HLS 24RS-1447 ENGROSSED 2024 Regular Session HOUSE BILL NO. 883 BY REPRESENTATIVES PHELPS, FISHER, AND JACKSON HEALTH CARE/FACILITIES: Allows the provision of data relative to sickle cell disease 1 AN ACT 2To amend and reenact R.S. 40:1125.13, relative to sickle cell disease; to provide for the 3 sickle cell disease registry; to provide for individuals diagnosed with sickle cell 4 disease; to provide for the exchange of data by a healthcare provider with certain 5 associations; and to provide for related matters. 6Be it enacted by the Legislature of Louisiana: 7 Section 1. R.S. 40:1125.13 is hereby amended and reenacted to read as follows: 8 ยง1125.13. Healthcare facilities; reporting of data 9 Upon making a diagnosis of sickle cell disease, a healthcare provider shall 10 provide to the department data regarding the individual who has been diagnosed with 11 the disease. The Louisiana Department of Health shall facilitate an agreement 12 between a healthcare provider and an association that provides information and 13 assistance to patients diagnosed with sickle cell disease that allows for the transfer 14 of information from a healthcare provider sufficient to allow an association to 15 contact the patient. The agreement shall require the Louisiana Department of Health 16 to utilize existing software to expedite communication between a healthcare provider 17 and an association. The form and manner of the data shall be prescribed by the 18 department by rule duly promulgated in accordance with the Administrative 19 Procedure Act. Page 1 of 2 CODING: Words in struck through type are deletions from existing law; words underscored are additions. HLS 24RS-1447 ENGROSSED HB NO. 883 DIGEST The digest printed below was prepared by House Legislative Services. It constitutes no part of the legislative instrument. The keyword, one-liner, abstract, and digest do not constitute part of the law or proof or indicia of legislative intent. [R.S. 1:13(B) and 24:177(E)] HB 883 Engrossed 2024 Regular Session Phelps Abstract: Directs the La. Dept. of Health to facilitate an agreement between healthcare providers and sickle cell associations to communicate patient information. Present law establishes a registry to record data related to individuals diagnosed with sickle cell disease in this state. Present law requires a healthcare provider to provide the La. Dept. of Health with patient date when an individual is diagnosed with sickle cell disease. Present law directs the La. Dept. of Health to promulgate rules to govern the collection of data. Proposed law directs the La. Dept. of Health to facilitate an agreement between healthcare providers and sickle cell associations to communicate patient information. Proposed law directs the La. Dept. of Health to utilize existing software to expedite the communication between healthcare providers and the sickle cell associations. (Amends R.S. 40:1125.13) Summary of Amendments Adopted by House The Committee Amendments Proposed by House Committee on Health and Welfare to the original bill: 1. Directs the La. Dept. of Health to facilitate an agreement between healthcare providers and sickle cell associations to communicate patient information. Page 2 of 2 CODING: Words in struck through type are deletions from existing law; words underscored are additions.