ENROLLED 2019 Regular Session HOUSE RESOLUTION NO. 137 BY REPRESENTATIVE JAMES A RESOLUTION To recognize May 1 through 10, 2019, as Cri du Chat Awareness Week. WHEREAS, each year, approximately fifty to sixty children are born with 5p- (five p minus) syndrome in the United States, a syndrome that is otherwise known as cat cry syndrome or cri du chat syndrome; and WHEREAS, the syndrome is sometimes called 5p- syndrome because people who are diagnosed with it are missing a portion of chromosome number five, a portion that is called 5p by geneticists; and WHEREAS, at birth, some common characteristics of cri du chat syndrome are a high pitched cry, low birth weight, poor muscle tone, microcephaly, and other potential medical complications; and WHEREAS, children born with this rare genetic defect will most likely require ongoing support from a team of parents, therapists, and medical and educational professionals to help them to achieve their maximum potential; and WHEREAS, there are many families in Louisiana that include a child with cri du chat syndrome, and there are more than one thousand such families in the country; and WHEREAS, individuals with cri du chat syndrome deserve to be recognized for what they can do rather than for what they cannot do; and WHEREAS, because cri du chat syndrome is not well-known, it is necessary to raise awareness about the effects of this syndrome on children and their families; and WHEREAS, one of the goals of Cri du Chat Awareness Week is to provide people with accurate information about cri du chat syndrome, especially families who have a child that has been diagnosed with this syndrome. Page 1 of 2 HR NO. 137 ENROLLED THEREFORE, BE IT RESOLVED that the House of Representatives of the Legislature of Louisiana does hereby recognize May 1 through 10, 2019, as Cri du Chat Awareness Week and does hereby encourage all citizens of the great state of Louisiana to raise awareness about cri du chat syndrome and to advocate for policies that assist persons who are diagnosed with this syndrome and the families that care for them. SPEAKER OF THE HOUSE OF REPRESENTATIVES Page 2 of 2