Recognizes May 1-10, 2019, as Cri du Chat Awareness Week
The resolution's impact is primarily educational, aiming to inform the public about the characteristics and challenges faced by individuals with Cri du Chat syndrome. It notes that affected children typically exhibit several traits at birth, including a high-pitched cry, low birth weight, and poor muscle tone, and may require ongoing support from various professionals to maximize their potential. Recognizing this week will encourage discussions and efforts toward better understanding and support for affected families in Louisiana and beyond.
House Resolution 137 is a resolution recognizing May 1 through 10, 2019, as Cri du Chat Awareness Week in the state of Louisiana. This resolution aims to bring attention to Cri du Chat syndrome, also known as cat cry syndrome or 5p- syndrome. It highlights the fact that every year in the United States, approximately fifty to sixty children are born with this genetic disorder, resulting from a deletion on chromosome five. The resolution underscores the importance of raising awareness about the syndrome, which is often not well-known among the general public.
Overall, the sentiment surrounding HR137 is positive. The resolution is supported by advocates and families of affected children who see the importance of recognizing and raising awareness for Cri du Chat syndrome. By encouraging community engagement and education, HR137 aims to foster a more informed and compassionate society, thus improving the lives of those impacted by the syndrome. The resolution aims to shift the focus from the limitations of these individuals to what they can accomplish with support.
While the resolution itself is largely uncontroversial and focuses on awareness, the broader implications suggest the need for more comprehensive support and resources for families dealing with genetic disorders. Notably, it calls for advocacy for policies that assist not only those diagnosed with Cri du Chat syndrome but also the caregivers and families involved. As such, the resolution may highlight ongoing issues about the availability of medical and educational resources needed to address the unique challenges posed by such conditions.