to make medical decisions who has
153153 14 satisfied the requirements of this Act in order to obtain a
154154 15 prescription for medication to bring about a peaceful death.
155155 16 No person will be considered a "qualified patient" under this
156156 17 Act solely because of advanced age, disability, or a mental
157157 18 health condition, including depression.
158158 19 "Self-administer" means an affirmative, conscious,
159159 20 voluntary action, performed by a qualified patient, to ingest
160160 21 medication prescribed pursuant to this Act to bring about the
161161 22 patient's peaceful death. Self-administration does not include
162162 23 administration by parenteral injection or infusion.
163163 24 "Terminal disease" means an incurable and irreversible
164164 25 disease that will, within reasonable medical judgment, result
165165 26 in death within 6 months. The existence of a terminal disease,
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176176 1 as determined after in-person examination by the patient's
177177 2 physician and concurrence by another physician, shall be
178178 3 documented in writing in the patient's medical record. A
179179 4 diagnosis of a major depressive disorder, as defined in the
180180 5 current edition of the Diagnostic and Statistical Manual of
181181 6 Mental Disorders, alone does not qualify as a terminal
182182 7 disease.
183183 8 Section 10. Informed consent.
184184 9 (a) Nothing in this Act may be construed to limit the
185185 10 amount of information provided to a patient to ensure the
186186 11 patient can make a fully informed health care decision.
187187 12 (b) An attending physician must provide sufficient
188188 13 information to a patient regarding all appropriate end-of-life
189189 14 care options, including comfort care, hospice care, palliative
190190 15 care, and pain control, as well as the foreseeable risks and
191191 16 benefits of each, so that the patient can make a voluntary and
192192 17 affirmative decision regarding the patient's end-of-life care.
193193 18 (c) If a patient requests for the patient's medical
194194 19 records to be transmitted to an alternative physician, the
195195 20 patient's medical records shall be transmitted without undue
196196 21 delay.
197197 22 Section 15. Standard of care. Nothing contained in this
198198 23 Act shall be interpreted to lower the applicable standard of
199199 24 care for the health care professionals participating under
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210210 1 this Act.
211211 2 Section 20. Qualification.
212212 3 (a) A qualified patient with a terminal disease may
213213 4 request a prescription for medication under this Act in the
214214 5 following manner:
215215 6 (1) The qualified patient may orally request a
216216 7 prescription for medication under this Act from the
217217 8 patient's attending physician.
218218 9 (2) The oral request from the qualified patient shall
219219 10 be documented by the attending physician.
220220 11 (3) The qualified patient shall provide a written
221221 12 request in accordance with this Act to the patient's
222222 13 attending physician after making the initial oral request.
223223 14 (4) The qualified patient shall repeat the oral
224224 15 request to the patient's attending physician no less than
225225 16 5 days after making the initial oral request.
226226 17 (b) The attending and consulting physicians of a qualified
227227 18 patient shall have met all the requirements of Sections 30 and
228228 19 35.
229229 20 (c) Notwithstanding subsection (a), if the individual's
230230 21 attending physician has medically determined that the
231231 22 individual will, within reasonable medical judgment, die
232232 23 within 5 days after making the initial oral request under this
233233 24 Section, the individual may satisfy the requirements of this
234234 25 Section by providing a written request and reiterating the
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245245 1 oral request to the attending physician at any time after
246246 2 making the initial oral request.
247247 3 (d) At the time the patient makes the second oral request,
248248 4 the attending physician shall offer the patient an opportunity
249249 5 to rescind the request.
250250 6 (e) Oral and written requests for aid in dying may be made
251251 7 only by the patient and shall not be made by the patient's
252252 8 surrogate decision-maker, health care proxy, health care
253253 9 agent, attorney-in-fact for health care, nor via advance
254254 10 health care directive.
255255 11 (f) If a requesting patient decides to transfer care to an
256256 12 alternative physician, the records custodian shall, upon
257257 13 written request, transmit, without undue delay, the patient's
258258 14 medical records, including written documentation of the dates
259259 15 of the patient's requests concerning aid in dying.
260260 16 (g) A transfer of care or medical records does not toll or
261261 17 restart any waiting period.
262262 18 Section 25. Form of written request.
263263 19 (a) A written request for medication under this Act shall
264264 20 be in substantially the form below, signed and dated by the
265265 21 requesting patient, and witnessed in the presence of the
266266 22 patient by at least 2 witnesses who attest that to the best of
267267 23 their knowledge and belief the patient has mental capacity, is
268268 24 acting voluntarily, and is not being coerced or unduly
269269 25 influenced to sign the request.
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280280 1 (b) One of the witnesses required under this Section must
281281 2 be a person who is not:
282282 3 (1) a relative of the patient by blood, marriage,
283283 4 civil union, registered domestic partnership, or adoption;
284284 5 (2) a person who, at the time the request is signed,
285285 6 would be entitled to any portion of the estate of the
286286 7 qualified patient upon death, under any will or by
287287 8 operation of law; or
288288 9 (3) an owner, operator, or employee of a health care
289289 10 entity where the qualified patient is receiving medical
290290 11 treatment or is a resident.
291291 12 (c) The patient's attending physician at the time the
292292 13 request is signed shall not be a witness.
293293 14 (d) If a person uses an interpreter, the interpreter shall
294294 15 not be a witness.
295295 16 (e) The written request for medication under this Act
296296 17 shall be substantially as follows:
297297 18 "Request for Medication to End My Life in a Peaceful Manner
298298 19 I, ............... (insert name of patient), am an adult
299299 20 of sound mind, and a resident of Illinois. I have been
300300 21 diagnosed with ..............., (insert name of condition) and
301301 22 given a terminal disease prognosis of 6 months or less to live
302302 23 by my attending physician.
303303 24 I affirm that my terminal disease diagnosis was given or
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314314 1 confirmed during at least one in-person visit to a health care
315315 2 professional.
316316 3 I have been fully informed of the feasible alternatives
317317 4 and concurrent or additional treatment opportunities for my
318318 5 terminal disease, including, but not limited to, comfort care,
319319 6 palliative care, hospice care, or pain control, as well as the
320320 7 potential risks and benefits of each. I have been offered,
321321 8 have received, or have been offered and received resources or
322322 9 referrals to pursue these alternatives and concurrent or
323323 10 additional treatment opportunities for my terminal disease.
324324 11 I have been fully informed of the nature of the medication
325325 12 to be prescribed, including the risks and benefits, and I
326326 13 understand that the likely outcome of self-administering the
327327 14 medication is death.
328328 15 I understand that I can rescind this request at any time,
329329 16 that I am under no obligation to fill the prescription once
330330 17 written, and that I have no duty to self-administer the
331331 18 medication if I obtain it.
332332 19 I request that my attending physician furnish a
333333 20 prescription for medication that will end my life if I choose
334334 21 to self-administer it, and I authorize my attending physician
335335 22 to transmit the prescription to a pharmacist to dispense the
336336 23 medication at a time of my choosing.
337337 24 I make this request voluntarily, free from coercion or
338338 25 undue influence.
339339 26 Dated: ................
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350350 1 Signed..................................
351351 2 (patient)
352352 3 Dated: ................
353353 4 Signed...............................
354354 5 (witness #1)
355355 6 Dated: ................
356356 7 Signed..............................
357357 8 (witness #2)"
358358 9 (f) The interpreter attachment for a written request for
359359 10 medication under this Act shall be substantially as follows:
360360 11 "Request for Medication to End My Life in a Peaceful Manner
361361 12 Interpreter Attachment
362362 13 I, ...............(insert name of interpreter), am fluent
363363 14 in English and ...............(insert language of patient,
364364 15 including sign language).
365365 16 On .......(insert date) at approximately .......(insert
366366 17 time), I read the "Request for Medication to End My Life in a
367367 18 Peaceful Manner" form to ...............(insert name of
368368 19 patient) in ...............(insert language of patient).
369369 20 ...............(insert name of patient) affirmed to me
370370 21 that they understand the content of this form, that they
371371 22 desire to sign this form under their own power and volition,
372372 23 and that they requested to sign the form after consultations
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389389 1 with an attending physician and a consulting physician.
390390 2 Under penalty of perjury, I declare that I am fluent in
391391 3 English and ...............(language of patient, including
392392 4 sign language) and that the contents of this form, to the best
393393 5 of my knowledge, are true and correct. Executed at
394394 6 ..................................(insert name of city,
395395 7 county, and state) on .......(date).
396396 8 Interpreter's signature: ....................................
397397 9 Interpreter's printed name: .................................
398398 10 Interpreter's address: ......................................".
399399 11 Section 30. Attending physician responsibilities.
400400 12 (a) Following the request of a patient for aid in dying,
401401 13 the attending physician shall conduct an evaluation of the
402402 14 patient and:
403403 15 (1) determine whether the patient has a terminal
404404 16 disease or has been diagnosed as having a terminal
405405 17 disease;
406406 18 (2) determine whether a patient has mental capacity;
407407 19 (3) confirm that the patient's request does not arise
408408 20 from coercion or undue influence;
409409 21 (4) inform the patient of:
410410 22 (A) the diagnosis;
411411 23 (B) the prognosis;
412412 24 (C) the potential risks, benefits, and probable
413413 25 result of self-administering the prescribed medication
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424424 1 to bring about a peaceful death;
425425 2 (D) the potential benefits and risks of feasible
426426 3 alternatives, including, but not limited to,
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428428 5 patient's terminal disease, comfort care, palliative
429429 6 care, hospice care, and pain control; and
430430 7 (E) the patient's right to rescind the request for
431431 8 medication pursuant to this Act at any time;
432432 9 (5) inform the patient that there is no obligation to
433433 10 fill the prescription nor an obligation to self-administer
434434 11 the medication, if it is obtained;
435435 12 (6) provide the patient with a referral for comfort
436436 13 care, palliative care, hospice care, pain control, or
437437 14 other end-of-life treatment options as requested by the
438438 15 patient and as clinically indicated;
439439 16 (7) refer the patient to a consulting physician for
440440 17 medical confirmation that the patient requesting
441441 18 medication pursuant to this Act:
442442 19 (A) has a terminal disease with a prognosis of 6
443443 20 months or less to live; and
444444 21 (B) has mental capacity.
445445 22 (8) include the consulting physician's written
446446 23 determination in the patient's medical record;
447447 24 (9) refer the patient to a licensed mental health
448448 25 professional in accordance with Section 40 if the
449449 26 attending physician observes signs that the individual may
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460460 1 not be capable of making an informed decision;
461461 2 (10) include the licensed mental health professional's
462462 3 written determination in the patient's medical record, if
463463 4 such determination was requested;
464464 5 (11) inform the patient of the benefits of notifying
465465 6 the next of kin of the patient's decision to request
466466 7 medication pursuant to this Act;
467467 8 (12) fulfill the medical record documentation
468468 9 requirements;
469469 10 (13) ensure that all steps are carried out in
470470 11 accordance with this Act before providing a prescription
471471 12 to a qualified patient for medication pursuant to this Act
472472 13 including:
473473 14 (A) confirming that the patient has made an
474474 15 informed decision to obtain a prescription for
475475 16 medication;
476476 17 (B) offering the patient an opportunity to rescind
477477 18 the request for medication; and
478478 19 (C) providing information to the patient on:
479479 20 (I) the recommended procedure for
480480 21 self-administering the medication to be
481481 22 prescribed;
482482 23 (II) the safekeeping and proper disposal of
483483 24 unused medication in accordance with State and
484484 25 federal law; and
485485 26 (III) the importance of having another person
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496496 1 present when the patient self-administers the
497497 2 medication to be prescribed;
498498 3 (D) not taking the aid-in-dying medication in a
499499 4 public place;
500500 5 (14) deliver, in accordance with State and federal
501501 6 law, the prescription personally, by mail, or through an
502502 7 authorized electronic transmission to a licensed
503503 8 pharmacist who will dispense the medication, including any
504504 9 ancillary medications, to the qualified patient, or to a
505505 10 person expressly designated by the qualified patient in
506506 11 person or with a signature required on delivery, by mail
507507 12 service, or by messenger service;
508508 13 (15) if authorized by the Drug Enforcement
509509 14 Administration, dispense the prescribed medication,
510510 15 including any ancillary medications, to the qualified
511511 16 patient or a person designated by the qualified patient;
512512 17 and
513513 18 (16) include, in the qualified patient's medical
514514 19 record, the patient's diagnosis and prognosis,
515515 20 determination of mental capacity, the date of each oral
516516 21 request, a copy of the written request, a notation that
517517 22 the requirements under this Section have been completed,
518518 23 and an identification of the medication and ancillary
519519 24 medications prescribed to the qualified patient pursuant
520520 25 to this Act.
521521 26 (b) Notwithstanding any other provision of law, the
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532532 1 attending physician may sign the patient's death certificate.
533533 2 Section 35. Consulting physician responsibilities. A
534534 3 consulting physician shall:
535535 4 (1) conduct an evaluation of the patient and review
536536 5 the patient's relevant medical records, including the
537537 6 evaluation pursuant to Section 40, if such evaluation was
538538 7 necessary;
539539 8 (2) confirm in writing to the attending physician that
540540 9 the patient:
541541 10 (A) has requested a prescription for aid-in-dying
542542 11 medication;
543543 12 (B) has a documented terminal disease;
544544 13 (C) has mental capacity or has provided
545545 14 documentation that the consulting health care
546546 15 professional has referred the individual for further
547547 16 evaluation in accordance with Section 40; and
548548 17 (D) is acting voluntarily, free from coercion or
549549 18 undue influence.
550550 19 Section 40. Referral for determination that the requesting
551551 20 patient has mental capacity.
552552 21 (a) If either the attending physician or the consulting
553553 22 physician has doubts whether the individual has mental
554554 23 capacity and if either one is unable to confirm that the
555555 24 individual is capable of making an informed decision, the
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566566 1 attending physician or consulting physician shall refer the
567567 2 patient to a licensed mental health professional for
568568 3 determination regarding mental capability.
569569 4 (b) The licensed mental health professional shall
570570 5 additionally determine whether the patient is suffering from a
571571 6 psychiatric or psychological disorder causing impaired
572572 7 judgment.
573573 8 (c) The licensed mental health professional who evaluates
574574 9 the patient under this Section shall submit to the requesting
575575 10 attending or consulting physician a written determination of
576576 11 whether the patient has mental capacity.
577577 12 (d) If the licensed mental health professional determines
578578 13 that the patient does not have mental capacity, or is
579579 14 suffering from a psychiatric or psychological disorder causing
580580 15 impaired judgment, the patient shall not be deemed a qualified
581581 16 patient and the attending physician shall not prescribe
582582 17 medication to the patient under this Act.
583583 18 Section 45. Residency requirement.
584584 19 (a) Only requests made by Illinois residents may be
585585 20 granted under this Act.
586586 21 (b) A patient is able to establish residency through any
587587 22 one or more of the following means:
588588 23 (1) possession of a driver's license or other
589589 24 identification issued by the Secretary of State or State
590590 25 of Illinois;
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601601 1 (2) registration to vote in Illinois;
602602 2 (3) evidence that the person owns, rents, or leases
603603 3 property in Illinois;
604604 4 (4) the location of any dwelling occupied by the
605605 5 person;
606606 6 (5) the place where any motor vehicle owned by the
607607 7 person is registered;
608608 8 (6) the residence address, not a post office box,
609609 9 shown on an income tax return filed for the year preceding
610610 10 the year in which the person initially makes an oral
611611 11 request under this Act;
612612 12 (7) the residence address, not a post office box, at
613613 13 which the person's mail is received;
614614 14 (8) the residence address, not a post office box,
615615 15 shown on any unexpired resident hunting or fishing or
616616 16 other licenses held by the person;
617617 17 (9) the residence address, not a post office box,
618618 18 shown on any driver's license held by the person;
619619 19 (10) the receipt of any public benefit conditioned
620620 20 upon residency; or
621621 21 (11) any other objective facts tending to indicate a
622622 22 person's place of residence is in Illinois.
623623 23 Section 50. Safe disposal of unused medications. A person
624624 24 who has custody or control of medication prescribed pursuant
625625 25 to this Act after the qualified patient's death shall dispose
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636636 1 of the medication by delivering it to the nearest qualified
637637 2 facility that properly disposes of controlled substances or,
638638 3 if none is available, by lawful means in accordance with
639639 4 applicable State and federal guidelines.
640640 5 Section 55. No duty to provide aid in dying.
641641 6 (a) A health care professional shall not be under any
642642 7 duty, by law or contract, to participate in the provision of
643643 8 aid-in-dying care to a patient as set forth in this Act.
644644 9 (b) A health care professional shall not be subject to
645645 10 civil or criminal liability for participating or refusing to
646646 11 participate in the provision of aid-in-dying care to a patient
647647 12 in good faith compliance with this Act.
648648 13 (c) A health care entity or licensing board shall not
649649 14 subject a health care professional to censure, discipline,
650650 15 suspension, loss of license, loss of privileges, loss of
651651 16 membership, or other penalty for participating or refusing to
652652 17 participate in accordance with this Act.
653653 18 (d) A health care professional may choose not to engage in
654654 19 aid-in-dying care.
655655 20 (e) Only willing health care professionals shall provide
656656 21 aid-in-dying care in accordance with this Act. If a health
657657 22 care professional is unable or unwilling to carry out a
658658 23 patient's request under this Act, and the patient transfers
659659 24 the patient's care to a new health care professional, the
660660 25 prior health care professional shall transmit, upon request, a
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671671 1 copy of the patient's relevant medical records to the new
672672 2 health care professional without undue delay.
673673 3 (f) A health care professional shall not engage in false,
674674 4 misleading, or deceptive practices relating to a willingness
675675 5 to qualify a patient or provide aid-in-dying care.
676676 6 Intentionally misleading a patient constitutes coercion.
677677 7 (g) The provisions of the Health Care Right of Conscience
678678 8 Act apply to this Act and are incorporated by reference.
679679 9 Section 60. Health care entity permissible prohibitions
680680 10 and duties.
681681 11 (a) A health care entity may prohibit health care
682682 12 professionals from practicing aid-in-dying care while
683683 13 performing duties for the entity. A prohibiting entity must
684684 14 provide advance notice in writing to health care professionals
685685 15 and staff at the time of hiring, contracting with, or
686686 16 privileging and on a yearly basis thereafter.
687687 17 (b) If a patient wishes to transfer care to another health
688688 18 care entity, the prohibiting entity shall coordinate a timely
689689 19 transfer of care, including transmitting, without undue delay,
690690 20 the patient's medical records that include notation of the
691691 21 date the patient first made a request concerning aid-in-dying
692692 22 care.
693693 23 (c) No health care entity shall prohibit a health care
694694 24 professional from:
695695 25 (1) providing information to a patient regarding the
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706706 1 patient's health status, including, but not limited to,
707707 2 diagnosis, prognosis, recommended treatment and treatment
708708 3 alternatives, and the risks and benefits of each;
709709 4 (2) providing information regarding health care
710710 5 services available pursuant to this Act, information about
711711 6 relevant community resources, and how to access those
712712 7 resources for obtaining care of the patient's choice;
713713 8 (3) practicing aid-in-dying care outside the scope of
714714 9 the health care professional's employment or contract with
715715 10 the prohibiting entity and off the premises of the
716716 11 prohibiting entity; or
717717 12 (4) being present, if outside the scope of the health
718718 13 care professional's employment or contractual duties, when
719719 14 a qualified patient self-administers medication prescribed
720720 15 pursuant to this Act or at the time of death, if requested
721721 16 by the qualified patient or their representative.
722722 17 (d) A health care entity shall not engage in false,
723723 18 misleading, or deceptive practices relating to its policy
724724 19 around end-of-life care services, including whether it has a
725725 20 policy that prohibits affiliated health care professionals
726726 21 from practicing aid-in-dying care; or intentionally denying a
727727 22 patient access to medication pursuant to this Act by
728728 23 intentionally failing to transfer a patient and the patient's
729729 24 medical records to another health care professional in a
730730 25 timely manner. Intentionally misleading a patient or deploying
731731 26 misinformation to obstruct access to services pursuant to this
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742742 1 Act constitutes coercion or undue influence.
743743 2 (e) The provisions of the Health Care Right of Conscience
744744 3 Act apply to this Act and are incorporated by reference.
745745 4 (f) If any part of this Section is found to be in conflict
746746 5 with federal requirements which are a prescribed condition to
747747 6 receipt of federal funds, the conflicting part of this Section
748748 7 is inoperative solely to the extent of the conflict with
749749 8 respect to the entity directly affected, and such finding or
750750 9 determination shall not affect the operation of the remainder
751751 10 of the Section or this Act.
752752 11 Section 65. Immunities for actions in good faith;
753753 12 prohibition against reprisals.
754754 13 (a) A health care professional or health care entity shall
755755 14 not be subject to civil or criminal liability, licensing
756756 15 sanctions, or other professional disciplinary action for
757757 16 actions taken in good faith compliance with this Act.
758758 17 (b) If a health care professional or health care entity is
759759 18 unable or unwilling to carry out an individual's request for
760760 19 aid in dying, the professional or entity shall, at a minimum:
761761 20 (1) inform the individual of the professional's or
762762 21 entity's inability or unwillingness;
763763 22 (2) refer the individual either to a health care
764764 23 professional who is able and willing to evaluate and
765765 24 qualify the individual or to another individual or entity
766766 25 to assist the requesting individual in seeking aid in
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777777 1 dying, in accordance with the Health Care Right of
778778 2 Conscience Act; and
779779 3 (3) note, in the medical record, the individual's date
780780 4 of request and health care professional's notice to the
781781 5 individual of the health care professional's unwillingness
782782 6 or inability to carry out the individual's request.
783783 7 (c) A health care entity or licensing board shall not
784784 8 subject a health care professional to censure, discipline,
785785 9 suspension, loss of license, loss of privileges, loss of
786786 10 membership, or other penalty for engaging in good faith
787787 11 compliance with this Act.
788788 12 (d) A health care professional, health care entity, or
789789 13 licensing board shall not subject a health care professional
790790 14 to discharge, demotion, censure, discipline, suspension, loss
791791 15 of license, loss of privileges, loss of membership,
792792 16 discrimination, or any other penalty for providing
793793 17 aid-in-dying care in accordance with the standard of care and
794794 18 in good faith under this Act when:
795795 19 (1) engaged in the outside practice of medicine and
796796 20 off of the objecting health care entity's premises; or
797797 21 (2) providing scientific and accurate information
798798 22 about aid-in-dying care to a patient when discussing
799799 23 end-of-life care options.
800800 24 (e) A physician is not subject to civil or criminal
801801 25 liability or professional discipline if, at the request of the
802802 26 qualified patient, the physician is present outside the scope
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813813 1 of the physician's employment contract and off the entity's
814814 2 premises, when the qualified patient self-administers
815815 3 medication pursuant to this Act, or at the time of death.
816816 4 (f) A physician who is present at self-administration may,
817817 5 without civil or criminal liability, assist the qualified
818818 6 patient by preparing the medication prescribed pursuant to
819819 7 this Act.
820820 8 (g) A request by a patient for aid in dying does not alone
821821 9 constitute grounds for neglect or elder abuse for any purpose
822822 10 of law, nor shall it be the sole basis for appointment of a
823823 11 guardian.
824824 12 (h) This Section does not limit civil liability for
825825 13 intentional misconduct.
826826 14 Section 70. Reporting requirements.
827827 15 (a) Within 45 days after the effective date of this Act,
828828 16 the Department shall create and post to its website an
829829 17 Attending Physician Checklist Form and Attending Physician
830830 18 Follow-Up Form to facilitate collection of the information
831831 19 described in this Section. Failure to create or post the
832832 20 Attending Physician Checklist Form, the Attending Physician
833833 21 Follow-Up Form, or both shall not suspend the effective date
834834 22 of this Act.
835835 23 (b) Within 30 calendar days of providing a prescription
836836 24 for medication pursuant to this Act, the attending physician
837837 25 shall submit to the Department an Attending Physician
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848848 1 Checklist Form with the following information:
849849 2 (1) the qualifying patient's name and date of birth;
850850 3 (2) the qualifying patient's terminal diagnosis and
851851 4 prognosis;
852852 5 (3) notice that the requirements under this Act were
853853 6 completed; and
854854 7 (4) notice that medication has been prescribed
855855 8 pursuant to this Act.
856856 9 (c) Within 60 calendar days of notification of a qualified
857857 10 patient's death from self-administration of medication
858858 11 prescribed pursuant to this Act, the attending physician shall
859859 12 submit to the Department, an Attending Physician Follow-Up
860860 13 Form with the following information:
861861 14 (1) the qualified patient's name and date of birth;
862862 15 (2) the date of the qualified patient's death; and
863863 16 (3) a notation of whether the qualified patient was
864864 17 enrolled in hospice services at the time of the qualified
865865 18 patient's death.
866866 19 (d) The Department shall collect and annually review the
867867 20 forms filed pursuant to Section to ensure compliance. If a
868868 21 physician required to report information to the Department
869869 22 under this Act provides an inadequate or incomplete report,
870870 23 the Department shall contact the physician to request an
871871 24 adequate or complete report. The information collected shall
872872 25 be confidential and shall be collected in a manner that
873873 26 protects the privacy of the patient, the patient's family, and
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884884 1 any health care professional involved with the patient under
885885 2 the provisions of this Act. The information shall be
886886 3 privileged and strictly confidential, and shall not be
887887 4 disclosed, discoverable, or compelled to be produced in any
888888 5 civil, criminal, administrative, or other proceeding.
889889 6 (e) One year after the effective date of this Act, and each
890890 7 year thereafter, the Department shall create and post on its
891891 8 website a public statistical report of nonidentifying
892892 9 information. The report shall be limited to:
893893 10 (1) the number of prescriptions for medication written
894894 11 pursuant to this Act;
895895 12 (2) the number of physicians who wrote prescriptions
896896 13 for medication pursuant to this Act;
897897 14 (3) the number of qualified patients who died
898898 15 following self-administration of medication prescribed and
899899 16 dispensed pursuant to this Act; and
900900 17 (4) the number of people who died due to using an
901901 18 aid-in-dying drug, with demographic percentages organized
902902 19 by the following characteristics:
903903 20 (A) age at death;
904904 21 (B) education level;
905905 22 (C) race;
906906 23 (D) gender;
907907 24 (E) type of insurance, including whether the
908908 25 patient had insurance;
909909 26 (F) underlying illness; and
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920920 1 (G) enrollment in hospice.
921921 2 (f) Except as otherwise required by law, the information
922922 3 collected by the Department is not a public record and is not
923923 4 available for public inspection.
924924 5 (g) Willful failure or refusal to timely submit records
925925 6 required under this Act may result in disciplinary action.
926926 7 Section 75. Effect on construction of wills, contracts,
927927 8 and statutes.
928928 9 (a) No provision in a contract, will, or other agreement,
929929 10 whether written or oral, that would determine whether a
930930 11 patient may make or rescind a request pursuant to this Act is
931931 12 valid.
932932 13 (b) No obligation owing under any contract that is in
933933 14 effect on the effective date of this Act shall be conditioned
934934 15 or affected by a patient's act of making or rescinding a
935935 16 request pursuant to this Act.
936936 17 (c) It is unlawful for an insurer to deny or alter health
937937 18 care benefits otherwise available to a patient with a terminal
938938 19 disease based on the availability of aid-in-dying care or
939939 20 otherwise attempt to coerce a patient with a terminal disease
940940 21 to make a request for aid-in-dying medication.
941941 22 Section 80. Insurance or annuity policies.
942942 23 (a) The sale, procurement, or issuance of a life, health,
943943 24 or accident insurance policy, annuity policy, or the rate
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954954 1 charged for a policy shall not be conditioned upon or affected
955955 2 by a patient's act of making or rescinding a request for
956956 3 medication pursuant to this Act.
957957 4 (b) A qualified patient's act of self-administering
958958 5 medication pursuant to this Act does not invalidate any part
959959 6 of a life, health, or accident insurance, or annuity policy.
960960 7 (c) An insurance plan, including medical assistance under
961961 8 Article V of the Illinois Public Aid Code, shall not deny or
962962 9 alter benefits to a patient with a terminal disease who is a
963963 10 covered beneficiary of a health insurance plan, based on the
964964 11 availability of aid-in-dying care, their request for
965965 12 medication pursuant to this Act, or the absence of a request
966966 13 for medication pursuant to this Act. Failure to meet this
967967 14 requirement shall constitute a violation of the Illinois
968968 15 Insurance Code.
969969 16 Section 85. Death certificate.
970970 17 (a) Unless otherwise prohibited by law, the attending
971971 18 physician may sign the death certificate of a qualified
972972 19 patient who obtained and self-administered a prescription for
973973 20 medication pursuant to this Act.
974974 21 (b) When a death has occurred in accordance with this Act,
975975 22 the death shall be attributed to the underlying terminal
976976 23 disease.
977977 24 (1) Death following self-administering medication
978978 25 under this Act does not alone constitute grounds for
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989989 1 postmortem inquiry.
990990 2 (2) Death in accordance with this Act shall not be
991991 3 designated a suicide or homicide.
992992 4 (c) A qualified patient's act of self-administering
993993 5 medication prescribed pursuant to this Act shall not be
994994 6 indicated on the death certificate.
995995 7 Section 90. Liabilities and penalties.
996996 8 (a) Nothing in this Act limits civil or criminal liability
997997 9 arising from:
998998 10 (1) Intentionally or knowingly altering or forging a
999999 11 patient's request for medication pursuant to this Act or
10001000 12 concealing or destroying a rescission of a request for
10011001 13 medication pursuant to this Act.
10021002 14 (2) Intentionally or knowingly coercing or exerting
10031003 15 undue influence on a patient with a terminal disease to
10041004 16 request medication pursuant to this Act or to request or
10051005 17 use or not use medication pursuant to this Act.
10061006 18 (3) Intentional misconduct by a health care
10071007 19 professional or health care entity.
10081008 20 (b) The penalties specified in this Act do not preclude
10091009 21 criminal penalties applicable under other laws for conduct
10101010 22 inconsistent with this Act.
10111011 23 (c) As used in this Section, "intentionally" and
10121012 24 "knowingly" have the meanings provided in Sections 4-4 and 4-5
10131013 25 of the Criminal Code of 2012.
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10241024 1 Section 95. Construction.
10251025 2 (a) Nothing in this Act authorizes a physician or any
10261026 3 other person, including the qualified patient, to end the
10271027 4 qualified patient's life by lethal injection, lethal infusion,
10281028 5 mercy killing, homicide, murder, manslaughter, euthanasia, or
10291029 6 any other criminal act.
10301030 7 (b) Actions taken in accordance with this Act do not, for
10311031 8 any purposes, constitute suicide, assisted suicide,
10321032 9 euthanasia, mercy killing, homicide, murder, manslaughter,
10331033 10 elder abuse or neglect, or any other civil or criminal
10341034 11 violation under the law.
10351035 12 Section 100. Severability. The provisions of this Act are
10361036 13 severable under Section 1.31 of the Statute on Statutes.
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